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Articles

Uncertainty in Transition of African American Caregivers

, PhD, , PhD, MPH, RN, , MBBS, MPH, PhD Candidate, , PhD, RN & , PhD, MSN, RN

References

  • Anderson, M. L., Goodman, J., & Schlossberg, N. K. (2012). Counseling adults in transition: Linking Schlossberg's theory with practice in a diverse world (4th ed.). New York, NY: Springer Publishing Company, LLC.
  • Bainbridge, H. T. J., & Broady, T. R. (2017). Caregiving responsibilities for a child, spouse or parent: The impact of care recipient independence on employee well-being. Journal of Vocational Behavior, 101, 57–66. doi:10.1016/j.jvb.2017.04.006
  • Brummett, B. H., Siegler, I. C., Williams, R. B., Hilliard, T. S., & Dilworth-Anderson, P. (2012). Associations of social support and 8-year follow-up depressive symptoms: Differences in African American and White caregivers. Clinical Gerontologist: The Journal of Aging and Mental Health, 35(4), 289–302. doi:10.1080/07317115.2012.678569
  • Burton, L. M. (1996). Age norms, the timing of family role transitions, and intergenerational caregiving among aging African American women. The Gerontologist, 36(2), 199–208. doi:10.1093/geront/36.2.199
  • Byun, E., Riegel, B., Sommers, M., Tkacs, N., & Evans, L. (2016). Caregiving immediately after stroke: A study of uncertainty in caregivers of older adults. Journal of Neuroscience Nursing, 48(6), 343–351. doi:10.1097/JNN.0000000000000238
  • Cho, J., Ory, M. G., & Stevens, A. B. (2016). Socioecological factors and positive aspects of caregiving: Findings from the REACH II intervention. Aging & Mental Health, 20(11), 1190–1201. doi:10.1080/13607863.2015.1068739
  • Curry, L. A., Nembhard, I. M., & Bradley, E. H. (2009). Qualitative and mixed methods provide unique contributions to outcomes research. Circulation, 119(10), 1442–1452. doi:10.1161/CIRCULATIONAHA.107.742775
  • Dilworth-Anderson, P., Brummett, B. H., Goodwin, P., Williams, S. W., Williams, R. B., & Siegler, I. C. (2005). Effect of race on cultural justifications for caregiving. The Journals of Gerontology: Series B: Psychological Sciences, 60, S257–S262. doi:10.1093/geronb/60.5.s257
  • Dellman-Jenkins, M., Blankemeyer, M., & Pinkard, O. (2001). Incorporating the elder caregiving role into the developmental tasks of young adulthood. The International Journal of Aging and Human Development, 52(1), 1–18. doi:10.2190/FGQA-65FU-JGNT-6C9J
  • Dilworth-Anderson, P., Williams, S., & Cooper, T. (1999). Family caregiving to elderly African Americans: Caregiver types and structures. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 54(4), S237–S241. doi:10.1093/geronb/54B.4.S237
  • Donorfio, L. K. M., & Kellett, K. (2006). Filial responsibility and transitions involved: A qualitative exploration of caregiving daughters and frail mothers. Journal of Adult Development, 13(3–4), 158–167. doi:10.1007/s10804-007-9025-4
  • Donovan, M. L., & Corcoran, M. A. (2010). Description of dementia caregiver uplifts and implications for occupational therapy. American Journal of Occupational Therapy, 64(4), 590–595. doi:10.5014/ajot.2010.09064
  • Gibbons, S. W., Ross, A., & Bevans, M. (2014). Liminality as a conceptual frame for understanding the family caregiving rite of passage: An integrative review. Research in Nursing & Health, 37(5), 423–436. doi:10.1002/nur.21622
  • Greene, J., Cohen, D., Siskowski, C., & Toyinbo, P. (2017). The relationship between family caregiving and the mental health of emerging young adult caregivers. The Journal of Behavioral Health Services & Research, 44(4), 551–563. doi:10.1007/s11414-016-9526-7
  • Giunta, N., Chow, J., Scharlach, A. E., & Dal Santo, T. S. (2004). Racial and ethnic differences in family caregiving in California. Journal of Human Behavior in the Social Environment, 9(4), 85–109. doi:10.1300/J137v09n04_05
  • Haley, W. E., Gitlin, L. N., Wisniewski, S. R., Mahoney, D. F., Coon, D. W., Winter, L., … Ory, M. (2004). Well-being, appraisal, and coping in African-American and Caucasian dementia caregivers: Findings from the REACH study. Aging & Mental Health, 8(4), 316–329. doi:10.1080/13607860410001728998
  • Hansen, B. S., Rørtveit, K., Leiknes, I., Morken, I., Testad, I., Joa, I., & Severinsson, E. (2012). Patient experiences of uncertainty – A synthesis to guide nursing practice and research. Journal of Nursing Management, 20(2), 266–277. doi:10.1111/j.1365-2834.2011.01369.x
  • Heo, G., & Koeske, G. (2013). The role of religious coping and race in Alzheimer's disease caregiving. Journal of Applied Gerontology, 32(5), 582–604. doi:10.1177/0733464811433484
  • Hooker, K., Bowman, S. R., Coehlo, D. P., Lim, S. R., Kaye, J., Guariglia, R., & Li, F. (2002). Behavioral change in persons with dementia: Relationships with mental and physical health of caregivers. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 57(5), P453–P460. doi:10.1093/geronb/57.5.P453
  • Hurley, K. E., Miller, S. M., Costalas, J. W., Gillespie, D., & Daly, M. B. (2001). Anxiety/uncertainty reduction as a motivation for interest in prophylactic oophorectomy in women with a family history of ovarian cancer. Journal of Women's Health & Gender-Based Medicine, 10(2), 189–199. doi:10.1089/152460901300039566
  • Ivery, J. M., & Muniz, G. R. (2017). Caregiving transitions: Developmental and gendered perspectives. Journal of Human Behavior in the Social Environment, 27(4), 311–320. doi:10.1080/10911359.2017.1284028
  • Kramer, B. J., & Lambert, J. D. (1999). Caregiving as a life course transition among older husbands: A prospective study. The Gerontologist, 39(6), 658–667. doi:10.1093/geront/39.6.658
  • Komatsu, H., & Yagasaki, K. (2014). The power of nursing: Guiding patients through a journey of uncertainty. European Journal of Oncology Nursing, 18(4), 419–424. doi:10.1016/j.ejon.2014.03.006
  • Koerner, S., & Shirai, Y. (2012). The negative impact of global perceptions of and daily care-related family conflict on Hispanic caregivers: Familism as a potential moderator. Aging & Mental Health, 16(4), 486–499. doi:10.1080/13607863.2011.638905
  • Levine, C., Hunt, G. G., Halper, D., Hart, A. Y., Lautz, J., & Gould, D. A. (2005). Young adult caregivers: A first look at an unstudied population. American Journal of Public Health, 95(11), 2071–2075. doi:10.2105/AJPH.2005.067702
  • Marino, V. R., Haley, W. E., & Roth, D. L. (2017). Beyond hedonia: A theoretical reframing of caregiver well-being. Translational Issues in Psychological Science, 3(4), 400–409. doi:10.1037/tps0000134
  • Mavandadi, S., Wright, E. M., Graydon, M. M., Oslin, D. W., & Wray, L. O. (2017). A randomized pilot trial of a telephone-based collaborative care management program for caregivers of individuals with dementia. Psychological Services, 14(1), 102–111. doi:10.1037/ser0000118
  • Meleis, A. F. (2010). Transitions theory middle-range and situation-specific theories in nursing research and practice. New York, NY: Springer Publishing Company, LLC.
  • Melhado, L., & Bushy, A. (2011). Exploring uncertainty in advance care planning in African Americans: Does low health literacy influence decision making preference at end of life. American Journal of Hospice & Palliative Medicine, 28(7), 495–500. doi:10.1177/1049909110398005
  • Merritt, M. M., McCallum, T. J., & Fritsch, T. (2011). How much striving is too much? John Henryism active coping predicts worse daily cortisol responses for African American but not White female dementia family caregivers. The American Journal of Geriatric Psychiatry, 19(5), 451–460. doi:10.1097/JGP.0b013e3181eaffa4
  • Mishel, M. H. (2014). Theories of uncertainty in illness. In M. J. Smith & P. R. Liehr (Eds.), Middle range theories for nursing (3rd ed., pp. 63–93). New York, NY: Springer.
  • Mishel, M. H., Germino, B. B., Gil, K. M., Belyea, M., Laney, I. C., Stewart, J., … Clayton, M. (2005). Benefits from an uncertainty management intervention for African-American and Caucasian older long-term breast cancer survivors. Psycho-Oncology, 14(11), 962–978. doi:10.1002/pon.909
  • National Alliance for Caregiving (NAC). (2015). Caregiving in the U.S. Retrieved from https://assets.aarp.org/rgcenter/il/us_caregiving_1.pdf.
  • Northouse, L., Kershaw, T., Mood, D., & Schafenacker, A. (2005). Effects of a family intervention on the quality of life of women with recurrent breast cancer and their family caregivers. Psycho-Oncology, 14(6), 478–491. doi:10.1002/pon.871
  • Picot, S. J., Debanne, S. M., Namazi, K. H., & Wykle, M. L. (1997). Religiosity and perceived rewards of black and white caregivers. The Gerontologist, 37(1), 89–101. doi:10.1093/geront/37.1.89
  • Penkunas, M. J., Chan, A. W. M., Wong, C. H., de Korne, D. F., Tan, S. M., & Wong, S. F. (2018). The role of a multicomponent home-health intervention in reducing caregiver stress in Singapore: A qualitative study. The Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 73(2), 314–325.
  • Pinquart, M., & Sorensen, S. (2005). Ethnic differences in stressors, resources and psychological outcomes of family caregiving: A meta-analysis. The Gerontologist, 45(1), 90–106. doi:10.1093/geront/45.1.90
  • Pillemer, K., & Suitor, J. J. (2014). Who provides care? A prospective study of caregiving among adult siblings. The Gerontologist, 54(4), 589–598. doi:10.1093/geront/gnt066
  • Roth, D. L., Dilworth-Anderson, P., Huang, J., Gross, A. L., & Gitlin, L. N. (2015). Positive aspects of family caregiving for dementia: Differential item functioning by race. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 70(6), 813–819. doi:10.1093/geronb/gbv034
  • Sayegh, P., & Knight, B. G. (2011). The effects of familism and cultural justification on the mental and physical health of family caregivers. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 66(1), 3–14. doi:10.1093/geronb/gbq061
  • Scharlach, A. E., Kellam, R., Ong, N., Baskin, A., Goldstein, C., & Fox, P. J. (2006). Cultural attitudes and caregiver service use: lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47(1–2), 133–156. doi:10.1300/J083v47n01_09
  • Schlossberg, N. K. (1981). A model for analyzing human adaptation to transition. The Counseling Psychologist, 9(2), 2–18. doi:10.1177/001100008100900202
  • Schlossberg, N. K. (2011). The challenge of change: The transition model and its applications. Journal of Employment Counseling, 48(4), 159–162. doi:10.1002/j.2161-1920.2011.tb01102.x
  • Schulz, R., Beach, S. R., Cook, T. B., Martire, L. M., Tomlinson, J. M., & Monin, J. K. (2012). Predictors and consequences of perceived lack of choice in becoming an informal caregiver. Aging & Mental Health, 16(6), 712–721. doi:10.1080/13607863.2011.651439
  • Sherman, C. W., Webster, N. J., & Antonucci, T. C. (2014). Dementia caregiving in the context of late-life remarriage: Support networks, relationship quality, and well-being”: Erratum. Journal of Marriage and Family, 76(1), 246. doi:10.1111/jomf.12059
  • Taylor, R. J., Mouzon, D. M., Nguyen, A. W., & Chatters, L. M. (2016). Reciprocal family, friendship and church support networks of African Americans: Findings from the National Survey of American Life. Race and Social Problems, 8(4), 326–339. doi:10.1007/s12552-016-9186-5
  • Toye, C., Lester, L., Popescu, A., McInerney, F., Andrews, S., & Robinson, A. L. (2016). Dementia knowledge assessment tool: Development and preliminary testing with aged care staff and family carers”: Corrigendum. Dementia: The International Journal of Social Research and Practice, 15(5), 1313. doi:10.1177/1471301216665269
  • Unson, C., Flynn, D., Glendon, M. A., Haymes, E., & Sancho, D. (2015). Dementia and caregiver stress: An application of the reconceptualized uncertainty in illness theory. Issues in Mental Health Nursing, 36(6), 439–446. doi:10.3109/01612840.2014.993052
  • US Census & Lofquis, D. A. (2012). Multigenerational households: 2009–2011 American Community Survey Briefs Issued October 2012 ACSBR/11-03. Retrieved from https://www2.census.gov/library/publications/2012/acs/acsbr11-03.pdf.
  • Williams, S. W., & Anderson-Dilworth, P. (2002). Systems of social support in families who care for dependent African American elders. The Gerontologist, 42(2), 224–236. doi:10.1093/geront/42.2.224
  • Whitfield, K. E. (2001). Commentary on the effects of knowledge, attitudes, and significant others on decisions of enroll in a clinical trial on osteoporosis. Journal of the National Medical Association, 93(10), 402–404. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=psyh&AN=2003-03295-004&site=ehost-live&scope=site.

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