Parents’ experiences of caring for a child younger than two years of age treated with continuous subcutaneous insulin infusion

REFERENCES

• Wennick A, et al Everyday experience of families three years after diagnosis of type 1 diabetes in children: a research paper. J Pediatr Nurs 2009;24 (3):222–30.
   Google Scholar
• Patterson CC, et al. Incidence trends for childhood type 1 diabetes in Europe dur-ing 1989-2003 and predicted new cases 2005-20: a multicentre prospective regis-tration study. Lancet 2009;373(9680): 2027–33.
   PubMed Web of Science ®Google Scholar
• Metz C, et al. Neonatal diabetes mellitus: chromosomal analysis in transient and permanent cases. J Pediatr 2002;141(4): 483–9.
   Web of Science ®Google Scholar
• Bharucha T, et al Neonatal diabetes mel-litus: Insulin pump as an alternative management strategy. J Paediatr Child Health 2005;41 (9-10):522–6.
   Web of Science ®Google Scholar
• Iafusco D, et al. Permanent diabetes mel-litus in the first year of life. Diabetologia 2002;45 (6):798–804.
   Web of Science ®Google Scholar
• Greeley SA, et al Neonatal diabetes mel-litus: a model for personalized medicine. Trends End ocrinol Metab 2010;21(8): 464–72.
   Web of Science ®Google Scholar
• Rubio-Cabezas O, et al. KATP channel mutations in infants with permanent dia-betes diagnosed after 6 months of life. Pediatric Diabetes 2012;13(4):322–5.
   Web of Science ®Google Scholar
• Karges B, et al. Management of diabetes mellitus in infants. Nat Rev Endocrinol 2012;8(4):201–11.
   Web of Science ®Google Scholar
• Olinder AL, et al Treatment with CSII in two infants with neonatal diabetes melli-tus. Pediatric Diabetes 2006;7(5):284–8.
   Web of Science ®Google Scholar
• Tubiana-Rufl N. Insulin pump therapy in neonatal diabetes. Endocr Dev 2007; 12:67–74.
   Google Scholar
• Wintergerst KA, et al Continuous subcu-taneous insulin infusion in neonatal dia-betes mellitus. Pediatric Diabetes 2004; 5(4):202–6.
   Web of Science ®Google Scholar
• Olinder AL, et al Missed bolus doses: devastating for metabolic control in CSII-treated adolescents with type 1 dia-betes. Pediatric Diabetes 2009;10 ( 2) :142–8.
   PubMed Web of Science ®Google Scholar
• Pankowska E, et al Memory of insulin pumps and their record as a source of information about insulin therapy in children and adolescents with type 1 dia-betes. Diabetes Technol Ther 2005;7(2): 308–14.
   Google Scholar
• Eugster EA, Francis G. Position statement: Continuous subcutaneous insulin infu-sion in very young children with type 1 diabetes. Pediatrics 2006;118 (4):e1244–9.
   Web of Science ®Google Scholar
• Litton J, et al Insulin pump therapy in toddlers and preschool children with type 1 diabetes mellitus. J Pediatr 2002;141 (4) :490–5.
   PubMed Web of Science ®Google Scholar
• Wilson DM, et al. A two-center random-ized controlled feasibility trial of insulin pump therapy in young children with diabetes. Diabetes Care 2005;28(1):15–9.
   PubMed Web of Science ®Google Scholar
• Lindholm Olinder A, et al. CSII in young girls: Do young girls accept pump ther-apy? A two-year follow-up study. Eur Diabetes Nurs 2007;4(1) :34–9.
   Google Scholar
• Churchill JN, et al Use of continuous insulin infusion pumps in young chil-dren with type 1 diabetes: a systematic review. J Pediatr Health Care 2009; 23(3):173–9.
   Web of Science ®Google Scholar
• Sullivan-Bolyai S, et al Parents' reflec-tions on managing their children's dia-betes with insulin pumps. J Nurs Scholarsh 2004;36(4):316–23.
   Web of Science ®Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004;24(2):105–12.
   PubMed Web of Science ®Google Scholar
• Hall EO. Being in an alien world: Danish parents' lived experiences when a new-born or small child is critically ill. Scand J Caring Sci 2005;19(3):179–85.
   PubMed Web of Science ®Google Scholar
• Wennick A, Hallstrom I. Swedish fami-lies' lived experience when a child is first diagnosed as having insulin-dependent diabetes mellitus: An ongoing learning process. J Fam Nurs 2006;12(4) :368–89.
   Web of Science ®Google Scholar
• Lowes L, et al Newly diagnosed child-hood diabetes: a psychosocial transition for parents? J Adv Nurs 2005;50(3): 253–61.
   Web of Science ®Google Scholar
• Smaldone A, Ritholz MD. Perceptions of parenting children with type 1 diabetes diagnosed in early childhood. J Pediatr Health Care 2011;25(2):87–95.
   PubMed Web of Science ®Google Scholar
• Armentrout D. Neonatal diabetes melli-tus. J Pediatr Health Care 1995;9(2) :75–8.
   Google Scholar
• The United Nations Convention on the Rights of the Child. Geneva: United Nations; 1989.
   Google Scholar
• Lindahl B, Lindblad BM. Family mem-bers' experiences of everyday life when a child is dependent on a ventilator: a metasynthesis study. J Fam Nurs 2011; 17(2):241–69.
   PubMed Web of Science ®Google Scholar
• Lindström C, et al Parental burnout in relation to sociodemographic, psy-chosocial and personality factors as well as disease duration and glycaemic con-trol in children with type 1 diabetes mellitus. Acta Paediatrica 2011;100(7): 1011–7.
   PubMed Web of Science ®Google Scholar
• Sullivan-Bolyai S, et al Helping other mothers effectively work at raising young children with type 1 diabetes. Diabetes Educ 2004 2004;30(3) :476–84.
   PubMed Web of Science ®Google Scholar