Problems experienced by informal caregivers with older care recipients with and without cognitive impairment

References

• Allen, S. M., Lima, J. C., Goldscheider, F. K., & Roy, J. (2012). Primary caregiver characteristics and transitions in community-based care. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 67(3), 362–371. doi:10.1093/geronb/gbs032
   PubMed Web of Science ®Google Scholar
• Almberg, B., Grafström, M., & Winblad, B. (1997). Caring for a demented elderly person–Burden and burnout among caregiving relatives. Journal of Advanced Nursing, 25(1), 109–116. doi:10.1046/j.1365-2648.1997.1997025109.x
   PubMed Web of Science ®Google Scholar
• Bass, D. M., Judge, K. S., Snow, A. L., Wilson, N. L., Looman, W. J., McCarthy, C., … Kunik, M. E. (2012). Negative caregiving effects among caregivers of veterans with dementia. The American Journal of Geriatric Psychiatry, 20, 239–247. doi:10.1097/JGP.0b013e31824108ca
   PubMed Web of Science ®Google Scholar
• Carretero, S., Garcés, J., Ródenas, F., & Sanjosé, V. (2009). The informal caregiver’s burden of dependent people: Theory and empirical review. Archives of Gerontology and Geriatrics, 49(1), 74–79. doi:10.1016/j.archger.2008.05.004
   PubMed Web of Science ®Google Scholar
• Collins, C., & Jones, R. (1997). Emotional distress and morbidity in dementia carers: A matched comparison of husbands and wives. International Journal of Geriatric Psychiatry, 12(12), 1168–1173. doi:10.1002/(ISSN)1099-1166
   PubMed Web of Science ®Google Scholar
• Corbin, J., & Strauss, A. (1990). Grounded theory research: Procedures, canons and evaluative criteria. Zeitschrift Für Soziologie, 19(6), 418–427.
   Web of Science ®Google Scholar
• Donaldson, C., Tarrier, N., & Burns, A. (1998). Determinants of carer stress in Alzheimer’s disease. International Journal of Geriatric Psychiatry, 13(4), 248–256. doi:10.1002/(ISSN)1099-1166
   PubMed Web of Science ®Google Scholar
• Edwards, N. E., & Scheetz, P. S. (2002). Predictors of burden for caregivers of patients with Parkinsonʼs disease. Journal of Neuroscience Nursing, 34(4), 184–190. doi:10.1097/01376517-200208000-00003
   PubMedGoogle Scholar
• Ekwall, A. K., & Hallberg, I. R. (2007). The association between caregiving satisfaction, difficulties and coping among older family caregivers. Journal of Clinical Nursing, 16(5), 832–844. doi:10.1111/jcn.2007.16.issue-5
   PubMed Web of Science ®Google Scholar
• Feinberg, L. F., & Whitlatch, J. (2002). Decision-making for persons with cognitive impairment and their family caregivers. American Journal of Alzheimers Disease and Other Dementias, 17(4), 237–244. doi:10.1177/153331750201700406
   PubMedGoogle Scholar
• Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12(3), 189–198. doi:10.1016/0022-3956(75)90026-6
   PubMed Web of Science ®Google Scholar
• Fowler, C., Fisher, C. L., & Pitts, M. J. (2014). Older adults’ evaluations of middle-aged children’s attempts to initiate discussion of care needs. Health Communication, 29(7), 717–727. doi:10.1080/10410236.2013.786278
   PubMed Web of Science ®Google Scholar
• Garcés, J., Carretero, S., Ródenas, F., & Alemán, C. (2010). A review of programs to alleviate the burden of informal caregivers of dependent persons. Archives of Gerontology and Geriatrics, 50(3), 254–259. doi:10.1016/j.archger.2009.04.012
   PubMed Web of Science ®Google Scholar
• Gonyea, J. G., Paris, R., & De Saxe Zerden, L. (2008). Adult daughters and aging mothers: The role of guilt in the experience of caregiver burden. Aging and Mental Health, 12(5), 559–567. doi:10.1080/13607860802343027
   PubMed Web of Science ®Google Scholar
• Harris, P. B. (2013). Dementia and friendship: The quality and nature of the relationships that remain. The International Journal of Aging and Human Development, 76(2), 141–164. doi:10.2190/AG.76.2.c
   PubMed Web of Science ®Google Scholar
• Hope, K., & Pope, J. (2014). Tea and sympathy. Nursing Standard, 29(14), 26–27. doi:10.7748/ns.29.14.26.s27
   Google Scholar
• Hughes, C. P., Berg, L., Danziger, W. L., Coben, L. A., & Martin, R. L. (1982). A new clinical scale for the staging of dementia. The British Journal of Psychiatry, 140, 566–572. doi:10.1192/bjp.140.6.566
   PubMed Web of Science ®Google Scholar
• Looman, W. M., Fabbricotti, I. N., & Huijsman, R. (2014). The short-term effects of an integrated care model for the frail elderly on health, quality of life, health care use and satisfaction with care. International Journal of Integrated Care, 5(14), e034.
   Google Scholar
• Luchetti, L., Uhunmwangho, E., Dordoni, G., Lorido, A., Barbieri, S., Bolognesi, A. G. … Franchi, F. (2009). The subjective feeling of burden in caregivers of elderly with dementia: How to intervene? Archives of Gerontology and Geriatrics, 49(Suppl. 1), 153–161. doi:10.1016/j.archger.2009.09.025
   PubMed Web of Science ®Google Scholar
• Lyons, K. S., Zarit, S. H., Sayer, A. G., & Whitlatch, C. J. (2002). Caregiving as a dyadic process: Perspectives from caregiver and receiver. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 57(3), 195–204. doi:10.1093/geronb/57.3.P195
   Web of Science ®Google Scholar
• Madsen, R., & Birkelund, R. (2013). ‘The path through the unknown’: The experience of being a relative of a dementia-suffering spouse or parent. Journal of Clinical Nursing, 22(21–22), 3024–3031. doi:10.1111/jocn.12131
   PubMed Web of Science ®Google Scholar
• Nordtug, B., & Holen, A. (2011). Similarities and differences in caring burden of home dwellers with partners suffering from chronic obstructive pulmonary disease or dementia. Home Health Care Management & Practice, 23(2), 93–101. doi:10.1177/1084822310368633
   Google Scholar
• Oudijk, D., De Boer, A., Woittiez, I., Timmermans, J., & De Klerk, M. (2010). Mantelzorg uit de doeken [An exploration on informal care]. The Hague, The Netherlands: The Netherlands Institute for Social Research.
   Google Scholar
• Roach, L., Laidlaw, K., Gillanders, D., & Quinn, K. (2013). Validation of the Caregiver Guilt Questionnaire (CGQ) in a sample of British dementia caregivers. International Psychogeriatrics, 25(12), 2001–2010. doi:10.1017/S1041610213001506
   PubMed Web of Science ®Google Scholar
• Ryan, B. (2014). I hope the memory café initiative takes off in hospitals across the UK. Nursing Standard, 29(15), 34. doi:10.7748/ns.29.5.34.s44
   Google Scholar
• Sequeira, C. (2013). Difficulties, coping strategies, satisfaction and burden in informal Portuguese caregivers. Journal of Clinical Nursing, 22(3–4), 491–500. doi:10.1111/jocn.2013.22.issue-3pt4
   PubMed Web of Science ®Google Scholar
• Springate, B. A., & Tremont, G. (2014). Dimensions of caregiver burden in dementia: Impact of demographic, mood, and care recipient variables. American Journal of Geriatric Psychiatry, 22, 294–300.
   PubMed Web of Science ®Google Scholar
• Taylor, P., Parker, K., Patten, E., & Motel, S. (2013). The sandwich generation. Rising financial burdens for middle-aged Americans. Washington, DC: Pew Research Center, Social and Demographic Trends.
   Google Scholar
• Teresi, J. A., & Holmes, D. (1997). Reporting source bias in estimating prevalence of cognitive impairment. Journal of Clinical Epidemiology, 50(2), 175–184. doi:10.1016/S0895-4356(96)00332-0
   PubMed Web of Science ®Google Scholar
• Van Houwelingen, A. H., Den Elzen, W. P., le Cessie, S., Blom, J. W., & Gussekloo, J. (2015). Consequences of interaction of functional, somatic, mental and social problems in community-dwelling older people. PLoS One, 10(4), e0121013. doi:10.1371/journal.pone.0121013
   PubMed Web of Science ®Google Scholar
• Walker, M. U. (2007). Moral understandings. A feminist study in ethics (2nd ed.). Oxford, UK: Oxford University Press.
   Google Scholar
• Wenzel, K. A., & Poynter, D. (2014). ‘I’m mother! I can take care of myself!’ A contrapuntal analysis of older parents’ relational talk with their adult children. Southern Communication Journal, 79, 147–170. doi:10.1080/1041794X.2014.881540
   Google Scholar