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Original Articles

Support Needs for Family Caregivers of Clients with Mental Illness in Iran: A Qualitative Study

, BSc, MSc, (PhD Candidate (Nursing)) , , BSc, MSc, PhD, , BSc, MSc, PhD, , BSc, MSc, PhD, , RN, PhD, FACN ORCID Icon & , RN, PhD ORCID Icon

References

  • Ae-Ngibise, K. A., Doku, V. C. K., Asante, K. P., & Owusu-Agyei, S. (2015). The experience of caregivers of people living with serious mental disorders: A study from rural Ghana. Global Health Action, 8(1), 26957.
  • Aghakhani, N., Lopez, V., & Cleary, M. (2017). Experiences and perceived social support among Iranian men on methadone maintenance therapy: A qualitative study. Issues in Mental Health Nursing, 38(9), 692–697. doi:10.1080/01612840.2017.1341586
  • Alavi, M., Irajpour, A., Abdoli, S., & Saberizafarghandi, M. B. (2012). Clients as mediators of interprofessional collaboration in mental health services in Iran. Journal of Interprofessional Care, 26(1), 36–42. doi:10.3109/13561820.2011.623803
  • Amin-Esmaeili, M., Rahimi-Movaghar, A., Sharifi, V., Hajebi, A., Radgoodarzi, R., Mojtabai, R., …Motevalian, A. (2016). Epidemiology of illicit drug use disorders in Iran: Prevalence, correlates, comorbidity and service utilization results from the Iranian Mental Health Survey. Addiction, 111(10), 1836–1847. doi:10.1111/add.13453
  • Amir, E. (2015). New developments for family caregivers in the context of mental Health in Canada. Canadian Journal of Community Mental Health, 34(4), 143–149. doi:10.7870/cjcmh-2015-009
  • Bastani, F., Ramezani, A., Lolati, H. A., & Haghani, H. (2017). Family caregivers' attitude toward long-term care of elderly with psychiatric disorders and associated Factors. Iranian Journal of Psychiatry and Behavioral Sciences, 11(1), e6163.
  • Berk, L., Jorm, A. F., Kelly, C. M., Dodd, S., & Berk, M. (2011). Development of guidelines for caregivers of people with bipolar disorder: A Delphi expert consensus study. Bipolar Disorders, 13(5–6), 556–570. doi:10.1111/j.1399-5618.2011.00942.x
  • Cleary, M., Freeman, A., Hunt, G. E., & Walter, G. (2005). What patients and carers want to know: An exploration of information and resource needs in adult mental health services. Australian and New Zealand Journal of Psychiatry, 39(6), 507–513.
  • Cleary, M., Freeman, A., Hunt, G. E., & Walter, G. (2006). Patient and carer perceptions of need and associations with care-giving burden in an integrated adult mental health service. Social Psychiatry and Psychiatric Epidemiology, 41(3), 208–214.
  • Cleary, M., Freeman, A., & Walter, G. (2006). Carer participation in mental health service delivery. International Journal of Mental Health Nursing, 15(3), 189–194.
  • Cleary, M., Horsfall, J., & Hayter, M. (2014). Data collection and sampling in qualitative research: Does size matter? Journal of Advanced Nursing, 70(3), 473–475.
  • Cleary, M., Hunt, G. E., Matheson, S., & Walter, G. (2008). The association between substance use and the needs of patients with psychiatric disorder, levels of anxiety, and caregiving burden. Archives of Psychiatric Nursing, 22(6), 375–385. doi:10.1016/j.apnu.2008.02.001
  • Damari, B., Alikhani, S., Riazi-Isfahani, S., & Hajebi, A. (2017). Transition of Mental Health to a more Responsible Service in Iran. Iranian Journal of Psychiatry, 12(1), 36–41.
  • Daniel, W. L. L. (2012). Effect of Financial Costs on Caregiving Burden of Family Caregivers of Older Adults. SAGE Open, 2(4), 2158244012470467. doi:10.1177/2158244012470467
  • Dyches, T. T., Christensen, R., Harper, J. M., Mandleco, B., & Roper, S. O. (2016). Respite care for single mothers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 46(3), 812–824.
  • Fereidouni, Z., Joolaee, S., Fatemi, N. S., Mirlashari, J., Meshkibaf, M. H., & Orford, J. (2015). What is it like to be the wife of an addicted man in Iran? A qualitative study. Addiction Research & Theory, 23(2), 99–107. doi:10.3109/16066359.2014.943199
  • Forouzan, A. S., Rafiey, H., Padyab, M., Ghazinour, M., Dejman, M., & Sebastian, M. S. (2014). Reliability and validity of a mental health system responsiveness questionnaire in Iran. Global Health Action, 7(1), 24748.
  • Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nursing Education Today, 24(2), 105–112. doi:10.1016/j.nedt.2003.10.001
  • Holloway, I., & Galvin, K. (2016). Qualitative research in nursing and healthcare. Oxford, UK: John Wiley & Sons.
  • Horsfall, J., Cleary, M., & Hunt, G. E. (2010). Stigma in mental health: Clients and professionals. Issues in Mental Health Nursing, 31(7), 450–455.
  • Irajpour, A., Ghaljaei, F., & Alavi, M. (2015). Concept of collaboration from the Islamic perspective: The view points for health providers. Journal of Religion and Health, 54(5), 1800–1809. doi:10.1007/s10943-014-9942-z
  • Iseselo, M. K., Kajula, L., & Yahya-Malima, K. I. (2016). The psychosocial problems of families caring for relatives with mental illnesses and their coping strategies: A qualitative urban based study in Dar es Salaam, Tanzania. BMC Psychiatry, 16, 146. doi:10.1186/s12888-016-0857-y
  • Jansen, H. (2010). The logic of qualitative survey research and its position in the field of social research methods. Forum: Qualitative Social Research, 11(2), 1–21. doi:10.17169/fqs-11.2.1450
  • Jardim, C., & Pakenham, K. I. (2010). Carers' views on respite care for adults with mental disorders. Advances in Mental Health, 9(1), 84–97. doi:10.5172/jamh.9.1.84
  • Jeon, Y. H., Brodaty, H., & Chesterson, J. (2005). Respite care for caregivers and people with severe mental illness: Literature review. Journal of Advanced Nursing, 49(3), 297–306.
  • Karyn, S. (2016). Aggressive children with mental illness: A conceptual model of family-level outcomes. Journal of Interpersonal Violence, 0886260516641283. doi:10.1177/0886260516641283
  • Koschorke, M., Padmavati, R., Kumar, S., Cohen, A., Weiss, H. A., Chatterjee, S., … Thornicroft, G. (2017). Experiences of stigma and discrimination faced by family caregivers of people with schizophrenia in India. Social Science & Medicine, 178, 66–77. doi:10.1016/j.socscimed.2017.01.061
  • Lincoln, Y., & Guba, E. (1985). Naturalistic inquiry. California: Sage Publications.
  • Malterud, K., Siersma, V. D., & Guassora, A. D. (2016). Sample size in qualitative interview studies: Guided by information power. Qualitative Health Research, 26(13), 1753–1760. 1049732315617444.
  • Moazen, B., Shokoohi, M., Noori, A., Rahimzadeh, S., Saeedi Moghaddam, S., Rezaei, F., … Naderimagham, S. (2015). Burden of drug and alcohol use disorders in Iran: findings from the Global Burden of Disease Study 2010. Archives of Iranian Medicine, 18(8), 480–485. 015188/aim.004
  • Möller-Leimkühler, A. M., & Wiesheu, A. (2012). Caregiver burden in chronic mental illness: The role of patient and caregiver characteristics. European Archives of Psychiatry and Clinical Neuroscience, 262(2), 157–166. doi:10.1007/s00406-011-0215-5
  • Mulud, Z. A., & McCarthy, G. (2017). Caregiver burden among caregivers of individuals with severe mental illness: Testing the moderation and mediation models of resilience. Archives of Psychiatric Nursing, 31(1), 24–30. doi:10.1016/j.apnu.2016.07.019
  • Noorbala, A. A., Bagheri Yazdi, S. A., & Hafezi, M. (2012). Trends in change of mental health status in the population of Tehran between 1998 and 2007. Archives of Iranian Medicine, 15(4), 201–204. 012154/AIM.005
  • Noorbala, A. A., Faghihzadeh, S., Kamali, K., Bagheri Yazdi, S. A., Hajebi, A., Mousavi, M. T., … Nouri, B. (2017). Mental health survey of the Iranian adult population in 2015. Archives of Iranian Medicine, 20(3), 128–134. 0172003/aim.003
  • Pad, B., Alavi, K., & Hajebi, A. (2017). A randomized controlled trial of telephone follow-up in patients with severe mental illness: Study protocol. Iranian Journal of Psychiatry and Clinical Psychology, 23(1), 108–117.
  • Papastavrou, E., Charalambous, A., Tsangari, H., & Karayiannis, G. (2010). The cost of caring: The relative with schizophrenia. Scandinavian Journal of Caring Sciences, 24(4), 817–823. doi:10.1111/j.1471-6712.2010.00782.x
  • Parvizy, S., & Ahmadi, F. (2009). A qualitative study on adolescence, health and family. Mental Health in Family Medicine, 6(3), 163–172.
  • Pearce, M. J., Medoff, D., Lawrence, R. E., & Dixon, L. (2016). Religious coping among adults caring for family members with serious mental illness. Community Mental Health Journal, 52(2), 194–202. doi:10.1007/s10597-015-9875-3
  • Pirkis, J., Burgess, P., Hardy, J., Harris, M., Slade, T., & Johnston, A. (2010). Who cares? A profile of people who care for relatives with a mental disorder. Australian & New Zealand Journal of Psychiatry, 44(10), 929–937. doi:10.3109/00048674.2010.493858
  • Rezaie, L., Shafaroodi, N., & Philips, D. (2017). The barriers to participation in leisure time physical activities among Iranian women with severe mental illness: A qualitative study. Mental Health and Physical Activity, 13, 171–177. doi:10.1016/j.mhpa.2017.09.008
  • Sabanciogullari, S., & Tel, H. (2015). Information needs, care difficulties, and coping strategies in families of people with mental illness. Neurosciences (Riyadh), 20(2), 145–152. doi:10.17712/nsj.2015.2.20140713
  • Sandelowski, M. (2004). Using qualitative research. Qualitative Health Research, 14(10), 1366–1386.
  • Sandelowski, M. J. (2008). Justifying qualitative research. Research in Nursing & Health, 31(3), 193–195. doi:10.1002/nur.20272
  • Sarokhani, D., Teimori, N., Sayehmiri, K., & Moghimbeigi, A. (2016). Investigating the status of public health in Iran: A systematic review and meta-analysis. Der Pharmacia Lettre, 8(18), 9–21.
  • Sewilam, A., Watson, A., Kassem, A., Clifton, S., McDonald, M., & Lipski, R. (2015). Suggested avenues to reduce the stigma of mental illness in the Middle East. International Journal of Social Psychiatry, 61(2), 111–120. doi:10.1177/0020764014537234
  • Shamsaei, F., Cheraghi, F., & Esmaeilli, R. (2015). The family challenge of caring for the chronically mentally Ill: A phenomenological study. Iranian Journal of Psychiatry and Behavioral Sciences, 9(3), e1898. 18. doi:10.17795/ijpbs-11898
  • Shamsaei, F., Cheraghi, F., & Bashirian, S. (2015). Burden on family caregivers caring for patients with Schizophrenia. Iranian Journal of Psychiatry, 10(4), 239–245.
  • Sharifi, V., Hajebi, A., Motevalian, A., Radgoodarzi, R., Hafezi, M., & Rahimi-Movaghar, A. (2015). Twelve-month prevalence and correlates of psychiatric disorders in Iran: The Iranian mental health survey, 2011. Archives of Iranian Medicine, 18(2), 76–84. 015182/AIM.004
  • Taghva, A., Farsi, Z., Javanmard, Y., Atashi, A., Hajebi, A., & Noorbala, A. A. (2017). Strategies to reduce the stigma toward people with mental disorders in Iran: Stakeholders' perspectives. BMC Psychiatry, 17(1), 17. doi:10.1186/s12888-016-1169-y
  • von Kardorff, E., Soltaninejad, A., Kamali, M., & Eslami Shahrbabaki, M. (2016). Family caregiver burden in mental illnesses: The case of affective disorders and schizophrenia – a qualitative exploratory study. Nordic Journal of Psychiatry, 70(4), 248–254. doi:10.3109/08039488.2015.1084372
  • Weimand, B. M., Hall-Lord, M. L., Sällström, C., & Hedelin, B. (2013). Life-sharing experiences of relatives of persons with severe mental illness – a phenomenographic study. Scandinavian Journal of Caring Sciences, 27(1), 99–107. doi:10.1111/j.1471-6712.2012.01007.x
  • World Health Organization. (2006). WHO-AIMS report on mental health system in the Islamic Republic of Iran. WHO and Ministry of Health and Medical Education, Tehran, the Islamic Republic of Iran, 2006.
  • Zauszniewski, J. A., Bekhet, A. K., & Suresky, M. J. (2010). Resilience in family members of persons with serious mental illness. Nursing Clinics of North America, 45(4), 613–626. doi:10.1016/j.cnur.2010.06.007

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