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Journal of Multidisciplinary Healthcare Volume 9, 2016 - Issue
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Original Research

Development of the parental needs scale for rare diseases: a tool for measuring the supportive care needs of parents caring for a child with a rare disease

Lemuel J Pelentsov1 School of Nursing and MidwiferyCorrespondence[email protected]
,
Andrea L Fielder2 Sansom Institute for Health Research;3 School of Pharmacy and Medical Sciences, University of South Australia, Adelaide, SA, Australia
,
Thomas A Laws4 School of Nursing and Midwifery, Faculty of Health, Keele University, Staffordshire, UK
&
Adrian J Esterman1 School of Nursing and Midwifery;2 Sansom Institute for Health Research;5 Australian Institute for Health and Tropical Medicine, James Cook University, Cairns, QLD, Australia
Pages 425-433 | Published online: 09 Sep 2016

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