Autonomy, Choice and Control for Older Users of Home Care Services: Current Developments in Swedish Eldercare

References

• Berglund, H., Blomberg, S., Dunér, A., & Kjellgren, K. (2015). Organizing integrated care for older persons: strategies in Sweden during the past decade. Journal of Health Organization and Management, 29(1), 128–152.
   PubMed Web of Science ®Google Scholar
• Boyle, G. (2005). The role of autonomy in explaining mental ill-health and depression among older people in long-term care settings. Ageing & Society, 25(5), 731–748.
   Web of Science ®Google Scholar
• Clarke, J. (2006). Consumers, clients or citizens? Politics, policy and practice in the reform of social care. European Societies, 8(3), 423–442.
   Web of Science ®Google Scholar
• Clarke, J. (2007). Unsettled connections. Citizens, Consumers and the Reform of Public Services. Journal of Consumer Culture, 7(2), 159–178.
   Google Scholar
• Dixon, A., Robertson, R., & Bal, R. (2010). The experience of implementing choice at point of referral: A comparison of the Netherlands and England [Special Issue 3]. Health Economics, Policy and Law, 5, 295–317.
   PubMed Web of Science ®Google Scholar
• Dunér, A., & Nordström, M. (2005). Intentions and strategies among elderly people: Coping in everyday life. Journal of Aging Studies, 19(4), 437–451.
   Web of Science ®Google Scholar
• Dunér, A., & Nordström, M. (2006). The discretion and power of street-level bureaucrats. An example from Swedish municipal eldercare. European Journal of Social Work, 9(4), 425–444.
   Google Scholar
• Dunér, A., & Nordström, M. (2010). The desire for control. Negotiating the arrangements of help for older people in Sweden. Journal of Aging Studies, 24(4), 241–247.
   Web of Science ®Google Scholar
• Dunér, A., & Wolmesjö, M. (2015). Interprofessional collaboration in Swedish health and social care from a care manager perspective. European Journal of Social Work, 18(3), 354–369.
   Web of Science ®Google Scholar
• Edebalk, P. G., & Svensson, M. (2005). Kundval för äldre och funktionshindrade i Norden. Konsumentperspektivet. [Consumer choice for older and disabled people in the Nordic Countries. The consumer perspective. eldercare.]. Lund: Lund University.
   Google Scholar
• Edebalk, P. G., & Svensson, M. (2010). Kundval I äldreomsorgen. Stärks brukarens ställning I ett valfrihetssystem? [Consumer choice in eldercare. Is the users’ position strengthened in a system of choice?]. Stockholm: SKL.
   Google Scholar
• Emerson, R.M., Fretz, R.I., & Shaw, L.L. (1995). Writing ethnographical fieldnotes. Chicago, IL: University of Chicago.
   Google Scholar
• Esping-Andersen, G. (1990). The three worlds of welfare capitalism. Cambridge: Polity Press.
   Google Scholar
• Fotaki, M., Boyd, A., Smith, L., McDonald, R., Roland, M., Sheaff, R., … Elwyn, G. (2005). Patient choice and the organisation and delivery of health services: Scoping review. Report for NCCSDO. Retrieved from http://www.netscc.ac.uk/hsdr/files/project/SDO_ES_08-1410-080_V01.pdf
   Google Scholar
• Glendinning, C. (2008). Increasing choice and control for older and disabled people: A critical review of new developments in England. Social Policy & Administration, 42(5), 451–469.
   Web of Science ®Google Scholar
• Government Bill. (2008). /09:29. Lag om valfrihetssystem. [Act on Free Choice Systems]. Stockholm: Fritzes Offentliga Publikationer.
   Google Scholar
• Government Bill. (2009). /10:116. Värdigt liv i äldreomsorgen. [Dignity in Eldercare.] Stockholm: Fritzes Offentliga Publikationer.
   Google Scholar
• Greener, I. (2008). Choice and voice—A review. Social Policy and Society, 7(2), 255–265.
   Google Scholar
• Gunnarsson, E. (2009). The welfare state, the individual and the need for care: Older peoples’ views. International Journal of Social Welfare, 18(3), 252–259.
   Web of Science ®Google Scholar
• Hirschman, A. (1970). Exit, voice and loyalty: Responses to decline in firms, organizations and states. London: Harvard University Press.
   Google Scholar
• Hjalmarsson, I., & Norman, E. (2004). Att välja hemtjänst. [To choose home help.] Stockholm: Socialstyrelsen [Swedish National Board of health and Welfare].
   Google Scholar
• Kane, R. L., & Kane, R. A. (2001). What older people want from long-term care, and how they can get it. Health Affairs (Project Hope), 20(6), 114–127.
   PubMed Web of Science ®Google Scholar
• Kvale, S., & Brinkman, S. (2009). Interviews: Learning the craft of qualitative research interviewing. Los Angeles, CA: SAGE.
   Google Scholar
• Lymbery, M. (2014). Austerity, personalisation and older people: The prospects for creative social work practice in England. European Journal of Social Work, 17(3), 367–382.
   Web of Science ®Google Scholar
• Mahoney, K. J., Desmond, S. M., Simon-Rusinowitz, L., Loughlin, D. M., & Squillace, M. R. (2002). Consumer preferences for a cash option versus traditional services: Telephone survey results from New Jersey elders and adults. Journal of Disability Policy Studies, 13(2), 75–87.
   Google Scholar
• Meagher, G., & Szebehely, M. (2013). Marketisation in Nordic Eldercare: a research report on legislation, oversight, extent and consequences. Stockholm: Department of Social Work, Stockholm University.
   Google Scholar
• Meinow, B., Parker, M., & Thorslund, M. (2011). Consumers of eldercare in Sweden: The semblance of choice. Social Science & Medicine, 73(9), 1285–1289.
   PubMed Web of Science ®Google Scholar
• Mikels, J. A., Reed, A. E., & Simon, K. I. (2009). Older adults place lower value on choice relative to young adults. Journal of Gerontology. Series B: Psychological Sciences, 64(4), 443–446.
   PubMed Web of Science ®Google Scholar
• Ministry of Health and Social Affairs. (2007). Care of the elderly in Sweden. Fact sheet No 18, September 2007.
   Google Scholar
• Moberg, L., Blomqvist, P., & Winblad, U. (2016). User choice in Swedish eldercare —Conditions for informed choice and enhanced service quality. Journal of European Social Policy, 26(3), 281–295.
   Web of Science ®Google Scholar
• Mol, A. (2008). The logic of care: Health and the problem of patient choice. London: Routledge.
   Google Scholar
• National Board of Health and Welfare. (2015). Stimulansbidrag LOV. Slutrapport 2011-2014. [Incentive grants for free choice systems. Final Report, 2011-2014.] Stockholm: Socialstyrelsen.
   Google Scholar
• Newbronner, L., Chamberlain, R., Bosanquet, K., Bartlett, C., Sass, B., & Glendinning, C. (2014). Keeping personal budgets personal: Learning from the experiences of older people, people with mental health problems and their carers. Adults’ services report. London: Social Care Institute of Excellence.
   Google Scholar
• Ottmann, G., Allen, J., & Feldman, P. (2013). A systematic narrative review of consumer-directed care for older people: implications for model development. Health and Social Care in the Community, 21(6), 563–581.
   PubMed Web of Science ®Google Scholar
• Pearson, C., Ridley, J., & Hunter, S. (2014). Self-directed support: Personalisation, choice and control. Edinburgh, London: Dunedin.
   Google Scholar
• Persson, T., & Berg, S. (2008). Older people’s “voices”—On paper: Obstacles to influence in welfare states—A case study of Sweden. Journal of Aging & Social Policy, 29(1), 94–111.
   Web of Science ®Google Scholar
• Persson, T., & Wästerfors, D. (2009). “Such trivial matters:” How staff account for restrictions of residents' influence in nursing homes. Journal of Aging Studies, 23(1), 1–11.
   Web of Science ®Google Scholar
• Puthenparambil, J. M., & Kröger, T. (2016). Using private social care services in Finland: Free or forced choices for older people? Journal of Social Service Research, 42(2), 167–179.
   Web of Science ®Google Scholar
• Reed, A. E., Mikels, J. A., & Simon, K. I. (2008). Older adults prefer less choice than young adults. Psychology and Aging, 23(3), 671–675.
   PubMed Web of Science ®Google Scholar
• Rodrigues, R., & Glendinning, C. (2015). Choice, competition and care—Developments in English social care and the impacts on providers and older users of home care services. Social Policy & Administration, 49(5), 649–664.
   Web of Science ®Google Scholar
• Rostgaard, T. (2006). Constructing the care consumer: Free choice of home care for the elderly in Denmark. European Societies, 8(3), 443–463.
   Web of Science ®Google Scholar
• SALAR, Swedish Association of Local Authorities and Regions. (n.d.). Retrieved October 27 2016 from http://skl.se/demokratiledningstyrning/driftformervalfrihet/valfrihetssystemersattningssystem/socialomsorg/valfrihetssystemikommunerbeslutslaget2016.8959.html
   Google Scholar
• Sciegaj, M., Capitman, J. A., & Kyriacou, C. K. (2004). Consumer-directed community care: race/ethnicity and individual differences in preferences for control. Gerontologist, 44(4), 489–499.
   PubMed Web of Science ®Google Scholar
• SFS. (1995). The Americans with Disabilities Act: Implications for social services. Social Work, 453. Social Services Act.
   Web of Science ®Google Scholar
• Silverman, D. (2006). Interpreting qualitative data. London: SAGE.
   Google Scholar
• Sipilä, J. (Ed.). (1997). Social care services: The key to the Scandinavian welfare model. Aldershot: Avebury.
   Google Scholar
• Slasberg, C., Beresford, P., & Schofield P. (2012). How self directed support is failing to deliver personal budgets and personalisation. Research, Policy and Planning, 29, 161–177.
   Google Scholar
• Szebehely, M., & Trydegård, G.-B. (2012). Home care for older people in Sweden: A universal model in transition. Health & Social Care in the Community, 20(3), 300–309.
   PubMed Web of Science ®Google Scholar
• Vamstad, J. (2016). Exit, voice and indifference —Older people as consumers of Swedish home care services. Ageing & Society, 36(10), 2163–2181.
   Web of Science ®Google Scholar
• Vernon, A., & Qureshi, H. (2000). Community care and independence: Self-sufficiency or empowerment? Critical Social Policy, 20(2), 255–276.
   Google Scholar
• Wiener, J. M., Anderson, W. L., & Khatutsky, G. (2007). Are consumer-directed care beneficiaries satisfied? Evidence from Washington State. Gerontologist, 47, 763–774.
   PubMed Web of Science ®Google Scholar