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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 24, 2023 - Issue 3-4
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Quality of Life & Burden

Stigma experienced by ALS/PMA patients and their caregivers: a mixed-methods study

Marion Sommers-Spijkerman1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andCorrespondence[email protected]
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Melinda S. Kavanaugh3 Helen Bader School of Social Welfare, University of Wisconsin-Milwaukee, Milwaukee, WI, USAView further author information
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Esther Kruitwagen-Van Reenen1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andView further author information
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Aimée Zwarts-Engelbert1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The NetherlandsView further author information
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Johanna M. A. Visser-Meily1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andORCID Iconhttps://orcid.org/0000-0002-5955-8012View further author information
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Anita Beelen1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andView further author information
Pages 327-338 | Received 15 Sep 2022, Accepted 15 Dec 2022, Published online: 02 Jan 2023

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