The experiences and needs of mothers supporting young adolescents with intellectual disabilities through puberty and emerging sexuality

References

• Alderson, E. (2012). Supporting people with intellectual disability to express appropriate sexual behaviours: A project of Family Planning WA. Perth, WA: Family Planning WA.
   Google Scholar
• Ballan, M. S. (2012). Parental perspectives of communication about sexuality in families of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(5), 676–684. doi:10.1007/s10803-011-1293-y
   PubMed Web of Science ®Google Scholar
• Burnard, P. (1991). A method of analysing interview transcripts in qualitative research. Nurse Education Today, 11(6), 461–466.
   PubMedGoogle Scholar
• Cuskelly, M., & Bride, R. (2004). Attitudes towards the sexuality of adults with an intellectual disability: parents, support staff and a community sample. Journal of Intellectual and Developmental Disability, 29(3), 255–264. doi:10.1080/13668250412331285136
   Web of Science ®Google Scholar
• Deshaine, M. (2011). How developmental disabilities impact the sexual health of young adults. Sexual health disparities among disenfranchised youth, 10–14. Retrieved from: http://www.pathwaysrtc.pdx.edu/pdf/pbSexualHealthDisparities.pdf
   Google Scholar
• Dewinter, J., Vermeiren, R., Vanwesenbeeck, I., & van Nieuwenhuizen, C. (2013). Autism and normative sexual development: A narrative review. Journal of Clinical Nursing, 22(23–24), 3467–3483. doi:10.1111/jocn.12397
   PubMed Web of Science ®Google Scholar
• Duke, T. (2011). Lesbian, gay, bisexual and transgender youth with disabilities; A meta-synthesis. Journal of LGBT Youth, 8, 1–52. doi:10.1080/19361653.2011.519181
   Google Scholar
• Esmail, S., Darry, K., Walter, A., & Knupp, H. (2010). Attitudes and perceptions towards disability and sexuality. Disability and Rehabilitation, 32(14), 1148–1155. doi:10.3109/09638280903419277
   PubMed Web of Science ®Google Scholar
• Ford, E., Ptasznik, G., Blumberg, M., Clayton, S., & Beeching, S. (2012). Puberty: A guide for teenages with autism spectrum disorder and their parents. Melbourne: LaTrobe University.
   Google Scholar
• Gougeon, N. (2009). Sexuality education for students with intellectual disabilities, a critical pedagogical approach: Outing the ignored curriculum. Sex Education, 8(3), 277–291.
   Google Scholar
• Grieveo, A., McLaren, S., & Lindsay, W. (2007). An evaluation of research and training resources for the sex education of people with moderate to severe learning disabilities. British Journal of Learning Disabilities, 35(1), 30–37. doi:10.1111/j.1468-3156.2006.00401.x
   Google Scholar
• Harader, D., Fullwood, H., & Hawthorne, M. (2009). Sexuality among adolescents with moderate disabilities. Prevention Research, 16, 17–22.
   Google Scholar
• Hartman, D. (2014). Sexuality and relationship education for children and adolescents with autism spectrum disorders. London: Jessica Kingsley Publishers.
   Google Scholar
• Higgins, D. (2010). Sexuality, human rights and safety for people with disabilities: The challenge of intersecting identities. Sexual and Relationship Therapy, 25(3), 245–257. doi:10.1080/14681994.2010.489545
   Web of Science ®Google Scholar
• Lesseliers, J., & Van Hove, G. (2002). Barriers to the development of intimate expression of sexuality among people with developmental disabilties: Their perceptions. Research and Practice for Persons with Severe Disabilities, 27(1), 69–81.
   Web of Science ®Google Scholar
• Lofgren-Martenson, L. (2012). “I want to do it right!” A pilot study of Swedish sex education and young people with intellectual disability. Sexuality and Disability, 30, 209–225. doi:10.1007/s11195-011-9239-z
   Web of Science ®Google Scholar
• Murphy, N. A., & Elias, E. R. (2006). Sexuality of children and adolescents with developmental disabilities. Pediatrics, 118(1), 398–403. doi:10.1542/peds.2006-1115
   PubMed Web of Science ®Google Scholar
• Neergaard, M. A., Olesen, F., Andersen, R. S., & Sondergaard, J. (2009). Qualitative description - the poor cousin of health research? BMC Medical Research Methodology, 9, 52. doi:10.1186/1471-2288-9-52
   PubMed Web of Science ®Google Scholar
• Nichols, S., & Blakeley-Smith, A. (2010). “I'm not sure we're ready for this…” Working with families towards facilitating healthy sexuality for individuals with Autism Spectrum Disorder. Social Work in Mental Health, 8, 72–91. doi:10.1080/15332980902932383
   Google Scholar
• Pownall, J. D., Jahoda, A., Hastings, R., & Kerr, L. (2011). Sexual understanding and development of young people with intellectual disabilities: Mothers' perspectives of within-family context. American Journal on Intellectual and Developmental Disabilities, 116(3), 205–219. doi:10.1352/1944-7558-116.3.205
   PubMedGoogle Scholar
• Pownall, J. D., Jahoda, A., & Hastings, R. P. (2012). Sexuality and sex education of adolescents with intellectual disability: Mothers' attitudes, experiences, and support needs. Intellectual and Developmental Disabilities, 50(2), 140–154. doi:10.1352/1934-9556-50.2.140
   PubMed Web of Science ®Google Scholar
• World Health Organization. (2010). Sexual and reproductive health: defining sexual health. Retrieved from http://www.who.int/reproductivehealth/topics/sexual_health/sh_definitins/en/index.html
   Google Scholar
• Wilson, N., Shuttleworth, R., Stancliffe, R., & Parmenter, T. (2012). Masculinity theroy in applied research with men and boys with intellectual disability. Intellectual and Developmental Disabilities, 50(3), 261–272. doi:10.1352/1934-9556-50.3.261
   PubMed Web of Science ®Google Scholar
• Young, R., Gore, N., & McCarthy, M. (2012). Staff attitudes towards sexuality in relation to gender of people with intellectual disability: A qualitative study. Journal of Intellectual and Developmental Disability, 37(4), 343–347. doi:10.3109/13668250.2012.704983
   PubMed Web of Science ®Google Scholar