A quality assessment of inflammatory bowel disease nursing care in Finland: a nationwide cross-sectional descriptive study

References

• Anantakrishnan AN. Epidemiology and risk factors for IBD. Nat Rev Gastroenterol Hepatol. 2015;12:205–217.
   PubMed Web of Science ®Google Scholar
• Ng SC, Shi HY, Hamidi N, et al. Worldwide incidence and prevalence of inflammatory bowel disease in the 21st century: a systematic review of population-based studies. Lancet. 2017;390(10114):2769–2778. doi: 10.1016/S0140-6736(17)32448-0.
   PubMed Web of Science ®Google Scholar
• van Gennep S, Evers SW, Rietdijk ST, et al. High disease burden drives indirect costs in employed inflammatory bowel disease patients: the WORK-IBD study. Inflamm Bowel Dis. 2021;27(3):352–363. doi: 10.1093/ibd/izaa082.
   PubMed Web of Science ®Google Scholar
• Pillai N, Dusheiko M, Maillard MH, on behalf of the Swiss IBD Cohort Study Group, et al. The evolution of health care utilisation and costs for inflammatory bowel disease over ten years. J Crohns Colitis. 2019;13(6):744–754.
   PubMed Web of Science ®Google Scholar
• Kapasi R, Glatter J, Lamb CA, et al. Consensus standards of healthcare for adults and children with inflammatory bowel disease in the UK. Frontline Gastroenterol. 2020;11(3):178–187. doi: 10.1136/flgastro-2019-101260.
   PubMed Web of Science ®Google Scholar
• Fiorino G, Allocca M, Chaparro M, et al. ‘Quality of care’ standards in inflammatory bowel disease: a systematic review. J Crohns Colitis. 2019;13(1):127–137. doi: 10.1093/ecco-jcc/jjy140.
   PubMed Web of Science ®Google Scholar
• Coenen S, Weyts E, Vermeire S, et al. Effects of introduction of an inflammatory bowel disease nurse position on the quality of delivered care. Eur J Gastroenterol Hepatol. 2017;29(6):646–650. doi: 10.1097/MEG.0000000000000839.
   PubMed Web of Science ®Google Scholar
• Desai M, Williams E, Koltun W, et al. P-086 improvements in patient access and no-show rates seen with an IBD nurse navigator. Inflamm Bowel Dis. 2016;22: s 36. doi: 10.1097/01.MIB.0000480191.79712.8c.
   Web of Science ®Google Scholar
• Kemp K, Dibley L, Chauhan U, et al. Second N-ECCO consensus statements on the european nursing roles in caring for patients with Crohn’s disease or ulcerative colitis. J Crohns Colitis. 2018;12(7):760–776. doi: 10.1093/ecco-jcc/jjy020.
   PubMed Web of Science ®Google Scholar
• Elkjaer M, Moser G, Reinisch W, et al. IBD patients need in health quality of care ECCO consensus. J Crohns Colitis. 2008;2(2):181–188. doi: 10.1016/j.crohns.2008.02.001.
   PubMed Web of Science ®Google Scholar
• Calvet X, Panés J, Alfaro N, et al. Delphi consensus statement: quality indicators for inflammatory bowel disease comprehensive care units. J Crohns Colitis. 2014;8(3):240–251. (ACCU España). doi: 10.1016/j.crohns.2013.10.010.
   PubMed Web of Science ®Google Scholar
• O'Connor M, Bager P, Duncan J, et al. N-ECCO consensus statements on the european nursing roles in caring for patients with Crohn’s disease or ulcerative colitis. J Crohns Colitis. 2013;7(9):744–764. doi: 10.1016/j.crohns.2013.06.004.
   PubMed Web of Science ®Google Scholar
• Massuger W, Moore GTC, Andrews JM, et al. Crohn’s and colitis Australia inflammatory bowel disease audit: measuring the quality of care in Australia. Intern Med J. 2019;49(7):859–866. doi: 10.1111/imj.14187.
   PubMed Web of Science ®Google Scholar
• Younge L, Mason I, Kapasi R. Specialist inflammatory bowel disease nursing in the UK: current situation and future proofing. Frontline Gastroenterol. 2021;12(3):169–174. doi: 10.1136/flgastro-2019-101354.
   PubMed Web of Science ®Google Scholar
• Toivonen T, Jussila A, Kolho KL, et al. N017 The impacts of an inflammatory bowel disease nurse specialist on quality of care and costs in Finland. J Crohns Colitis. 2018;12(supplement_1):S576–S576. doi: 10.1093/ecco-jcc/jjx180.1031.
   Google Scholar
• Statistical Yearbook of the Social Insurance Institution 2020. http://urn.fi/URN:NBN:fi-fe2021111755756. Accessed: September 16, 2022.
   Google Scholar
• Kontola K, Oksanen P, Huhtala H, et al. DOP02 increasing incidence of inflammatory bowel disease in a high prevalence country: a nationwide study in Finland. J Crohns Colitis. 2022;16(suppl 1):i052–i053.
   Google Scholar
• Torrejón A, Oltra L, Hernández-Sampelayo P, et al. Development of quality standards in inflammatory bowel disease management and design of an evaluation tool for nursing care. Rev Esp Enferm Dig. 2013;105(5):262–271. doi: 10.4321/s1130-01082013000500004.
   PubMed Web of Science ®Google Scholar
• WMA Declaration of Helsinki – Ethical principles for medical research involving human subjects. World Medical Association. Adopted in 1964, last amended in 2013. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/. Accessed November 17, 2022.
   Google Scholar
• Chauhan U, Stitt L, Rohatinsky N, et al. Patients’ access to telephone and e-mail services provided by IBD nurses in Canada. J Can Assoc Gastroenterol. 2022;5(3):129–136. doi: 10.1093/jcag/gwab041.
   PubMedGoogle Scholar
• Correal EN, Leiva OB, Galguera AD, et al. Nurse-led telephone advice line for patients with inflammatory bowel disease: a cross-sectional multicenter activity analysis. Gastroenterol Nurs. 2019;42(2):133–139. doi: 10.1097/SGA.0000000000000372.
   PubMed Web of Science ®Google Scholar
• Rezwan N, West D, Tun G, et al. PTH-152. The patient perspective of a nurse-led inflammatory bowel disease (IBD) telephone helpline service. Gut. 2016;65(suppl 1):A294–A295. doi: 10.1136/gutjnl-2016-312388.555.
   Google Scholar
• Shinzaki S, Sakagami K, Matsumoto M, et al. Nurse-provided medication guidance for improving drug adherence to thiopurines in outpatients with inflammatory bowel disease: a single-center prospective study. Crohns Colitis 360. 2022;4(1):otab081. doi: 10.1093/crocol/otab081.
   PubMedGoogle Scholar
• Knowles SR, Alex G. Medication adherence across the life span in inflammatory bowel disease: implications and recommendations for nurses and other health providers. Gastroenterol Nurs. 2020;43(1):76–88. doi: 10.1097/SGA.0000000000000467.
   PubMed Web of Science ®Google Scholar
• Simian D, Flores L, Quera R, et al. The role of an inflammatory bowel disease nurse in the follow-up of patients from a Latin American inflammatory bowel disease program. Gastroenterol Nurs. 2020;43(1):E16–E23. doi: 10.1097/SGA.0000000000000436.
   PubMed Web of Science ®Google Scholar
• Amo L, González-Lama Y, Suárez C, et al. Impact of the incorporation of a nurse in an inflammatory bowel disease unit. Gastroenterol Hepatol. 2016;39(5):318–323. (English edition). doi: 10.1016/j.gastre.2016.04.006.
   PubMed Web of Science ®Google Scholar
• Ruiz N, Camargo R, Alcain G, et al. N819 analysis of the role of nursing in a IBD unit. J Crohns Colitis. 2017;11(suppl_1):S499–S500. doi: 10.1093/ecco-jcc/jjx002.943.
   Google Scholar
• Mocciaro F, Pecoraro GM, Di Mitri R, et al. Nurse in patients’ health status assessment: data from a pilot study assessing agreement among nurse and gastroenterologist in computing IBD-clinical scores. Dig Liver Dis. 2017;49(10):1110–1114. doi: 10.1016/j.dld.2017.06.009.
   PubMedGoogle Scholar
• Nursing Research Foundation. https://www.hotus.fi/valmisteilla-olevat-hoitosuositukset. Accessed August 22, 2023.
   Google Scholar
• Dibley L, Bager P, Czuber-Dochan W, et al. Identification of research priorities for inflammatory bowel disease nursing in Europe: a Nurses-European Crohn’s and Colitis Organisation delphi survey. J Crohns Colitis. 2017;11(3):353–359.
   PubMed Web of Science ®Google Scholar
• Schirato E, Savarino EV, Martinato M. N005 specialist nursing interventions for inflammatory bowel disease. J Crohns Colitis. 2018;12(supplement_1):S570–S570. doi: 10.1093/ecco-jcc/jjx180.1019.
   Google Scholar