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Articles

A Profile of Support Group Use and Need Among Middle-Aged and Older Adults with Multiple Sclerosis

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Pages 475-493 | Received 31 May 2010, Accepted 21 Mar 2011, Published online: 29 Jun 2011

REFERENCES

  • Agresti , A. 2002 . Categorical data analysis , 2nd , New York, NY : Wiley .
  • Andersen , R. and Newman , J. F. 1973 . Societal and individual determinants of medical care utilization in the United States . Milbank Memorial Fund Quarterly—Health and Society , 51 : 95 – 124 .
  • Bradshaw , J. 1994 . “ The conceptualization and measurement of need ” . In Researching the people's health , 1st , Edited by: Popay , J. and Williams , G. 45 – 57 . London, England and New York, NY : Routledge .
  • Buchanan , R. J. , Schiffer , R. , Wang , S. , Stuifbergen , A. , Chakravorty , B. , Zhu , L. … and James , W. 2006 . Satisfaction with mental health care among people with multiple sclerosis in urban and rural areas . Psychiatric Services , 57 : 1206 – 1209 .
  • Buchanan , R. J. , Wang , S. , Stuifbergen , A. , Chakravorty , B. J. , Zhu , L. and Kim , M. 2006 . Urban/rural differences in the use of physician services by people with multiple sclerosis . Neurorehabilitation , 21 : 177 – 187 .
  • Buchanan , R. J. , Zhu , L. and James , W. 2007 . Urban/rural differences in health insurance coverage among people with multiple sclerosis . Disability and Rehabilitation , 29 : 1890 – 1898 .
  • Chipperfield , J. G. , Havens , B. and Doig , W. 1997 . Method and description of the aging in Manitoba Project: A 20-year longitudinal study . Canadian Journal of Aging , 16 : 606 – 625 .
  • Clark , K. J. and Leipert , B. D. 2007 . Strengthening and sustaining social supports for rural elders . Online Journal of Rural Nursing & Health Care , 7 : 13 – 26 .
  • Confavreux , C. and Vukusic , S. 2006 . Age at disability milestones in multiple sclerosis . Brain , 129 : 3 – 605 .
  • Davison , K. , Pennebaker , J. and Dickerson , S. 2000 . Who talks? The social psychology of illness support groups . American Psychologist , 55 : 205 – 217 .
  • Denson , C. R. 2000 . Public sector transportation for people with disabilities: A satisfaction survey . Journal of Rehabilitation , 66 : 29 – 37 .
  • Fillenbaum , G. G. 1988 . Multidimensional functional assessment of older adults: The Duke Older Americans Resources and Services procedures , Hillsdale, NJ : Lawrence Erlbaum Associates .
  • Finlayson , M. 2006 . “ Assessing need for services ” . In Scholarship in occupational therapy: Methods of inquiry for enhancing practice , Edited by: Kielhofner , G. 591 – 606 . Philadelphia, PA : FA Davis .
  • Finlayson , M. , Van Denend , T. and Shevil , E. 2003 . Multiple perspectives of the health service need, use and variability among older adults with multiple sclerosis . Occupational Therapy in Health Care , 17 : 5 – 25 .
  • Finlayson , M. and Wiebe , J. 1998 . Social action and IFS survey report: Manitoba Division , Toronto : Multiple Sclerosis Society of Canada .
  • Gerrard , N. , Kulig , J. and Nowatzki , N. 2004 . What doesn't kill you makes you stronger: determinants of stress resiliency in rural people of Saskatchewan, Canada . Journal of Rural Health , 20 : 59 – 66 .
  • Gottlieb , B. 2000 . Self-help, mutual aid, and support groups among older adults . Canadian Journal on Aging , 19 : 58 – 74 .
  • Gulick , E. E. 2001 . Emotional distress and activities of daily living functioning in persons with multiple sclerosis . Nursing Research , 50 : 147 – 154 .
  • Kersten , P. , McLellan , D. L. , Gross-Paju , K. , Grigoriadis , N. , Bencivenga , R. , Beneton , C. … and Thompson , A. J. 2000 . A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: Results from a pilot survey in five European countries . Clinical Rehabilitation , 14 : 42 – 49 .
  • Kessler , K. D. M. and Zhao , S. 1997 . Patterns and correlates of self-help group membership in the United States . Social Policy , 27 : 27 – 37 .
  • Khan , F. and Pallant , J. F. 2007 . Use of International Classification of Functioning, Disability and Health (ICF) to describe patient-reported disability in multiple sclerosis and identification of relevant environmental factors . Journal of Rehabilitation Medicine , 39 : 63 – 70 .
  • Kroencke , D. C. and Denney , D. R. 1999 . Stress and coping in multiple sclerosis: Exacerbation, remission and chronic subgroups . Multiple Sclerosis , 5 : 89 – 93 .
  • Manthorpe , J. , Cornes , M. , Rapaport , J. , Moriarty , J. , Bright , L. , Clough , R. and Iliffe , S. 2006 . Commissioning community well-being: Focus on older people and transport . Journal of Integrated Care , 14 : 28 – 37 .
  • Nortvedt , M. W. , Riise , T. , Myhr , K. M. and Nyland , H. I. 2000 . Performance of the SF-36, SF-12, and RAND-36 summary scales in a multiple sclerosis population . Medical Care , 38 : 1022 – 1028 .
  • Paltamaa , J. , Sarasoja , T. , Leskinen , E. , Wikstrom , J. and Malkia , E. 2008 . Measuring deterioration in International Classification of Functioning domains of people with multiple sclerosis who are ambulatory . Physical Therapy , 88 : 176 – 190 .
  • Paluck , E. C. , Allerdings , M. , Kealy , K. and Dorgan , H. 2006 . Health promotion needs of women living in rural areas: an exploratory study . Canadian Journal of Rural Medicine , 11 : 111 – 116 .
  • Peters , T. , Somerset , M. , Campbell , R. and Sharp , D. 2003 . Variables associated with attendance at, and the perceived helpfulness of, meetings for people with multiple sclerosis . Health and Social Care in the Community , 11 : 19 – 26 .
  • Rimmer , J. H. , Wang , E. and Smith , D. 2008 . Barriers associated with exercise and community access for individuals with stroke . Journal of Rehabilitation Research & Development , 45 : 315 – 322 .
  • Schriner , K. F. and Fawcett , S. B. 1988 . Development and validation of the community concerns report method . Journal of Community Psychology , 16 : 306 – 316 .
  • Stang , I. and Mittelmark , M. B. 2010 . Intervention to enhance empowerment in breast cancer self-help groups . Nursing Inquiry , 17 : 46 – 56 .
  • Stevens , M. J. and Duttlinger , J. 1998 . Correlates of participation in a breast cancer support group . Journal of Psychosomatic Research , 48 : 263 – 275 .
  • Uccelli , M. M. , Mohr , L. M. , Battalia , M. A. , Zagami , P. and Mohr , D. C. 2004 . Peer support groups in multiple sclerosis: Current effectiveness and future directions . Multiple Sclerosis , 10 : 80 – 84 .
  • VandenBos , G. R. 2007 . APA dictionary of psychology , Washington, DC : American Psychological Association .
  • Walch , S. E. , Roetzer , M. L. and Minnett , T. A. 2006 . Support group participation among persons with HIV: Demographic characteristics and perceived barriers . IDAS Care , 18 : 284 – 289 .
  • Wiebe , J. , Finlayson , M. and Payne , L. 1998 . Social action and IFS survey results: Atlantic division , Toronto : Multiple Sclerosis Society of Canada .

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