References
- Bleijlevens, M. H., Stolt, M., Stephan, A., Zabalegui, A., Saks, K., Sutcliffe, C., & Consortium, R. (2015). Changes in caregiver burden and health‐related quality of life of informal caregivers of older people with dementia: Evidence from the European RightTimePlaceCare prospective cohort study. Journal of Advanced Nursing, 71(6), 1378–1391. https://doi.org/10.1111/jan.12561
- Bowlby, J. (1998). Loss – sadness and depression. attachment and loss (Vol. 3). Pimlico.
- Bramble, M., Moyle, W., & McAllister, M. (2009). Seeking connection: Family care experiences following long‐term dementia care placement. Journal of Clinical Nursing, 18(22), 3118–3125. https://doi.org/10.1111/j.1365-2702.2009.02878.x
- Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
- Brown, J. (2012). The most difficult decision: Dementia and the move into residential care. Alzheimer’s Australia. https://www.dementia.org.au/sites/default/files/20121016-NSW-PUB-Moving_To_Res_Care.pdf
- Calasanti, T., & King, N. (2007). Taking “women’s work” “like a man”: Husbands’ experiences of care work. The Gerontologist, 47(4), 516–517. https://doi.org/10.1093/geront/47.4.516
- Carers Australia. (2015). The economic value of informal care in Australia in 2015. Deloitte. https://www2.deloitte.com/au/en/pages/economics/articles/economic-value-informal-care-Australia-2015.html
- Corey, K. L., & McCurry, M. K. (2018). When caregiving ends: The experiences of former family caregivers of people with dementia. The Gerontologist, 58(2), 87–96. https://doi.org/10.1093/geront/gnw205
- Crawford, K., Digby, R., Bloomer, M., Tan, H., & Williams, A. (2015). Transitioning from caregiver to visitor in a long-term care facility: The experience of caregivers of people with dementia. Aging & Mental Health, 19(8), 739–746. https://doi.org/10.1080/13607863.2014.962008
- Davis, J. D., Tremont, G., Bishop, D. S., & Fortinsky, R. H. (2011). A telephone-delivered psychosocial intervention improves dementia caregiver adjustment following nursing home placement. International Journal of Geriatric Psychiatry, 26(4), 380–387. https://doi.org/10.1002/gps.2537
- Deloitte. (2020). The value of informal care in 2020. https://apo.org.au/sites/default/files/resource-files/2020-07/apo-nid307225.pdf
- Ducharme, F., Levesque, L., Lachance, L., Gangbe, M., Zarit, S. H., Vézina, J., & Caron, C. D. (2007). Older husbands as caregivers: Factors associated with health and the intention to end home caregiving. Research on Aging, 29(1), 3–31. https://doi.org/10.1177/0164027506291749
- El-Masri, M. M. (2013). Recall bias. The Canadian Nurse, 109(9), 14. https://scholar.uwindsor.ca/nursingpub/117
- Eriksson, H., & Sandberg, J. (2008). Transitions in men’s caring identities: Experiences from home-based care to nursing home placement. International Journal of Older People Nursing, 3(2), 131–137. https://doi.org/10.1111/j.1748-3743.2007.00092.x
- Fletcher, J. R. (2021). Structuring unequal relations: Role trajectories in informal dementia care. Sociology of Health and Illness, 43(1), 65–81. https://doi.org/10.1111/1467-9566.13194
- Garity, J. (2006). Caring for a family member with Alzheimer’s disease: Coping with caregiver burden post- nursing home placement. Journal of Gerontological Nursing, 32(6), 39–48. https://doi.org/10.3928/00989134-20060601-07
- Gaugler, J. E., Mittelman, M., Hepburn, K., & Newcomer, R. (2010). Clinically significant changes in burden and depression among dementia caregivers following nursing home admission. BMC Medicine, 8(1), 85–99. https://doi.org/10.1186/1741-7015-8-85
- Gaugler, J. E., Pearlin, L. I., Leitsch, S. A., & Davey, A. (2001). Relinquishing in-home dementia care: Difficulties and perceived helpfulness during the nursing home transition. American Journal of Alzheimer’s Disease and Other Dementias, 16(1), 32–42. https://doi.org/10.1177/153331750101600102
- Gaugler, J. E., Reese, M., & Sauld, J. (2015). A pilot evaluation of psychosocial support for family caregivers of relatives with dementia in long-term care: The residential care transition module. Research in Gerontological Nursing, 8(4), 161–172. https://doi.org/10.3928/19404921-20150304-01
- Gladstone, J. W., Dupuis, S. L., & Wexler, E. (2006). Changes in family involvement following a relative’s move to a long-term care facility. Canadian Journal of Ageing, 25(1), 93–106. https://doi.org/10.1353/cja.2006.0022
- Government of Western Australia. (2016). Older adults in Western Australia. http://www.housing.wa.gov.au/aboutus/publications/researchandreports/Documents/Older-Adults-In-Western-Australia.pdf
- Hong, S., & Coogle, C. L. (2016). Spousal caregiving for partners with Dementia: A deductive literature review testing Calasanti’s gendered view of care work. Journal of Applied Gerontology,35(7), 759–787. https://doi.org/10.1177/0733464814542246
- Koplow, S. M., Gallo, A. M., Knafl, K. A., Vincent, C., Paun, O., & Gruss, V. (2015a). A case study approach to nursing home placement: Smooth and difficult cases and implications for nursing. Journal of Gerontological Nursing, 41(7), 58–64. https://doi.org/10.3928/00989134-20150413-08
- Koplow, S. M., Gallo, A. M., Knafl, K. A., Vincent, C., Paun, O., & Gruss, V. (2015b). Family caregivers define and manage the nursing home placement process. Journal of Family Nursing, 21(3), 469–493. https://doi.org/10.1177/1074840715571365
- Kramer, B. J. (2002). Men caregivers: An overview. In Kramer, B. J., & Thompson, E. H. (Eds.) Men as caregivers: Theory, research, and service implications. (pp. 3–19). Springer Publishing.
- Liamputtong, P. (2013). Qualitative research methods (4th ed.). Oxford University Press Australia.
- Lind, K. E., Raban, M. Z., Brett, L., Jorgensen, M. L., Georgiou, A., & Westbrook, J. I. (2020). Measuring the prevalence of 60 health conditions in older Australians in residential aged care with electronic health records: A retrospective dynamic cohort study. Population Health Metrics, 18(1), 25. https://doi.org/10.1186/s12963-020-00234-z
- Mausbach, B. T., Aschbacher, K., Patterson, T. L., Von Känel, R., Dimsdale, J. E., Mills, P. J., Ancoli-Israel, S., & Grant, I. (2007). Effects of placement and bereavement on psychological well-being and cardiovascular risk in Alzheimer’s caregivers: A longitudinal analysis. Journal of Psychosomatic Research, 62(4), 439–445. https://doi.org/10.1016/j.jpsychores.2006.10.011
- Nikzad-Terhune, K. A., Anderson, K. A., Newcomer, R., & Gaugler, J. E. (2010). Do trajectories of at-home dementia caregiving account for burden after nursing home placement? A growth curve analysis. Social Work in Health Care, 49(8), 734–752. https://doi.org/10.1080/00981381003635296
- QSR International. (2021). NVivo qualitative data analysis software [Webpage]. https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home
- Rubin, A., & Babbie, E. (2016). Essential research methods for social work (4th ed.). Cengage Learning.
- Russell, R. (2007). The work of elderly men caregivers: From public careers to an unseen world. Men and Masculinities, 9(3), 298–314. https://doi.org/10.1177/1097184X05277712
- Ryan, A. A., & Scullion, H. F. (2000). Nursing home placement: An exploration of the experiences of family carers. Journal of Advanced Nursing, 32(5), 1187–1195. https://doi.org/10.1046/j.1365-2648.2000.01589.x
- Sandelowski, M. (1995). Sample size in qualitative research. Research in Nursing & Health, 18(2), 179–183. https://doi.org/10.1002/nur.4770180211
- Sanders, S., Ott, C. H., Kelber, S. T., & Noonan, P. (2008). The experience of high levels of grief in caregivers of persons with Alzheimer’s disease and related dementia. Death Studies, 32(6), 495–523. https://doi.org/10.1080/07481180802138845
- Saunders, B., Sim, J., Kingstone, T., Baker, S., Waterfield, J., Bartlam, B., Burroughs, H., & Jinks, C. (2018). Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality & Quantity, 52(4), 1893–1907. https://doi.org/10.1007/s11135-017-0574-8
- Sury, L., Burns, K., & Brodaty, H. (2013). Moving in: Adjustment of people living with dementia going into a nursing home and their families. International Psychogeriatrics, 25(6), 867–876. https://doi.org/10.1017/S1041610213000057