References
- Australian Government. (2013). National Disability Insurance Scheme Act. Retrieved February 8, from https://www.legislation.gov.au/Details/C2016C00934
- Berndt, A., Murray, C. M., Kennedy, K., Stanley, M. J., & Gilbert-Hunt, S. (2017). Effectiveness of distance learning strategies for continuing professional development (CPD) for rural allied health practitioners: A systematic review. BMC Medical Education, 17(1), 117https://doi.org/https://doi.org/10.1186/s12909-017-0949-5
- Commonwealth of Australia. (2019). National Strategic Action Plan for Pain Management. Creative Commons Attribution.
- Fehlings, D., Brown, L., Harvey, A., Himmelmann, K., Lin, J. P., Macintosh, A., Mink, J., Monbaliu, E., Rice, J., Silver, J., Switzer, L., & Walters, I. (2016). AACPDM Dystonia Care Pathway.
- Himmelmann, K., McManus, V., Hagberg, G., Uvebrant, P., Krageloh-Mann, I., Cans, C., & Collaboration, S, on behalf of the SCPE oration. (2009). Dyskinetic cerebral palsy in Europe: trends in prevalence and severity. Archives of Disease in Childhood, 94(12), 921–926. https://doi.org/10.1136/adc.2008.144014
- Krefting, L. (1991). Rigor in qualitative research: The assessment of trustworthiness. Am J Occup Ther, 45(3), 214–222. http://www.ncbi.nlm.nih.gov/pubmed/2031523 https://doi.org/10.5014/ajot.45.3.214
- Kress, H.-G., Aldington, D., Alon, E., Coaccioli, S., Collett, B., Coluzzi, F., Huygen, F., Jaksch, W., Kalso, E., Kocot-Kępska, M., Mangas, A. C., Ferri, C. M., Mavrocordatos, P., Morlion, B., Müller-Schwefe, G., Nicolaou, A., Hernández, C. P., & Sichère, P. (2015). A holistic approach to chronic pain management that involves all stakeholders: change is needed. Current Medical Research and Opinion, 31(9), 1743–1754. https://doi.org/10.1185/03007995.2015.1072088
- Loeser, J. D., & Schatman, M. E. (2017). Chronic pain management in medical education: a disastrous omission. Postgraduate Medicine, 129(3), 332–335. https://doi.org/10.1080/00325481.2017.1297668
- Massaro, M., Pastore, S., Ventura, A., & Barbi, E. (2013). Pain in cognitively impaired children: a focus for general pediatricians [review]. European Journal of Pediatrics, 172(1), 9–14. ]. https://doi.org/10.1007/s00431-012-1720-x
- McKinnon, C. T., Meehan, E. M., Harvey, A. R., Antolovich, G. C., & Morgan, P. E. (2019). Prevalence and characteristics of pain in children and young adults with cerebral palsy: A systematic review. Developmental Medicine and Child Neurology, 61(3), 305–314. https://doi.org/10.1111/dmcn.14111
- McKinnon, C. T., Morgan, P. E., Antolovich, G. C., Clancy, C. H., Fahey, M. C., & Harvey, A. R. (2020). Pain in children with dyskinetic and mixed dyskinetic/spastic cerebral palsy. Developmental Medicine and Child Neurology, 62(11), 1294–1301. https://doi.org/10.1111/dmcn.14615
- McKinnon, C. T., White, J. H., Harvey, A. R., Antolovich, G. C., & Morgan, P. E. (2020). The lived experience of chronic pain in children with dyskinetic cerebral palsy from the perspective of carers. Australian Academy of Cerebral Palsy and Developmental Medicine, 62 (Suppl. 2), 43–44. https://www.ncbi.nlm.nih.gov/pubmed/32128806
- McKinnon, C. T., White, J. H., Morgan, P. E., Antolovich, G. C., Clancy, C. H., Fahey, M. C., & Harvey, A. R. (2020). The lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy. BMC Pediatrics, 20(1), 125.https://doi.org/10.1186/s12887-020-2011-8
- Meehan, E. M., Reid, S. M., Williams, K. J., Freed, G. L., Sewell, J. R., & Reddihough, D. S. (2016). Medical service use in children with cerebral palsy: The role of child and family factors characteristics. J Paediatr Child Health, 52(6), 621–627. https://doi.org/10.1111/jpc.13163
- Monbaliu, E., De La Pena, M. G., Ortibus, E., Molenaers, G., Deklerck, J., & Feys, H. (2017). Functional outcomes in children and young people with dyskinetic cerebral palsy. Developmental Medicine & Child Neurology, 59(6), 634–640. https://doi.org/10.1111/dmcn.13406
- Morrow, A. M., Hayen, A., Quine, S., Scheinberg, A., & Craig, J. C. (2012). A comparison of doctors’, parents’ and children’s reports of health states and health-related quality of life in children with chronic conditions [Comparative Study Research Support, Non-U.S. Gov’t]. Child: Care, Health & Development, 38(2), 186–195. https://doi.org/10.1111/j.1365-2214.2011.01240.x
- Müller, E., & Soto, G. (2002). Conversation patterns of three adults using aided speech: variations across partners. Augmentative and Alternative Communication, 18(2), 77–90. https://doi.org/10.1080/07434610212331281181
- Nancarrow, S. A., Booth, A., Ariss, S., Smith, T., Enderby, P., & Roots, A. (2013). Ten principles of good interdisciplinary team work. Human Resources for Health, 11(1), 19. https://doi.org/10.1186/1478-4491-11-19
- Nice. (2017). Cerebral Palsy in Under 25s: assessment and management. NICE guideline [NG62]. https://www.nice.org.uk/guidance/ng62
- Ostojic, K., Paget, S., Kyriagis, M., & Morrow, A. (2020). Acute and chronic pain in children and adolescents with cerebral palsy: Prevalence, interference, and management. Archives of Physical Medicine & Rehabilitation, 101(2), 213–219. https://doi.org/10.1016/j.apmr.2019.08.475
- Ostojic, K., Paget, S. P., & Morrow, A. M. (2019). Management of pain in children and adolescents with cerebral palsy: A systematic review. Developmental Medicine and Child Neurology, 61(3), 315–321. https://doi.org/10.1111/dmcn.14088
- Pain Australia. (2010). National pain strategy. www.painaustralia.org.au
- Pandit, N. (1996). The creation of theory: A recent application of the grounded theory method. The Qualitative Report, 2(4), 1–13.
- Penner, M., Xie, W. Y., Binepal, N., Switzer, L., & Fehlings, D. (2013). Characteristics of pain in children and youth with cerebral palsy [Research Support, Non-U.S. Gov't]. Pediatrics, 132(2), e407–e413. https://doi.org/10.1542/peds.2013-0224
- Reid, S. M., Meehan, E. M., Reddihough, D. S., & Harvey, A. R. (2018). Dyskinetic vs Spastic cerebral palsy: a cross-sectional study comparing functional profiles, comorbidities, and brain imaging patterns. J Child Neurol, 33(9), 593–600. https://doi.org/10.1177/0883073818776175
- Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., Bax, M., Damiano, D., Dan, B., & Jacobsson, B. (2007). A report: the definition and classification of cerebral palsy April 2006. Developmental Medicine and Child Neurology. Supplement, 109, 8–14.
- SCPE. (2000). Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers. Developmental Medicine & Child Neurology, 42(12), 816–824. http://www.ncbi.nlm.nih.gov/pubmed/11132255
- Shevell, M. I., Dagenais, L., & Hall, N., THE REPACQ CONSORTIUM. (2009). The relationship of cerebral palsy subtype and functional motor impairment: A population-based study. Developmental Medicine & Child Neurology, 51(11), 872–877. https://doi.org/10.1111/j.1469-8749.2009.03269.x
- Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory (2nd ed.). Sage Publications.
- Thomas, D. R. (2003). A general inductive approach for qualitative data analysis (pp. 1–11). School of Population Health, University of Auckland.
- Westbom, L., Rimstedt, A., & Nordmark, E. (2017). Assessments of pain in children and adolescents with cerebral palsy: A retrospective population-based registry study. Developmental Medicine and Child Neurology, 59(8), 858–863. https://doi.org/10.1111/dmcn.13459
- Wilkinson, S. (1998). Focus group methodology: A review. International Journal of Social Research Methodology, 1(3), 181–203. https://doi.org/10.1080/13645579.1998.10846874