Homecare patients’ quality of life and the burden of family caregivers: a descriptive cross-sectional study

References

• Al-Surimi, K., Al-Harbi, I., El-Metwally, A., & Badri, M. (2019). Quality of life among home healthcare patients in Saudi Arabia: Household-based survey. Health and Quality of Life Outcomes, 17(1). doi:10.1186/S12955-019-1095-Z
   PubMed Web of Science ®Google Scholar
• Artantaş, B., Aylin, & Tamara. (2019). Evaluation of services provided by home health care unit in a training and research hospital: 2018 statistics. Ankara Medical Journal, 19(1), 170–177. doi:10.17098/AMJ.542307
   Google Scholar
• Backx, A. P. M., Spooren, A. I. F., Bongers-Janssen, H. M. H., & Bouwsema, H. (2018). Quality of life, burden and satisfaction with care in caregivers of patients with a spinal cord injury during and after rehabilitation. Spinal Cord, 56(9), 890–899. doi:10.1038/s41393-018-0098-7.
   Google Scholar
• Caro, C. C., Costa, J. D., & Da Cruz, D. M. C. (2018). Burden and quality of life of family caregivers of stroke patients. Occupational Therapy in Health Care, 32(2), 154–171. doi:10.1080/07380577.2018.1449046
   PubMed Web of Science ®Google Scholar
• Cengiz, Z., Turan, M., Olmaz, D., & Erce, Ç. (2021). Care burden and quality of life in family caregivers of palliative care patients. Journal of Social Work in End-Of-Life & Palliative Care, 17(1), 50–63. doi:10.1080/15524256.2021.1888844
   PubMed Web of Science ®Google Scholar
• Cohen, J. (2013). Statistical power analysis for the behavioral sciences. In Statistical power analysis for the behavioral sciences. Routledge. doi:10.4324/9780203771587.
   Google Scholar
• Dağdeviren, S. T., Demir, N., Didem, A., Dağdeviren, M., & Tekin, O. (2020). Assessment of maintenance burden in the caregivers of the patients receiving home health care services. Turkish Journal of Family Medicine and Primary Care, 14(2), 186–195. doi:10.21763/TJFMPC.730172
   Google Scholar
• Elbi, H., & Eser, E. (1999). Whoqol-100 and psychometric characteristics of WHOQOL-bref. 3P Dergisi, 7(2), 23–40.
   Google Scholar
• Erkan, H., & Altuntaş, M. (2019). Evaluation of care burden for the patients receiving home health care. Ankara Medical Journal, 19(3), 591–601. doi:10.17098/AMJ.624528
   Google Scholar
• García, L. M. R., & Ramírez Navarrro, J. M. (2018). The impact of quality of life on the health of older people from a multidimensional perspective. Journal of Aging Research, 2018. doi:10.1155/2018/4086294
   Google Scholar
• Geng, D., Ou, R. W., Miao, X. H., Zhao, L. H., Wei, Q. Q., Chen, X. P. … Yang, R. (2017). Patients’ self-perceived burden, caregivers’ burden and quality of life for amyotrophic lateral sclerosis patients: A cross-sectional study. Journal of Clinical Nursing, 26(19–20), 3188–3199. doi:10.1111/JOCN.13667
   PubMed Web of Science ®Google Scholar
• Ghasemi, M., Arab, M., & Shahrbabaki, P. M. (2020). Relationship between caregiver burden and family functioning in family caregivers of older adults with heart failure. Journal of Gerontological Nursing, 46(6), 25–33. doi:10.3928/00989134-20200511-04
   PubMed Web of Science ®Google Scholar
• Guerriere, D., Husain, A., Zagorski Msc, B., Md, D. M., Seow Phd, H., Brazil, K. … Student, B. (2016). Predictors of caregiver burden across the home-based palliative care trajectory in O ntario, C anada. Wiley Online Library, 24(4), 428–438. doi:10.1111/hsc.12219
   Web of Science ®Google Scholar
• Hekmatpou, D., Baghban, E. M., & Dehkordi, L. M. (2019). The effect of patient care education on burden of care and the quality of life of caregivers of stroke patients. Journal of Multidisciplinary Healthcare, 12, 211. doi:10.2147/JMDH.S196903
   PubMed Web of Science ®Google Scholar
• Hsieh, C. T., Yamazaki, H., Wang, J., Kamitani, T., Yamamoto, Y., & Fukuhara, S. (2021). Quality of life and disability-free survival in the elderly: The locomotive syndrome and health outcome in aizu cohort study. Journal of Aging and Health, 33(3–4), 197–204. doi:10.1177/0898264320970323
   PubMed Web of Science ®Google Scholar
• İ̇nci, F. H., & Erdem, M. (2008). Validity and reliability of the burden interview and its adaptation to Turkish. Journal of Anatolia Nursing and Health Sciences, 11(4), 85–95.
   Google Scholar
• Johnson, S., & Bacsu, J. (2018). Understanding complex care for older adults within Canadian home care: A systematic literature review. Home Health Care Services Quarterly, 37(3), 232–246. doi:10.1080/01621424.2018.1456996
   PubMed Web of Science ®Google Scholar
• Kavga, A., Kalemikerakis, I., Faros, A., Milaka, M., Tsekoura, D., Skoulatou, M. … Govina, O. (2021). The effects of patients’ and caregivers’ characteristics on the burden of families caring for stroke survivors. International Journal of Environmental Research and Public Health, 18(14), 7298. doi:10.3390/IJERPH18147298
   PubMed Web of Science ®Google Scholar
• Lodhi, F. S., Montazeri, A., Nedjat, S., Mahmoodi, M., Farooq, U., Yaseri, M. … Holakouie-Naieni, K. (2019). Assessing the quality of life among Pakistani general population and their associated factors by using the World Health Organization’s quality of life instrument (WHOQOL-BREF): A population based cross-sectional study. Health and Quality of Life Outcomes, 17(1). doi:10.1186/S12955-018-1065-X
   PubMed Web of Science ®Google Scholar
• Maresova, P., Javanmardi, E., Barakovic, S., Barakovic Husic, J., Tomsone, S., Krejcar, O., & Kuca, K. (2019). Consequences of chronic diseases and other limitations associated with old age - a scoping review. BMC Public Health, 19(1), 1–17. doi:10.1186/s12889-019-7762-5
   PubMed Web of Science ®Google Scholar
• McMaughan, D. J., Ozmetin, J. P., Welch, M. L., Mulcahy, A., Imanpour, S., Beverly, J. G., & Naiser, E. (2021). Framing the front door: Co-creating a home health care assessment of service need for children with disabilities. Home Health Care Services Quarterly, 40(3), 231–246. doi:10.1080/01621424.2021.1952132
   PubMed Web of Science ®Google Scholar
• Önder, T., Anuk, T., Kahramanca, Ş., & Yıldırım, A. C. (2015). Evaluating sociodemographic and medical conditions of patients under home care service. Dicle Medical Journal, 42(3), 342–345. doi:10.5798/DICLEMEDJ.0921.2015.03.0586
   Google Scholar
• Perpiñá-Galvañ, J., Orts-Beneito, N., Fernández-Alcántara, M., García-Sanjuán, S., García-Caro, M. P., & Cabañero-Martínez, M. J. (2019). Level of burden and health-related quality of life in caregivers of palliative care patients. International Journal of Environmental Research and Public Health, 16(23), 4806. doi:10.3390/IJERPH16234806
   PubMed Web of Science ®Google Scholar
• Rencber, E., & Terzi, O. (2021). Quality of life of older people receiving home health care services: An example from Turkey. Home Health Care Management & Practice, 33(1), 3–7. doi:10.1177/1084822320959319
   Web of Science ®Google Scholar
• Saqlain, M., Riaz, A., Ahmed, A., Kamran, S., Bilal, A., & Ali, H. (2021). Predictors of health-related quality-of-life status among elderly patients with cardiovascular diseases. Value in Health Regional Issues, 24, 130–140. doi:10.1016/J.VHRI.2020.11.003
   PubMedGoogle Scholar
• Sarkar, S. M., Dhar, B. K., Crowley, S. S., Ayittey, F. K., & Gazi, M. A. I. (2021). Psychological adjustment and guidance for ageing urban women. Ageing International, 2021, 1–9. doi:10.1007/S12126-021-09467-1
   Web of Science ®Google Scholar
• Senior, H., Grant, M., Rhee, J. J., Aubin, M., McVey, P., Johnson, C. … Mitchell, G. (2019). General practice physicians’ and nurses’ self-reported multidisciplinary end-of-life care: A systematic review. BMJ Supportive & Palliative Care. doi:10.1136/BMJSPCARE-2019-001852
   PubMed Web of Science ®Google Scholar
• Tayaz, E., & Koç, A. (2018). Assessment of relationship between perceived care burden and quality of life in disabled persons caregivers. Medical Journal of Bakirkoy, 14, 44–52. doi:10.5350/BTDMJB.20160726012929
   Web of Science ®Google Scholar
• Tsai, Y. H., Lou, M. F., Feng, T. H., Chu, T. L., Chen, Y. J., & Liu, H. E. (2018). Mediating effects of burden on quality of life for caregivers of first-time stroke patients discharged from the hospital within one year. BMC Neurology, 18(1), 1–9. doi:10.1186/s12883-018-1057-9
   PubMed Web of Science ®Google Scholar
• Ugur, H. G., & Erci, B. (2019). The effect of home care for stroke patients and education of caregivers on the caregiver burden and quality of life. Acta Clinica Croatica, 58(2), 321. doi:10.20471/ACC.2019.58.02.16
   PubMed Web of Science ®Google Scholar
• Vargas-Escobar, L. M., Reina-Gamba, N. C., Medellín-Olaya, J., & Consuegra-Pareja, C. A. (2021). Palliative home care: Health-related quality of life. BMJ Supportive & Palliative Care. bmjspcare-2021-003198. doi:10.1136/BMJSPCARE-2021-003198.
   PubMed Web of Science ®Google Scholar
• Wang, J., Wang, J., Cao, Y., Jia, S., & Wu, B. (2018). Perceived empowerment, social support, and quality of life among Chinese older residents in long-term care facilities. Journal of Aging and Health, 30(10), 1595–1619. doi:10.1177/0898264318795724
   PubMed Web of Science ®Google Scholar
• Wilkins, V. M., Sirey, J. A., & Bruce, M. L. (2020). Caregiver reward and burden: Differing constructs in family members providing care for medically ill homebound older adults. Journal of Aging and Health, 32(5–6), 361–370. doi:10.1177/0898264319825760
   PubMed Web of Science ®Google Scholar