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Cultural Competence Column

Fighting Stigma by Engaging Persons Living with Dementia in Research

, BSN, RN, PhD Student

References

  • Gerritsen, D. L., Oyebode, J., & Gove, D. (2018). Ethical implications of the perception and portrayal of dementia. Dementia (London, England), 17(5), 596–608. https://doi.org/10.1177/1471301216654036
  • Gordon, H., & McKeown, J. (2020). Co-producing research - A personal experience. Dementia (London, England), 19(1), 98–100. https://doi.org/10.1177/1471301219876713
  • Littlechild, R., Tanner, D., & Hall, K. (2015). Co-research with older people: Perspectives on impact. Qualitative Social Work: Research and Practice, 14(1), 18–35. https://doi.org/10.1177/1473325014556791
  • Mann, J., & Hung, L. (2019). Co-research with people living with dementia for change. Action Research, 17(4), 573–590. https://doi.org/10.1177/1476750318787005
  • Matthews, K. A., Xu, W., Gaglioti, A. H., Holt, J. B., Croft, J. B., Mack, D., & McGuire, L. C. (2019). Racial and ethnic estimates of Alzheimer's disease and related dementias in the United States (2015–2060) in adults aged ≥65 years. Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 15(1), 17–24. https://doi.org/10.1016/j.jalz.2018.06.3063
  • Mukadam, N., & Livingston, G. (2012). Reducing the stigma assocaited with dementia: Approaches and goals. Aging Health, 8(4), 377–386. https://doi.org/10.2217/ahe.12.42
  • O’Doherty, J. (2020). Reflections on working alongside academic researchers. Dementia (London), 19(1), 27–30. https://doi.org/10.1177/1471301219876444
  • Oliver, K., O’Malley, M., Parkes, J., Stamou, V., La Fontaine, J., Oyebode, J., & Carter, J. (2020). Living with young onset dementia and actively shaping dementia research - The Angela Project. Dementia (London, England), 19(1), 41–48. https://doi.org/10.1177/1471301219876414
  • Roberts, C., Rochford-Brennan, H., Goodrick, J., Gove, D., Diaz-Ponce, A., & Georges, J. (2020). Our reflections of patient and public involvement in research as members of the European Working Group of People with Dementia. Dementia (London, England), 19(1), 10–17. https://doi.org/10.1177/1471301219876402
  • Span, M., Hettinga, M., Groen-Van De Ven, L., Jukema, J., Janssen, R., Vernooij-Dassen, M., Eefsting, J., & Smits, C. (2018). Involving people with dementia in developing an interactive web tool for shared decision-making: Experiences with a participatory design approach. Disability and Rehabilitation, 40(12), 1410–1420. https://doi.org/10.1080/09638288.2017.1298162
  • Waite, J., Poland, F., & Charlesworth, G. (2019). Facilitators and barriers to co-research by people with dementia and academic researchers: Findings from a qualitative study. Health Expectations: An International Journal of Public Participation in Health Care and Health Policy, 22(4), 761–771. https://doi.org/10.1111/hex.12891

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