The Wisdom of Hindsight: Allies Reflections on Their Role in Supporting the Implementation of Expert by Experience Positions in Academia

References

• Aagaard, T., & Lund, A. (2019). Transforming higher education: What is at stake? In Digital agency in higher education transforming teaching and learning. Routledge. https://doi.org/10.4324/9780429020629
   Google Scholar
• Adams, W. E. (2020). Unintended consequences of institutionalizing peer support work in mental healthcare. Social Science & Medicine, 262, 113249. https://doi.org/10.1016/j.socscimed.2020.113249
   PubMed Web of Science ®Google Scholar
• Anderson, E. S., Ford, J., & Thorpe, L. (2019). Perspectives on patients and carers in leading teaching roles in interprofessional education. Journal of Interprofessional Care, 33(2), 216–225. https://doi.org/10.1080/13561820.2018.1531834
   PubMed Web of Science ®Google Scholar
• Arblaster, K., Mackenzie, L., & Willis, K. (2015a). Mental health consumer participation in education: A structured literature review. Australian Occupational Therapy Journal, 62(5), 341–362. https://doi.org/10.1111/1440-1630.12205
   PubMed Web of Science ®Google Scholar
• Arblaster, K., Mackenzie, L., & Willis, K. (2015b). Service user involvement in health professional education: Is it effective in promoting recovery-oriented practice? The Journal of Mental Health Training, Education and Practice, 10(5), 325–336. https://doi.org/10.1108/JMHTEP-04-2015-0016
   Google Scholar
• Bradshaw, C., Atkinson, S., & Doody, O. (2017). Employing a qualitative description approach in health care research. Global Qualitative Nursing Research, 4, 2333393617742282. https://doi.org/10.1177/2333393617742282
   Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2021). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328–352. https://doi.org/10.1080/14780887.2020.1769238
   Web of Science ®Google Scholar
• Byrne, L., Platania-Phung, C., Happell, B., Harris, S., Sci, D. H., Hlth Nurs, M. M., & Bradshaw, J. (2014). Changing nursing students’ attitudes to consumer participation in mental health services: A survey study of traditional and lived experience-led education. Issues in Mental Health Nursing, 35(9), 704–712. https://doi.org/10.3109/01612840.2014.888604
   PubMed Web of Science ®Google Scholar
• Byrne, L., Happell, B., & Reid-Searl, K. (2016). Lived experience practitioners and the medical model: World’s colliding? Journal of Mental Health, 25(3), 217–223. https://doi.org/10.3109/09638237.2015.1101428
   PubMed Web of Science ®Google Scholar
• Byrne, L., Roper, C., Happell, B., & Reid-Searl, K. (2019). The stigma of identifying as having a lived experience runs before me: Challenges for lived experience roles. Journal of Mental Health, 28(3), 260–266. https://doi.org/10.1080/09638237.2016.1244715
   PubMed Web of Science ®Google Scholar
• Byrne, L., Wang, L., Roennfeldt, H., Chapman, M., Darwin, L., Castles, C., Craze, L., & Saunders, M. (2021). National lived experience workforce guidelines. National Mental Health Commission.
   Google Scholar
• Elraz, H. (2018). Identity, mental health and work: How employees with mental health conditions recount stigma and the pejorative discourse of mental illness. Human Relations, 71(5), 722–741. https://doi.org/10.1177/0018726717716752
   Web of Science ®Google Scholar
• Happell, B. (2007). ‘We are all consumers of mental health services’: The hidden danger of promoting ‘sameness’. International Journal of Mental Health Nursing, 16(3), 145–146. https://doi.org/10.1111/j.1447-0349.2007.00461.x
   PubMed Web of Science ®Google Scholar
• Happell, B., Bocking, J., Scholz, B., & Platania-Phung, C. (2020). The tyranny of difference: Exploring attitudes to the role of the consumer academic in teaching students of mental health nursing. Journal of Mental Health, 29(3), 263–269. https://doi.org/10.1080/09638237.2019.1581344
   PubMed Web of Science ®Google Scholar
• Happell, B., Byrne, L., McAllister, M., Lampshire, D., Roper, C., Gaskin, C. J., Martin, G., Wynaden, D., McKenna, B., Lakeman, R., Platania-Phung, C., & Hamer, H. (2014). Consumer involvement in the tertiary-level education of mental health professionals: A systematic review. International Journal of Mental Health Nursing, 23(1), 3–16. https://doi.org/10.1111/inm.12021
   PubMed Web of Science ®Google Scholar
• Happell, B., Gordon, S., Roper, C., Ellis, P., Waks, S., Warner, T., Scholz, B., & Platania-Phung, C. (2021). Establishing an Expert Mental Health Consumer Research Group: Perspectives of non-consumer researchers. Perspectives in Psychiatric Care, 57(1), 33–42. https://doi.org/10.1111/ppc.12520
   PubMed Web of Science ®Google Scholar
• Happell, B., Gordon, S., Sharrock, J., O'Donovan, A., & Warner, T. (2022). ‘What’s she doing here?’ Overcoming barriers to the implementation of Expert by Experience positions in academia. Australian Occupational Therapy Journal, 69(6), 689–702. https://doi.org/10.1111/1440-1630.12832
   PubMed Web of Science ®Google Scholar
• Happell, B., Pinikahana, J., & Roper, C. (2003). Changing attitudes: The role of a consumer academic in the education of postgraduate psychiatric nursing students. Archives of Psychiatric Nursing, 17(2), 67–76. https://doi.org/10.1016/S0883-9417(03)00002-5
   PubMed Web of Science ®Google Scholar
• Happell, B., Platania-Phung, C., Byrne, L., Wynaden, D., Martin, G., & Harris, S. (2015). Consumer participation in nurse education: A national survey of Australian universities. International Journal of Mental Health Nursing, 24(2), 95–103. https://doi.org/10.1111/inm.12111
   PubMed Web of Science ®Google Scholar
• Happell, B., Platania-Phung, C., Scholz, B., Bocking, J., Horgan, A., Manning, F., Doody, R., Hals, E., Granerud, A., Lahti, M., Pullo, J., Vatula, A., Koski, J., van der Vaart, K. J., Allon, J., Griffin, M., Russell, S., MacGabhann, L., Bjornsson, E., & Biering, P. (2019). Changing attitudes: The impact of Expert by Experience involvement in Mental Health Nursing Education: An international survey study. International Journal of Mental Health Nursing, 28(2), 480–491. https://doi.org/10.1111/inm.12551
   PubMed Web of Science ®Google Scholar
• Happell, B., & Roper, C. (2009). Promoting genuine consumer participation in mental health education: A consumer academic role. Nurse Education Today, 29(6), 575–579. https://doi.org/10.1016/j.nedt.2008.01.004
   PubMed Web of Science ®Google Scholar
• Happell, B., & Scholz, B. (2018). Doing what we can, but knowing our place: Being an ally to promote consumer leadership in mental health. International Journal of Mental Health Nursing, 27(1), 440–447. https://doi.org/10.1111/inm.12404
   PubMed Web of Science ®Google Scholar
• Happell, B., Scholz, B., Bocking, J., Platania‐Phung, C., Gordon, S., Ellis, P., Roper, C., & Liggins, J. (2018). "I don’t think we’ve quite got there yet": The experience of allyship for mental health consumer researchers. Journal of Psychiatric and Mental Health Nursing, 25(8), 453–462. https://doi.org/10.1111/jpm.12476
   PubMed Web of Science ®Google Scholar
• Happell, B., Sharrock, J., Warner, T., O'Donovan, A., Hurley, E., & Gordon, S. (2022). Changing ‘the world for the better’: motivations of mental health academics for supporting expert by experience roles in mental health education. Journal of Mental Health, 1–8. https://doi.org/10.1080/09638237.2022.2091759
   Google Scholar
• Happell, B., Waks, S., Bocking, J., Horgan, A., Manning, F., Greaney, S., Goodwin, J., Scholz, B., van der Vaart, K. J., Allon, J., Granerud, A., Hals, E., Doody, R., Russell, S., Griffin, M., MacGabhann, L., Lahti, M., Ellila, H., Pulli, J., … Biering, P. (2019). “There’s more to a person than what’s in front of you”: nursing students’ experiences of consumer taught mental health education. International Journal of Mental Health Nursing, 28(4), 950–959. https://doi.org/10.1111/inm.12596
   PubMed Web of Science ®Google Scholar
• Happell, B., Warner, T., Waks, S., O'Donovan, A., Manning, F., Doody, R., Greaney, S., Goodwin, J., Hals, E., Griffin, M., Scholz, B., Granerud, A., Platania-Phung, C., Russell, S., MacGabhann, L., Pulli, J., Vatula, A., van der Vaart, K. J., Allon, J., … Biering, P. (2022). Something special, something unique: Perspectives of experts by experience in mental health nursing education on their contribution. Journal of Psychiatric and Mental Health Nursing, 29(2), 346–358. https://doi.org/10.1111/jpm.12773
   PubMed Web of Science ®Google Scholar
• Happell, B., Warner, T., Waks, S., O'Donovan, A., Manning, F., Doody, R., Greaney, S., Goodwin, J., Hals, E., Griffin, M., Scholz, B., Granerud, A., Platania-Phung, C., Russell, S., MacGabhann, L., Pulli, J., Vatula, A., der Vaart, K. J. v., Allon, J., … Biering, P. (2021). Becoming an expert by experience: Benefits and challenges of educating mental health nursing students. Issues in Mental Health Nursing, 42(12), 1095–1103. https://doi.org/10.1080/01612840.01612021.01931583https://doi.org/10.1080/01612840.2021.1931583
   PubMed Web of Science ®Google Scholar
• Happell, B., Wynaden, D., Tohotoa, J., Platania-Phung, C., Byrne, L., Martin, G., & Harris, S. (2015). Mental health lived experience academics in tertiary education: The views of nurse academics. Nurse Education Today, 35(1), 113–117. https://doi.org/10.1016/j.nedt.2014.07.006
   PubMed Web of Science ®Google Scholar
• Horgan, A., Manning, F., Bocking, J., Happell, B., Lahti, M., Doody, R., Griffin, M., Bradley, S. K., Russell, S., Bjornsson, E., O'Donovan, M., MacGabhann, L., Savage, E., Pulli, J., Goodwin, J., van der Vaart, K. J., O'Sullivan, H., Dorrity, C., Ellila, H., … Biering, P. (2018). To be treated as a human’: Using co-production to explore experts by experience involvement in mental health nursing education – The COMMUNE project. International Journal of Mental Health Nursing, 27(4), 1282–1291. https://doi.org/10.1111/inm.12435
   PubMed Web of Science ®Google Scholar
• Horgan, A., Manning, F., Donovan, M. O., Doody, R., Savage, E., Bradley, S. K., Dorrity, C., O'Sullivan, H., Goodwin, J., Greaney, S., Biering, P., Bjornsson, E., Bocking, J., Russell, S., MacGabhann, L., Griffin, M., van der Vaart, K. J., Allon, J., Granerud, A., … Happell, B. (2020). Expert by experience involvement in mental health nursing education: The co-production of standards between Experts by Experience and Academics in Mental Health Nursing. Journal of Psychiatric and Mental Health Nursing, 27(5), 553–562. https://doi.org/10.1111/jpm.12605
   PubMed Web of Science ®Google Scholar
• Jackson-Blott, K., Hare, D., Davies, B., & Morgan, S. (2019). Recovery-oriented training programmes for mental health professionals: A narrative literature review. Mental Health & Prevention, 13, 113–127. https://doi.org/10.1016/j.mhp.2019.01.005
   Google Scholar
• Jha, V., Quinton, N. D., Bekker, H. L., & Roberts, T. E. (2009). What educators and students really think about using patients as teachers in medical education: A qualitative study. Medical Education, 43(5), 449–456. https://doi.org/10.1111/j.1365-2923.2009.03355.x
   PubMed Web of Science ®Google Scholar
• Kluttz, J., Walker, J., & Walter, P. (2020). Unsettling allyship, unlearning and learning towards decolonising solidarity. Studies in the Education of Adults, 52(1), 49–66. https://doi.org/10.1080/02660830.2019.1654591
   Web of Science ®Google Scholar
• McCutcheon, K., & Gormley, K. (2014). Service-user involvement in nurse education: Partnership or tokenism? British Journal of Nursing, 23(22), 1196–1199. https://doi.org/10.12968/bjon.2014.23.22.1196
   PubMedGoogle Scholar
• Newton-Howes, G., Gordon, S., & Fedchuk, D. (2020). Making the world of difference: A service user-led education programme reshaping the learning environment in psychiatry. Australasian Psychiatry, 28(2), 226–228. https://doi.org/10.1177/1039856219878647
   PubMed Web of Science ®Google Scholar
• Nursing and Midwifery Board of Ireland. (2016). Nurse registration programmes standards and requirements (4th ed.). Nursing and Midwifery Board of Ireland.
   Google Scholar
• O'Keefe, M., & Jones, A. (2007). Promoting lay participation in medical school curriculum development: Lay and faculty perceptions. Medical Education, 41(2), 130–137. https://doi.org/10.1111/j.1365-2929.2006.02666.x
   PubMed Web of Science ®Google Scholar
• Occupational Therapy Council of Australia Ltd. (2018). Accreditation standards for Australian entry-level occupational therapy education programs. Occupational Therapy Council of Australia Ltd.
   Google Scholar
• Ocloo, J., & Matthews, R. (2016). From tokenism to empowerment: Progressing patient and public involvement in healthcare improvement. BMJ Quality & Safety, 25(8), 626–632. https://doi.org/10.1136/bmjqs-2015-004839
   PubMed Web of Science ®Google Scholar
• Prytherch, H., Lea, L., & Richardson, M. (2018). Mentoring trainee psychologists: Learning from lived experience. The Journal of Mental Health Training, Education and Practice, 13(4), 197–208. https://doi.org/10.1108/JMHTEP-08-2017-0050
   Web of Science ®Google Scholar
• Ridley, S., Martin, R., & Mahboub, L. (2017). Learning from mental health lived experience and the influence on students’ practice. Australian Social Work, 70(3), 372–380. https://doi.org/10.1080/0312407X.2016.1235718
   Web of Science ®Google Scholar
• Roennfeldt, H., & Byrne, L. (2020). How much ‘lived experience’ is enough? Understanding mental health lived experience work from a management perspective. Australian Health Review, 44(6), 898–903. https://doi.org/10.1071/AH19261
   PubMed Web of Science ®Google Scholar
• Roper, C., Grey, F., & Cadogan, E. (2018). Co-production: Putting principles into practice in mental health contexts. University of Melbourne.
   Google Scholar
• Scanlan, J. N., Berry, B., Wells, K., & Somerville, J. (2022). Learning from lived experience: Outcomes associated with students’ involvement in co‐designed and co‐delivered recovery‐oriented practice workshops. Australian Occupational Therapy Journal, 69(6), 714–722. https://doi.org/10.1111/1440-1630.12837
   PubMed Web of Science ®Google Scholar
• Scanlan, J. N., Logan, A., Arblaster, K., Haracz, K., Fossey, E., Milbourn, B. T., Pépin, G., Machingura, T., & Webster, J. S. (2020). Mental health consumer involvement in occupational therapy education in Australia and Aotearoa New Zealand. Australian Occupational Therapy Journal, 67(1), 83–93. https://doi.org/10.1111/1440-1630.12634
   PubMed Web of Science ®Google Scholar
• Scholz, B., Platania‐Phung, C., Gordon, S., Ellis, P., Roper, C., Bocking, J., & Happell, B. (2019). Very useful, but do carefully: Mental health researcher views on establishing a Mental Health Expert Consumer Researcher Group. Journal of Psychiatric and Mental Health Nursing, 26(9–10), 358–367. https://doi.org/10.1111/jpm.12547
   PubMed Web of Science ®Google Scholar
• Soon, Y. E., Murray, C. M., Aguilar, A., & Boshoff, K. (2020). Consumer involvement in university education programs in the nursing, midwifery, and allied health professions: A systematic scoping review. International Journal of Nursing Studies, 109, 103619. https://doi.org/10.1016/j.ijnurstu.2020.103619
   PubMed Web of Science ®Google Scholar
• Soon, Y. E., Murray, C. M., Aguilar, A., & Boshoff, K. (2022). Describing consumer involvement, recruitment, retention in Australian occupational therapy university education: A cross sectional survey. British Journal of Occupational Therapy, 85(8), 585–594. https://doi.org/10.1177/03080226211064475
   Web of Science ®Google Scholar
• Speed, S., Griffiths, J., Horne, M., & Keeley, P. (2012). Pitfalls, perils and payments: Service user, carers and teaching staff perceptions of the barriers to involvement in nursing education. Nurse Education Today, 32(7), 829–834. https://doi.org/10.1016/j.nedt.2012.04.013
   PubMed Web of Science ®Google Scholar
• Sunkel, C., & Sartor, C. (2022). Perspectives: Involving persons with lived experience of mental health conditions in service delivery, development and leadership. BJPsych Bulletin, 46(3), 160–164. https://doi.org/10.1192/bjb.2021.51
   PubMed Web of Science ®Google Scholar
• Taylor, J. E., & Gordon, S. E. (2022). Evaluating service user-led teaching of mental health recovery concepts in clinical psychology training. Training and Education in Professional Psychology, 16(4), 385–393. https://doi.org/10.1037/tep0000377
   Web of Science ®Google Scholar
• Teasdale, S. (2002). Culture eats strategy for breakfast! Journal of Innovation in Health Informatics, 10(4), 195–196. https://doi.org/10.14236/jhi.v10i4.259
   Google Scholar
• Terry, J. M. (2013). The pursuit of excellence and innovation in service user involvement in nurse education programmes: Report from a travel scholarship. Nurse Education in Practice, 13(3), 202–206. https://doi.org/10.1016/j.nepr.2012.09.004
   PubMed Web of Science ®Google Scholar
• Winn, S., & Lindqvist, S. (2019). Purposeful involvement of experts by experience. The Clinical Teacher, 16(3), 183–188. https://doi.org/10.1111/tct.13032
   PubMed Web of Science ®Google Scholar
• Winsper, C., Crawford-Docherty, A., Weich, S., Fenton, S.-J., & Singh, S. P. (2020). How do recovery-oriented interventions contribute to personal mental health recovery? A systematic review and logic model. Clinical Psychology Review, 76, 101815. https://doi.org/10.1016/j.cpr.2020.101815
   PubMed Web of Science ®Google Scholar
• World Federation of Occupational Therapists. (2016). The minimum standards for the education of occupational therapists. World Federation of Occupational Therapists.
   Google Scholar