Publication Cover
Medical Anthropology
Cross-Cultural Studies in Health and Illness
Volume 43, 2024 - Issue 5
0
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Making it Work: Everyday Life and Healthcare with Multiple Chronic Illnesses in Denmark

ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon

References

  • Academy of Medical Sciences 2018 Multimorbidity: A priority for global health research. https://acmedsci.ac.uk/file-download/82222577.
  • Ahgren, B. 2014 The path to integrated healthcare: Various Scandinavian strategies. International Journal of Care Coordination 17(1–2):52–58. doi: 10.1177/2053435414540606.
  • Andersen, A. B., K. Beedholm, R. Kolbaek, and K. Frederiksen 2019 The role of ‘mediators’ of communication in health professionals’ intersectoral collaboration: An ethnographically inspired study. Nursing Inquiry 26(4):1–10. doi: 10.1111/nin.12310.
  • Banerjee, S. 2015 Multimorbidity-older adults need health care that can count past one. Lancet 385(9968):587–895. doi: 10.1016/S0140-6736(14)61596-8.
  • Barnett, K., S. W. Mercer, M. Norbury, G. Watt, S. Wyke, and B. Guthrie 2012 Epidemiology of multimorbidity and implications for health care, research, and medical education: A cross-sectional study. Lancet 380(9836):37–43. doi: 10.1016/S0140-6736(12)60240-2.
  • Bell, C., P. Vedsted, D. G. A. Kraus, U. Fredberg, L. Jeffery, M. B. Dahlgaard, R. Aarhus, and C. W. Appel 2023 Clinic for multimorbidity: An innovative approch to integrate general practice and specialized health care services. International Journal of Integrated Care 23(25):1–11. doi: 10.5334/ijic.7015.
  • Corbin, J., and A. Strauss 1985 Managing chronic illness at home: Three lines of work. Qualitiative Sociology 8(3):224–47. doi: 10.1007/BF00989485.
  • Duncan, P., M. Murphy, M. S. Man, K. Chaplin, D. Gaunt, and C. Salisbury 2018 Development and validation of the multimorbidity treatment burden questionnaire (MTBQ). British Medical Journal Open 8(4):1–10. doi: 10.1136/bmjopen-2017-019413.
  • Ecks, S. 2019 Biocommensurations. Anthropology News Website 59(4). doi: 10.1111/an.925
  • Ecks, S. 2020 Multimorbidity, polyiatrogenesis, and COVID-19. Medical Anthropology Quarterly 34(4):488–503. doi: 10.1111/maq.12626.
  • Ecks, S. 2021 Depression, deprivation, and dysbiosis: Polyiatrogenesis in multiple chronic illnesses. Culture, Medicine and Psychiatry 45(4):507–24. doi: 10.1007/s11013-020-09699-x.
  • Ecks, S. 2022 Living Worth. Value and Values in Global Pharmaceutical Markets. Durham: Duke University Press. doi: 10.1515/9781478022282.
  • Eton, D. T., D. Ramalho de Oliveira, J. S. Egginton, J. L. Ridgeway, L. Odell, C. R. May, and V. M. Montori 2012 Building a measurement framework of burden of treatment in complex patients with chronic conditions: A qualitative study. Patient Related Outcome Measures 3:39–49. doi: 10.2147/PROM.S34681.
  • Fleming, M. D. 2023 Social prescribing and the search for value in health care. Economy and Society 52(2):325–48. doi: 10.1080/03085147.2023.2175450.
  • Fleming, M. D., J. K. Shim, I. Yen, A. Thompson-Lastad, and N. J. Burke 2021 Patient engagement, chronic illness, and the subject of health care reform. Medical Anthropology 40(3):214–27. doi: 10.1080/01459740.2020.1820500.
  • Flyvbjerg, B. 2016 Five misunderstandings about case-study research. Qualitative Inquiry 12(2):219–45. doi: 10.1177/1077800405284363.
  • Fudge, N., and D. Swinglehurst 2022 Keeping in balance on the multimorbidity tightrope: A narrative analysis of older patients’ experiences of living with and managing multimorbidity. Social Science & Medicine 292:114532. doi: 10.1016/j.socscimed.2021.114532.
  • Graeber, D. 2013 It is value that brings universes into being. HAU: Journal of Ethnographic Theory 3(2):219–43. doi: 10.14318/hau3.2.012.
  • Guassora, A. D., S. Reventlow, M. Sodemann, and M. Merrild 2020 Introduktion - Multimorbiditet. Tidsskrift for Forskning i Sygdom og Samfund. 17(32):5–13. doi: 10.7146/tfss.v17i32.120972.
  • Hammersley, M., and P. Atkinson 2019 Ethnography. Principles in Practice. 4th edition. London and New York:Routledge. Taylor and Francis group. doi: 10.4324/9781315146027.
  • Hansen, H., N. Pohontsch, H. van den Bussche, M. Scherer, and I. Schafer 2015 Reasons for disagreement regarding illnesses between older patients with multimorbidity and their GPs - A qualitative study. BMC Family Practice 16(68):1–12. doi: 10.1186/s12875-015-0286-x.
  • Hay, M. C. 2010 Suffering in a productive world: Chronic illness, visibility, and the space beyond agency. American Ethnologist 37(2):259–74. doi: 10.1111/j.1548-1425.2010.01254.x.
  • Jønsson, A. B. R. 2018 Aging with Multimorbidity. Illness and Inequity in Everyday Life. PhD dissertation, Department of Public Health. University of Copenhagen.
  • Lambek, M. 2008 Value and virtue. Anthropological Theory 8(2):133–57. doi: 10.1177/1463499608090788.
  • Langstrup, H. 2013 Chronic care infrastructures and the home. Sociology of Health & Illness 35(7):1008–22. doi: 10.1111/1467-9566.12013.
  • Livingston, J. 2020 When sickness comes in multiples: Comorbidity in Botswana. In Biosocial Worlds: Anthropology of Health Environments Beyond Determinism. J. Seeberg, A. Roepstorff, and L. Meinert, eds. Pp. 146–67. London: UCL Press. doi: 10.14324/111.9781787358232
  • Manderson, L., and N. Warren 2016 “Just one thing after another”: Recursive cascades and chronic conditions. Medical Anthropology Quarterly 30(4):479–97. doi: 10.1111/maq.12277.
  • Mattingly, C. 1998 Healing Dramas and Clinical Plots. The Narrative Structure of Experience. Cambridge: Cambridge University Press. doi: 10.1017/CBO9781139167017.
  • Mendenhall, E. 2016 Beyond comorbidity: A critical perspective of syndemic depression and diabetes in cross-cultural contexts. Medical Anthropology Quarterly 30(4):462–78. doi: 10.1111/maq.12215.
  • Mol, A. 2002 Cutting surgeons, walking patients: Some complexities involved in comparing. In Complexities. Social Studies of Knowledge Practices. J. Law and A. Mol, eds. Pp. 218–57. New York, USA: Duke University Press. doi: 10.1215/9780822383550-009
  • Mol, A. 2003 The Body Multiple: Ontology in Medical Practice. Durham: Duke University Press. doi: 10.1215/9780822384151.
  • Mol, A. 2008 The Logic of Care. Health and the Problem of Patient Choice. London: Routledge. doi: 10.4324/9780203927076.
  • Mol, A., I. Moser, and J. Pols, eds. 2010 Care in Practice. On Tinkering in Clinics, Homes and Farms. Bielefeld:Transcript Verlag. doi: 10.14361/transcript.9783839414477.
  • Møller, A., T. Willadsen, A. Jønsson, S. Reventlow, and J. Brodersen 2020 Heterogenitet i multisygdomsdefinitionen. Tidsskrift for Forskning i Sygdom og Samfund 32(32):96–120. doi: 10.7146/tfss.v17i32.120977.
  • Moreira, T. 2010 Now or later? Individual disease and care collectives in the memory clinic. In Care in Practice. On Tinkering in Clinics, Homes and Farms. A. Mol, I. Moser, and J. Pols, eds. Pp. 119–140. Bielefeld:Transcript Verlag. doi: 10.14361/transcript.9783839414477
  • NICE (National Institute for Health and Care Excellence) 2016 NICE guideline: Multimorbidity: Clinical assessment and management. https://www.nice.org.uk/guidance/ng56. Published September 21, 2016.
  • O’Reilly, K. 2011 Ethnographic Methods. 2nd edition. London:Routledge. doi: 10.4324/9780203864722.
  • Otto, T., and R. Willerslev 2013 Introduction: Value as theory. HAU: Journal of Ethnographic Theory 3(1):1–20. doi: 10.14318/hau3.1.002.
  • Pols, J. 2005 Enacting appreciations: Beyond the patient perspective. Health Care Analysis 13(3):203–21. doi: 10.1007/s10728-005-6448-6.
  • Pols, J. 2012 Care at a Distance. On the Closeness of Technology. Amsterdam: Amsterdam University Press. doi: 10.1017/9789048513017.
  • Pols, J. 2015 Towards an empirical ethics in care: Relations with technologies in health care. Medicine, Health Care and Philosophy 18(1):81–90. doi: 10.1007/s11019-014-9582-9.
  • Pols, J. 2023 Reinventing the Good Life. An Empirical Contribution to the Philosophy of Care. London: UCL Press. doi: 10.14324/111.9781800086029.
  • Robbins, J. 2013 Beyond the suffering subject: Toward an anthropology of the good. The Journal of the Royal Anthropological Institute 19(3):447–62. http://www.jstor.org/stable/42001631.
  • Rogvi, S. A., A. D. Guassora, N. Tvistholm, G. Wind, and U. Christensen 2021 “It is a full-time job to be Ill”: Patient work involved in attending formal diabetes care among socially vulnerable danish type 2 diabetes patients. Qualitative Health Research 31(14):2629–40. doi: 10.1177/10497323211041590.
  • Sav, A., E. Kendall, S. S. McMillan, F. Kelly, J. A. Whitty, M. A. King, and A. J. Wheeler 2013 ‘You say treatment, I say hard work’: Treatment burden among people with chronic illness and their carers in Australia. Health and Social Care in the Community 21(6):665–74. doi: 10.1111/hsc.12052.
  • Shippee, N. D., N. D. Shah, C. R. May, F. S. Mair, and V. M. Montori 2012 Cumulative complexity: A functional, patient-centered model of patient complexity can improve research and practice. Journal of Clinical Epidemiology 65(10):1041–51. doi: 10.1016/j.jclinepi.2012.05.005.
  • Singer, M., N. Bulled, B. Ostrach, and E. Mendenhall 2017 Syndemics and the biosocial conception of health. Lancet 389(10072):941–50. doi: 10.1016/s0140-6736(17)30003-x.
  • Skovgaard, A. L., M. J. Jorgensen, T. Tjornhoj-Thomsen, and M. T. Hoybye 2022 Discharge readiness as an infrastructure: Negotiating the transfer of care for elderly patients in medical wards. Social Science & Medicine (312):1–8. doi: 10.1016/j.socscimed.2022.115388.
  • Skovgaard, A. L., M. J. Jorgensen, T. Tjornhoj-Thomsen, and M. T. Hoybye 2023 Tinkering with symptoms, causes and solutions: Tracing the enactments of multiple chronic illnesses in specialised outpatient check-ups. Sociology of Health & Illness 46(4):627–43. doi: 10.1111/1467-9566.13738.
  • Trevena, L. 2018 Minimally disruptive medicine for patients with complex multimorbidity. Australian Journal of General Practitioners 47(4):175–79. doi: 10.31128/afp-10-17-4374.
  • van Blarikom, E., N. Fudge, and D. Swinglehurst 2022 The emergence of multimorbidity as a matter of concern: A critical review. BioSocieties 18(3):614–31. doi: 10.1057/s41292-022-00285-5.
  • van Blarikom, E., N. Fudge, and D. Swinglehurst 2023 Multimorbidity as chronic crisis: ‘Living on’ with multiple long-term health conditions in a socially disadvantaged London borough. Sociology of Health & Illness 46(4):608–26. doi: 10.1111/1467-9566.13729.
  • Wahlberg, A., and N. Rose 2015 The governmentalization of living: Calculating global health. Economy and Society 44(1):60–90. doi: 10.1080/03085147.2014.983830.
  • Weaver, L. J. 2016 Transactions in suffering: Mothers, daughters, and chronic disease comorbidities in New Delhi, India. Medical Anthropology Quarterly 30(4):498–514. doi: 10.1111/maq.12283.
  • Weaver, L. J., R. Barrett, and M. Nichter 2016 Special section on comorbidity. Introduction, Medical Anthropology Quarterly 30(4):435–41. doi: 10.1111/maq.12335.