Exploring researchers’ experiences of working with people with acquired brain injury

References

• World Health Organization. Neurological disorders: Public health challenges. Geneva, Switzerland: World Health Organization; 2006
   Google Scholar
• National Institute of Neurological Disorders and Stroke. Traumatic brain injury: Hope through research. Bethesda, MD: National Institute of Neurological Disorders and Stroke; 2002
   Google Scholar
• Stables R. The silent epidemic of ABI. Health Matters 2010;6:110
   Google Scholar
• Centers for Disease Control and Prevention. Injury prevention & control: Traumatic brain injury; 2014. Available online at: http://www.cdc.gov/TraumaticBrainInjury/index.html, accessed 3 February 2014
   Google Scholar
• Feigin VL, Barker-Collo S, Parag V, Senior H, Lawes CM, Ratnasabapathy Y, Glen E, ASTRO study group. Auckland stroke outcomes study. part 1: Gender, stroke types, ethnicity, and functional outcomes 5 years poststroke. Neurology 2010;75:1597–1607
   PubMed Web of Science ®Google Scholar
• Dennis M, O’Rourke S, Lewis S, Sharpe M, Warlow C. Emotional outcomes after stroke: Factors associated with poor outcome. Journal of Neurology Neurosurgery and Psychiatry 2000;68:47–52
   PubMed Web of Science ®Google Scholar
• David A, Pelosi A, McDonald E, Stephens D, Ledger D, Rathbone R, Mann A. Tired, weak, or in need of rest: Fatigue among general practice attenders. British Medical Journal 1990;301:1199–1202
   PubMed Web of Science ®Google Scholar
• Hillier SL, Sharpe MH, Metzer J. Outcomes 5 years post traumatic brain injury (with further reference to neurophysical impairment and disability). Brain Injury 1997;11:661–675
   PubMed Web of Science ®Google Scholar
• Middelboe T, Andersen HS, Birket-Smith M, Friis M. Minor head injury: Impact on general health after 1 year. A prospective follow-up study. Acta Neurologica Scandinavica 1992;85:5–9
   PubMed Web of Science ®Google Scholar
• Oddy M, Coughlan T, Tyerman A, Jenkins D. Social adjustment after closed head injury: A further follow-up seven years after injury. Journal of Neurology, Neurosurgery and Psychiatry 1985;48:564–568
   PubMed Web of Science ®Google Scholar
• Ouellet M, Morin CM. Fatigue following traumatic brain injury: Frequency, characteristics, and associated factors. Rehabilitation Psychology 2006;51:140
   Web of Science ®Google Scholar
• van Zomeren AH, van den Burg W. Residual complaints of patients two years after severe head injury. Journal of Neurology, Neurosurgery and Psychiatry 1985;48:21–28
   PubMed Web of Science ®Google Scholar
• Wrightson P, Gronwall D. Time off work and symptoms after minor head injury. Injury 1981;12:445–454
   PubMed Web of Science ®Google Scholar
• Nochi M. ‘Loss of self’ in the narratives of people with traumatic brain injuries: A qualitative analysis. Social Science in Medicine 1998;46:869–878
   PubMed Web of Science ®Google Scholar
• Lincoln NB, Brinkmann N, Cunningham S, Dejaeger E, De Weerdt W, Jenni W, Mahdzir A, Putman K, Schupp W, Schuback B, De Wit L. Anxiety and depression after stroke: A 5 year follow-up. Disability & Rehabilitation 2013;35:140–145
   PubMed Web of Science ®Google Scholar
• Jorge RE, Starkstein SE. Pathophysiologic aspects of major depression following traumatic brain injury. Journal of Head Trauma Rehabilitation 2005;20:475–487
   PubMed Web of Science ®Google Scholar
• Hyder AA, Wunderlich CA, Puvanachandra P, Gururaj G, Kobusingye OC. The impact of traumatic brain injuries: A global perspective. NeuroRehabilitation 2007;22:341–353
   PubMed Web of Science ®Google Scholar
• National Institute on Aging, World Health Organisation. Global health and aging. Geneva, Switzerland: WHO; 2011
   Google Scholar
• Rosewilliam S, Roskell CA, Pandyan AD. A systematic review and synthesis of the quantitative and qualitative evidence behind patient-centred goal setting in stroke rehabilitation. Clinical Rehabilitation 2011;25:501–514
   PubMed Web of Science ®Google Scholar
• Levack WM, Kayes NM, Fadyl JK. Experience of recovery and outcome following traumatic brain injury: A metasynthesis of qualitative research. Disability & Rehabilitation 2010;32:986–999
   PubMed Web of Science ®Google Scholar
• Deprince AP, Chu A. Perceived benefits in trauma research: Examining methodological and individual difference factors in responses to research participation. Journal of Empirical Research on Human Research Ethics 2008;3:35–47
   PubMed Web of Science ®Google Scholar
• Scott DA, Valery PC, Boyle FM, Bain CJ. Does research into sensitive areas do harm? Experiences of research participation after a child’s diagnosis with Ewing’s sarcoma. Medical Journal of Australia 2002;177:507–511
   PubMed Web of Science ®Google Scholar
• Kerrison S, Laws S, Cane M, Thompson A. The patient’s experience of being a human subject. Journal of the Royal Society of Medicine 2008;101:416–422
   PubMed Web of Science ®Google Scholar
• Theadom A, Fadyl J, Hollands T, Foster A, McPherson KM. Exploring participant experiences of research after traumatic brain injury. Brain Injury 2014;28(7):995–1002
   Google Scholar
• Derrett S, Colhoun S. Being a quantitative interviewer: Qualitatively exploring interviewers’ experiences in a longitudinal cohort study. BMC Medical Research Methodology 2011;11:165
   Google Scholar
• Paterson BL, Gregory D, Thorne S. A protocol for researcher safety. Qualitative Health Research 1999;9:259–269
   PubMed Web of Science ®Google Scholar
• Parker N, O’Reilly M. ‘We are alone in the house’: A case study addressing researcher safety and risk. Qualitative Research Psychology 2013;10:341–354
   Web of Science ®Google Scholar
• Hubbard G, Backett-Milburn K, Kemmer D. Working with emotion: Issues for the researcher in fieldwork and teamwork. International Journal of the Society of Research Methodology 2001;4:119–137
   Google Scholar
• Wray N, Markovic M, Manderson L. ‘Researcher saturation’: The impact of data triangulation and intensive-research practices on the researcher and qualitative research process. Qualitative Health Research 2007;17:1392–1402
   PubMed Web of Science ®Google Scholar
• Paterson B, Scott-Findlay S. Critical issues in interviewing people with traumatic brain injury. Qualitative Health Research 2002;12:399–409
   PubMed Web of Science ®Google Scholar
• Judge TA, Thoresen CJ, Bono JE, Patton GK. The job satisfaction–job performance relationship: A qualitative and quantitative review. Psychological Bulletin 2001;127:376
   PubMed Web of Science ®Google Scholar
• Sandelowski M. Focus on research methods-whatever happened to qualitative description? Research in Nursing and Health 2000;23:334–340
   PubMed Web of Science ®Google Scholar
• Neergaard MA, Olesen F, Andersen RS, Sondergaard J. Qualitative description–the poor cousin of health research? BMC Medical Research Methodology 2009;9:52
   PubMed Web of Science ®Google Scholar
• Glaser BG, Strauss AL. The discovery of grounded theory: Strategies for qualitative research. London UK: Aldine Transaction; 1967
   Google Scholar
• Taylor SJ, Bogdan R. Introduction to qualitative research methods: The search for meanings. New York: Wiley; 1984
   Google Scholar
• Dickson-Swift V, James EL, Kippen S, Liamputtong P. Researching sensitive topics: Qualitative research as emotion work. Qualitative Research 2009;9:61–79
   Web of Science ®Google Scholar
• Warr DJ. Stories in the flesh and voices in the head: Reflections on the context and impact of research with disadvantaged populations. Qualitative Health Research 2004;14:578–587
   PubMed Web of Science ®Google Scholar
• Schönberger M, Humle F, Zeeman P, Teasdale TW. Working alliance and patient compliance in brain injury rehabilitation and their relation to psychosocial outcome. Neuropsychology Rehabilitation 2006;16:298–314
   PubMed Web of Science ®Google Scholar
• Schönberger M, Humle F, Teasdale TW. Subjective outcome of brain injury rehabilitation in relation to the therapeutic working alliance, client compliance and awareness. Brain Injury 2006;20:1271–1282
   PubMed Web of Science ®Google Scholar
• Hall AM, Ferreira PH, Maher CG, Latimer J, Ferreira ML. The influence of the therapist–patient relationship on treatment outcome in physical rehabilitation: A systematic review. Physical Therapy 2010;90:1099–1110
   PubMed Web of Science ®Google Scholar
• Sherer M, Evans CC, Leverenz J, Stouter J, Irby JW Jr, Eun Lee J, Yablon SA. Therapeutic alliance in post-acute brain injury rehabilitation: Predictors of strength of alliance and impact of alliance on outcome. Brain Injury 2007;21:663–672
   PubMed Web of Science ®Google Scholar
• Kayes NM, McPherson KM. Human technologies in rehabilitation: ‘Who’ and ‘how’ we are with our clients. Disability & Rehabilitation 2012;34:1907–1911
   PubMed Web of Science ®Google Scholar
• Bloor M, Fincham B, Sampson H. Qualiti (NCRM) commissioned inquiry into the risk to well-being of researchers in qualitative research. Cardiff, UK: Cardiff University; 2008. http://www.cardiff.ac.uk/socsi/qualiti/CIReport.pdf
   Google Scholar
• Woodby LL, Williams BR, Wittich AR, Burgio KL. Expanding the notion of researcher distress: The cumulative effects of coding. Qualitative Health Research 2011;21:830–838
   PubMed Web of Science ®Google Scholar