Diabetic Retinopathy and the Cascade into Vision Loss

References

• Ackermann, R. T., E. A. Finch, E. Brizendine, H. Zhou, and D. G. Marrero 2008 Translating the Diabetes Prevention Program into the community: The DEPLOY pilot study. American Journal of Preventive Medicine 35(4):357–363.
   PubMed Web of Science ®Google Scholar
• Barry, M. J. and S. Edgman-Levitan 2012 Shared decision making— Pinnacle of patient-centered care. New England Journal of Medicine 366(9):780–781.
   PubMed Web of Science ®Google Scholar
• Berry, N. S. 2008 Who’s judging the quality of care? Indigenous Maya and the problem of “not being attended.” Medical Anthropology 27(2):164–189.
   PubMed Web of Science ®Google Scholar
• Cuadros, J. and G. Bresnick 2009 EyePACS: An adaptable telemedicine system for diabetic retinopathy screening. Journal of Diabetes Science and Technology 3:509–516.
   PubMedGoogle Scholar
• Daskivich, L. P., C. Vasquez, C. Martinez Jr., C. H. Tseng, and C. M. Mangione 2017 Implementation and evaluation of a large-scale teleretinal diabetic retinopathy screening program in the Los Angeles County Department of Health Services. JAMA Internal Medicine 177(5):642–649.
   PubMed Web of Science ®Google Scholar
• Epple, C., A. L. Wright, V. N. Joish, and M. Bauer 2003 The role of active family nutritional support in Navajos’ type 2 diabetes metabolic control. Diabetes Care 26(10):2829–2834.
   PubMed Web of Science ®Google Scholar
• Ferris, F. L. 1993 How effective are treatments for diabetic retinopathy? JAMA 269(10):1290–1291.
   PubMed Web of Science ®Google Scholar
• Freeman, H. P. 2006 Patient navigation: A community based strategy to reduce cancer disparities. Journal of Urban Health 83(2):139–141.
   PubMed Web of Science ®Google Scholar
• Friedman, D. S., S. R. Hahn, L. Gelb, J. Tan, S. N. Shah, E. E. Kim, T. J. Zimmerman, et al. 2008 Doctor–Patient communication, health-related beliefs, and adherence in glaucoma: Results from the glaucoma adherence and persistency study. Ophthalmology 115(8):1320–1327.
   PubMed Web of Science ®Google Scholar
• Glasgow, R. E., E. H. Wagner, R. M. Kaplan, F. Vinicor, L. Smith, and J. Norman 1999 If diabetes is a public health problem, why not treat it as one? A population-based approach to chronic illness. Annals of Behavioral Medicine 21(2):159.
   PubMed Web of Science ®Google Scholar
• Gonzalez-Guarda, R. M. 2013 Pushing the syndemic research agenda forward: A comment on Pitpitan et al. Annals of Behavioral Medicine 45(2):135–136.
   PubMed Web of Science ®Google Scholar
• Hahn, S. R. 2009 Patient-centered communication to assess and enhance patient adherence to glaucoma medication. Ophthalmology 116(11):S37–S42.
   PubMed Web of Science ®Google Scholar
• Jandorf, L., Y. Gutierrez, J. Lopez, J. Christie, and S. H. Itzkowitz 2005 Use of a patient navigator to increase colorectal cancer screening in an urban neighborhood health clinic. Journal of Urban Health 82(2):216–224.
   PubMed Web of Science ®Google Scholar
• Javitt, J. C., L. P. Aiello, Y. Chiang, F. L. Ferris, J. K. Canner, and S. Greenfield 1994 Preventive eye care in people with diabetes is cost-saving to the federal government: Implications for health-care reform. Diabetes Care 17(8):909–917.
   PubMed Web of Science ®Google Scholar
• Keenum, Z., G. McGwin, C. D. Witherspoon, J. A. Haller, M. E. Clark, and C. Owsley 2016 Patients’ adherence to recommended follow-up eye care after diabetic retinopathy screening in a publicly funded county clinic and factors associated with follow-up eye care use. JAMA Ophthalmology 134(11):1221–1228.
   PubMed Web of Science ®Google Scholar
• Kirkizlar, E., N. Serban, J. A. Sisson, J. L. Swann, C. S. Barnes, and M. D. Williams 2013 Evaluation of telemedicine for screening of diabetic retinopathy in the Veterans Health Administration. Ophthalmology 120(12):2604–2610.
   PubMed Web of Science ®Google Scholar
• Klein, B. E. K. 2007 Overview of epidemiologic studies of diabetic retinopathy. Ophthalmic Epidemiology 14(4):179–183.
   PubMed Web of Science ®Google Scholar
• Lazarus, E. S. 1990 Falling through the cracks: Contradictions and barriers to care in a prenatal clinic. Medical Anthropology 12(3):269–287.
   PubMedGoogle Scholar
• Lee, D. J., N. Kumar, W. J. Feuer, C. Chou, P. R. Rosa, J. C. Schiffman, A. Morante, et al. 2014 Dilated eye examination screening guideline compliance among patients with diabetes without a diabetic retinopathy diagnosis: The role of geographic access. BMJ Open Diabetes Research & Care 2(1):e000031.
   PubMedGoogle Scholar
• Lee, S. J., C. A. McCarty, C. Sicari, P. M. Livingston, C. A. Harper, H. R. Taylor, and J. E. Keeffe 2000 Recruitment methods for community-based screening for diabetic retinopathy. Ophthalmic Epidemiology 7(3):209–218.
   PubMedGoogle Scholar
• Manderson, L. and C. Smith-Morris 2010 Introduction. In Chronic Conditions, Fluid States: Chronicity and the Experience of Illness. L. Manderson and C. Smith-Morris, eds. New Brunswick, NJ: Rutgers University Press.
   Google Scholar
• Manderson, L. and N. Warren 2016 “Just one thing after another”: Recursive cascades and chronic conditions. Medical Anthropology Quarterly 30(4):479–497.
   PubMed Web of Science ®Google Scholar
• Mendenhall, E. 2013 Syndemic Suffering: Social Distress, Depression, and Diabetes among Mexican Immigrant Women. New York: Routledge.
   Google Scholar
• ——————. 2016 Beyond comorbidity: A critical perspective of syndemic depression and diabetes in cross‐cultural contexts. Medical Anthropology Quarterly 30(4):462–478.
   PubMed Web of Science ®Google Scholar
• Mtuya, C., C. R. Cleland, H. Philippin, K. Paulo, B. Njau, W. U. Makupa, C. Hall, et al. 2016 Reasons for poor follow-up of diabetic retinopathy patients after screening in Tanzania: A cross-sectional study. BMC Ophthalmology 16(1):115.
   PubMed Web of Science ®Google Scholar
• Murchison, A. P., L. Hark, L. T. Pizzi, Y. Dai, E. L. Mayro, P. P. Storey, B. E. Leiby, and J. A. Haller 2017 Nonadherence to eye care in people with diabetes. BMJ Open Diabetes Research and Care 5(1):e000333.
   Web of Science ®Google Scholar
• Nguyen, H. V., G. Tan, R. Tapp, S. Mital, D. Ting, H. Wong, C. Tan, et al. 2016 Cost-effectiveness of a National Telemedicine Diabetic Retinopathy Screening Program in Singapore. Ophthalmology 123(12):2571–2580.
   PubMed Web of Science ®Google Scholar
• Norwood, F. 2006 The ambivalent chaplain: Negotiating structural and ideological difference on the margins of modern-day hospital medicine. Medical Anthropology 25(1):1–29.
   PubMed Web of Science ®Google Scholar
• Operario, D. and T. Nemoto 2010 HIV in transgender communities: Syndemic dynamics and a need for multicomponent interventions. Journal of Acquired Immune Deficiency Syndromes 55(Suppl 2):S91.
   PubMed Web of Science ®Google Scholar
• Paz, S. H., R. Varma, R. Klein, J. Wu, and S. P. Azen, and Group Los Angeles Latino Eye Study 2006 Noncompliance with vision care guidelines in Latinos with type 2 diabetes mellitus: The Los Angeles Latino Eye Study. Ophthalmology 113(8):1372–1377.
   PubMed Web of Science ®Google Scholar
• Potter, N. 2015 Defiance, epistemologies of ignorance, and giving uptake properly. In Diagnostic Controversy: Cultural Perspectives on Competing Knowledge in Healthcare. C. Smith-Morris, ed. Pp.147–168. New York: Routledge.
   Google Scholar
• Quade, R. 2011 Evaluation of the expanding access to diabetic retinopathy screening initiative. Evaluation Report Prepared by R. Quade and Associates for California HealthCare Foundation. Oakland, CA: California HealthCare Foundation.
   Google Scholar
• Ryan, G. W. and H. R. Bernard 2003 Techniques to identify themes. Field Methods 15(1):85–109.
   Google Scholar
• Segal, L., M. J. Leach, E. May, and C. Turnbull 2013 Regional primary care team to deliver best-practice diabetes care. A needs-driven health workforce model reflecting a biopsychosocial construct of health. Diabetes Care 36(7):1898–1907.
   PubMed Web of Science ®Google Scholar
• Singer, M., N. Bulled, B. Ostrach, and E. Mendenhall 2017 Syndemics and the biosocial conception of health. The Lancet 389(10072):941–950.
   PubMed Web of Science ®Google Scholar
• Smith, C. 2000 False expectations? Expectations vs. probabilities for dying. Omega Journal of Death and Dying 41(3):157–185.
   PubMed Web of Science ®Google Scholar
• Smith-Morris, C. 2006a Community participation in tribal diabetes programming. American Indian Culture & Research Journal 30(2):85–110.
   Web of Science ®Google Scholar
• —————— 2006b Diabetes among the Pima: Stories of Survival. Tucson, AZ: University of Arizona Press.
   Google Scholar
• —————— 2010 The Chronicity of Life, the Acuteness of Diagnosis. In Chronic Conditions, Fluid States: Chronicity and the Anthropology of Illness. L. Manderson and C. Smith-Morris, eds. Pp. 21–37. New Brunswick, NJ: Rutgers University Press.
   Google Scholar
• SocioCultural Research Consultants, LLC 2016 Web Application for Managing, Analyzing, and Presenting Qualitative and Mixed Method Research Data. Dedoose Version 7.0.23. Los Angeles, CA: SocioCultural Research Consultants, LLC.
   Google Scholar
• Sommer, I., U. Griebler, P. Mahlknecht, K. Thaler, K. Bouskill, G. Gartlehner, and S. Mendis 2015 Socioeconomic inequalities in non-communicable diseases and their risk factors: An overview of systematic reviews. BMC Public Health 15(1):914.
   PubMed Web of Science ®Google Scholar
• Storey, P. P., A. P. Murchison, L. T. Pizzi, L. A. Hark, Y. Dai, B. E. Leiby, and J. A. Haller 2016 Impact of physician communication on diabetic eye examination adherence: Results from a retrospective cohort analysis. Retina 36(1):20–27.
   PubMed Web of Science ®Google Scholar
• Strathmann, C. M. and M. C. Hay 2009 Working the waiting room: Managing fear, hope, and rage at the clinic gate. Medical Anthropology 28(3):212–234.
   PubMed Web of Science ®Google Scholar
• Taylor, C. R., L. M. Merin, A. M. Salunga, J. T. Hepworth, T. D. Crutcher, D. M. O’Day, and B. A. Pilon 2007 Improving diabetic retinopathy screening ratios using telemedicine-based digital retinal imaging technology. The Vine Hill Study. Diabetes Care 30(3):574–578.
   PubMed Web of Science ®Google Scholar
• Thompson, A. C., M. O. Thompson, D. L. Young, R. C. Lin, S. R. Sanislo, D. M. Moshfeghi, and K. Singh 2015 Barriers to follow-up and strategies to improve adherence to appointments for care of chronic eye diseases. Investigative Ophthalmology & Visual Science 56(8):4324–4331.
   PubMed Web of Science ®Google Scholar
• Tjørnhøj-Thomsen, T. and H. P. Hansen 2013 The ritualization of rehabilitation. Medical Anthropology 32(3):266–285.
   PubMed Web of Science ®Google Scholar
• Walker, E. A., C. B. Schechter, A. Caban, and C. E. Basch 2008 Telephone intervention to promote diabetic retinopathy screening among the urban poor. American Journal of Preventive Medicine 34(3):185–191.
   PubMed Web of Science ®Google Scholar
• Weaver, L. J. and E. Mendenhall 2014 Applying syndemics and chronicity: Interpretations from studies of poverty, depression, and diabetes. Medical Anthropology 33(2):92–108.
   PubMed Web of Science ®Google Scholar
• Weaver, L. J. 2016 Transactions in suffering: Mothers, daughters, and chronic disease comorbidities in New Delhi, India. Medical Anthropology Quarterly 30(4):498–514.
   Google Scholar
• Zhang, X., S. L. Norris, J. Saadine, F. M. Chowdhury, T. Horsley, S. Kanjilal, C. M. Mangione, et al. 2007 Effectiveness of interventions to promote screening for diabetic retinopathy. American Journal of Preventive Medicine 33(4):318–335.
   PubMed Web of Science ®Google Scholar
• Zoega, G. M., Þ. Gunnarsdóttir, S. Björnsdóttir, Á. B. Hreiðarsson, G. Viggósson, and F. Stefánsson 2005 Screening compliance and visual outcome in diabetes. Acta Ophthalmologica Scandinavica 83(6):687–690.
   PubMedGoogle Scholar