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Abstract
The aim of this study was to describe the experiences and needs of mothers supporting young adolescents with intellectual disabilities through puberty and emerging sexuality. A qualitative descriptive study design was utilised. Six mothers of adolescents with intellectual disabilities were interviewed, using a semi-structured format. Thematic analysis was used to organise the data. Two core themes were identified: the first theme described the reactions of mothers to adolescent development, which included the sub-themes of acceptance, anxiety, and avoidance; the second theme was parental support needs, which included the sub-themes of preparing parents, individualising information, seeking support, and exploring ethics. By describing and understanding mothers’ experiences of supporting young adolescents with intellectual disabilities, this study has highlighted a clear role for professionals in providing individual and family education. It has also suggested the need for a safe forum for parents to explore the ethics of sexuality and disability.
Acknowledgements
Presented at the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) Europe Regional Congress, Vienna, July 2014.