Patient Participation in Mental Health Care – Perspectives of Healthcare Professionals and Patients: A Scoping Review

References

• Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. https://doi.org/10.1080/1364557032000119616
   Google Scholar
• Bee, P., Brooks, H., Fraser, C., & Lovell, K. (2015). Professional perspectives on service user and carer involvement in mental health care planning: A qualitative study. International Journal of Nursing Studies, 52(12), 1834–1845. https://doi.org/10.1016/j.ijnurstu.2015.07.008
   PubMed Web of Science ®Google Scholar
• Biringer, E., Davidson, L., Sundfør, B., Ruud, T., & Borg, M. (2017). Service users’ expectations of treatment and support at the community mental health centre in their recovery. Scandinavian Journal of Caring Sciences, 31(3), 505–513. https://doi.org/10.1111/scs.12364
   PubMed Web of Science ®Google Scholar
• Borg, M., Karlsson, B., & Stenhammer, A. (2013). Recoveryorienterte praksiser (Issue 4).
   Google Scholar
• Charmaz, K. (2014). Constructing grounded theory: A practical guide through qualitative analysis. Sage Publications.
   Google Scholar
• Cottle, S., & Wendy, L. (2013). Patient involvement in enhanced recovery. Nursing Times, 109(13), 24–25.
   PubMedGoogle Scholar
• Davidson, L. (2016a). Recovery-focussed mental health services the personal recovery framework, 77–93.
   Google Scholar
• Davidson, L. (2016b). The recovery movement: Implications for mental health care and enabling people to participate fully in life. Health Affairs (Project Hope), 35(6), 1091–1097. https://doi.org/10.1377/hlthaff.2016.0153
   PubMed Web of Science ®Google Scholar
• Davidson, L., Tondora, J., Pavlo, A. J., & Stanhope, V. (2017). Shared decision making within the context of recovery-oriented care. Mental Health Review Journal, 22(3), 179–190. https://doi.org/10.1108/MHRJ-01-2017-0007
   Web of Science ®Google Scholar
• Eliacin, J., Salyers, M. P., Kukla, M., & Matthias, M. S. (2015). Factors influencing patients’ preferences and perceived involvement in shared decision-making in mental health care. Journal of Mental Health (Abingdon, England), 24(1), 24–28. https://doi.org/10.3109/09638237.2014.954695
   PubMed Web of Science ®Google Scholar
• Gough, D., Oliver, S., & Thomas, J. (2017). An introduction to systematic reviews (2nd ed.). SAGE.
   Google Scholar
• Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112. https://doi.org/10.1016/j.nedt.2003.10.001
   PubMed Web of Science ®Google Scholar
• Grant, M. J., & Booth, A. (2009). A typology of reviews: An analysis of 14 review types and associated methodologies. Health Information and Libraries Journal, 26(2), 91–108. https://doi.org/10.1111/j.1471-1842.2009.00848.x
   PubMed Web of Science ®Google Scholar
• Grundy, A. C., Bee, P., Meade, O., Callaghan, P., Beatty, S., Olleveant, N., & Lovell, K. (2016). Bringing meaning to user involvement in mental health care planning: A qualitative exploration of service user perspectives. Journal of Psychiatric and Mental Health Nursing, 23(1), 12–21. https://doi.org/10.1111/jpm.12275
   PubMed Web of Science ®Google Scholar
• Happell, B., Bennetts, W., Platania-Phung, C., & Tohotoa, J. (2016). Exploring the scope of consumer participation in mental health nursing education: Perspectives from nurses and consumers. Perspectives in Psychiatric Care, 52(3), 169–177. https://doi.org/10.1111/ppc.12113
   PubMed Web of Science ®Google Scholar
• Jansen, T. L., & Hanssen, I. (2017). Patient participation: Causing moral stress in psychiatric nursing? Scandinavian Journal of Caring Sciences, 31(2), 388–394. https://doi.org/10.1111/scs.12358
   PubMedGoogle Scholar
• Joergensen, K., & Praestegaard, J. (2017). Patient participation as discursive practice—A critical discourse analysis of Danish mental healthcare. Nursing Inquiry, 25(2), e12218. https://doi.org/10.1111/nin.12218
   PubMed Web of Science ®Google Scholar
• Jones, A., Jess, K., & Schön, U. K. (2021). How do users with comorbidity perceive participation in social services? A qualitative interview study. International Journal of Qualitative Studies on Health and Well-Being, 16(1), 1901468. https://doi.org/10.1080/17482631.2021.1901468
   PubMed Web of Science ®Google Scholar
• Jørgensen, K., & Rendtorff, J. D. (2018). Patient participation in mental health care – Perspectives of healthcare professionals: An integrative review. Scandinavian Journal of Caring Sciences, 32(2), 490–501. https://doi.org/10.1111/scs.12531
   PubMed Web of Science ®Google Scholar
• Jørgensen, K., Andreasson, K., Rasmussen, T., Hansen, M., & Karlsson, B. (2022). Recovery-oriented cross-sectoral network meetings between mental health hospital professionals and community mental health professionals: A critical discourse analysis. International Journal of Environmental Research and Public Health, 19(6), 3217. https://doi.org/10.3390/ijerph19063217
   PubMed Web of Science ®Google Scholar
• Jørgensen, K., Dahl, M. B., & Frederiksen, J. (2020a). Coherence in intersectoral collaboration between psychiatric centres and community mental healthcare: A critical discourse analysis. Nordic Journal of Nursing Research, 40(3), 130–141. https://doi.org/10.1177/2057158520935388
   Google Scholar
• Jørgensen, K., Dahl, M. B., & Frederiksen, J. (2020b). Healthcare professionals’ and users’ experiences of intersectoral care between hospital and community mental healthcare. International Journal of Environmental Research and Public Health, 17(18), 1–15. https://doi.org/10.3390/ijerph17186510
   Web of Science ®Google Scholar
• Jørgensen, K., Hansen, M. S., Hansen, M., & Karlsson, B. (2024). Health professionals’ perceptions of user involvement in a mental health centre: A critical discourse analysis. International Journal of Mental Health Nursing, 1–12. Advance online publication. https://doi.org/10.1111/inm.13296
   PubMed Web of Science ®Google Scholar
• Jørgensen, K., Hansen, M., Andersen, T. G., Hansen, M., & Karlsson, B. (2023). Healthcare professionals’ experiences with patient participation in a mental healthcare centre: A qualitative study. International Journal of Environmental Research and Public Health, 20(3), 1965. https://doi.org/10.3390/ijerph20031965
   PubMedGoogle Scholar
• Jørgensen, K., Rasmussen, T., Hansen, M., Andreasson, K., & Karlsson, B. (2021a). Recovery-oriented network meetings in mental healthcare: A qualitative study. Issues in Mental Health Nursing, 43(2), 164–171. https://doi.org/10.1080/01612840.2021.1961178
   PubMed Web of Science ®Google Scholar
• Jørgensen, K., Rasmussen, T., Hansen, M., Andreasson, K., & Karlsson, B. (2021b). User involvement in the handover between mental health hospitals and community mental health: A critical discourse analysis. International Journal of Environmental Research and Public Health, 18(7), 3352. https://doi.org/10.3390/ijerph18073352
   PubMed Web of Science ®Google Scholar
• Jørgensen, K., Rendtorff, J. D., & Holen, M. (2018). How patient participation is constructed in mental health care: A grounded theory study. Scandinavian Journal of Caring Sciences, 32(4), 1359–1370. https://doi.org/10.1111/scs.12581
   PubMed Web of Science ®Google Scholar
• Kortteisto, T., Laitila, M., & Pitkänen, A. (2021). Professionals’ views on patient involvement in acute psychiatric wards: A qualitative study. Perspectives in Psychiatric Care, 57(3), 1489–1496. https://doi.org/10.1111/ppc.12716
   PubMed Web of Science ®Google Scholar
• Kvia, A., Dahl, C., Grønnestad, T., & Frahm Jensen, M. J. (2021). Easier to say ‘recovery’ than to do recovery: Employees’ experiences of implementing a recovery-oriented practice. International Journal of Mental Health and Addiction, 19(5), 1919–1930. https://doi.org/10.1007/s11469-020-00285-1
   Web of Science ®Google Scholar
• Laitila, M., Nummelin, J., Kortteisto, T., & Pitkänen, A. (2018). Service users’ views regarding user involvement in mental health services: A qualitative study. Archives of Psychiatric Nursing, 32(5), 695–701. https://doi.org/10.1016/j.apnu.2018.03.009
   PubMed Web of Science ®Google Scholar
• Leamy, M., Bird, V., Le Boutillier, C., Williams, J., & Slade, M. (2011). Conceptual framework for personal recovery in mental health: Systematic review and narrative synthesis. British Journal of Psychiatry: The Journal of Mental Science, 199(6), 445–452. https://doi.org/10.1192/bjp.bp.110.083733
   PubMed Web of Science ®Google Scholar
• Leemeijer, A., & Trappenburg, M. (2016). Patient centered professionalism? Patient participation in Dutch mental health professional frameworks. Professions and Professionalism, 6(2), e1474. https://doi.org/10.7577/pp.1474
   Google Scholar
• Levac, D., Colquhoun, H., O’brien, K. K. (2010). Scoping studies: Advancing the methodology. Retrieved from http://www.cihr-irsc.ca
   Google Scholar
• Matscheck, D., & Piuva, K. (2022). In the centre or caught in the middle? – Social workers’ and healthcare professionals’ views on user involvement in coordinated individual plans in Sweden. Health & Social Care in the Community, 30(3), 1077–1085. https://doi.org/10.1111/hsc.13311
   PubMed Web of Science ®Google Scholar
• Matthias, M. S., & Salyers, M. P. (2012). Decision making in recovery-oriented mental health care. Psychiatric, 35(4), 305–314., http://www.psycontent.com/index/U464872008347MV1.pdf
   Google Scholar
• Ness, O., Borg, M., Davidson, L., & Davidson, L. (2014). Facilitators and barriers in dual recovery: A literature review of first-person perspectives. Advances in Dual Diagnosis, 7(3), 107–117. https://doi.org/10.1108/ADD-02-2014-0007
   Google Scholar
• Oxelmark, L., Ulin, K., Chaboyer, W., Bucknall, T., & Ringdal, M. (2018). Registerd Nurses´experiences of patient participation in hospital care: Supporting and hindering factors patient participation in care. Scandinavian Journal of Caring Sciences, 32(2), 612–621. https://doi.org/10.1111/scs.12486
   PubMed Web of Science ®Google Scholar
• Ozavci, G., Bucknall, T., Woodward-Kron, R., Hughes, C., Jorm, C., & Manias, E. (2022). Creating opportunities for patient participation in managing medications across transitions of care through formal and informal modes of communication. Health Expectations: An International Journal of Public Participation in Health Care and Health Policy, 25(4), 1807–1820. https://doi.org/10.1111/hex.13524
   PubMed Web of Science ®Google Scholar
• Pelletier, J. F., Davidson, L., Giguère, C. É., Franck, N., Bordet, J., & Rowe, M. (2020). Convergent and concurrent validity between clinical recovery and personal-civic recovery in mental health. Journal of Personalized Medicine, 10(4), 163. https://doi.org/10.3390/jpm10040163
   PubMed Web of Science ®Google Scholar
• Petersen, K., Borg, T., Hounsgaard, L., & Nielsen, C. V. (2012). Learning via participation – A user perspective on user involvement in mental health rehabilitation. Scandinavian Journal of Disability Research, 14(2), 97–112. https://doi.org/10.1080/15017419.2010.540927
   Google Scholar
• Sangill, C., Buus, N., Hybholt, L., & Berring, L. L. (2019). Service user’s actual involvement in mental health research practices: A scoping review. International Journal of Mental Health Nursing, 28(4), 798–815. https://doi.org/10.1111/inm.12594
   PubMed Web of Science ®Google Scholar
• Sather, E. W., Iversen, V. C., Svindseth, M. F., Crawford, P., & Vasset, F. (2019). Patients’ perspectives on care pathways and informed shared decision making in the transition between psychiatric hospitalization and the community. Journal of Evaluation in Clinical Practice, 25(6), 1131–1141. https://doi.org/10.1111/jep.13206
   PubMed Web of Science ®Google Scholar
• Selvin, M., Almqvist, K., Kjellin, L., & Schröder, A. (2021). Patient participation in forensic psychiatric care: Mental health professionals’ perspective. International Journal of Mental Health Nursing, 30(2), 461–468. https://doi.org/10.1111/inm.12806
   PubMed Web of Science ®Google Scholar
• Slade, M. (2009). Personal recovery and mental illness: A guide for mental health professionals. In Personal recovery and mental illness: A guide for mental health professionals. Cambridge University Press. https://doi.org/10.1017/CBO9780511581649
   Google Scholar
• Slade, M. (2012). Everyday solutions for everyday problems: How mental health systems can support recovery. Psychiatric Services (Washington, D.C.), 63(7), 702–704. https://doi.org/10.1176/appi.ps.201100521
   PubMed Web of Science ®Google Scholar
• Slade, M., Amering, M., & Oades, L. (2008). Recovery: An international perspective. Epidemiologia e Psichiatria Sociale, 17(2), 128–137. https://doi.org/10.1017/S1121189X00002827
   PubMed Web of Science ®Google Scholar
• Söderberg, A., Wallinius, M., Munthe, C., Rask, M., & Hörberg, U. (2022). Patients’ experiences of participation in high-security, forensic psychiatric care. Issues in Mental Health Nursing, 43(7), 683–692. https://doi.org/10.1080/01612840.2022.2033894
   PubMed Web of Science ®Google Scholar
• Solbjør, M., Rise, M. B., Westerlund, H., & Steinsbekk, A. (2013). Patient participation in mental healthcare: When is it difficult? A qualitative study of users and providers in a mental health hospital in Norway. International Journal of Social Psychiatry, 59(2), 107–113. https://doi.org/10.1177/0020764011423464
   PubMed Web of Science ®Google Scholar
• Souraya, S., Hanlon, C., & Asher, L. (2018). Involvement of people with schizophrenia in decision-making in rural Ethiopia: A qualitative study. Globalization and Health, 14(1), 85. https://doi.org/10.1186/s12992-018-0403-4
   PubMedGoogle Scholar
• Storm, M., & Edwards, A. (2013). Models of user involvement in the mental health context: Intentions and implementation challenges. The Psychiatric Quarterly, 84(3), 313–327. https://doi.org/10.1007/s11126-012-9247-x
   PubMed Web of Science ®Google Scholar
• Susanti, H., James, K., Utomo, B., Keliat, B. A., Lovell, K., Irmansyah, I., Rose, D., Colucci, E., & Brooks, H. (2020). Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: A qualitative exploration of the views of service users and carers. Health Expectations: An International Journal of Public Participation in Health Care and Health Policy, 23(2), 377–387. https://doi.org/10.1111/hex.13007
   PubMed Web of Science ®Google Scholar
• Sutton, A., Clowes, M., Preston, L., & Booth, A. (2019). Meeting the review family: Exploring review types and associated information retrieval requirements. Health Information and Libraries Journal, 36(3), 202–222. https://doi.org/10.1111/hir.12276
   PubMed Web of Science ®Google Scholar
• Viksveen, P., Bjønness, S. E., Cardenas, N. E., Game, J. R., Berg, S. H., Salamonsen, A., Storm, M., & Aase, K. (2022). User involvement in adolescents’ mental healthcare: A systematic review. European Child & Adolescent Psychiatry, 31(11), 1765–1788. https://doi.org/10.1007/s00787-021-01818-2
   PubMed Web of Science ®Google Scholar
• Waxell, A., & Wiklund, G. L. (2022). “Walking together towards freedom.” Patients’ lived experiences of participation in outpatient forensic care. Issues in Mental Health Nursing, 43(5), 455–462. https://doi.org/10.1080/01612840.2021.1998262
   PubMed Web of Science ®Google Scholar
• Wiklund, G. L. (2021). “Being mutually involved in recovery”. A hermeneutic exploration of nurses’ experiences of patient participation in psychiatric care. International Journal of Qualitative Studies on Health and Well-Being, 16(1). https://doi.org/10.1080/17482631.2021.2001893
   Web of Science ®Google Scholar