Medically high-risk pregnancy: Women’s perceptions of their relationships with health care providers

References

• Alcalde, M. C. (2013). Feminism and women’s control over their bodies in a neoliberal context: A closer look at pregnant women on bed rest. Feminist Formations, 25(3), 33–56. doi:10.1353/ff.2013.0045
   Google Scholar
• Attanasio, L., & Kozhimannil, K. B. (2015). Patient-reported communication quality and perceived discrimination in maternity care. Medical Care, 53(10), 863–871. doi:10.1097/MLR.0000000000000411
   PubMed Web of Science ®Google Scholar
• Austin, M. P., Fisher, J., & Reilly, N. (2015). Psychosocial assessment and integrated perinatal care. In J. Milgrom & A. W. Gemmill (Eds.), Identifying perinatal depression and anxiety: Evidence-based practice in screening, psychosocial assessment and management (pp. 173–194). West Sussex, UK: John Wiley & Sons, Ltd. Retrieved from http://ebookcentral.proquest.com
   Google Scholar
• Bachman, D. H., & Lind, R. F. (1997). Perinatal social work and the high risk obstetrics patient. In R. F. Lind & D. H. Bachman (Eds.), Fundamentals of perinatal social work: A guide to clinical practice with women, infants and families (pp. 1–19). New York, NY: The Haworth Press.
   Google Scholar
• Barber, C. C., & Starkey, N. J. (2015). Predictors of anxiety among pregnant New Zealand women hospitalised for complications and a community comparison group. Midwifery, 31(9), 888–896. doi:10.1016/j.midw.2015.04.017
   PubMed Web of Science ®Google Scholar
• Berger, C. S., Robbins, C., Lewis, M., Mizrahi, T., & Fleit, S. (2003). The impact of organizational change on social work staffing in a hospital setting: A national, longitudinal study of social work in hospitals. Social Work in Health Care, 37(1), 1–19. doi:10.1300/J010v37n01_01
   PubMed Web of Science ®Google Scholar
• Branch, W. T. (2014). Treating the whole patient: Passing time-honoured skills for building doctor-patient relationships on to generations of doctors. Medical Education, 48(1), 67–74. doi:10.1111/medu.12369
   PubMed Web of Science ®Google Scholar
• Burcher, P., Cheyney, M. J., Hushmendy, S., & Kiley, K. C. (2016). Cesarean birth regret and dissatisfaction: A qualitative approach. Birth, 43(4), 346–352. doi:10.1111/birt.12240
   PubMed Web of Science ®Google Scholar
• Centers for Disease Control and Prevention. (2018, October 23). Pregnancy complications. Retrieved from https://www.cdc.gov/reproductivehealth/maternalinfanthealth/pregnancy-complications.html
   Google Scholar
• Côté-Arsenault, D., & Denney-Koelsch, E. (2011). “My baby is a person”: Parents’ experiences with life-threatening fetal diagnosis. Journal of Palliative Medicine, 14(12), 1302–1308. doi:10.1089/jpm.2011.0165
   PubMed Web of Science ®Google Scholar
• Craig, S., Frankford, R., Allan, K., Williams, C., Schwartz, C., Yaworski, A., … Malek-Saniee, S. (2016). Self-reported patient psychosocial needs in integrated primary health care: A role for social work in interdisciplinary teams. Social Work in Health Care, 55(1), 41–60. doi:10.1080/00981389.2015.1085483
   PubMed Web of Science ®Google Scholar
• Creswell, J. W. (2013). Research design: Qualitative, quantitative, and mixed methods approaches (4th ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Denis, A., Michaux, P., & Callahan, S. (2012). Factors implicated in moderating the risk for depression and anxiety in high risk pregnancy. Journal of Reproductive & Infant Psychology, 30(2), 124–134. doi:10.1080/02646838.2012.677020
   Web of Science ®Google Scholar
• Diamond-Brown, L. (2016). The doctor-patient relationship as a toolkit for uncertain clinical decisions. Social Science & Medicine, 159, 108–115. doi:10.1016/j.socscimed.2016.05.002
   PubMed Web of Science ®Google Scholar
• Dole, N., Savitz, D. A., Hertz-Picciotto, I., Siega-Riz, A. M., McMahon, M. J., & Buekens, P. (2003). Maternal stress and preterm birth. American Journal of Epidemiology, 157(1), 14–24. doi:10.1093/aje/kwf176
   PubMed Web of Science ®Google Scholar
• Evans, E. J. (2018). Blended roles under health reform: Where does social work fit? Health & Social Work, 43(3), 141–144. doi:10.1093/hsw/hly016
   PubMed Web of Science ®Google Scholar
• Fairbrother, N., Young, A., Zhang, A., Janssen, P., & Antony, M. (2017). The prevalence and incidence of perinatal anxiety disorders among women experiencing a medically complicated pregnancy. Archives of Women’s Mental Health, 20, 311–319. doi:10.1007/s00737-016-0704-7
   PubMed Web of Science ®Google Scholar
• Frandsen, B. R., Joynt, K. E., Rebitzer, J. B., & Jha, A. K. (2015). Care fragmentation, quality, and costs among chronically ill patients. The American Journal of Managed Care, 21(5), 355–362.
   PubMed Web of Science ®Google Scholar
• Fuertes, J. N., Toporovsky, A., Reyes, M., & Osborne, J. B. (2017). The physician-patient working alliance: Theory, research, and future possibilities. Patient Education and Counseling, 100(4), 610–615. doi:10.1016/j.pec.2016.10.018
   PubMed Web of Science ®Google Scholar
• Goletzke, J., Kocalevent, R., Hansen, G., Rose, M., Becher, H., Hecher, K., … Diemert, A. (2017). Prenatal stress perception and coping strategies: Insights from a longitudinal prospective pregnancy cohort. Journal of Psychosomatic Research, 102, 8–14. doi:10.1016/j.jpsychores.2017.09.002
   PubMed Web of Science ®Google Scholar
• Gourounti, K., Karpathiotaki, N., & Vaslamatzis, G. (2015). Psychosocial stress in high risk pregnancy. International Archives of Medicine, 8(95), 1–9. doi:10/3823/1694
   Google Scholar
• Hunter, A., Devane, D., Houghton, C., Grealish, A., Tully, A., & Smith, V. (2017). Woman-centred care during pregnancy and birth in Ireland: Thematic analysis of women’s and clinicians’ experiences. BMC Pregnancy and Childbirth, 17(1), 322. doi:10.1186/s12884-017-1521-3
   PubMed Web of Science ®Google Scholar
• Judd, R. G., & Sheffield, S. (2010). Hospital social work: Contemporary roles and professional activities. Social Work in Health Care, 49(9), 856–871. doi:10.1080/00981389.2010.499825
   PubMed Web of Science ®Google Scholar
• Katz, M. (2000). Constructing the ‘good patient’ in conventional and unconventional medical settings: Roles, relationships, and information transfer. In J. J. Kroenenfeld (Ed.), Health, illness, and use of care: The impact of social factors (pp. 183–206). Bingley, England: Emerald Group Publishing Limited.
   Google Scholar
• Keefe, B., Geron, S. M., & Enguidanos, S. (2009). Integrating social workers into primary care: Physician and nurse perceptions of roles, benefits, and challenges. Social Work in Health Care, 48(6), 579–596. doi:10.1080/00981380902765592
   PubMed Web of Science ®Google Scholar
• Kehler, S., Ashford, K., Cho, M., & Dekker, R. L. (2016). Experience of preeclampsia and bed rest: Mental health implications. Issues in Mental Health Nursing, 37(9), 674–681. doi:10.1080/01612840.2016.1189635
   PubMed Web of Science ®Google Scholar
• Kent, R. A., Yazbek, M., Heyns, T., & Coetzee, I. (2015). The support needs of high-risk antenatal patients in prolonged hospitalisation. Midwifery, 31(1), 164–169. doi:10.1016/j.midw.2014.08.003
   PubMed Web of Science ®Google Scholar
• Kratovil, A. L., & Julion, W. A. (2016). Health-care provider communication with expectant parents during a prenatal diagnosis: An integrative review. Journal of Perinatology, 37(1), 2–12. doi:10.1038/jp.2016.123
   PubMed Web of Science ®Google Scholar
• Leichtentritt, R. D., Blumenthal, N., Elyassi, A., & Rotmensch, S. (2005). High-risk pregnancy and hospitalization: The women’s voices. Health & Social Work, 30(1), 39–47. doi:10.1093/hsw/30.1.39
   PubMed Web of Science ®Google Scholar
• Lennon, S. L. (2016). Risk perception in pregnancy: A concept analysis. Journal of Advanced Nursing, 72(9), 2016–2029. doi:10.1111/jan.13007
   PubMed Web of Science ®Google Scholar
• Lewis, C. (2015, June 29). Opportunities for social workers expand under Obamacare. [Blog post]. Retrieved from https://crispinc.org/2015/06/29/opportunities-for-social-workers-expand-under-obamacare/
   Google Scholar
• Lima, S. A. M., El Dib, R. P., Rodrigues, M. R. K., Ferraz, G. A. R., Molina, A. C., Neto, C. A. P., … Rudge, M. V. C. (2018). Is the risk of low birth weight or preterm labor greater when maternal stress is experienced during pregnancy? A systematic review and meta-analysis of cohort studies. PloS One, 13(7), e0200594. doi:10.1371/journal.pone.0200594
   PubMed Web of Science ®Google Scholar
• Lynch, S., Greeno, C., Teich, J., & Delany, P. (2016). Opportunities for social work under the affordable care act: A call for action. Social Work in Health Care, 55(9), 651–674. doi:10.1080/00981389.2016.1221871
   PubMed Web of Science ®Google Scholar
• Mackintosh, N., Rance, S., Carter, W., & Sandall, J. (2017). Working for patient safety: A qualitative study of women’s help-seeking during acute perinatal events. BMC Pregnancy and Childbirth, 17(1), 232. doi:10.1186/s12884-017-1401-x
   PubMed Web of Science ®Google Scholar
• Makregiorgos, H., Joubert, L. D., & Epstein, I. (2013). Maternal mental health: Pathways of care for women experiencing mental health issues during pregnancy. Social Work in Health Care, 52(2–3), 258–279. doi:10.1080/00981389.2012.737899
   PubMed Web of Science ®Google Scholar
• Maloni, J. A., Kane, J. H., Suen, L., & Wang, K. K. (2002). Dysphoria among high-risk pregnant hospitalized women on bed rest: A longitudinal study. Nursing Research, 51(2), 92–99. doi:10.1586/eog.11.28
   PubMed Web of Science ®Google Scholar
• Marmor, T. R. (2010). American health care policy and politics: Is fragmentation a helpful category for understanding health reform experience and prospects? In E. Elhauge Ed. The fragmentation of U.S. health care: Causes and solutions. (pp. 343–359). New York, NY: Oxford University Press. doi:10.1093/acprof:oso/9780195390131.003.015
   Google Scholar
• Martin, S. (2018). Inter-facility maternal transport. (K. Eckler Ed.). Waltham, MA: UpToDate. Retrieved from https://www.uptodate.com/contents/inter-facility-maternal-transport
   Google Scholar
• Maxwell, J. A. (2013). Qualitative research design: An interactive approach (3rd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• McCoyd, J. L. M., Munch, S., & Curran, L. (2018). On being mother and patient: Dialectical struggles during medically high-risk pregnancy. Infant Mental Health Journal, 39(6), 674–686. doi:10.1002/imhj.2018.39.issue-6
   PubMed Web of Science ®Google Scholar
• McKinlay, J. B., & Marceau, L. D. (2002). The end of the golden age of doctoring. International Journal of Health Services, 32(2), 379–416. doi:10.2190/JL1D-21BG-PK2N-J0KD
   PubMed Web of Science ®Google Scholar
• Meaney, S., Lutomski, J. E., O’Connor, L., O’Donoghue, K., & Greene, R. A. (2016). Women’s experience of maternal morbidity: A qualitative analysis. BMC Pregnancy and Childbirth, 16(184), 1–6. doi:10.1186/s12884-016-0974-0
   PubMed Web of Science ®Google Scholar
• Munch, S. (2000). A qualitative analysis of physician humanism: Women’s experiences with hyperemesis gravidarum. Journal of Perinatology, 20, 540–547. doi:10.1038/sj.jp.7200464
   PubMedGoogle Scholar
• National Association of Perinatal Social Workers. (2007, April). Standards for social work services in obstetric settings. Retrieved from https://www.napsw.org/assets/docs/obstetrics-standards.pdf
   Google Scholar
• National Institute of Child Health Development (NICHD). (2017, January 31). High risk. Retrieved from https://www.nichd.nih.gov/health/topics/pregnancy/conditioninfo/pages/high-risk.aspx
   Google Scholar
• Nicoloro-SantaBarbara, J., Rosenthal, L., Auerbach, M. V., Kocis, C., Busso, C., & Lobel, M. (2017). Patient-provider communication, maternal anxiety, and self-care in pregnancy. Social Science & Medicine, 190, 133–140. doi:10.1016/j.socscimed.2017.08.011
   PubMed Web of Science ®Google Scholar
• Parsons, T. (1951). The social system. New York, NY: The Free Press.
   Google Scholar
• Phillippi, J. C., Holley, S. L., Schorn, M. N., Lauderdale, J., Roumie, C. L., & Bennett, K. (2016). On the same page: A novel interprofessional model of patient-centered perinatal consultation visits. Journal of Perinatology, 36(11), 932–938. doi:10.1038/jp.2016.124
   PubMed Web of Science ®Google Scholar
• Pozzo, M. L., Brusanti, V., & Cetin, I. (2010). Clinical relationship and psychological experience of hospitalization in “high-risk” pregnancy. European Journal of Obstetrics & Gynecology and Reproductive Biology, 149(2), 136–142. doi:10.1016/j.ejogrb.2009.12.009
   PubMed Web of Science ®Google Scholar
• Roscigno, C. I., Savage, T. A., Kavanaugh, K., Moro, T. T., Kilpatrick, S. J., Strassner, H. T., … Kimura, R. E. (2012). Divergent views of hope influencing communications between parents and hospital providers. Qualitative Health Research, 22(9), 1232–1246. doi:10.1177/1049732312449210
   PubMed Web of Science ®Google Scholar
• Rubarth, L. B., Schoening, A. M., Cosimano, A., & Sandhurst, H. (2012). Women’s experience of hospitalized bed rest during high-risk pregnancy. Journal of Obstetric, Gynecologic & Neonatal Nursing, 41(3), 398–407. doi:10.1111/j.1552-6909.2012.01349.x
   PubMed Web of Science ®Google Scholar
• Saunders, B., Sim, J., Kingstone, T., Baker, S., Waterfield, J., Bartlam, B, … Jinks, C. (2018). Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality & Quantity, 52(4), 1893–1907. doi:10.1007/s11135-017-0574-8
   PubMed Web of Science ®Google Scholar
• Shahar, G., Porcerelli, J. H., Kamoo, R., Epperson, C. N., Czarkowski, K. A., Magriples, U., & Mayes, L. C. (2010). Defensive projection, superimposed on simplistic object relations, erodes patient-provider relationships in high-risk pregnancy: An empirical investigation. Journal of the American Psychoanalytic Association, 58(5), 953–974. doi:10.1177/0003065110392228
   PubMed Web of Science ®Google Scholar
• Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method, and research. London, England: Sage.
   Google Scholar
• Snow, K. (2016, November 28). Behavioral health integration in OB/gyn settings [Blog post]. Retrieved from http://www.pcpci.org/blog/behavioral-health-integration-in-obgyn-settings
   Google Scholar
• Sokolowski, R. (2000). Introduction to phenomenology. New York, NY: Cambridge University Press.
   Google Scholar
• Stainton, M. C. (1992). Mismatched caring in high-risk perinatal situations. Clinical Nursing Research, 1(1), 35–49. doi:10.1177/105477389200100106
   PubMedGoogle Scholar
• Vang, Z. M., Gagnon, R., Lee, T., Jimenez, V., Navickas, A., Pelletier, J., & Shenker, H. (2018). Interactions between indigenous women awaiting childbirth away from home and their southern, non-indigenous health care providers. Qualitative Health Research, 28(12), 1858–1870. doi:10.1177/1049732318792500
   PubMed Web of Science ®Google Scholar
• Wagstaff, C., & Williams, B. (2014). Specific design features of an interpretative phenomenological analysis study. Nurse Researcher, 21(3), 8–12. doi:10.7748/nr2014.01.21.3.8.e1226
   PubMedGoogle Scholar
• Weidner, K., Bittner, A., Junge-Hoffmeister, J., Zimmerman, K., Sidentopf, F., Richter, J., … Stobel-Richter, Y. (2010). A psychosomatic intervention in pregnant in-patient women with prenatal somatic risks. Journal of Psychosomatic Obstetrics and Gynecology, 31(3), 188–198. doi:10.3109/0167482X.2010.497233
   PubMed Web of Science ®Google Scholar
• White, O., McCorry, N. K., Scott-Hayes, G., Dempster, M., & Manderson, J. (2008). Maternal appraisals of risk, coping and prenatal attachment among women hospitalized with pregnancy complications. Journal of Reproductive and Infant Psychology, 26(2), 74–85. doi:10.1080/02646830801918455
   Web of Science ®Google Scholar
• Wilhelm, L. A., Alves, C. N., Demori, C. C., da Silva, S. C., Meincke, S. M. K., & Ressel, L. B. (2015). Feelings of women who experienced a high-risk pregnancy: A descriptive study. Online Brazilian Journal of Nursing, 14(3), 1–6. doi:10.17665/1676-4285.20155206
   Google Scholar
• Wohlreich, M. (1987). Psychiatric aspects of high-risk pregnancy. Psychiatric Clinics of North America, 10(1), 53–68. doi:10.1016/S0193-953X(18)30576-8
   PubMed Web of Science ®Google Scholar
• Woodhart, L., Goldstone, J., & Hartz, D. (2018). The stories of women who are transferred due to threat of preterm birth. Women and Birth, 31(4), 307–312. doi:10.1016/j.wombi.2017.10.015
   PubMed Web of Science ®Google Scholar
• World Health Organization. (2017). Managing complications in pregnancy and childbirth: A guide for midwives and doctors. Retrieved from https://www.who.int/maternal_child_adolescent/documents/managing-complications-pregnancy-childbirth/en/
   Google Scholar