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Articles

The cleft team social worker

, MD & , LMSW, LCSW
Pages 280-295 | Received 31 Aug 2015, Accepted 19 Jan 2016, Published online: 13 Apr 2016

References

  • Aite, L., Zaccara, A., Nahom, A., Trucchi, A., Iacobelli, B., & Bagolan, P. (2006). Mothers’ adaptation to antenatal diagnosis of surgically correctable anomalies. Early Human Development, 82, 649–653. doi:10.1016/j.earlhumdev.2005.12.010
  • American Cleft Palate-Craniofacial Association. (1993). Parameters for evaluation and treatment of patients with cleft lip/palate or other craniofacial anomalies. Cleft Palate-Craniofacial Journal, 30(Suppl 1), S1–S16. Revised, November, 2009.
  • American Cleft Palate-Craniofacial Association. (2015). Standards for cleft palate and craniofacial teams, Commission on Approval of Teams. Retrieved from http://www.acpa-cpf.org/team_care/standards/
  • Berggren, H., Hansson, E., Uvemark, A., Svensson, H., Sladkevicius, P., & Becker, M. (2012). Prenatal ultrasound detection of cleft lip, or cleft palate, or both, in southern Sweden, 2006–2010. Journal of Plastic Surgery and Hand Surgery, 46, 69–74. doi:10.3109/2000656X.2012.668773
  • Broder, H., & Richman, L. (1987). An examination of mental health services offered by cleft/craniofacial teams. Cleft Palate Journal, 24(2), 158–162.
  • Broder, H., & Trier, W. C. (1985). Effectiveness of genetic counseling for families with craniofacial anomalies. Cleft Palate Journal, 22(3), 157–162.
  • Broder, H. L. (2001). Using psychological assessment and therapeutic strategies to enhance well-being. The Cleft Palate-Craniofacial Journal, 38(3), 248–254. doi:10.1597/1545-1569(2001)038<0248:UPAATS>2.0.CO;2
  • Broder, H. L., Richman, L. C., & Matheson, P. B. (1998). Learning disability, school achievement, and grade retention among children with cleft: A two-center study. The Cleft Palate-Craniofacial Journal, 35(2), 127–131. doi:10.1597/1545-1569(1998)035<0127:LDSAAG>2.3.CO;2
  • Broder, H. L., Smith, F. B., & Strauss, R. P. (2001). Developing a behavior rating scale for comparing teachers’ ratings of children with and without craniofacial anomalies. The Cleft Palate-Craniofacial Journal, 38(6), 560–565. doi:10.1597/1545-1569(2001)038<0560:DABRSF>2.0.CO;2
  • Cooper-Brown, L., Copeland, S., Daily, S., Downey, D., Petersen, M. C., Stimson, C., & Van Dyke, D. C. (2008). Feeding and swallowing dysfunction in genetic syndromes. Developmental Disabilities Research Reviews, 14, 147–157. doi:10.1002/ddrr.19
  • Dölger-Häfner, M., Bartsch, A., Trimbach, G., Zobel, I., & Witt, E. (1997). Parental reactions following the birth of a cleft child. Journal of Orofacial Orthopedics, 58(2), 124–133.
  • Fertel, P. E., & Reiss, R. E. (1997). Counseling prenatal diagnosis patients: The role of the social worker. Social Work in Health Care, 24(3–4), 47–63. doi:10.1300/J010v24n03_05
  • Goyal, A., Jena, A. K., & Kaur, M. (2012). Nature of feeding practices among children with cleft lip and palate. Journal of Indian Society of Pedodontics and Preventive Dentistry, 30(1), 47–50. doi:10.4103/0970-4388.95581
  • Griswold, K. J., & Fanaroff, J. M. (2010). An evidence-based overview of prenatal consultation with a focus on infants born at the limits of viability. Pediatrics, 125(4), e931–e937.
  • Hodgkinson, P. D., Brown, S., Duncan, D., Grant, C., McNaughton, A., Thomas, P., & Mattick, C. R. (2005). Management of children with cleft lip and palate: A review describing the application of multidisciplinary team working in this condition based upon the experiences of a regional cleft lip and palate centre in the United Kingdom. Fetal and Maternal Medicine Review, 16(1), 1–27. doi:10.1017/S0965539505001452
  • Houdayer, F., Gargiulo, M., Frischmann, M., Labalme, A., Decullier, E., Cordier, M.-P., & Rossi, M. (2013). The psychological impact of cryptic chromosomal abnormalities diagnosis announcement. European Journal of Medical Genetics, 56, 585–590. doi:10.1016/j.ejmg.2013.09.002
  • Hunt, O., Burden, D., Hepper, P., Stevenson, M., & Johnston, C. (2006). Self-reports of psychological functioning among children and young adults with cleft lip and palate. Cleft Palate-Craniofacial Journal, 43(5), 598–605. doi:10.1597/05-080
  • Kagihara, L. E., Huebner, C. E., Mouradian, W. E., Milgrom, P., & Anderson, B. A. (2011). Parents’ perspective on a dental home for children with special health care needs. Special Care in Dentistry, 31(5), 170–177. doi:10.1111/j.1754-4505.2011.00204.x
  • Kapp-Simon, K. A. (1995). Psychological interventions for the adolescent with cleft lip and palate. The Cleft Palate-Craniofacial Journal, 32, 104–108. doi:10.1597/1545-1569(1995)032<0104:PIFTAW>2.3.CO;2
  • Kapp-Simon, K. A., & Gaither, R. (2008). Psychological and Behavioral Aspects of Clefting. In J. E. Losee & R. E. Kirschner (Eds.), Comprehensive cleft care (pp. 1001–1010). New York, NY: McGraw-Hill Medical.
  • Kuttenberger, J., Ohmer, J. N., & Polska, E. (2010). Initial counselling for cleft lip and palate: Parents’ evaluation, needs, and expectations. International Journal of Oral Maxillofacial Surgery, 39, 214–220. doi:10.1016/j.ijom.2009.12.013
  • Madahar, A. K., Murray, A., Orr, R., & Sandler, P. J. (2013). The long and winding road—The journey of a cleft lip and palate patient part 1. Dental Update, 40(1), 791–798.
  • Marcus, S. M., & Heringhausen, J. E. (2009). Depression in childbearing women: When depression complicates pregnancy. Primary Care, 36(1), 151–165. doi:10.1016/j.pop.2008.10.011
  • Martin, V., & Greatrex-White, S. (2013). An evaluation of factors influencing feeding in babies with a cleft palate with and without a cleft lip. Journal of Child Health Care, 18(1), 72–83. doi:10.1177/1367493512473853
  • Masarei, A. G., Sell, D., Habel, A., Mars, M., Sommerlad, B. C., & Wade, A. (2007). The nature of feeding in infants with unrepaired cleft lip and/or palate compared with healthy noncleft infants. The Cleft Palate-Craniofacial Journal, 44(3), 321–328. doi:10.1597/05-185
  • McDonald-McGinn, D. M., Driscoll, D., & Matthews, M. (2008). Prenatal and Genetic Counseling. In J. E. Losee & R. E. Kirschner (Eds.), Comprehensive cleft care (pp. 71–82). New York, NY: McGraw-Hill Medical.
  • McWilliams, B. J., & Paradise, L. P. (1973). Educational, occupational, and marital status of cleft palate adults. Cleft Palate Journal, 10, 223–229.
  • Mealer, W. F., Singh, D. N., & Murray, S. O. (1981). The social worker’s role in genetic counseling. Journal of the National Medical Association, 73(12), 1159–1162.
  • Merritt, L. (2005). Part 2. physical assessment of the infant with cleft lip and/or palate. Advances in Neonatal Care, 5(3), 125–134. doi:10.1016/j.adnc.2005.02.006
  • Mooney, M. P. (2008). Classification of orofacial clefting. In J. E. Losee & R. E. Kirschner (Eds.), Comprehensive cleft care (pp. 21–33). New York, NY: McGraw-Hill Medical.
  • Mossey, P. A., & Little, J. (2002). Epidemiology of oral clefts: An international perspective. In D. F. Wyszynski (Ed.), Cleft lip and palate: From origin to treatment. New York, NY: Oxford University Press.
  • Noor, S. N. F. M., & Musa, S. (2007). Assessment of patients’ level of satisfaction with cleft treatment using the cleft evaluation profile. Cleft Palate-Craniofacial Journal, 44(3), 292–303. doi:10.1597/05-151
  • O’Keefe, J. P. (2008). Breaking down the access issue. Journal of the Canadian Dental Association, 74(9), 761.
  • Offerdal, K., Jebens, N., Syvertsen, T., Blass, H.-G., & Johansen, O. J. (2008). Prenatal ultrasound detection of facial clefts: A prospective study of 49314 deliveries in a non-selected population in Norway. Ultrasound, Obstetrics, and Gynecology, 31, 639–646.
  • Pandya, A. N., & Boorman, J. G. (2001). Failure to thrive in babies with cleft lip and palate. British Journal of Plastic Surgery, 54(6), 471–475. doi:10.1054/bjps.2001.3618
  • Paterson, P., Sher, H., Wylie, F., Wallace, S., Crawford, A., Sood, V., & Devlin, M. (2011). Cleft lip/palate: Incidence of prenatal diagnosis in Glasgow, Scotland, and comparison with other centers in the United Kingdom. Cleft Palate-Craniofacial Journal, 48(5), 608–613. doi:10.1597/09-238
  • Peter, J. P., & Chinsky, R. R. (1974). Sociological aspects of cleft palate adults: I. Marriage. Cleft Palate Journal, 11, 295–309.
  • Richman, L. C., & Harper, D. C. (1979). Self-identified personality patterns of children with facial or orthopedic disfigurement. Cleft Palate Journal, 16(3), 257–261.
  • Richman, L. C., & Nopoulos, P. (2008). Neuropsychological and neuroimaging aspects of cleft lip and palate. In J. E. Losee & R. E. Kirschner (Eds.), Comprehensive cleft care (pp. 991–1000). New York, NY: McGraw-Hill Medical.
  • Rivkin, C. J., Keith, O., Crawford, P. J. M., & Hathorn, I. S. (2000a). Dental care for the patient with a cleft lip and palate. Part 1: from Birth to the Mixed Dentition Stage. British Dental Journal, 188(2), 78–83.
  • Rivkin, C. J., Keith, O., Crawford, P. J. M., & Hathorn, I. S. (2000b). Dental care for the patient with a cleft lip and palate. Part 2: The mixed dentition stage through to adolescence and young adulthood. British Dental Journal, 188(3), 131–134.
  • Robin, N. H., Baty, H., Franklin, J., Guyton, F. C., Mann, J., Woolley, A. L., & Grant, J. (2006). The multidisciplinary evaluation and management of cleft lip and palate. Southern Medical Journal, 99(10), 1111–1120. doi:10.1097/01.smj.0000209093.78617.3a
  • Sarwer, D. B., Bartlett, S. P., Whitaker, L. A., Paige, K. T., Pertschuk, M. J., & Wadden, T. A. (1999). Adult psychological functioning of individuals born with craniofacial anomalies. Plastic and Reconstructive Surgery, 103(2), 412–418.
  • Setó-Salvia, N., & Stanier, P. (2014). Genetics of cleft lip and/or cleft palate: Association with other common anomalies. European Journal of Medical Genetics, 57, 381–393. doi:10.1016/j.ejmg.2014.04.003
  • Skari, H., Malt, U. F., Bjornland, K., Egeland, T., Haugen, G., Skreden, M., & Bjornstad-Ostensen, A. (2006). Prenatal diagnosis of congenital malformations and parental psychological distress—A prospective longitudinal cohort study. Prenatal Diagnostics, 26(11), 1001–1009. doi:10.1002/pd.1542
  • Speltz, M. L., Greenberg, M. T., Endriga, M. C., & Galbreath, H. (1994). Developmental approach to the psychology of craniofacial anomalies. The Cleft Palate-Craniofacial Journal, 31(1), 61–67. doi:10.1597/1545-1569(1994)031<0061:DATTPO>2.3.CO;2
  • Starr, R., & Zirpoli, E. (1976). Cleft palate patients—The social work approach. Health & Social Work, 1(2), 104–112.
  • Strauss, R. P., & Broder, H. (1985). Interdisciplinary team care of cleft lip and palate: Social and psychological aspects. Clinics in Plastic Surgery, 12(4), 543–551.
  • Topolski, T. D., Edwards, T. C., & Patrick, D. L. (2005). Quality of life: How do adolescents with facial differences compare with other adolescents? The Cleft Palate-Craniofacial Journal, 42(1), 25–32. doi:10.1597/1545-1569(2005)42<25:QOLHDA>2.0.CO;2
  • Vieira, A. R. (2012). Genetic and environmental factors in human cleft lip and palate. Frontiers in Oral Biology, 16, 19–31.
  • Wisner, K. L., Parry, B. L., & Piontek, C. M. (2002). Clinical practice. Postpartum depression. New England Journal of Medicine, 347(3), 194–199. doi:10.1056/NEJMcp011542

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