Breathing Easier? The Contradictory Experience of Leisure Among People Living with COPD

References

• Bailey, P. H. (2001). Death stories: Acute exacerbations of chronic obstructive pulmonary disease. Qualitative Health Research, 11, 322–338. doi:10.1177/104973201129119136
   PubMed Web of Science ®Google Scholar
• Bailey, P. H. (2004). The dyspnoea-anxiety-dyspnoea cycle—COPD patients’ stories of breathlessness: “It’s scary when you can’t breathe.” Qualitative Health Research, 14(6), 760–778. doi:10.1177/1049732304265973
   PubMed Web of Science ®Google Scholar
• Baker, T. A., & Wang, C. C. (2006). Photovoice: Use of participatory action research methods to explore the chronic pain experience of older adults. Qualitative Health Research, 16(10), 1405–1413. doi:10.1177/1049732306294118
   PubMed Web of Science ®Google Scholar
• Baltes, M., & Baltes, M. (1990). Psychological perspectives on aging: The model of selective optimization with compensation. In P. Baltes, & M. Baltes (Eds.), Successful aging: Perspectives from the behavioural sciences (pp. 1–34). New York, NY: Cambridge University Press.
   Google Scholar
• Baltes, M., & Carstensen, L. (1996). The process of successful aging. Ageing and Society, 16, 397–422. doi:10.1017/S0144686X00003603
   Web of Science ®Google Scholar
• Blackler, L., Mooney, C., & Jones, C. (2004). Palliative care in the management of chronic obstructive pulmonary disease. British Journal of Nursing, 25, 1084–1106.
   Google Scholar
• Borge, C. R., Wahl, A. K., & Moum, T. (2010). Association of breathlessness with multiple symptoms in chronic obstructive pulmonary disease. Journal of Advanced Nursing, 66(12), 2688–2700. doi:10.1111/j.1365-2648.2010.05447.x
   PubMed Web of Science ®Google Scholar
• Braman, S. (2006). Asthma and chronic obstructive pulmonary disease in later life. Generations, 30(3), 33–38.
   Web of Science ®Google Scholar
• Burnett-Wolle, S., & Godbey, G. (2007). Refining research on older adults’ leisure: Implications of selection, optimization, and compensation and socioemotional selectivity theories. Journal of Leisure Research, 39(3), 498–513.
   Web of Science ®Google Scholar
• Carruthers, C., & Hood, C. D. (2011). Mindfulness and well-being: Implications for TR practice. Therapeutic Recreation Journal, 45(3), 171–189.
   Google Scholar
• Carstenson, L. L. (1993). Motivation for social contact across the life span. A theory of socioemotional selectivity. In J. E. Jacombs (Ed.), Developmental perspectives on motivation: Nebraska sympsiym on motivation (Vol. 40, pp. 2090–2254). Lincoln, NE: University of Nebraska Press.
   Google Scholar
• Cooper, C. B. (2009). Chronic obstructive pulmonary disease. In J. L. Durstine, G. E. Moore, P. L. Painter, & S. O. Roberts (Eds), Exercise management for persons with chronic diseases and disabilities (pp. 129–135). Champaign, IL: Human Kinetics.
   Google Scholar
• Creswell, J. W. (2007). Qualitative inquiry and research design: Choosing among five approaches. Thousand Oaks, CA: Sage.
   Google Scholar
• Dupuis, S. L. (1999). Naked truths: Towards a reflexive methodology in leisure research. Leisure Sciences, 21(1), 43–64. doi:10.1080/014904099273282
   Web of Science ®Google Scholar
• Dupuis, S. L. (2008). Leisure and ageing well. World Leisure Journal, 50(2), 91–107. doi:10.1080/04419057.2008.9674538
   Google Scholar
• Edmonds, P., Karlsen, S., Khan, S., & Addington-Hall, J. (2001). A comparison of the palliative care needs of patients dying with chronic respiratory disease and lung cancer. Palliative Medicine, 15, 287–295. doi:10.1191/026921601678320278
   PubMed Web of Science ®Google Scholar
• Ek, K., & Ternestedt, M. (2008). Living with chronic obstructive pulmonary disease at the end of life: A phenomenological study. Journal of Advanced Nursing, 62(4), 470–478. doi:10.1111/j.1365-2648.2008.04611.x
   PubMed Web of Science ®Google Scholar
• Elkington, J., White, P., Addington-Hall, J., Higgs, R., & Edmonds, P. (2005). The health care needs of chronic obstructive pulmonary disease patients in the last year of life. Palliative Medicine, 19, 485–491. doi:10.1191/0269216305pm1056oa
   PubMed Web of Science ®Google Scholar
• Gabriel, R., Figueiredo, D., Jacome, C., Cruz, J., & Marques, A. (2014). Day to day living with chronic obstructive pulmonary disease: Towards a family-based approach to the illness impacts. Psychology and Health, 29(8), 967–983. doi:10.1080/08870446.2014.902458
   PubMed Web of Science ®Google Scholar
• Genoe, M. R., & Dupuis, S. L. (2013). Picturing leisure: Using photovoice to understand the experience of leisure and dementia. The Qualitative Report, 18. Retrieved from http://nsuworks.nova.edu/tqr/vol18/iss11/1/
   Google Scholar
• Gershon, A. S., Warner, L., Cascagnette, P., Victor, J. C., & To, T. (2011). Lifetime risk of developing chronic obstructive pulmonary disease: A longitudinal population study. Lancet, 378, 991–996. doi:10.1016/S0140-6736(11)60990-2
   PubMed Web of Science ®Google Scholar
• Gore, J., Brophy, C., & Greenstone, M. (2000). How well do we care for patients with end stage chronic obstructive pulmonary disease (COPD): A comparison of palliative care and quality of life in COPD and lung cancer. Thorax, 55, 1000–1006. doi:10.1136/thorax.55.12.1000
   PubMed Web of Science ®Google Scholar
• Halldόrsdόttir, S., & Hamrin, E. (1997). Caring and uncaring encounters within nursing and health care from the cancer patient’s perspective. Cancer Nursing, 20(2), 120–128. doi:10.1097/00002820-199704000-00007
   PubMed Web of Science ®Google Scholar
• Hutchinson, S., Loy, D., Kleiber, D., & Dattilo, J. (2003). Leisure as a coping resource: Variations in coping with traumatic injury and illness. Leisure Sciences, 25, 143–161. doi:10.1080/01490400306566
   Web of Science ®Google Scholar
• Hutchinson, S. L., Bland, A., & Kleiber, D. A. (2008). Leisure and stress-coping: Implications for therapeutic recreation practice. Therapeutic Recreation Journal, 42(1), 9–23.
   Google Scholar
• Hutchinson, S. L., & Nimrod, G. (2012). Leisure as a resource for successful aging by older adults with chronic health conditions. International Journal on Aging and Human Development, 74(1), 41–65. doi:10.2190/AG.74.1.c
   PubMed Web of Science ®Google Scholar
• Janke, M. C., Jones, J. J., Payne, L. L., & Son, J. S. (2012). Living with arthritis: Using self management of valued activities to promote health. Qualitative Health Research, 22, 360–372. doi:10.1177/104972311421179
   PubMed Web of Science ®Google Scholar
• Janke, M. C., Son, J. S., & Payne, L. L. (2009). Self regulation and adaptation of leisure activities among adults with arthritis. Activities, Adaptation, and Aging, 33(2), 65–80. doi:10.1080/01924780902947058
   Google Scholar
• Jones, M., Kimberlee, R., Deave, T., & Evans, S. (2013). The role of community-centre based arts, leisure, and social programs in promoting adult well-being and healthy lifestyles. International Journal of Environmental Research and Public Health, 10, 1948–1962. doi:10.3390/ijerph10051948
   PubMed Web of Science ®Google Scholar
• Katz, P., & Morris, A. (2007). Time use patterns among women with rheumatoid arthritis: Association with functional limitations and psychological status. Rheumatology, 46, 490–495. doi:10.1093/rheumatology/kel299
   PubMed Web of Science ®Google Scholar
• Kelly, C. G., Cudney, S., & Weinert, C. (2012). Use of creative arts as complementary therapy by rural women coping with chronic illness. Journal of Holistic Nursing, 30, 48–54. doi:10.1177/0898010111423418
   PubMedGoogle Scholar
• Kerr, A., & Ballinger, C. (2010). Living with chronic lung disease: An occupational perspective. Journal of Occupational Science, 17(1), 35–39. doi:10.1080/14427591.2010.9686670
   Google Scholar
• Kleiber, D., & Hutchinson, S. L. (2010). Making the best of bad situations: The value of leisure in coping with negative life events. In L. Payne, B. Ainworth, & G. Godbey (Eds.), Leisure, health, and wellness: Making the connections (pp. 155–164). State College, PA: Venture Publishing.
   Google Scholar
• Kleiber, D., Hutchinson, S. L., & Nimrod, G. (2011). Reconstructing leisure in adapting to chronic illness in later life: Emotional and behavioural strategies. International Journal of Disability and Human Development, 10(2), 131–137. doi:10.1515/IJHD.2011.021
   Google Scholar
• Kleiber, D., McGuire, F. A., Aybar-Damali, B., & Norman, W. (2008). Having more by doing less: The paradox of leisure constraints in later life. Journal of Leisure Research, 40(3), 343–399.
   Web of Science ®Google Scholar
• Lamers, F., Jonkers, C., Bosma, H., Chavannes, N., Knottnerus, J. A., & van Eijk, J. (2010). Improving quality of life in depressed COPD patients: Effectiveness of a minimal psychological intervention. COPD: Journal of Chronic Obstructive Pulmonary Disease, 7, 315–322. doi:10.3109/15412555.2010.510156
   Web of Science ®Google Scholar
• Loeffler, T. A. (2004). A photo elicitation study of the meanings of outdoor adventure experiences. Journal of Leisure Research, 36(4), 536–556.
   Web of Science ®Google Scholar
• McCracken, G. (1988). The long interview. Thousand Oaks, CA: Sage.
   Google Scholar
• Morse, J. (2000). Determining sample size. Qualitative Health Research, 10(3), 3–5. doi:10.1177/104973200129118183
   Web of Science ®Google Scholar
• Moustakas, C. (1994). Phenomenological research methods. Thousand Oaks, CA: Sage.
   Google Scholar
• O’Donnell, D., Aaron, S., Bourbeau, J., Hernandez, P., Marciniuk, D., Balter, M., … Voduc, N. (2007). Canadian Thoracic Society recommendations for management of chronic obstructive pulmonary disease – 2007 update. Canadian Thoracic Journal, 15(Suppl B), 5B–32B.
   Google Scholar
• Parsons, K. (1997). The male experience of caregiving for a family member with Alzheimer’s disease. Qualitative Health Research, 7(3), 391–407. doi:10.1177/104973239700700305
   Web of Science ®Google Scholar
• Samuels, J. (2004). Reflections in the use of photo elicitation in understanding Sri Lankan monastic culture. American Behavioral Scientist, 47(12), 1528–1550. doi:10.1177/0002764204266238
   Web of Science ®Google Scholar
• Shenton, A. K. (2004). Strategies for ensuring trustworthiness in qualitative research projects. Education for Information, 22, 63–75. doi:10.3233/EFI-2004-22201
   Google Scholar
• Skilbeck, J., Mott, L., Page, H., Smith, D., Hjelmeland-Ahmedzai, S., & Clark, D. (1998). Palliative care in chronic obstructive airways disease: A needs assessment. Palliative Medicine, 12, 245–254. doi:10.1191/026921698677124622
   PubMed Web of Science ®Google Scholar
• van Manen, M. (1997). Researching lived experience: Human science for an action sensitive pedagogy (2nd ed.). London, Canada: The Althouse Press.
   Google Scholar
• Wang, C. (1999). Photovoice: A participatory action research strategy applied to women’s health. Journal of Women’s Health, 6(2), 185–192. doi:10.1089/jwh.1999.8.185
   Web of Science ®Google Scholar
• Wang, C., & Burris, M. A. (1997). Photovoice: Concept, methodology, and use for participatory needs assessment. Health Education and Behavior, 24(3), 560–572. doi:10.1177/109019819702400309
   Web of Science ®Google Scholar
• Williams, V., Bruton, A., Ellis-Hill, C., & McPherson, K. (2007). What really matters to people living with chronic obstructive pulmonary disease? An exploratory study. Chronic Respiratory Disease, 4, 77–85. doi:10.1177/1479972307078482
   PubMedGoogle Scholar
• Wilson, D. M., Ross, C., Goodridge, D., Davis, P., Landreville, A., & Roebuck, K. (2008). The care needs of community-dwelling seniors suffering from advanced chronic obstructive pulmonary disease. Canadian Journal on Aging, 27(4), 347–357. doi:10.3138/cja.27.4.347
   PubMed Web of Science ®Google Scholar