Caregiver Assessment of Support Need, Reaction to Care, and Assessment of Depression

REFERENCES

• Access Economics Pty. Limited . 2005 . The economic value of informal care , Deakin Act, Australia : Carers Australia .
   Google Scholar
• Andresen , E. , Malmgren , J. , Carter , W. and Patrick , D. 1994 . Screening for depression in well older adults: Evaluation of a short form of the CES-D (Center for Epidemiologic Studies Depression Scale) . American Journal of Preventative Medicine , 10 : 77 – 84 .
   PubMed Web of Science ®Google Scholar
• Arksey , H. and Glendinning , C. 2007 . Choice in the context of informal caregiving . Health and Social Care in the Community , 15 ( 2 ) : 165 – 175 .
   PubMed Web of Science ®Google Scholar
• Belgrave , M. and Brown , L. 1997 . Beyond a dollar value: Informal care and the Northern Region Case Management Study , Auckland, , New Zealand : North Health .
   Google Scholar
• Bittman , M. , Hill , T. and Thomson , C. 2007 . The impact of caring on informal carers' employment, income and earnings: A longitudinal approach . Australian Journal of Social Issues , 42 ( 2 ) : 255 – 272 .
   Web of Science ®Google Scholar
• Booth , M. , Miller , E. and Mor , V. 2008 . Experts' views on long-term care in New Zealand . New Zealand Medical Journal , 121 ( 1286 ) : 1 – 8 .
   Google Scholar
• Bray , A. , Moss , J. and Forrester , K. 2005 . Evaluation of the complex carers group project , Dunedin, , New Zealand : Donald Beasley Institute .
   Google Scholar
• Brunton , M. , Fouche , C. and Jordan , C. 2007 . “ When privilege turns to duty: Balancing work-life commitments as an unpaid caregiver ” . In Managing mayhem: Work-life balance issues in New Zealand , Edited by: Waring , M. and Fouche , C. 177 – 201 . Wellington, , New Zealand : Dunmore Publishing .
   Google Scholar
• Brunton , M. , Jordan , C. and Fouche , C. 2008 . Managing public health care policy: Who's being forgotten? . Science Direct Health Policy , 88 : 348 – 358 .
   Google Scholar
• Buckner, L., & Yeandle, S. (2005). We care—Do you? http://www.carersuk.org/Professionals/ResearchLibrary/Employmentandcaring/1207233933 (Accessed: 8 July 2009 ).
   Google Scholar
• Carers , UK. 2007 . Out of pocket: A survey of carers' lost earnings , London : Carers UK .
   Google Scholar
• Carpinter , A. and Irwin , C. 2000 . Just surviving. Talking with parents of children with very high disability support needs about how they get by , Wellington, , New Zealand : Health Funding Authority and Child Youth and Family Service .
   Google Scholar
• Collins , A. and Willson , G. 2008 . Maori and informal caregiving , Wellington, , New Zealand : National Health Committee .
   Google Scholar
• Creswell , J. W. 2003 . Research design qualitative, quantitative and mixed methods approaches , 2nd , London : Sage .
   Google Scholar
• Cummins , R. A. , Hughes , J. , Tomyn , A. , Gibson , A. , Woerner , J. and Lufanna , L. 2007 . The wellbeing of Australians—Carer health and wellbeing , Melbourne : Deakin University, Australian Centre on Quality of Life .
   Google Scholar
• Davey , J. and Keeling , S. 2004 . Combining work and eldercare: A study of employees in two city councils who provide informal care for older people , Wellington, , New Zealand : Department of Labour .
   Google Scholar
• Department of Labour. (2008). The Employment Relations (Flexible Working Arrangements) Amendment Act 2007. http://www.dol.govt.nz/worklife/flexible/act.asp (Accessed: 3 March 2009 ).
   Google Scholar
• Dulmus , C. N. and Rapp-Paglicci , L. , eds. 2005 . Handbook of preventative interventions for adults , Hoboken, NJ : John Wiley .
   Google Scholar
• Dunstan , K. and Thomson , N. 2006 . “ Demographic trends ” . In Implications of population ageing: Opportunities and risks , Edited by: Boston , J. and Davey , J. A. 9 – 49 . Wellington, , New Zealand : Victoria University, Institute of Policy Studies .
   Google Scholar
• Eurostat. (2008). Europe in figures: Eurostat statistical yearbook 2008. http://epp.eurostat.ec.europa.eu/cache/ITY_OFFPUB/ KS-SF-08-072/EN/KS-SF-08-072-EN.PDF (Accessed: 19 December 2008 ).
   Google Scholar
• Evandrou , M. and Glaser , K. 2003 . Combining work and family life: The pension penalty of caring . Ageing and Society , 23 ( 5 ) : 583 – 602 .
   Web of Science ®Google Scholar
• Ezzy , D. 2002 . Qualitative analysis: Practice and innovation , St Leonards, NSW, , Australia : Allen and Unwin .
   Google Scholar
• Given , C. , Given , B. , Stommel , M. , Collins , C. , King , S. and Franklin , S. 1992 . The caregiver reaction assessment for caregivers to persons with chronic physical and mental impairments . Research in Nursing and Health , 15 ( 4 ) : 271 – 283 .
   PubMed Web of Science ®Google Scholar
• Green , S. and Salkind , N. 2004 . Using SPSS for Windows and Macintosh: Analyzing and understanding data , 4th , London : Pearson/Prentice Hall .
   Google Scholar
• Heitmueller , A. and Inglis , K. Carefree? Participation and pay differentials for informal carers in Britain . IZA Discussion Paper No. 1273 . 2004 . Bonn, Germany: IZA
   Google Scholar
• Henz , U. 2004 . The effects of informal care on paid-work participation in Great Britain: A life course perspective . Ageing and Society , 24 : 851 – 880 .
   Web of Science ®Google Scholar
• Hirst , M. 2005 . Carer distress: A prospective, population-based study . Social Science and Medicine , 61 : 697 – 708 .
   PubMed Web of Science ®Google Scholar
• Irving , T. 2005 . Rain, hail or shine: Exploring change, loss and grief in a carer's world , Wellington, , New Zealand : Skylight .
   Google Scholar
• Jorgensen , D. , Parsons , M. , Gundersen-Reid , M. , Weidenbohm , K. , Parsons , J. and Jacobs , S. 2009 . The providers' profile of the disability support workforce in New Zealand . Health and Social Care in the Community , 17 ( 4 ) : 396 – 405 .
   PubMed Web of Science ®Google Scholar
• Koopman-Boyden , P. G. and Wells , L. F. 1979 . The problem arising from supporting the elderly at home . New Zealand Medical Journal , 89 ( 633 ) : 265 – 268 .
   PubMedGoogle Scholar
• Marsh , N. , Kersel , D. , Havill , J. and Sleigh , J. 1998 . Caregiver burden at 6 months following severe traumatic brain injury . Brain Injury , 12 ( 3 ) : 225 – 238 .
   PubMed Web of Science ®Google Scholar
• Mestheneos, E., & Triantafillou, J. (2005). Supporting family carers of older people in Europe—The Pan-European background report http://www.uke.de/extern/eurofamcare/documents/nabares/peubare_a4.pdf (Accessed: 11 January 2010 ).
   Google Scholar
• Ministry of Social Development . 2008 . Carers' strategy and five-year action plan 2008 , Wellington, , New Zealand : Author .
   Google Scholar
• Nijboer , C. , Triemstra , M. , Tempelaar , R. , Sanderman , R. and van den Bos , G. 1999 . Measuring both negative and positive reactions to giving care to cancer patients: Psychometric qualities of the Caregiver Reaction Assessment . Social Science and Medicine , 48 : 1259 – 1269 .
   PubMed Web of Science ®Google Scholar
• Nikora , L. and Karapu , R. 2004 . Disabled Maori and disability support options , Hamilton, , New Zealand : Ministry of Health .
   Google Scholar
• Patton , M. Q. 2002 . Qualitative research and evaluation methods , 3rd , Thousand Oaks, CA : Sage Publications .
   Google Scholar
• Porter , E. , Ganong , L. , Drew , N. and Lanes , T. 2004 . A new typology of home-care helpers . The Gerontologist , 44 ( 6 ) : 750 – 759 .
   PubMed Web of Science ®Google Scholar
• Power , A. 2008 . ‘It's the system working for the system’: Carers' experiences of learning disability services in Ireland . Health and Social Care in the Community , 17 ( 1 ) : 92 – 98 .
   PubMed Web of Science ®Google Scholar
• Radloff , L. 1977 . The CES-D scale: A self-report depression scale for research in the general population . Applied Psychological Measurement , 1 : 385 – 401 .
   Web of Science ®Google Scholar
• Rajnovich, B., Keefe, J., & Fast, J. (2005). Supporting caregivers of dependent adults in the 21st century http://www.cewh-cesf.ca/PDF/acewh/SupportingCaregivers.pdf (Accessed: 10 January 2010 ).
   Google Scholar
• Renwick , T. 2008 . Analysis of carers census data , Auckland, , New Zealand : Carers NZ .
   Google Scholar
• Rich , M. and Patashnick , J. 2002 . Narrative research with audiovisual data: Video Intervention/Prevention Assessment (VIA) and NVivo . International Journal of Social Research Methodology: Theory & Practice , 5 ( 3 ) : 245 – 261 .
   Google Scholar
• Stanford Patient Education Research Center. (n.d.) Center for Epidemiologic Studies Short Depression Scale (CES-D 10) http://patienteducation.stanford.edu/research/cesd10.pdf (Accessed: 11 January 2010 ).
   Google Scholar
• Tashakkori , A. and Teddlie , C. 2003 . Handbook of mixed methods in social and behavioural research , London : Sage Publishers .
   Google Scholar
• Thomas , D. R. 2006 . A general inductive approach for analyzing qualitative evaluation data . American Journal of Evaluation , 27 ( 2 ) : 237 – 246 .
   Web of Science ®Google Scholar
• Wolff , J. and Kasper , J. 2006 . Caregivers of frail elders: Updating a National Profile . The Gerontologist , 446 ( 3 ) : 344 – 356 .
   Google Scholar
• Work and Income New Zealand. (2009). Domestic purposes benefit—Care of sick or infirm http://www.winz.govt.nz/individuals/a-z-benefits/domestic-purposes-benefit-care-of-sick-or-infirm.html (Accessed: 12 January 2010 ).
   Google Scholar
• Yedidia , M. and Tiedemann , A. 2008 . How do family caregivers describe their needs for professional help? . American Journal of Nursing , 108 ( Suppl. 9 ) : 35 – 37 .
   PubMed Web of Science ®Google Scholar
• Yee , J. and Schulz , R. 2000 . Gender differences in psychiatric morbidity among family caregivers: A review and analysis . The Gerontologist , 40 ( 2 ) : 147 – 164 .
   PubMed Web of Science ®Google Scholar