866
Views
4
CrossRef citations to date
0
Altmetric
ARTICLES

Measuring Family Caregiver Perceptions of Support in Caring for Children and Youth With Mental Health Concerns

, , , , , & show all
Pages 500-515 | Published online: 07 Sep 2011

REFERENCES

  • Bakker , A. , Schaufeli , W. B. , Sixma , H. J. , Bosveld , W. and Dierendonck , D. 2000 . Patient demands, lack of reciprocity, and burnout: A five-year longitudinal study among general practitioners . Journal of Organizational Behavior , 21 : 425 – 441 .
  • Barrera , M. Jr . 1986 . Distinctions between social support concepts, measures, and models I . American Journal of Community Psychology , 14 ( 4 ) : 413 – 445 .
  • Bartle-Haring , S. E. and Gavazzi , S. M. 1996 . Multiple views on family data: The sample case of adolescent, maternal, and paternal perspectives on family differentiation levels . Family Process , 35 : 457 – 472 .
  • Bickman , L. , Heflinger , C. A. , Northrup , D. , Sonnichsen , S. and Schilling , S. 1998 . Long-term outcomes to family caregiver empowerment . Journal of Child and Family Studies , 7 : 269 – 282 .
  • Bruns , E. J. , Suter , J. C. and Leverentz-Brady , K. M. 2006 . Relations between program and system variables and fidelity to the wraparound process for children and families . Psychiatric Services , 57 : 1586 – 1593 .
  • Bruns , E. J. , Walker , J. S. and The National Wraparound Initiative Advisory Group . 2008 . “ Ten principles of the wraparound process ” . In The resource guide to wraparound , Edited by: Bruns , E. J. and Walker , J. S. Portland, OR : National Wraparound Initiative, Research and Training Center for Family Support and Children's Mental Health . (Chapter 2.1).
  • Call , K. T. , Finch , M. A. , Huck , S. M. and Kane , R. A. 1999 . Caregiver burden from a social exchange perspective: Caring for older people after hospital discharge . Journal of Marriage and the Family , 61 : 688 – 699 .
  • Chang , H. Y. , Chious , C. J. and Chen , N. S. 2010 . Impact of mental health and caregiver burden on family caregivers’ physical health . Archives of Gerontology and Geriatrics , 50 : 267 – 276 .
  • Davis , T. S. 2009 . Diversity practice in social work: Examining theory in practice . Journal of Ethnic and Cultural Diversity in Social Work , 18 ( 1 ) : 40 – 69 .
  • Davis , T. S. , Gavazzi , S. M. , Scheer , S. D. and Uppal , R. 2010 . Measuring individualized parent advocate services in children's mental health: A contextualized theoretical application . Journal of Child and Family Studies , Advance online publication. doi:10.1007/s10826-010-9443-y
  • Davis , T. S. , Scheer , S. D. , Gavazzi , S. M. and Uppal , R. 2010 . Parent advocates in children's mental health: Program implementation processes and considerations . Administration and Policy in Mental Health and Mental Health Services Research , 37 : 468 – 483 .
  • Dempsey , I. and Keen , D. 2008 . A review of processes and outcomes in family-centered services for children with a disability . Topics in Early Childhood Special Education , 28 : 42 – 52 .
  • Dwyer , J. W. , Lee , G. R. and Jankowski , T. B. 1994 . Reciprocity, elder satisfaction, and caregiver stress and burden: The exchange of aid in the family caregiving relationship . Journal of Marriage and the Family , 56 : 35 – 43 .
  • Elliot , D. J. , Koroloff , N. M. , Koren , P. E. and Friesen , B. J. 1998 . “ Improving access to children's mental health services: The Family Associate approach ” . In Outcomes for children and youth with emotional disorders and their families: Programs and evaluation best practices , Edited by: Epstein , M. H. , Kutash , K. and Duchnowski , A. 581 – 609 . Austin, TX : Pro-Ed .
  • Fristad , M. A. 2006 . Psychoeducational treatment for school-aged children with bipolar disorder . Development and Psychopathology , 18 : 1289 – 1306 .
  • Fristad , M. A. , Gavazzi , S. M. and Soldano , K. W. 1999 . Naming the enemy: Learning to differentiate mood disorder symptoms from the self that experiences them . Journal of Family Psychotherapy , 10 : 81 – 88 .
  • Fristad , M. A. , Goldberg-Arnold , J. S. and Gavazzi , S. M. 2002 . Multifamily psychoeducation groups for families of children with bipolar disorder . Journal of Bipolar Disorders , 4 : 254 – 262 .
  • Fristad , M. A. , Verducci , J. S. , Walters , K. and Young , M. E. 2009 . The impact of multifamily psychoeducational psychotherapy in treating children aged 8–12 with mood disorders . Archives of General Psychiatry , 66 : 1013 – 1021 .
  • Gavazzi , S. M. , Fristad , M. A. and Law , J. C. 1997 . The Understanding Mood Disorders Questionnaire . Psychological Reports , 81 : 172 – 174 .
  • Goldberg-Arnold , J. S. , Fristad , M. A. and Gavazzi , S. M. 1999 . Family psychoeducation: Giving caregivers what they want and need . Family Relations , 48 : 411 – 417 .
  • Graves , K. N. and Shelton , T. L. 2007 . Family empowerment as a mediator between family-centered systems of care and changes in child functioning: Identifying an important mechanism of change . Journal of Child & Family Studies , 16 : 556 – 566 . doi:10.1007/s10826-006-9106-1
  • Gyamfi , P. , Walrath , C. , Burns , B. J. , Stephens , R. L. , Geng , Y. and Stambaugh , L. 2010 . Family education and support services in systems of care . Journal of Emotional and Behavioral Disorders , 18 : 14 – 26 .
  • Hall , L. L. and Purdy , R. 2000 . Recovery and serious brain disorders: The central role of families in nurturing roots and wings . Community Mental Health Journal , 36 : 427 – 440 .
  • Hamrin , V. , McCarthy , E. M. and Tyson , V. 2010 . Pediatric psychotropic medication initiation and adherence: A literature review based on social exchange theory . Journal of Child and Adolescent Psychiatric Nursing , 23 ( 3 ) : 151 – 172 .
  • Hardcastle , D. A. and Powers , P. R. 2004 . Community practice: Theories and skills for social workers , 2nd ed. , New York, NY : Oxford University Press .
  • Hatfield , A. B. 1979 . Help-seeking behavior in families of schizophrenics . American Journal of Community Psychology , 7 : 563 – 569 .
  • Hatfield , A. B. 1983 . “ What families want of family therapists ” . In Family therapy in schizophrenia , Edited by: McFarlane , W. R. 41 – 65 . New York, NY : Guilford .
  • Hatfield , A. B. , Fierstein , R. and Johnson , D. M. 1982 . Meeting the needs of families of the psychiatrically disabled . Psychosocial Rehabilitation Journal , 6 : 27 – 40 .
  • Herbert , R. J. , Gagnon , A. J. , Rennick , J. E. and O’Loughlin , J. L. 2009 . A systematic review of questionnaires measuring health-related empowerment . Research and Theory for Nursing Practice: An International Journal , 23 : 107 – 132 . doi:10.1891/1541-6577.23.2.107
  • Hoagwood , K. E. 2005 . Family-based services in children's mental health: A research review and synthesis . Journal of Child Psychology and Psychiatry , 46 : 670 – 713 .
  • Hoagwood , K. E. , Cavaleri , M. A. , Olin , S. S. , Burns , B. J. , Slaton , E. , Gruttadaro , D. and Hughes , R. 2010 . Family support in children's mental health: A review and synthesis . Clinical Child and Family Psychology Review , 13 : 1 – 45 . doi:10.1007/s10567-009-0060-5
  • Homans , G. C. 1958 . Social behavior as exchange . American Journal of Sociology , 63 ( 6 ) : 597 – 606 .
  • Horwitz , A. V. , Reinhard , S. C. and Howell-White , S. 1996 . Caregiving as reciprocal exchange in families with seriously mentally ill members . Journal of Health and Social Behavior , 37 : 149 – 162 .
  • Huang , L. , Stroul , B. , Friedman , R. , Mrazek , P. , Friesen , B. , Pires , S. and Mayberg , S. 2005 . Transforming mental health care for children and their families . American Psychologist , 60 : 615 – 627 .
  • Ireys , H. T. and Sakwa , D. D. 2006 . Building family-to-family support programs: Rationale, goals, and challenges . Focal Point , 20 ( 1 ) : 10 – 14 .
  • Israel , P. , Thomsen , P. H. , Langeveld , J. H. and Stormark , K. M. 2007 . Parent–youth discrepancy in the assessment and treatment of youth in usual clinical care setting: Consequences to parent involvement . European Journal of Psychiatry , 16 ( 2 ) : 138 – 148 . doi:10.1007/s00787-006-0583-y
  • Jensen , P. S. and Hoagwood , K. E. 2008 . Improving children's mental health through parent empowerment: A guide to assisting families , New York, NY : Oxford University Press .
  • Koren , P. E. , DeChillo , N. and Friesen , B. J. 1992 . Measuring empowerment in families whose children have emotional disabilities: A brief questionnaire . Rehabilitation Psychology , 37 : 305 – 320 .
  • Koroloff , N. M. and Elliott , D. J. 1994 . Connecting low-income families to mental health services: The role of the family associate . Journal of Emotional & Behavioral Disorders , 2 : 240 – 246 .
  • Kutash , K. , Duchnowski , A. J. , Green , A. L. and Ferron , J. M. 2010 . Supporting parents who have youth with emotional disturbances through a parent-to-parent support program: A proof-of-concept study using random assignment . Administration and Policy in Mental Health and Mental Health Services Research , Advance online publication. doi:10.1007/s10488-010-0329-5
  • Lakey , B. , Adams , K. , Neely , L. , Rhodes , G. , Lutz , C. J. and Sielky , K. 2002 . Perceived support and low emotional distress: The role of enacted support, dyad similarity, and provider personality . Personality and Social Psychology Bulletin , 28 ( 11 ) : 1546 – 1555 .
  • Lefley , H. P. 1989 . Family burden and family stigma in major mental illness . American Psychologist , 44 : 556 – 560 .
  • Lefley , H. P. 1997 . The consumer recovery vision: Will it alleviate family burden? . American Journal of Orthopsychiatry , 67 : 210 – 219 .
  • Magliano , L. , Fiorillo , A. , Malangone , C. and De Rosa , C. 2006 . Patient functioning and family burden in a controlled, real-world trial of family psychoeducation for schizophrenia . Psychiatric Services , 57 : 1784 – 1791 .
  • Man , D. W. K. , Lam , C. S. and Bard , C. C. 2003 . Development and application of the Family Empowerment Questionnaire in brain surgery . Brain Surgery , 17 ( 5 ) : 437 – 450 .
  • McCammon , S. L. , Spencer , S. A. and Friesen , B. J. 2001 . “ Promoting family empowerment through multiple roles ” . In Child mental health: Exploring systems of care in the new millennium , Edited by: Dosser , D. A. Jr. , Handron , D. , McCammon , S. and Powell , J. Y. 1 – 24 . New York, NY : Haworth .
  • Mendenhall , A. N. , Fristad , M. A. and Early , T. 2009 . Factors influencing service utilization and mood symptom severity in children with mood disorders: Effects of multi-family psychoeducation groups (MFPG) . Journal of Consulting and Clinical Psychology , 77 : 463 – 473 .
  • Ogles , B. M. , Dowell , K. , Hatfield , D. , Melendez , G. and Carlston , D. L. 2004 . “ The Ohio Scales ” . In The use of psychological testing for treatment planning and outcomes assessment: Vol. 2. Instruments for children and adolescents , 3rd ed. , Edited by: Maruish , M. 275 – 304 . Mahwah, NJ : Lawrence Erlbaum Associates Publishers .
  • Ogles , B. M. , Melendez , G. , Davis , D. C. and Lunnen , K. M. 2001 . The Ohio Scales: Practical outcome assessment . Journal of Child and Family Studies , 10 : 199 – 212 .
  • Pernice-Duca , F. and Onaga , E. 2009 . Examining the contribution of social network support to the recovery process among clubhouse members . American Journal of Psychiatric Rehabilitation , 12 : 1 – 30 .
  • Pescosolido , B. A. , Perry , B. L. , Martin , J. K. , McLeod , J. D. and Jensen , P. S. 2007 . Stigmatizing attitudes and beliefs about treatment and psychiatric medications for children with mental illness . Psychiatric Services , 58 : 613 – 618 .
  • Reich , S. , Bickman , L. and Heflinger , C. A. 2004 . Covariates of self-efficacy: Caregiver characteristics related to mental health services self-efficacy . Journal of Emotional and Behavioral Disorders , 12 : 99 – 108 .
  • Resendez , M. G. , Quist , R. M. and Matshazi , D. G. M. 2000 . A longitudinal analysis of family empowerment and client outcomes . Journal of Child and Family Studies , 9 : 449 – 460 .
  • Rhodes , P. , Baillee , A. , Brown , J. and Madden , S. 2008 . Can parent-to-parent consultation improve the effectiveness of the Maudsley model of family-based treatment for anorexia nervosa? A randomized control trial . Journal of Family Therapy , 30 : 96 – 108 .
  • Robbins , V. , Johnston , J. , Barnett , H. , Hobstetter , W. , Kutash , K. , Duchnowski , A. J. and Annis , S. 2008 . Parent to parent: A synthesis of the emerging literature , Tampa, FL : University of South Florida, The Louis de la Parte Florida Mental Health Institute, Department of Child & Family Studies .
  • Ross , L. T. , Lutz , C. J. and Lakey , B. 1999 . Perceived social support and attributions for failed support . Personality and Social Psychology Bulletin , 25 ( 7 ) : 896 – 908 .
  • Sabatelli , R. M. and Shehan , C. I. 1993 . “ Exchange and resource theories ” . In Sourcebook of family theories and methods: A contextual approach , Edited by: Boss , P. G. , Doherty , W. J. , LaRossa , R. , Schumm , W. R. and Steinmetz , S. K. 385 – 417 . New York, NY : Plenum Press .
  • Scheer , S. D. and Gavazzi , S. M. 2009 . A qualitative examination of a statewide initiative to empower families containing children and adolescents with behavioral health care needs . Children and Youth Services Review , 31 : 370 – 377 .
  • Singh , N. N. and Curtis , W. J. 1997 . Empowerment status and families whose children have serious emotional disturbance and attention-deficit hyperactivity disorder . Journal of Emotional Behavioral Disorders , 5 : 223 – 229 .
  • Solomon , P. and Draine , J. 1995 . Subjective burden among family members of mentally ill adults: Relation to stress, coping, and adaptation . American Journal of Orthopsychiatry , 66 : 419 – 427 .
  • Sowers , W. 2005 . Transforming systems of care: The American Association of Community Psychiatrists guidelines for recovery-oriented services . Community Mental Health Journal , 41 : 757 – 774 .
  • Stroul , B. A. and Friedman , R. M. 1986 . A system of care for seriously emotionally disturbed children and youth , Washington, DC : CASSP Technical Assistance Center, Georgetown University Child Development Center .
  • Stroul , B. A. and Friedman , R. M. 1988 . Principles for a system of care . Children Today , 17 : 11 – 15 .
  • Stroul , B. A. , Pires , S. A. , Armstrong , M. I. and Meyers , J. C. 1998 . The impact of managed care on mental health services for children and their families . Future of Children , 8 : 119 – 133 .
  • Szmukler , G. I. , Burgess , P. , Herrman , H. , Benson , A. , Colusa , S. and Bloch , S. 1996 . Caring for relatives with serious mental illness: The development of the Experience of Caregiving Inventory . Social Psychiatry and Psychiatric Epidemiology , 31 : 137 – 148 .
  • Tessler , R. and Gamache , G. 1994 . Continuity of care, residence, and family burden in Ohio . Millbank Quarterly , 72 : 149 – 169 .
  • U.S. Department of Health and Human Services . 1999 . Mental health: A report of the Surgeon General—Executive summary , Rockville, MD : U.S. Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services, National Institutes of Health, National Institute of Mental Health .
  • VanDenBerg , J. E. and Grealish , E. M. 1996 . Individualized services and supports through the wraparound process: Philosophy and procedures . Journal of Child and Family Studies , 5 ( 1 ) : 7 – 21 .
  • Walker , A. J. , Pratt , C. C. and Oppy , N. C. 1992 . Perceived reciprocity in family caregiving . Family Relations , 41 : 82 – 85 .
  • Walter , U. M. and Petr , C. G. 2006 . Lessons from the research on paraprofessionals for attendant care in children's mental health . Community Mental Health Journal , 42 : 459 – 475 .
  • White , N. and Hastings , R. P. 2004 . Social and professional support for parents of adolescents with severe intellectual disabilities . Journal of Applied Research in Intellectual Disabilities , 17 : 181 – 190 .
  • Wright , D. L. and Aquilino , W. S. 1998 . Influence of emotional support exchange in marriage on caregiving wives’ burden and marital satisfaction . Family Relations , 47 : 195 – 204 .
  • Ybema , J. F. , Kuijer , R. G. , Hagedoorn , M. and Buunk , B. P. 2002 . Caregiver burnout among intimate partners with a severe illness: An equity perspective . Personal Relationships , 9 : 73 – 88 .
  • Zimet , G. D. , Dahlem , N. W. , Zimet , S. G. and Farley , G. K. 1988 . The multidimensional scale of perceived social support . Journal of Personality Assessment , 52 ( 1 ) : 30 – 41 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.