The value of healthcare data: to nudge, or not?

References

• Andrejevic, Mark. 2014. “Big Data, Big Questions: The Big Data Divide.” International Journal of Communication (8): 1673–1689. ISSN: 1932-8036.
   Google Scholar
• Barton, Adrien, and Till Grüne-Yanoff. 2015. “From Libertarian Paternalism to Nudging—and Beyond.” Review of Philosophy and Psychology 6 (3): 341–359. doi:10.1007/s13164-015-0268-x.
   Web of Science ®Google Scholar
• Baylis, Françoise, Nuala P. Kenny, and Susan Sherwin. 2008. “A Relational Account of Public Health Care Ethics.” Public Health Ethics 1 (3): 196–209. doi:10.1093/phe/phn025.
   Web of Science ®Google Scholar
• Bhargava, S., and G. Loewenstein. 2015. “Behavioral Economics and Public Policy 102: Beyond Nudging.” American Economic Review 105 (5): 396–401.
   Web of Science ®Google Scholar
• Birch, Kean. 2017. “Rethinking Value in the Bio-economy: Finance, Assetization, and the Management of Value.” Science, Technology, & Human Values 42 (3): 460–490. doi:10.1177/0162243916661633.
   PubMed Web of Science ®Google Scholar
• Birch, Kean, Margaret Chiappetta, and Anna Artyushina. 2020. “The Problem of Innovation in Technoscientific Capitalism.” Policy Studies 41 (5): 468–487.
   Web of Science ®Google Scholar
• Brady, David. 2009. Rich Democracies, Poor People: How Politics Explain Poverty. Oxford: Oxford University Press.
   Google Scholar
• Briant, Emma L., and Steven Harkins. 2017. “Managing the Social Impacts of Austerity Britain: The Cultural Politics of Neo-liberal ‘Nudging’.” In Cultural Politics in the Age of Austerity, edited by David Berry, 93–119. London: Routledge.
   Google Scholar
• Bubb, Ryan, and Richard H. Pildes. 2014. “How Behavioral Economics Trims Its Sails and Why.” Harvard Law Review 127 (6): 1593–1678. ISSN: 0017811X.
   Web of Science ®Google Scholar
• de Mul, Jos. 1999. “The Informatization of the Worldview.” Information, Communication and Society 2 (1): 69–94. doi:10.1080/136911899359763.
   Google Scholar
• Drope, Jeffrey, Alex C. Liber, Zachary Cahn, Michal Stoklosa, Rosemary Kennedy, Clifford E. Douglas, Rosemarie Henson, and Jacqui Drope. 2018. “Who’s Still Smoking? Disparities in Adult Cigarette Smoking Prevalence in the United States.” CA: A Cancer Journal for Clinicians 68 (2): 106–115.
   PubMed Web of Science ®Google Scholar
• Feitsma, Joram. 2019. “Brokering Behaviour Change: The Work of Behavioural Insights Experts in Government.” Policy & Politics 47 (1): 37–56. doi:10.1332/030557318X15174915040678.
   Web of Science ®Google Scholar
• Flores, Mauricio, Gustavo Glusman, Kristin Brogaard, Nathan D. Price, and Leroy Hood. 2013. “P4 Medicine: How Systems Medicine Will Transform the Healthcare Sector and Society.” Personalized Medicine 10 (6): 565–576. doi:10.2217/pme.13.57.
   PubMed Web of Science ®Google Scholar
• Glover, Marewa, and Annette Kira. 2011. “Why Maori Women Continue to Smoke While Pregnant.” The New Zealand Medical Journal 124 (1339): 22–31.
   PubMedGoogle Scholar
• Goodwin, Tom. 2012. “Why We Should Reject ‘Nudge’.” Politics 32 (2): 85–92. doi:10.1111/j.1467-9256.2012.01430.x.
   Web of Science ®Google Scholar
• Hansen, Pelle Guldborg. 2018. “What are We Forgetting?” Behavioural Public Policy 2 (2): 190–197. doi:10.1017/bpp.2018.13.
   Google Scholar
• Hartzband, Pamela, and Jerome Groopman. 2016. “Medical Taylorism.” New England Journal of Medicine 374 (2): 106–108. doi:10.1056/NEJMp1512402.
   PubMed Web of Science ®Google Scholar
• HL (House of Lords). 2011. “Science and Technology Select Committee.” Behaviour Change. Report 2011. HL Paper 179. www.parliament.uk/hlscience.
   Google Scholar
• Hollis, Chris, Richard Morriss, Jennifer Martin, Sarah Amani, Rebecca Cotton, Mike Denis, and Shon Lewis. 2015. “Technological Innovations in Mental Healthcare: Harnessing the Digital Revolution.” The British Journal of Psychiatry 206 (4): 263–265. doi:10.1192/bjp.bp.113.142612.
   PubMed Web of Science ®Google Scholar
• John, Peter. 2014. “Policy Entrepreneurship in UK Central Government: The Behavioural Insights Team and the Use of Randomized Controlled Trials.” Public Policy and Administration 29 (3): 257–267.
   PubMed Web of Science ®Google Scholar
• Jones, Rhys, Jessica Pykett, and Mark Whitehead. 2011. “Governing Temptation: Changing Behaviour in an Age of Libertarian Paternalism.” Progress in Human Geography 35 (4): 483–501.
   Web of Science ®Google Scholar
• Jones, Rhys, Jessica Pykett, and Mark Whitehead. 2013. Changing Behaviours: On the Rise of the Psychological State. Cheltenham: Edward Elgar.
   Google Scholar
• Juengst, Eric, Michelle L. McGowan, Jennifer R. Fishman, and Richard A. Settersten. 2016. “From ‘Personalized’ to ‘Precision’ Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic Medicine.” Hastings Center Report 46 (5): 21–33.
   PubMed Web of Science ®Google Scholar
• Kahneman, Daniel. 2011. Thinking, Fast and Slow. New York, NY: Macmillan.
   Google Scholar
• Leggett, Will. 2014. “The Politics of Behaviour Change: Nudge, Neoliberalism and the State.” Policy & Politics 42 (1): 3–19.
   Web of Science ®Google Scholar
• Lepenies, Robert, and Magdalena Małecka. 2015. “The Institutional Consequences of Nudging–Nudges, Politics, and the Law.” Review of Philosophy and Psychology 6 (3): 427–437.
   Web of Science ®Google Scholar
• Lourenço, J. S., E. Ciriolo, S. R. Almeida, and X. Troussard. 2016. Behavioural Insights Applied to Policy: European Report 2016. Brussels: European Commission Joint Research Centre.
   Google Scholar
• Lupton, Deborah. 2013. “The Digitally Engaged Patient: Self-monitoring and Self-care in the Digital Health Era.” Social Theory & Health 11 (3): 256–270.
   Web of Science ®Google Scholar
• Lupton, Deborah, L. Ablon, M. Libicki, A. Golay, L. Ackerman, S. Adams, and W. Levinson. 2018. “Big Other: Surveillance Capitalism and the Prospects of an Information Civilization.” In Digital Health: Critical and Cross-disciplinary Perspectives, edited by Deborah Lupton, 229–244. Santa Monica, CA: Ashgate.
   Google Scholar
• MacKay, Kathryn, and Muireann Quigley. 2018. “Exacerbating Inequalities? Health Policy and the Behavioural Sciences.” Health Care Analysis 26 (4): 380–397.
   PubMed Web of Science ®Google Scholar
• Mackenzie, Catriona, and Natalie Stoljar. 2000. Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self. Oxford: Oxford University Press.
   Google Scholar
• Madi, Maria Alejandra. 2017. Nudges – Their Dark Side. The World Economics Association (n.d.). Accessed May 28, 2019. https://www.worldeconomicsassociation.org/newsletterarticles/nudges-dark-side/.
   Google Scholar
• Marmot, Michael. 2018. “Social Causes of the Slowdown in Health Improvement.” Journal of Epidemiology and Community Health 72: 359–360.
   PubMed Web of Science ®Google Scholar
• Marmot, Michael, and Richard G. Wilkinson, eds. 2005. Social Determinants of Health. Oxford: Oxford University Press.
   Google Scholar
• McCrudden, Christopher, and Jeff King. 2016. “The Dark Side of Nudging: The Ethics, Political Economy, and Law of Libertarian Paternalism.” In Choice Architecture in Democracies, Exploring the Legitimacy of Nudging, edited by Alexandra Kemmerer, Christoph Möllers, Maximilian Steinbeis, and Gerhard Wagner, 75–140. Baden-Baden: Nomos Verlagsgesellschaft mbH. KG/ Oxford: Hart.
   Google Scholar
• McDonald, Laura, Bill Malcolm, Sreeram Ramagopalan, and Hayley Syrad. 2012. “Real-world Data and the Patient Perspective: The PROmise of Social Media?” BMC Medicine 17 (1): 11.
   Web of Science ®Google Scholar
• McMahon, John. 2015. “Behavioral Economics as Neoliberalism: Producing and Governing ‘Homo Economicus’.” Contemporary Political Theory 14 (2): 137–158.
   Web of Science ®Google Scholar
• McMahon, Aisling, Alena Buyx, and Barbara Prainsack. 2019. “Big Data Governance Needs More Collective Responsibility: The Role of Harm Mitigation in the Governance of Data Use in Medicine and Beyond.” Medical Law Review. (online first). https://academic.oup.com/medlaw/advancearticle/doi/10.1093/medlaw/fwz016/5543530?searchresult=1.
   PubMed Web of Science ®Google Scholar
• Mustafee, Navonil, John H. Powell, Susan Martin, Andrew Fordyce, and Alison Harper. 2017. “Investigating the Use of Real-time Data in Nudging Patients’ Emergency Department (ED) Attendance Behaviour.” In Of the 2017 Spring Simulation Multi-Conference, April 23–26, Virginia Beach, VA. Article 6.
   Google Scholar
• Nedelsky, Jennifer. 2011. Law’s Relations: A Relational Theory of Self, Autonomy, and Law. New York: Oxford University Press.
   Google Scholar
• Nettleton, Sarah. 2004. “The Emergence of E-scaped Medicine?” Sociology 38 (4): 661–679.
   Google Scholar
• Nettleton, Sarah, and Roger Burrows. 2003. “E-scaped Medicine? Information, Reflexivity and Health.” Critical Social Policy 23 (2): 165–185.
   Web of Science ®Google Scholar
• Ostrom, Elinor. 2010. “Beyond Markets and States: Polycentric Governance of Complex Economic Systems.” Transnational Corporations Review 2 (2): 1–12.
   Google Scholar
• Piniewski, Brigitte, Cristiano Codagnone, and David Osimo. 2011. Nudging Lifestyles For Better Health Outcomes: Crowdsourced Data and Persuasive Technologies for Behavioural Change. JRC European Commission. Accessed November 9, 2019. https://ec.europa.eu/jrc/en/about/jrc-site/seville?id=4219.
   Google Scholar
• Prainsack, Barbara. 2017. Personalized Medicine: Empowered Patients in the 21st Century. New York City: New York University Press.
   Google Scholar
• Prainsack, Barbara, and Alena Buyx. 2014. “Nudging and Solidarity: Do They Go Together?” Eurohealth 20 (2): 14–17. http://www.euro.who.int/__data/assets/pdf_file/0017/252251/EuroHealth_v20n2.pdf.
   Google Scholar
• Prainsack, Barbara, and Alena Buyx. 2016. “Thinking Ethical and Regulatory Frameworks in Medicine From the Perspective of Solidarity on Both Sides of the Atlantic.” Theoretical Medicine and Bioethics 37 (6): 489–501.
   PubMed Web of Science ®Google Scholar
• Prainsack, Barbara, and Alena Buyx. 2017. Solidarity in Biomedicine and Beyond. Cambridge: Cambridge University Press.
   Google Scholar
• Prainsack, Barbara, and Ine Van Hoyweghen. in press. “Shifting Solidarities: Personalisation in Insurance and Medicine.” In Shifts in Solidarities. Trends and Developments in European Societies, edited by Ine Van Hoyweghen, Valeria Pulignano, and Gert Meyers. London: Palgrave Macmillan.
   Google Scholar
• Pykett, Jessica. 2012. “The New Maternal State: The Gendered Politics of Governing Through Behaviour Change.” Antipode 44 (1): 217–238.
   Web of Science ®Google Scholar
• Redden, Joanna, Lina Dencik, and Harry Warne. 2020. “Datafied Child Welfare Services: Unpacking Politics, Economics and Power.” Policy Studies 41 (5): 507–526.
   Web of Science ®Google Scholar
• Schrecker, Ted, and Clare Bambra. 2015. How Politics Makes Us Sick: Neoliberal Epidemics. Houndmills: Palgrave Macmillan.
   Google Scholar
• Sharon, Tamar. 2016. “The Googlization of Health Research: From Disruptive Innovation to Disruptive Ethics.” Personalized Medicine 13 (6): 563–574.
   PubMed Web of Science ®Google Scholar
• Shove, Elizabeth, Mika Pantzar, and Matt Watson. 2012. The Dynamics of Social Practice: Everyday Life and How It Changes. London: Sage.
   Google Scholar
• Siedentop, Larry. 2014. Inventing the Individual: The Origins of Western Liberalism. Cambridge, MA: Harvard University Press.
   Google Scholar
• Slater, Philip Elliot. 1990. The Pursuit of Loneliness: American Culture at the Breaking Point. Boston, MA: Beacon Press.
   Google Scholar
• Straßheim, Holger, and Silke Beck. 2019. “Introduction.” In Handbook of Behavioural Change and Public Policy, edited by Holger Straßheim and Silke Beck, 1–21. Cheltenham: Edward Elgar.
   Google Scholar
• Taylor, Charles. 1985. “The Person.” In The Category of the Person: Anthropology, Philosophy, History, edited by Michael Carrithers, Steven Collins, and Steven Lukes, 257–281. Cambridge: Cambridge University Press.
   Google Scholar
• Thaler, Richard H., and Cass R. Sunstein. 2008. Nudge: Improving Decisions about Health, Wealth, and Happiness. New York: Penguin Books.
   Google Scholar
• Topol, Eric. 2015. The Patient Will See You Now: The Future of Medicine is in Your Hands. New York: Basic Books.
   Google Scholar
• [US] National Academy of Sciences (NAS). 2011. Toward Precision Medicine: Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease. Washington, DC: NAS.
   Google Scholar
• Webster, Andrew. 2002. “Innovative Health Technologies and the Social: Redefining Health, Medicine and the Body.” Current Sociology 50 (3): 443–457.
   Google Scholar
• Whitehead, Mark, Rhys Jones, Rachel Howell, Rachel Lilley, and Jessica Pykett. 2014. Nudging All Over the World. Swindon/Edinburgh: ESRC Report.
   Google Scholar
• Whitehead, Mark, Rhys Jones, Jessica Pykett, and Marcus Welsh. 2012. “Commentary: Geography, Libertarian Paternalism and Neuro-politics in the UK.” The Geographical Journal 178 (4): 302–307.
   Web of Science ®Google Scholar
• Wilkinson, Richard, and Kate Pickett. 2010. The Spirit Level: Why Equality is Better for Everyone. London: Penguin UK.
   Google Scholar
• Williams, Oli, and Simone Fullagar. 2019. “Lifestyle Drift and the Phenomenon of ‘Citizen Shift’ in Contemporary UK Health Policy.” Sociology of Health & Illness 41 (1): 20–35.
   PubMed Web of Science ®Google Scholar
• Zhang, David D. Q., Fahima Dossa, and Nancy N. Baxter. 2018. “How to Combat the Opioid Epidemic, 1 Nudge at a Time.” JAMA Surgery 153 (11): 1020–1020.
   PubMed Web of Science ®Google Scholar
• Zola, Irvin K. 1972. “Medicine as an Institution of Social Control.” The Sociological Review 20 (4): 487–504.
   PubMed Web of Science ®Google Scholar
• Zuboff, Shoshana. 2019. The Age of Surveillance Capitalism: The Fight for a Human Future at the New Frontier of Power. London: Profile Books.
   Google Scholar