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Original Articles

Parents’ perceptions of oral health, general health and dental health care for children with Down syndrome in Sweden

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Pages 248-255 | Received 20 Apr 2020, Accepted 09 Sep 2020, Published online: 05 Oct 2020

References

  • Socialstyrelsen, Fosterskador och kromosomavvikelser [Internet]. 2014. [cited 2020 Feb 14]. Available from: https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/statistik/2016.
  • Aldossary M. Down syndrome: a review for the dental professionals. IOSR JDMS. 2017;16(07):61–66.
  • Lewis MP, Bell EB, Evans AK. A comparison of tympanometry with 226 Hz and 1000 Hz probe tones in children with Down syndrome. Int J Pediatr Otorhinolaryngol. 2011;75(12):1492–1495.
  • Söderman L, Nordlund M, Lindahl H. Utvecklingsstörning/funktionshinder. Stockholm: Liber; 2005.
  • Durhan MA, Agrali OB, Kiyan E, et al. Does obstructive sleep apnea affect oral and periodontal health in children with Down syndrome? A preliminary study. Niger J Clin Pract. 2019;22(9):1175–1179.
  • Ghaith B, Al Halabi M, Khamis A, et al. Oral health status among children with Down Syndrome in Dubai, United Arab Emirates. J Int Soc Prevent Communit Dent. 2019;9(3):232–239.
  • Hyder M, Tanboga I, Kalyoncu I, et al. Are Down syndrome children more vulnerable to tooth wear?. J Intellect Disabil Res. 2019; 63(11):1324–1333.
  • Areias C, Sampaio-Maia B, Macho V, et al. Oral health in Down syndrome, health problems in Down syndrome. In: Dey S, editor. Prenatal diagnosis and screening for Down syndrome. London: IntechOpen; 2015. p. 45–68.
  • Macho V, Coelho A, Areias C, et al. Craniofacial features and specific oral characteristics of Down syndrome children. Oral Health Dent Manag. 2014; 13(2):408–411.
  • Anil MA, Shabnam S, Narayanan S. Feeding and swallowing difficulties in children with Down syndrome. J Intellect Disabil Res. 2019;63(8):992–1014.
  • Diéguez-Pérez M, de Nova-Garcia MJ, Mourelle-Martinez MR, et al. Oral health in children with physical (Cerebral Palsy) and intellectual (Down syndrome) disabilities: systematic review 1. Clin Exp Dent. 2016;8(3):337–343.
  • Doriguêtto P, Carrada CF, Scalioni F, et al. Malocclusion in children and adolescents with Down syndrome: a systematic review and meta-analysis. Int J Paediatr Dent. 2019;29(4):524–541.
  • Marques LS, Alcântara CEP, Pereira LJ, et al. Down syndrome: a risk factor for malocclusion severity. Braz Oral Res. 2015;29:44–47.
  • Bauer D, Evans CA, Begole E, et al. Severity of occlusal disharmonies in Down syndrome. Int J Dent. 2012;2012(1):872367. Epub 2012 Aug 15.
  • Lee CF, Lee CH, Hsueh WY, et al. Prevalence of obstructive sleep apnea in children with Down syndrome: a meta-analysis. J. Clin Sleep Med. 2018;14(05):867–875.
  • Amaral Loureiro AC, Oliveira Costa F, Eustáquio da Costa J. The impact of periodontal disease on the quality of life of individuals with Down syndrome. Downs Syndr Res Pract. 2007;12(1):50–54.
  • Mohiddin G, Narayanaswamy AB, Masthan KMK, et al. Oral candidal and streptococcal carriage in Down syndrome patients. J Nat Sci Biol Med. 2015;6(2):300–305.
  • Marro F, Fernandez C, Martens L, et al. Erosive tooth wear in special Olympic athletes with intellectual disabilities. BMC Oral Health. 2019;19(1):37.
  • Deps T, Angelo G, Martins C, et al. Association between dental caries and Down syndrome: a systematic review and meta-analyses. PLoS One. 2015;10(6):e0127484.
  • Hennequin M, Faulks D, Veyrune JL, et al. Significance of oral health in persons with Down syndrome: a literature review. Dev Med Child Neurol. 1999;41(4):275–283.
  • SFS. 1985. National Dental Service Act [Tandvårdslag]. Stockholm: Socialdepartementet; 1985. p. 125.
  • Klingberg G, Andersson-Wenckert I, Grindefjord M, et al. Specialist paediatric dentistry in Sweden 2008 – a 25-year perspective. Int J Paediatr Dent. 2010;20(5):313–321.
  • Koch G, Poulsen S, Twetman S. Caries prevention. Pediatric dentistry: a clinical approach. Chichester: Wiley-Blackwell; 2017. p. 114–129.
  • Annerén G, Wester Oxelgren K, Jahnke, et al. Downs syndrome: medical guidelines for children 0-18 years. 2013;(3):5–6. [In Swedish]
  • Norderyd J, Lillvist A, Klingberg G, et al. Oral health, medical diagnoses, and functioning profiles in children with disabilities receiving paediatric specialist dental care - a study using the ICF-CY. Disabil Rehabil. 2015;37(16):1431–1438.
  • Norderyd J, Klingberg G, Faulks D, et al. Specialised dental care for children with complex disabilities focusing on child's functioning and need for general anaesthesia. Disabil Rehabil. 2017;39(24):2484–2491.
  • Descamps I, Fernandez C, Van Cleynenbreugel D, et al. Dental care in children with Down syndrome: a questionnaire for Belgian dentists. Med Oral. 2019;24(3):e385.
  • Scalioni F, Carrada CF, Abreu L, et al. Perception of parents/caregivers on the oral health of children/adolescents with Down syndrome. Spec Care Dentist. 2018;38(6):382–390.
  • Case A, Paxson C. Parental behavior and child health. Health Aff (Millwood). 2002;21(2):164–178.
  • Skeie M, Espelid P, Riordan PJ, et al. Caries increment in children aged 3-5 years in relation to parents' dental attitudes: Oslo, Norway 2002 to 2004. Community Dent Oral Epidemiol. 2008;36(5):441–450.
  • Kramer A, Hakeberg M, Petzold M, et al. Demographic factors and dental health of Swedish children and adolescents. Acta Odontol Scand. 2016;74(3):178–185.
  • Oliveira A, Pordeus I, Luz C, et al. Mothers' perceptions concerning oral health of children and adolescents with Down syndrome: a qualitative approach. Eur J Paediatr Dent. 2010;11(1):27–30.
  • Randell D, Harth S, Seow W. Preventive dental health practices of non-institutionalized Down syndrome children: a controlled study. I. Clin Pediatr Dent. 1992;16(3):225–229.
  • Descamps I, Marks L. Oral health in children with Down syndrome: Parents’ views on dental care in Flanders (Belgium). Eur J Paediatr Dent. 2015;16(2):163–168.
  • Olsson LM, Elgmark Andersson E, Granlund M, et al. Social service utilisation patterns among children with mild intellectual disability–differences between children integrated into mainstream classes and children in self-contained classes. Eur J Special Needs Educ. 2015;30(2):220–236.
  • Allison PJ, Hennequin M. The oral assesment in Down syndrome questionnaire (OADS) Development of an instrument to evaluate oral health problems in individuals with Down syndrome. Community Dent Health. 2000;17(3):172–179.
  • Collado V, Faulks D, Hennequin M. A survey of the difficulties encountered during routine hygiene and health care by persons with special needs. Disabil Rehabil. 2008;30(14):1047–1054.
  • Kaye PL, Fiske J, Bower EJ, et al. Views and experiences of parents and siblings of adults with Down syndrome regarding oral healthcare: a qualitative and quantitative study. Br Dent J. 2005;198(9):571–578.
  • Allison PJ, Hennequin M, Faulks D. Dental care access among individuals with Down syndrome in France. Spec Care Dentist. 2000;20(1):28–34.
  • Streiner D, Norman G, Cairney J. Health measurement scales: a practical guide to their development and use. USA: Oxford University Press; 2015.
  • Norderyd J, Faulks D, Molina G, et al. Which factors most influence referral for restorative dental treatment under sedation and general anaesthesia in children with complex disabilities: caries severity, child functioning, or dental service organisation? Int J Paediatr Dent. 2018;28(1):71–82.
  • Albrecht GL, Devlieger PJ. The disability paradox: high quality of life against all odds. Soc Sci Med. 1999;48(8):977–988.
  • Espinoza KM, Heaton L, Baylor C. Communication with children with special healthcare needs in dental practice. Dental Care for Children with Special Needs. Cham: Springer; 2019. p. 51–75.
  • Beukelman DR, Mirenda P. Augmentative and alternative communication: supporting children and adults with complex communication needs. Baltimore: Paul H. Brookes Pub; 2013.
  • Grewal N, Sethi T, Grewal S. Widening horizons through alternative and augmentative communication systems for managing children with special health care needs in a pediatric dental setup. Spec Care Dentist. 2015;35(3):114–119.
  • Adair SM. Behavior management conference panel I report - rationale for behavior management techniques in pediatric dentistry. Pediatr Dent. 2004; 26(2):167–170.
  • Hallberg U, Klingberg G. Medical health care professionals' assessments of oral health needs in children with disabilities: a qualitative study. Eur J Oral Sci. 2005;113(5):363–368.
  • Dao L, Zwetchkenbaum S, Inglehart M. General dentists and special needs patients: does dental education matter? J Dent Educ. 2005;69(10):1107–1115.
  • UNCRC. United Nations Convention on the Rights of the Child. Office of the United Nations High Commissioner for Human Rights. [Internet]. 1989. [cited 2020 Feb 5]. Available from: https://www.ohchr.org/en/professionalinterest/pages/crc.aspx.
  • Nilsson S, Bjorkman B, Almqvist AL, et al. Children's voices differentiating a child perspective from a child's perspective. Dev Neurorehabil. 2015;18(3):162–168.
  • Cardiff S, McCormack B, McCance T. Person-centred leadership: a relational approach to leadership derived through action research. J Clin Nurs. 2018;27(15-16):3056–3069.
  • Peres MA, Macpherson LM, Weyant RJ, et al. Oral diseases: a global public health challenge. Lancet. 2019;394(10194):249–260.
  • Nind M. The practical wisdom of inclusive research. Qual Res. 2017;17(3):278–288.
  • Wright KB. Researching Internet-based populations: advantages and disadvantages of online survey research, online questionnaire authoring software packages, and web survey services. J Comput Mediated Commun. 2006;10(3):00–00.
  • Schwendicke F, Dörfer CE, Schlattmann P, et al. Socioeconomic inequality and caries: a systematic review and meta-analysis. J Dent Res. 2015;94(1):10–18.
  • Allen L, Williams J, Townsend N, et al. Socioeconomic status and non-communicable disease behavioural risk factors in low-income and lower-middle-income countries: a systematic review. Lancet Glob Health. 2017;5(3):e277.