Co-creative Affordance: Rethinking “Beyond Loss” in Dementia through Co-dwelling

References

• Basting, A. D. 2001 ‘God is a talking horse’: Dementia and the performance of self. TDR/The Drama Review 45(3):78–94. doi:10.1162/10542040152587123.
   Google Scholar
• Basting, A. D. 2003 Reading the story behind the story: Context and content in stories by people with dementia. Generations 27(3):25–29.
   Web of Science ®Google Scholar
• Basting, A. D. 2009 Forget Memory: Creating Better Lives for People with Dementia. Baltimore, MD: Johns Hopkins University Press.
   Google Scholar
• Beghetto, R. A., and J. C. Kaufman 2007 Toward a broader conception of creativity: A case for ‘mini-c’ creativity. Psychology of Aesthetics, Creativity, and the Arts 1(2):73–79.
   Google Scholar
• Bitenc, R. A. 2018 ‘No narrative, no self’? Reconsidering dementia counter-narratives in tell Mrs Mill her husband is still dead. Subjectivity 11(2):128–43. doi:10.1057/s41286-018-0049-y.
   Web of Science ®Google Scholar
• Bond, J. 1992 The medicalization of dementia. Journal of Aging Studies 6(4):397–403. doi:10.1016/0890-4065(92)90020-7.
   Web of Science ®Google Scholar
• Bourdieu, P. 1990 The Logic of Practice. Stanford, CA: Stanford University Press.
   Google Scholar
• Boyle, G. 2014 Recognising the agency of people with dementia. Disability & Society 29(7):1130–44. doi:10.1080/09687599.2014.910108.
   Web of Science ®Google Scholar
• Canguilhem, G. 1998[1943] On the Normal and the Pathological. Carolyn R. Fawcett and Robert S. Cohen, trans. New York: Zone Books.
   Google Scholar
• Chatterji, R. 1998 An ethnography of dementia. Culture Medicine and Psychiatry 22(3):355–82. doi:10.1023/A:1005442300388.
   PubMed Web of Science ®Google Scholar
• Cohen, L. 1998 No Aging in India: Alzheimer’s, the Bad Family, and Other Modern Things. Berkeley: University of California Press.
   Google Scholar
• Csordas, T. J. 2008 Intersubjectivity and intercorporeality. Subjectivity 22(1):110–21. doi:10.1057/sub.2008.5.
   Google Scholar
• Deleuze, G., and F. Guattari. 2004 A Thousand Plateaus: Capitalism and Schizophrenia. B. Massumi, trans. London: Continuum.
   Google Scholar
• Dewing, J. 2007 Participatory research: A method for process consent with persons who have dementia. Dementia 6(1):11–25. doi:10.1177/1471301207075625.
   Google Scholar
• Driessen, A. 2018 Pleasure and dementia. The Cambridge Journal of Anthropology 36(1):23. doi:10.3167/cja.2018.360103.
   Web of Science ®Google Scholar
• Fabian, J. 2014 Time and the Other: How Anthropology Makes Its Object. New York: Columbia University Press.
   Google Scholar
• Fontana, A., and R. W. Smith. 1989 Alzheimer’s disease victims: The ‘unbecoming’ of self and the normalization of competence. Sociological Perspectives 32(1):35–46. doi:10.2307/1389006.
   Web of Science ®Google Scholar
• Foucault, M. 1988 Technologies of the Self: A Seminar with Michel Foucault. Boston: University of Massachusetts Press.
   Google Scholar
• Gell, A. 1998 Art and Agency: An Anthropological Theory. Oxford, UK: Clarendon.
   Google Scholar
• Gibson, J. J. 1979 The Ecological Approach to Visual Perception. Boston, MA: Houghton Mifflin.
   Google Scholar
• Gross, S. M., D. Danilova, M. A. Vandehey, and G. M. Diekhoff. 2015 Creativity and dementia: Does artistic activity affect well-being beyond the art class? Dementia 14(1):27–46. doi:10.1177/1471301213488899.
   PubMedGoogle Scholar
• Gubrium, J. F., and J. A. Holstein 2003 The everyday visibility of the aging body. In Aging Bodies: Images and Everyday Experience C. A. Faircloth, ed., Pp. 205–28. Walnut Creek, CA: Altamira Press.
   Google Scholar
• Hastrup, K. 1990 The ethnographic present: A reinvention. Cultural Anthropology 5(1):45–61. doi:10.1525/can.1990.5.1.02a00030.
   Google Scholar
• Heidegger, M. 1971 Poetry, Language, Thought. Albert Hofstadter, trans. New York: Harper & Row.
   Google Scholar
• Henderson, J. N., and M. D. Vesperi 1995 The Culture of Long Term Care: Nursing Home Ethnography. London: Bergin & Garvey.
   Google Scholar
• Hendriks, R. 2012 Tackling indifference—clowning, dementia, and the articulation of a sensitive body. Medical Anthropology 31(6):459–76. doi:10.1080/01459740.2012.674991.
   PubMed Web of Science ®Google Scholar
• Hendriks, R. 2017 Clown’s view as respiciō: Looking respectfully to and after people with dementia. Medicine Health Care, and Philosophy 20(2):207–17. doi:10.1007/s11019-016-9734-1.
   PubMed Web of Science ®Google Scholar
• Herskovits, E. 1995 Struggling over subjectivity: Debates about the ‘self’ and Alzheimer’s disease. Medical Anthropology Quarterly 9(2):146–64. doi:10.1525/maq.1995.9.2.02a00030.
   PubMed Web of Science ®Google Scholar
• Hinton, W. L., and S. E. Levkoff. 1999 Constructing Alzheimer’s: Narratives of lost identities, confusion and loneliness in old age. Culture, Medicine and Psychiatry 23:453–75. doi:10.1023/A:1005516002792.
   PubMed Web of Science ®Google Scholar
• Hughes, J. C. 2011 Thinking Through Dementia. Oxford, UK: Oxford University Press.
   Google Scholar
• Hydén, L. C. 2017 Entangled Narratives: Collaborative Storytelling and the Re-Imagining of Dementia. Oxford, UK: Oxford University Press.
   Google Scholar
• Hydén, L. C., and E. Antelius 2017 Living with Dementia: Relations, Responses and Agency in Everyday Life. London: Macmillan Education.
   Google Scholar
• Hydén, L. C., H. Lindemann, and J. Brockmeier 2014 Beyond Loss: Dementia, Identity, Personhood. Oxford, UK: Oxford University Press.
   Google Scholar
• Ingold, T. 2000 The Perception of the Environment: Essays on Livelihood, Dwelling and Skill. London: Routledge.
   Google Scholar
• Ingold, T. 2011 Being Alive: Essays on Movement, Knowledge and Description. Taylor & Francis: London.
   Google Scholar
• Ingold, T. 2018 Back to the future with the theory of affordances. HAU: Journal of Ethnographic Theory 8(1–2):39–44.
   Google Scholar
• Johnson, H. 2016 Exploring the lived experience of people with dementia through interpretative phenomenological analysis. The Qualitative Report 21(4):695–711.
   Web of Science ®Google Scholar
• Kaufman, S. R. 2006 Dementia-near-death and ‘life itself.’. In Thinking About Dementia A. Leibing and L. Cohen, eds., Pp. 23–42. New Brunswick, NJ: Rutgers University Press.
   Google Scholar
• Kitwood, T. 1997 Dementia Reconsidered: The Person Comes First. Philadelphia, PA: Open University Press.
   Google Scholar
• Kontos, P. C. 2003 ‘The painterly hand’: Embodied consciousness and Alzheimer’s disease. Journal of Aging Studies 17(2):151–70. doi:10.1016/S0890-4065(03)00006-9.
   Web of Science ®Google Scholar
• Kontos, P. C. 2005 Embodied selfhood in Alzheimer’s disease: Rethinking person-centred care. Dementia 4(4):553–70. doi:10.1177/1471301205058311.
   Google Scholar
• Kontos, P. C. 2014 Musical embodiment, selfhood and dementia. In Beyond Loss: Dementia, Identity, Personhood L.C. Hydén, H. Lindemann, and J. Brockmeier, eds., Pp. 107–19. Oxford, UK: Oxford University Press.
   Google Scholar
• Kontos, P. C., and A. Grigorovich. 2018 Rethinking musicality in dementia as embodied and relational. Journal of Aging Studies 45:39–48. doi:10.1016/j.jaging.2018.01.006.
   PubMed Web of Science ®Google Scholar
• Leibing, A. 2006 Divided gazes: Alzheimer’s disease, the person within and death in life. In Thinking about Dementia: Culture, Loss, and the Anthropology of Senility A. Leibing and L. Cohen, eds., Pp. 240–68. New Brunswick, NJ: Rutgers University Press.
   Google Scholar
• Leibing, A. 2008 Entangled matters—Alzheimer’s, interiority, and the ‘unflattening’ of the world. An International Journal of Cross-Cultural Health Research 32(2):177–93.
   Google Scholar
• Macdonald, G. 2018 Why ‘person-centred’ care is not enough: A relational approach to dementia. In Dementia as Social Experience: Valuing Life and Care G. Macdonald and J. Mears, eds., Pp. 195–214. New York: Taylor & Francis.
   Google Scholar
• Macdonald, G., and J. Mears 2018 Dementia as Social Experience: Valuing Life and Care. New York: Taylor and Francis.
   Google Scholar
• McLean, A. 2007 The Person in Dementia: A Study of Nursing Home Care in the US. Peterborough, Canada: Broadview Press.
   Google Scholar
• Merleau-Ponty, M. 2002 (1962) Phenomenology of Perception. Colin Smith, trans. London: Routledge.
   Google Scholar
• Millett, S. 2011 Self and embodiment: A bio-phenomenological approach to dementia. Dementia 10(4):509–22. doi:10.1177/1471301211409374.
   Google Scholar
• Moser, I. 2011 Dementia and the limits to life: Anthropological sensibilities, STS interferences, and possibilities for action in care. Science, Technology & Human Values 36(5):704–22. doi:10.1177/0162243910396349.
   Web of Science ®Google Scholar
• Phinney, A., and C. A. Chesla. 2003 The lived body in dementia. Journal of Aging Studies 17(3):283–99. doi:10.1016/S0890-4065(03)00029-X.
   Web of Science ®Google Scholar
• Raffnsøe, S. 2003. Pathology, normativity, and human existence. Paper presented at the normativity and pathology conference, Copenhagen, Denmark, December 4-5.
   Google Scholar
• Swaffer, K. 2016 Co-production and engagement of people with dementia: The issue of ethics and creative or intellectual copyright. Dementia 15(6):1319–25. doi:10.1177/1471301216659213.
   PubMedGoogle Scholar
• Taylor, J. S. 2008 On recognition, caring, and dementia. Medical Anthropology Quarterly 22(4):313–35. doi:10.1111/j.1548-1387.2008.00036.x.
   PubMed Web of Science ®Google Scholar
• Taylor, J. S. 2017 Engaging with dementia: Moral experiments in art and friendship. Culture Medicine, and Psychiatry 41(2):284–303. doi:10.1007/s11013-017-9528-9.
   PubMed Web of Science ®Google Scholar
• Taylor, R. 2007 Alzheimer’s from the inside Out. Maryland, MD: Health Professions Press.
   Google Scholar
• Tessier, L. A. 2017 A flavour of Alzheimer’s. Journal of the Royal Anthropological Institute 23(2):249–66. doi:10.1111/1467-9655.12556.
   Web of Science ®Google Scholar
• Turner, V. 1982 From Ritual to Theatre: The Human Seriousness of Play. New York: Performing Arts Journal Publications.
   Google Scholar
• Ward, R., A. Clark, S. Campbell, B. Graham, A. Kullberg, K. Manji, K. Rummery, and J. Keady. 2018 The lived neighborhood: Understanding how people with dementia engage with their local environment. International Psychogeriatrics 30(6):867–80. doi:10.1017/S1041610217000631.
   PubMed Web of Science ®Google Scholar
• Zeilig, H., J. West, and M. van der Byl Williams. 2018 Co-creativity: Possibilities for using the arts with people with a dementia. Quality in Ageing and Older Adults 19(2):135–45. doi:10.1108/QAOA-02-2018-0008.
   Web of Science ®Google Scholar