Expert by Experience Involvement in Mental Health Research: Developing a Wellbeing Brochure for People with Lived Experiences of Mental Illness

References

• Chen, F. F., Jing, Y., Hayes, A., & Lee, J. M. (2013). Two concepts or two approaches? A bifactor analysis of psychological and subjective well-being. Journal of Happiness Studies, 14(3), 1033–1068. doi:10.1007/s10902-012-9367-x
   Web of Science ®Google Scholar
• Crowe, M., Inder, M., & Porter, R. (2015). Conducting qualitative research in mental health: Thematic and content analyses. Australian & New Zealand Journal of Psychiatry, 49(7), 616–623. doi:10.1177/0004867415582053
   PubMed Web of Science ®Google Scholar
• Dickinson, D., Raynor, D., & Duman, M. (2001). Patient information leaflets for medicines: Using consumer testing to determine the most effective design. Patient Education and Counseling, 43(2), 147–159. doi:10.1016/S0738-3991(00)00156-7
   PubMed Web of Science ®Google Scholar
• Dodge, R., Daly, A., Huyton, J., & Sanders, L. (2012). The challenge of defining wellbeing. International Journal of Wellbeing, 2(3), 222–235. doi:10.5502/ijw.v2i3.4
   Google Scholar
• Doyle, L., de Vries, J., Higgins, A., Keogh, B., McBennett, P., & O’Shea, M. T. (2017). A mixed-methods longitudinal evaluation of a one-day mental health wellness intervention. Health Education Journal, 76(2), 244–256. doi:10.1177/0017896916662075
   Web of Science ®Google Scholar
• Happell, B., Gordon, S., Bocking, J., Ellis, P., Roper, C., Liggins, J., … Platania-Phung, C. (2019). “Chipping away”: Non-consumer researcher perspectives on barriers to collaborating with consumers in mental health research. Journal of Mental Health, 28(1), 49–55. doi:10.1080/09638237.2018.1466051
   PubMed Web of Science ®Google Scholar
• Hoffmann, T., & Worrall, L. (2004). Designing effective written health education materials: Considerations for health professionals. Disability and Rehabilitation, 26(19), 1166–1173. doi:10.1080/09638280410001724816
   PubMed Web of Science ®Google Scholar
• Honey, A., Coniglio, F., Hancock, N., McDougall, T., & Callaghan, J. (2015). Conceptualising wellbeing for young people living with mental illness. International Journal of Therapy and Rehabilitation, 22(6), 278–287. doi:10.12968/ijtr.2015.22.6.278
   Web of Science ®Google Scholar
• Iasiello, M., van Agteren, J., Keyes, C. L. M., & Cochrane, E. M. (2019). Positive mental health as a predictor of recovery from mental illness. Journal of Affective Disorders, 251, 227–230. doi:10.1016/j.jad.2019.03.065
   PubMed Web of Science ®Google Scholar
• Keyes, C. (2005). Mental illness and/or mental health? Investigating axioms of the complete state model of health. Journal Consulting and Clinical Psychology, 73(3), 539–48. doi:10.1037/0022-006x.73.3.539
   PubMed Web of Science ®Google Scholar
• Lal, S., Ungar, M., Malla, A., Frankish, J., & Suto, M. (2014). Meanings of well-being from the perspectives of youth recently diagnosed with psychosis. Journal of Mental Health, 23(1), 25–30. doi:10.3109/09638237.2013.841866
   PubMed Web of Science ®Google Scholar
• Lamers, S. M. A., Bolier, L., Westerhof, G. J., Smit, F., & Bohlmeijer, E. T. (2012). The impact of emotional well-being on long-term recovery and survival in physical illness: A metaanalysis. Journal of Behavioral Medicine, 35(5), 538–547. doi:10.1007/s10865-011-9379-8
   PubMed Web of Science ®Google Scholar
• Meddings, S., Byrne, D., Barnicoat, S., Campbell, E., & Locks, L. (2014). Co-delivered and co-produced: Creating a recovery college in partnership. The Journal of Mental Health Training, Education and Practice, 9(1), 16–25. doi:10.1108/JMHTEP-04-2013-0011
   Google Scholar
• Moxham, L., Patterson, C., Taylor, E., Perlman, D., Sumskis, S., & Brighton, R. (2017). A multidisciplinary learning experience contributing to mental health rehabilitation. Disability and Rehabilitation, 39(1), 98–103. doi:10.3109/09638288.2016.1146358
   PubMed Web of Science ®Google Scholar
• Murray, G., Suto, M., Hole, R., Hale, S., Amari, E., & Michalak, E. E. (2011). Self-management strategies used by 'high functioning' individuals with bipolar disorder: From research to clinical practice. Clinical Psychology & Psychotherapy, 18(2), 95–109. doi:10.1002/cpp.710
   PubMed Web of Science ®Google Scholar
• Noorani, T. (2013). Service user involvement, authority and the ‘expert-by-experience’ in mental health. Journal of Political Power, 6(1), 49–68. doi:10.1080/2158379X.2013.774979
   Google Scholar
• O'Hagan, M., Reynolds, P., & Smith, C. (2012). Recovery in New Zealand: An evolving concept? International Review of Psychiatry, 24(1), 56–63. doi:10.3109/09540261.2011.651447
   PubMed Web of Science ®Google Scholar
• Owens, C., Crone, D., Kilgour, L., & El Ansari, W. (2010). The place and promotion of well-being in mental health services: A qualitative investigation. Journal of Psychiatric and Mental Health Nursing, 17(1), 1–8. doi:10.1111/j.1365-2850.2009.01480.x
   PubMed Web of Science ®Google Scholar
• Ryff. C. D., & Keyes, C. L. (1995). The structure of psychological well-being revisited. Journal of Personality and Social Psychology, 69(4), 719–727.
   PubMed Web of Science ®Google Scholar
• Slade, M. (2010). Mental illness and well-being: The central importance of positive psychology and recovery approaches. BMC Health Services Research, 10(26), 1–14. doi:10.1186/1472-6963-10-26
   PubMed Web of Science ®Google Scholar
• Patterson, C., Moxham, L., Taylor, E., Sumskis, S., Perlman, D., Brighton, R., … Keough, E. (2016). Perceived control among people with severe mental illness: A comparative study. Archives of Psychiatric Nursing, 30(5), 563–567. doi:10.1016/j.apnu.2016.04.002
   PubMed Web of Science ®Google Scholar
• Staley, K., Kabir, T., & Szmukler, G. (2013). Service users as collaborators in mental health research: Less stick, more carrot. Psychological Medicine, 43(6), 1121–1125. doi:10.1017/S0033291712001663
   PubMed Web of Science ®Google Scholar
• Sterling, E. W., von Esenwein, S. A., Tucker, S., Fricks, L., & Druss, B. G. (2010). Integrating wellness, recovery, and self-management for mental health consumers. Community Mental Health Journal, 46(2), 130–138. doi:10.1007/s10597-009-9276-6
   PubMed Web of Science ®Google Scholar
• Toikko, T. (2016). Becoming an expert by experience: An analysis of service users’ learning process. Social Work in Mental Health, 14(3), 292–312. doi:10.1080/15332985.2015.1038411
   Web of Science ®Google Scholar
• Trompetter, H. R., de Kleine, E., & Bohlmeijer, E. T. (2017). Why does positive mental health buffer against psychopathology? An exploratory study on self-compassion as a resilience mechanism and adaptive emotion regulation strategy. Cognitive Therapy and Research, 41(3), 459–468. doi:10.1007/s10608-016-9774-0
   PubMed Web of Science ®Google Scholar
• Wahlbeck, K. (2015). Public mental health: The time is ripe for translation of evidence into practice. World Psychiatry, 14(1), 36–42. doi:10.1002/wps.20178
   PubMed Web of Science ®Google Scholar
• Whittingham, J. R., Ruiter, R. A., Castermans, D., Huiberts, A., & Kok, G. (2008). Designing effective health education materials: Experimental pre-testing of a theory-based brochure to increase knowledge. Health Education Research, 23(3), 414–426. doi:10.1093/her/cym018
   PubMed Web of Science ®Google Scholar