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Current Medical Research and Opinion Volume 37, 2021 - Issue 10
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Rare Diseases

The impact of caring for an individual with aromatic l-amino acid decarboxylase (AADC) deficiency: a qualitative study and the development of a conceptual model

Hanna Skrobanskia Patient-Centred Outcomes Research, Acaster Lloyd Consulting Ltd, London, United KingdomCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0003-0868-8914
ORCID Icon,
Kate Williamsa Patient-Centred Outcomes Research, Acaster Lloyd Consulting Ltd, London, United KingdomORCID Iconhttps://orcid.org/0000-0003-4874-0334
ORCID Icon,
Christian Wernerb Global Medical Affairs, PTC Therapeutics Germany GmbH, Frankfurt am Main, Germany
,
Sian O’Neillc Patient Engagement EMEA, PTC Therapeutics International Limited, Ireland
,
Katharina Bueschd Global Health Economics and Outcomes Research, PTC Therapeutics Switzerland GmbH, Steinhausen/Zug, Switzerland
&
Sarah Acastera Patient-Centred Outcomes Research, Acaster Lloyd Consulting Ltd, London, United Kingdom
Pages 1821-1828 | Received 03 May 2021, Accepted 12 Jul 2021, Published online: 01 Aug 2021

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