Exploring researchers’ experiences of working with people with acquired brain injury

Abstract

Purpose: This study aimed to investigate the challenges and positive experiences of researchers who work with people who have experienced an acquired brain injury and their families.

Methods: People who were currently or had previously worked as a researcher in the field of acquired brain injury (using either quantitative or qualitative methods) were invited to participate in a focus group or individual interview about their experiences. An expert reference group meeting was held to discuss strategies that could be implemented to enhance the researcher experience based on the interview data.

Results: A total of 19 researchers who worked across four different research teams took part in the study. Six inter-connected themes were identified: researcher motivation, meaning and fulfillment; human connection; knowing and understanding the role; complexity of brain injury in the research context; the research process; and state of the researcher. A number of recommendations for supporting researchers more effectively were identified.

Discussion: Researchers described a number of positive aspects as well as tensions they encountered in their role. The findings highlight the need to ensure researchers are supported effectively to ensure the quality of research studies in the field of brain injury.

• Brain injury
• experience
• participation
• qualitative descriptive
• researcher–subject relations

Acknowledgements

We would also like to acknowledge the involvement and expertise of Gill Stokes in conducting the interviews with researchers in this study.

Declaration of interest

All authors are researchers working with people who have experienced an acquired brain injury. This study was funded by a development grant from the Person Centred Research Centre, Auckland University of Technology.