Open access
573
Views
0
CrossRef citations to date
0
Altmetric
Research Article
What, how and when do families communicate about ALS? A qualitative exploration of parents’ and children’s perceptions
Marion Sommers-Spijkerman1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, andCorrespondence[email protected]
https://orcid.org/0000-0003-0648-8708View further author information
Anna Stukker1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The NetherlandsView further author information
, Melinda S. Kavanaugh3 Helen Bader School of Social Welfare, University of Wisconsin-Milwaukee, Milwaukee, WI, USA
https://orcid.org/0000-0001-7858-9909View further author information
Marjolijn Ketelaar1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, and
https://orcid.org/0000-0002-8324-518XView further author information
Johanna M. A. Visser-Meily1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, and
https://orcid.org/0000-0002-5955-8012View further author information
Anita Beelen1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands;2 Center of Excellence for Rehabilitation Medicine, Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands, and
https://orcid.org/0000-0002-1269-0710View further author information
Pages 256-263
|
Received 25 Aug 2023, Accepted 27 Nov 2023, Published online: 09 Dec 2023
Reprints and Permissions
Permission is granted subject to the terms of the License under which the work was published. Permission will be required if your reuse is not covered by the terms of the License.
To request a reprint or commercial or derivative permissions for this article, please click on the relevant link below.
For more information please visit our Permissions help page.
Related research
People also read lists articles that other readers of this article have read.
Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.
Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.