Sitting with silence: hospital social work interventions for dying patients and their Families

References

• AASW. (2016). Scope of social work: Hospital social work. Melbourne: Australian Association of Social Workers.
   Google Scholar
• Albers, G., Frankce, A. L., de Veer, A. J. E., Bilsen, J., & Onwuteaka-Philpsen, B. D. (2014). Attitudes of nursing staff towards involvement in medical end of life decision: A national survey study. Patient Education and Counselling, 94(1), 1–9. doi:10.1016/j.pec.2013.09.018
   Web of Science ®Google Scholar
• Australian Institute of Health and Welfare (AIHW). (2011). Trends in palliative care in Australian hospitals. Cat. no. HWI 112. Canberra: AIHW.
   Google Scholar
• Bateman, V. L. (2016). Ethical decision maker or “champion” of the dying and bereaved? The contribution of the hospital social work to end-of-life and bereavement care. Grief Matters, 18(3), 58–63.
   Google Scholar
• Berger, P. L., & Luckmann, T. (1966). The social construction of reality: A treastive in the sociology of knowledge. Garden City, N.Y.: Doubleday.
   Google Scholar
• Black, K. (2006). Advance directive communication: Nurses’ and social workers’ perceptions of roles. American Journal of Hospice and Palliative Medicine, 23(3), 175–184. doi:10.1177/1049909106289080
   PubMedGoogle Scholar
• Bloomer, M. J., Moss, C., & Cross, W. M. (2011). End-of-life care in acute hospitals: An integrative literature review. Journal of Nursing and Healthcare of Chronic Illness, 3, 165–173. doi:10.1111/jci.2011.3.issue-3
   Google Scholar
• Brandsen, C. K. (2005). Social work and end-of-life care. Journal of Social Work in End-Of Life and Palliative Care, 1(2), 45–70. doi:10.1300/J457v01n02_05
   PubMedGoogle Scholar
• Brereton, L., Gardiner, C., Gott, M., INgleton, C., Barnes, S., & Carroll, C. (2001). The hospital environment for end of life care of older adults and their families: An integrative review. Journal of Advanced Nursing, 68(5), 981–993. doi:10.1111/j.1365-2648.2011.05900.x
   Google Scholar
• Burge, F., Lawson, B., Johnston, G., Asada, Y., McIntyre, P. F., Grunfield, E., & Flowerdaw, G. (2014). Bereaved family member perceptions of patient focused family centred care during the last 30 days of life using a mortality follow back survey: Does location matter? BMC Palliative Care, 13, 25. doi:10.1186/1472-684X-13-25
   PubMed Web of Science ®Google Scholar
• Christ, G. H., & Sormanti, M. (2000). Advancing social work practice in end-of-life care. Social Work in Health Care, 30(2), 81–99. doi:10.1300/J010v30n02_05
   Web of Science ®Google Scholar
• Constantini, M., Romoli, V., Di Leo, S., Beccaro, M., Bono, L., Pilastri, P., … Higginson, I. J. (2013). Liverpool care pathway for patients with cancer in hospital: A cluster randomised trial. The Lancet, 383(9913), 226–237. doi:10.1016/S0140-6736(13)61725-0
   PubMed Web of Science ®Google Scholar
• Csikai, E. L., & Raymer, M. (2005). Social workers’ educational needs in end-of-life care. Social Work in Health Care, 41(1), 53–72. doi:10.1300/J010v41n01_04
   PubMed Web of Science ®Google Scholar
• Ellershaw, J., & Wilkinson, S. (2011). Care of the dying: A pathway to excellence (2nd rev ed.). Oxford: Oxford University Press.
   Google Scholar
• Flynn, C., & McDermott, F. (2016). Doing research in social work and social care. London, UK: SAGE Publications ltd.
   Google Scholar
• Gagnon, J., & Duggleby, W. (2014). The provision of end-of-life care by medical-surgical nurses working in acute care: A literature review. Palliative and Supportive Care, 12, 393–408. doi:10.1017/S1478951513000965
   PubMed Web of Science ®Google Scholar
• Gallagher, R., & Krawczyk, M. (2013). Family members’ perceptions of end of life are across diverse location of care. BMC Palliative Care, 12, 1. doi:10.1186/1472-684X-12-25
   PubMed Web of Science ®Google Scholar
• Hall, C., Hudson, P., & Boughey, A. (2012). Bereavement support standards for specialist palliative care services. Victoria, Australia: Department of Health, State Government of Victoria.
   Google Scholar
• Herbert, R. S., Copeland, V. C., Schulz, R., Amato, C. A., & Arnold, R. M. (2009). Preparing family caregivers for the death of a loved one: Implications for hospital social workers. Journal of Social Work in End of Life Care & Palliative Care, 37(1), 3–12.
   Google Scholar
• Huff, M. B., Weisenfluh, S., Murphy, M., & Black, P. J. (2006). End-of-life care and social work education. Journal of Gerontological Social Work, 48(1–2), 219–231. doi:10.1300/J083v48n01_15
   PubMedGoogle Scholar
• Inghelbrecht, E., Bilsen, J., Mortier, F., & Deliens, L. (2008). Factors related to the involvement of nurses in medical end-of-life decisions in Belgium a death certificate study. International Journal of Nursing Studies, 45(7), 1022 1031. doi:10.1016/j.ijnurstu.2007.06.005
   PubMed Web of Science ®Google Scholar
• Larochelle, M. R., Rodriguez, K. L., Arnold, R. M., & Barnato, A. E. (2009). Hospital staff attributions of the causes of physician variation in end-of-life treatment intensity. Palliative Medicine, 23(5), 460–470. doi:10.1177/0269216309103664
   PubMed Web of Science ®Google Scholar
• Neuberger, J., Guthrie, C., Aaronovitch, D., Hameed., K., Bonser, T., Harries, R., … Waller, S. (2013). More care, less pathway: A review of the liverpool care pathway. Department of Health. Review of the Liverpool Care Pathway Review. Retrieved from https///www.gov.uk/government/uploads/system/uploads/attachment_data/file/212450/Liverp ool_Care_Pathway.pdf
   Google Scholar
• Parish, K., Glaetzer, K., Grbich, C., Hammong, L., Hegarty, M., & McHugh, A. (2006). Dying for attention: Palliative care in the acute setting. Australian Journal of Advanced Nursing, 24(2), 21–25.
   PubMed Web of Science ®Google Scholar
• Peck, M. R. (2009). Personal death anxiety and communication about advance directives among oncology social workers. Journal of Social Work in End-Of-Life and Palliative Care, 5(1–2), 49–60. doi:10.1080/15524250903173892
   Google Scholar
• Peres, J. (2016). A time and place: The role of social workers in impriving end-of-life care. Journal of Social Work in End-Of-Life & Palliative Care, 12(3), 185–194. doi:10.1080/15524256.2016.1200522
   PubMed Web of Science ®Google Scholar
• Peters, L., Cant, R., Payne, S., O’Connor, M., McDermott, F., Hood, K., … Shimoinaba, K. (2013). Emergency and palliative care nurses’ levels of anxiety about death and coping with death: A questionnaire survey. Australasian Emergency Nursing Journal, 16(4), 152–159. doi:10.1016/j.aenj.2013.08.001
   PubMedGoogle Scholar
• Pockett, R., Walker, E., & Dave, K. (2010). ‘Last orders’: Dying in a hospital setting. Australian Social Work, 63(3), 250–265. doi:10.1080/0312407X.2010.497928
   Web of Science ®Google Scholar
• Porock, D., Porock, K., & Jurgens, F. (2009). Dying in public: The nature of dying in an acute hospital setting. Journal of Housing for the Elderly, 23, 1–2. doi:10.1080/02763890802664521
   Google Scholar
• Shinan-Altman, S. (2017). Assessing social work and nursing students’ intentions to work with dying patients. Social Work Education, 37(2), 108–118. doi:10.1080/02615479.2017.1373759
   Google Scholar
• Turner, L., Kuyini, A. B., Agustine, S. S., & Hunter, S. (2015). Social work student views on palliative care learning resources. Australian Social Work, 68(2), 259–270. doi:10.1080/0312407X.2014.995683
   Web of Science ®Google Scholar
• Weisenfluh, S. M., & Csikai, E. L. (2013). Professional and education needs of hospice and palliative care social workers. Journal of Social Work in End-Of-Life and Palliative Care, 9(1), 58–73. doi:10.1080/15524256.2012.758604
   PubMedGoogle Scholar
• Williams, B. R., Bailey, F. E., Noh, H., Woodby, L. L., Wiitch, A. R., & Burgio, K. L. (2015). “I was ready to take him home”; next-of-kins’ accounts of loved one’s death during hospice and palliative care discussions in veterans affairs medical centers. Journal of Social Work in End of Life & Palliative Care, 11(1), 50–73. doi:10.1080/15524256.2015.1021070
   PubMed Web of Science ®Google Scholar
• Workman, S., & Mann, O. E. (2007). ‘No control whatsoever’: End-of-life care on a medical teaching unit, from the perspective of family members. QJM: an International Journal of Medicine, 100(7), 433–440. doi:10.1093/qjmed/hcm042
   PubMed Web of Science ®Google Scholar