790
Views
22
CrossRef citations to date
0
Altmetric
Articles

Breaking Through the Silence: The Experience of Living With HIV-Positive Serostatus, and Its Implications on Disclosure

, , &
Pages 826-845 | Received 25 Nov 2012, Accepted 17 Jul 2013, Published online: 11 Oct 2013

REFERENCES

  • Auerbach , C.F. and Silverstein , L. 2003 . Qualitative Data , New York , NY : New York University Press .
  • Bor , R. and Miller , R. 2001 . “ HIV/AIDS, Families and the wider caregiving system ” . In Integrating Family Therapy: An Ecosystemic Approach , Edited by: McDaniel , S. , Lusterman , D.D. and Philpot , C.L. 337 – 348 . Washington , DC : American Psychological Association .
  • Bogart , L. , Cowgill , B.O. , Kennedy , D. , Ryan , G. , Debra , A. , Murphy , D.A. , Elijah , J. and Schuster , M.A. 2008 . HIV-related stigma among people with HIV and their families: A qualitative analysis . AIDS and Behavior , 12 : 244 – 254 .
  • Brown , L. , Trujillo , L. and Macintyre , K. 2001 . “ Interventions to reduce HIV/AIDS stigma:What have we learnt? ” . In Horizons Program , Tulane University .
  • Chemtob , D. , Damelin , B. , Bessudo-Manor , N. , Hassman , R. , Amikam , Y. , Zenilman , J.M. and Tamir , D. 2006 . “Getting AIDS: Not in my back yard.” Results from a national knowledge, attitudes and practices survey . The Israel Medical Association Journal , 8 : 610 – 614 .
  • Christy , E. , Newman , C.E. , Bohar , M. , Grevill , H.S. , Thompson , S.C. , Bessarab , D. and Kippax , S.C. 2007 . Barriers and incentives to HIV treatment uptake among aboriginal people in Western Australia . AIDS , 2 : 13 – 17 .
  • Daniel , L. and Squire , C. 2009 . “ Experiences of people living with HIV. In P. Rohleder ” . In HIV/AIDS in South Africa 25 Years On. Psychosocial Perspectives , Edited by: Swart , L. , Kalichman , S.C. and Simbayi , L. 255 – 272 . New York , NY : Springer .
  • Deacon , H. , Uys , L. and Mohlahlane , R. 2009 . “ HIV and stigma in South Africa ” . In HIV/AIDS in South Africa 25 Years On. Psychosocial Perspectives , Edited by: Rohleder , P. , Swart , L. , Kalichman , S.C. and Simbayi , L. 105 – 122 . New York , NY : Springer .
  • Derlega , V. , Winstead , B. , Greene , K. , Serovich , J. and Elwood , W. 2004 . Reasons for HIV disclosure/nondisclosure in close relationships: Testing a model of HIV-disclosure decision making . Journal of Social and Clinical Psychology , 23 : 747 – 767 .
  • Dibb , B. and Kamalesh , T. 2012 . Exploring positive adjustment in HIV positive African women living in the UK . AIDS Care , 24 ( 2 ) : 143 – 148 .
  • Feigin , R. , Barnetz , Z. and Davidson-Arad , B. 2008 . Quality of life in family members coping with chronic illness in a relative: An exploratory study . Families, Systems, & Health , 26 : 267 – 281 .
  • Gielen , A.C. , Fogarty , L. , O'Campo , P. , Anderson , J. , Keller , J. and Faden , R. 2000 . Women living with HIV: Disclosure, violence and social support . Journal of Urban Health , 77 ( 3 ) : 480 – 491 .
  • Haaguda Association. (2011). AIDS—Update facts that are worthwhile knowing. http://www.glbt.il/he/aids/articles.php?articleID=1875 (http://www.glbt.il/he/aids/articles.php?articleID=1875)
  • Hall , N. 2007 . We care don't we? Social workers, the profession and HIV/AIDS . Social Work in Health Care , 44 ( 1/2 ) : 55 – 72 .
  • Hepworth , J. 1997 . “ The two-way mirror in my therapy room: AIDS and families ” . In The Shared Experience of Illness , Edited by: McDaniel , S. , Hepworth , J. and Doherty , J. 163 – 172 . New York , NY : BasicBooks .
  • Holt , R. , Court , P. , Vendhara , K. , Nott , K.H. , Holmes , J. and Show , M.H. 1998 . The role of disclosure in coping with HIV Infection . AIDS Care , 10 : 49 – 60 .
  • Hsieh , H.-F. and Shannon , S. 2005 . Three approaches to qualitative content analysis . Qualitative Health Research , 15 : 1277 – 1288 .
  • Kalichman , S.C. 2009 . Denying AIDS , New York , NY : Springer .
  • Kalichman , S.C. , Simbayi , L.C. , Cloete , A. , Mthembu , P.P. , Mkhonta , R.N and Ginindza , T. 2009 . Measuring AIDS stigmas in people living with HIV/AIDS: The internalized AIDS-Related Stigma Scale . AIDS Care , 21 ( 1 ) : 87 – 93 .
  • Korner , H. 2007a . Negotiating cultures: Disclosure of HIV-positive status among people from minority ethnic communities in Sydney . Culture, Health & Sexuality , 9 ( 2 ) : 137 – 152 .
  • Korner , H. 2007b . If I had my residency I wouldn't worry: Negotiating migration and HIV in Sydney, Australia . Ethnicity and Health , 12 ( 3 ) : 205 – 225 .
  • Korner , H. , Petrohilos , M. and Madeddu , D. 2005 . Living with HIV and cultural diversity in Sydney , Sydney : Monograph, National Centre in HIV Social Research, 4 .
  • Landau , G. and York , A. 2004 . Keeping and disclosing a secret among people with HIV in Israel . Health and Social Work , 29 ( 2 ) : 116 – 126 .
  • Lang , N.C. 1994 . “ Integrating the data processing of quality research and social work practice to advance the practitioner as knowledge builder: tools for knowing and doing ” . In Qualitative Research in Social Work , Edited by: Sherman , E. and Reid , W.J. 265 – 278 . New York , NY : Columbia University Press .
  • Langius-Eklöf , A. , Lidma , K. and Wredling , R. 2009 . Health-related quality of life in relation to sense of coherence in a Swedish group of HIV-infected patients over a two-year follow-up . AIDS Patient Care and STDS , 23 ( 1 ) : 59 – 64 .
  • Leclerc-Madlala , S. , Simbayi , L.C. and Cloete , A. 2009 . “ The sociocultural aspects of HIV/AIDS in South Africa ” . In HIV/AIDS in South Africa 25 years on. Psychosocial perspectives , Edited by: Rohleder , P. , Swart , L. , Kalichman , S.C. and Simbayi , L. 13 – 25 . New York , NY : Springer .
  • Lee , R.S. , Kochman , A. and Sikkema , K.J. 2002 . Internalized stigma among people living with HIV-AIDS . AIDS and Behavior , 6 ( 4 ) : 309 – 319 .
  • Lewis , S. 2005 . Race Against Time: Searching for Hope in AIDS-Ravaged Africa , Melbourne , Australia : Text Publishing .
  • Li , L. , Wu , Z. , Wu , S. , Jia , M. , Lieber , E. and Lu , Y. 2008 . Impacts of HIV/AIDS on family identity and interactions in china . Families, Systems & Health , 26 : 431 – 442 .
  • Liu , Y. , Canada , K. and Corrigan , P. 2012 . HIV-related stigma acting as predictors of unemployment of people living with HIV/AIDS . AIDS Care , 24 ( 1 ) : 129 – 135 .
  • McDawniel , S.H. , Hepworth , J. and Doherty , S.H. 1992 . Medical Family Therapy: A Biopsychosocial Approach to Families with Health Problems , New York , NY : Basic Books .
  • Miles , M.B. and Huberman , M.A. 2007 . Qualitative Data Analysis , Thousand Oaks , CA : Sage .
  • Moskowitz, D., & Roloff, M. (2007). On HIV disclosure: A Literature Review/Paper presented at the annual meeting of the international. http://www.allacademic.com/meta/p168463_index.html (http://www.allacademic.com/meta/p168463_index.html)
  • Moustakas , C. 1994 . Phenomenological Research Methods , Thousand Oaks , CA : Sage .
  • O'Brien , M.E. , Richardson-Alston , G. , Ayoub , M. , Magnus , M. , Peterman , T.A. and Kissinger , P. 2003 . Prevalence and correlates of HIV serostatus disclosure . Sexually Transmitted Diseases , 30 ( 9 ) : 731 – 735 .
  • Pardess , E. , Katz , A. and Kowalski , S. November 2011 . Ruptures and repair-strengthening LGBT families: An attachment perspective , November , 21 – 30 . Psychoactualya , , Israel : Association of Psychology (in Hebrew) .
  • Peltzer , K. and Ramlagan , S. 2011 . Perceived stigma among patients receiving antiretroviral therapy: A prospective study in Kwazulu- Natal, South Africa . AIDS Care , 23 ( 1 ) : 60 – 68 .
  • Persson , A. and Richards , W. 2008 . From closet to heterotopia: A conceptual exploration of disclosure and “passing” among heterosexuals living with HIV . Culture, Health & Sexuality , 10 ( 1 ) : 73 – 86 .
  • Petrak , J. , Doyle , A.M. , Smith , A. , Skinner , C. and Hedge , B. 2001 . Factors associated with self-disclosure of HIV serostatus to significant others . British Journal of Health Psychology , 6 : 69 – 79 .
  • Prost , A. , Elford , J. , Imrie , J. , Petticrew , M. and Hart , G. 2008 . Social, behavioural and intervention research among people of sub-Saharan African origin living with HIV in the UK and Europe: Literature review and recommendations for intervention . AIDS Behaviour , 12 : 170 – 194 .
  • Rolland , J.S. 1994 . Families, Illness, & Disability; An Integrative Treatment Model , New York , NY : BasicBooks .
  • Rowe , W. 2007 . Cultural competence in HIV prevention and care: Different histories, shared future . Social Work in Health Care , 44 ( 1/2 ) : 45 – 54 .
  • Serovich , J.M. 2000 . Helping HIV-positive persons to negotiate the disclosure process to partners, family members, and friends . Journal of Marital and Family Therapy , 26 : 365 – 372 .
  • Simbayi , L.C. , Kalichman , S. , Strebel , A. , Cloete , A. , Henda , N. and Mqeketo , A. 2007 . Internalized stigma, discrimination and depression among men and women living with HIV/AIDS in Cape Town, South Africa . Social Science & Medicine , 64 : 1823 – 1831 .
  • Waldby , C. 1996 . AIDS and the Body Politic , London , England : Routledge .
  • Welch-Cline , R. and McKenzie , N. 2000 . “ Dilemmas of disclosure in the age of HIV/AIDS: Balancing privacy and protection in the health care context ” . In Balancing the Secrets of Private Disclosures , Edited by: Petronio , S. 71 – 82 . Mahway , NJ : Lawrence Erlbaum Associates .
  • World Health Organization. (2004). HIV status disclosure to Sexual Partners: Rates, barriers and outcomes for women. WHO Document Summary, Geneva, Switzerland. www.who.int/gender/documents/en/ (http://www.who.int/gender/documents/en/)
  • World Health Organization. (2009). Global Summary of the AIDS Epidemic, December 2008.m http://www.data.unaids.org/pub/Report/2009/jc1700_epi_update_2009_en.pdf/ (http://www.data.unaids.org/pub/Report/2009/jc1700_epi_update_2009_en.pdf/)
  • World Health Organization. (2012a). WHO/HIV/AIDS. Global summary of the HIV/AIDS epidemic, data and statistics. http://www.who.int/hiv/data/2012_epi_core_en.png (http://www.who.int/hiv/data/2012_epi_core_en.png)
  • World Health Organization. (2012b). UNAIDS report on the global AIDS epidemic. http://www.unaids.org/en/media/unaids/contentassets/documents/epidemiology/2012/gr2012/20121120_UNAIDS_Global_Report_2012_en.pdf (http://www.unaids.org/en/media/unaids/contentassets/documents/epidemiology/2012/gr2012/20121120_UNAIDS_Global_Report_2012_en.pdf)

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.