427
Views
0
CrossRef citations to date
0
Altmetric
Articles

Using Social Network Analysis to Measure Social Inclusion for Individuals with Intellectual and Developmental Disabilities

ORCID Icon, , , &
Pages 272-286 | Received 08 Mar 2022, Accepted 30 Sep 2022, Published online: 25 Oct 2022

References

  • Abbott, S., & McConkey, R. (2006). The barriers to social inclusion as perceived by people with intellectual disabilities. Journal of Intellectual Disabilities, 10(3), 275–287. http://dx.doi.org/10.1177/1744629506067618.
  • Anderson, A., Locke, J., Kretzmann, M., & Kasari, C, AIR-B Network (2016). Social network analysis of children with autism spectrum disorder: Predictors of fragmentation and connectivity in elementary school classrooms. Autism, 20(6), 700–709. https://doi.org/10.1177/1362361315603568
  • Asselt, D. V., Buchanan, A., & Peterson, S. (2015). Enablers and barriers of social inclusion for young adults with intellectual disability: A multidimensional view. Journal of Intellectual and Developmental Disability, 40(1), 37–48. https://doi.org/10.3109/13668250.2014.994170
  • Ault, M. J., Collins, B. C., & Carter, E. W. (2013a). Congregational participation and supports for children and adults with disabilities: Parent perceptions. Intellectual and Developmental Disabilities, 51(1), 48–61. https://doi.org/10.1352/1934-9556-51.01.048
  • Ault, M. J., Collins, B. C., & Carter, E. W. (2013b). Factors associated with participation in faith communities for individuals with developmental disabilities and their families. Journal of Religion, Disability & Health, 17(2), 184–211. https://doi.org/10.1080/15228967.2013.781777
  • Baker, P. A. (2000). Measurement of community participation and use of leisure by service users with intellectual disabilities: The Guernsey community participation and leisure assessment. Journal of Applied Research in Intellectual Disabilities, 13(3), 169–185. https://doi.org/10.1046/j.1468-3148.2000.00015.x
  • Baum, C., & Edwards, D. F. (2008). Activity card sort (2nd ed.). American Occupational Therapy Association.
  • Birchwood, M., Smith, J., Cochrane, R., Wetton, S., & Copestake, C. (1990). The Social Functioning Scael: The development and validation of a new scale of social adjustment for use in family intervention programmes with schizophrenic patients. The British Journal of Psychiatry, 157, 853–859. https://doi.org/10.1192/bjp.157.6.853
  • Bogner, J., Bellon, K., Kolakowsky-Hayner, S. A., & Whiteneck, G. (2013). Participation assessment with recombined tools-Objective (PART-O). The Journal of Head Trauma Rehabilitation, 28(4), 337–339. https://doi.org/10.1097/HTR.0b013e31829af969
  • Borgatti, S. (2019). Centrality I. [powerpoint slides]. https://drive.google.com/file/d/16-nGwBQvgKe06DBA-P0YPpC5htFQzXGD/view.
  • Borgatti, S. P., Everett, M. G., & Johnson, J. C. (2018). Analyzing social networks. (2nd ed.) Sage.
  • Carter, E. W., Boehm, T. L., Annandale, N. H., & Taylor, C. E. (2016). Supporting congregational inclusion for children and youth with disabilities and their families. Exceptional Children, 82(3), 372–389. https://doi.org/10.1177/0014402915598773
  • Center for Disease Control and Prevention. (2020). Common barriers to participation experienced by people with disabilities. https://www.cdc.gov/ncbddd/disabilityandhealth/disability-barriers.html.
  • Chamberlain, B., Kasari, C., & Rotheram-Fuller, E. (2007). Involvement or isolation? The social networks of children with autism in regular classrooms. Journal of Autism and Developmental Disorders, 37(2), 230–242. https://doi.org/10.1007/s10803-006-0164-4
  • Chang, F. H., Coster, W. J., & Helfrich, C. A. (2013). Community participation measures for people with disabilities: A systematic review of content from an international classification of functioning, disability and health perspective. Archives of Physical Medicine and Rehabilitation, 94(4), 771–781. https://doi.org/10.1016/j.apmr.2012.10.031
  • Cho, Y., Hwang, J., & Lee, D. (2012). Identification of effective opinion leaders in the diffusion of technological innovation: A social network approach. Technological Forecasting and Social Change, 79(1), 97–106. https://doi.org/10.1016/j.techfore.2011.06.003
  • Donohue, M. V. (2007). Interrater reliability of the Social Profile: Assessment of community and psychiatric group participation. Australian Occupational Therapy Journal, 54, 49–58.
  • Evans, J., & Repper, J. (2000). Employment, social inclusion and mental health. Journal of Psychiatric and Mental Health Nursing, 7(1), 15–24. https://doi.org/10.1046/j.1365-2850.2000.00260.x
  • Freeman, L. C., & Romney, A. K. (1987). Words, deeds, and social structure: A preliminary study of the reliability of informants. Human Organization, 46(4), 330–334. https://doi.org/10.17730/humo.46.4.u122402864140315
  • Fujiura, G. T, The RRTC Expert Panel on Health Measurement. (2012). The RRTC expert panel on health measurement. Intellectual and Developmental Disabilities, 50(4), 352–369. https://doi.org/10.1352/1934-9556-50.4.352
  • Granovetter, M. S. (1973). The strength of weak ties. The. American Journal of Sociology, 78(6), 1360–1380. https://doi.org/10.1086/225469
  • Griffin, M. M., Kane, L. W., Taylor, C., Francis, S., & Hodapp, R. M. (2012). Characteristics of inclusive faith communities: A preliminary survey of inclusive practices in the United States. Journal of Applied Research in Intellectual Disabilities, 25(4), 383–391. https://doi.org/10.1111/j.1468-3148.2011.00675.x
  • Halgin, D., & Brass, D. (2021). Identifying nodes of importance: Centrality [powerpoint slides]. LINKS Workshop 2018. University of Kentucky. https://sites.google.com/site/linkscenterworkshop2018/sessions/introduction-to-social-network-analysis?authuser=0
  • Kasari, C., Dean, M., Kretzmann, M., Shih, W., Orlich, F., Whitney, R., Landa, R., Lord, C., & King, B. (2016). Children with autism spectrum disorder and social skills groups at school: A randomized trial comparing intervention approach and peer composition. Journal of Child Psychology and Psychiatry, 57(2), 171–179. https://doi.org/10.1111/jcpp.12460
  • Kasari, C., Locke, J., Gulsrud, A., & Rotheram-Fuller, E. (2011). Social networks and friendships at school: Comparing children with and without ASD. Journal of Autism and Developmental Disorders, 41(5), 533–544. https://doi.org/10.1007/s10803-010-1076-x
  • Kasari, C., Rotheram-Fuller, E., Locke, J., & Gulsrud, A. (2012). Making the connection: Randomized controlled trial of social skills at school for children with autism spectrum disorders. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 53(4), 431–439. https://doi.org/10.1111/j.1469-7610.2011.02493.x
  • Kim, D. A., Hwong, A. R., Stafford, D., Hughes, D. A., O'Malley, A. J., Fowler, J. H., & Christakis, N. A. (2015). Social network targeting to maximise population behaviour change: A cluster randomized controlled trial. The Lancet, 386(9989), 145–153. https://doi.org/10.1016/S0140-6736(15)60095-2
  • King, G. A., Law, M., King, S., Hurley, P., Hanna, S., Kertoy, M., & Rosenbaum, P. (2007). Measuring children’s participation in recreation and leisure activities: Construct validation of the CAPE and PAC. Child, 33(1), 28–39. https://doi.org/10.1111/j.1365-2214.2006.00613.x
  • Kiresuk, T. J., & Sherman, R. E. (1968). Goal attainment scaling: A general method for evaluating comprehensive community mental health programs. Community Mental Health Journal, 4(6), 443–453. https://doi.org/10.1007/BF01530764
  • Kretzmann, M., Shih, W., & Kasari, C. (2015). Improving peer engagement of children with autism on the school playground: A randomized controlled trial. Behavior Therapy, 46(1), 20–28. https://doi.org/10.1016/j.beth.2014.03.006
  • Krieder, C. M., Bendixen, R. M., Mann, W. C., Young, M. E., & McCarty, C. (2015). Mixed-method exploration of social network links to participation. OTJR, 35(3), 151–159.
  • Law, M., Baptiste, S., Carswell, A., Ma, M. C., Polatajko, H., & Pollack, N. (2014). Canadian occupational performance measure (5th edition). CAOT Publications.
  • Locke, J., Ishijima, E. H., Kasari, C., & London, N. (2010). Loneliness, friendship quality and the social networks of adolescents with high-functioning autism in an inclusive school setting. Journal of Research in Special Educational Needs, 10(2), 74–81. https://doi.org/10.1111/j.1471-3802.2010.01148.x
  • Mars, G. M. J., Kempen, G. I. J. M., Post, M. W. M., Proot, I. M., Mesters, I., & van Eijk, J. T. M. (2009). The Maastricht social participation profiles: Development and clinimetric properties in older adults with a chronic physical illness. Quality of Life Research, 18(9), 1207–1218. https://doi.org/10.1007/s11136-009-9537-4
  • National Council of Social Service (2017, June 12). Social inclusion and participation have greatest impact to improving quality of life for vulnerable groups and seniors. [media release]. https://www.ncss.gov.sg/Press-Room/National-Council-of-Social-Service/Press-Releases/Detail-Page?id=Social-Inclusion-Participation-Have-Greatest-Imp.
  • Novak Amado, A., Stancliffe, R. J., McCarron, M., & McCallion, P. (2013). Social inclusion and community participation of individuals with intellectual/developmental disabilities. Intellectual and Developmental Disabilities, 51(5), 360–375. https://doi.org/10.1352/1934-9556-51.5.360
  • Poston, D., & Turnbull, A. (2004). Role of spirituality and religion in family quality of life for families of children with disabilities. Education and Training in Developmental Disabilities, 39(2), 95–108.
  • Sandberg, M. A. (2018). Katz Adjustment Scale. In J. S. Kreutzer, J. DeLuca, B. Caplan (Eds.), Encyclopedia of Clinical Neuropsychology. Springer.
  • Simplican, S. C., Leader, G., Kosciulek, J., & Leahy, M. (2015). Defining social inclusion of people with intellectual and developmental disabilities: An ecological model of social networks and community participation. Research in Developmental Disabilities, 38, 18–29. https://doi.org/10.1016/j.ridd.2014.10.008
  • Van Asselt-Goverts, A. E., Embregts, P., Hendriks, A. H. C., Wegman, K. M., & Teunisse, J. P. (2015). Do social networks differ? Comparison of the social networks of people with intellectual disabilities, people with autism spectrum disorders and other people living in the community. Journal of Autism and Developmental Disorders, 45(5), 1191–1203. https://doi.org/10.1007/s10803-014-2279-3
  • Van Bergen, A. P. L., Wolf, J., Badou, M., de Wilde-Schutten, K., IJzelenberg, W., Schruers, H., Carlier, B., Hoff, S. J. M., & van Hemert, A. M. (2018). The association between social exclusion or inclusion and health in EU and OECD countries: A systematic review. European Journal of Public Health, 29(3), 1–8.
  • Wallace, C. J., Lecomte, G., Wilde, J., & Liberman, R. P. (2001). CASIG: A consumer-centered assessment for planning individualized treatment and evaluating program outcomes. Schizophrenia Research, 50(1–2), 105–119. https://doi.org/10.1016/s0920-9964(00)00068-2
  • Wallace, C. J., Liberman, R. P., Tauber, R., & Wallace, J. (2000). The independent living skills survey: A comprehensive measure of the community functioning of severely and persistently mentally ill individuals. Schizophrenia Bulletin, 26(3), 631–658. https://doi.org/10.1093/oxfordjournals.schbul.a033483
  • Wilson, C., & Secker, J. (2015). Validation of the social inclusion scale with students. Social Inclusion, 3(4), 52–62. https://doi.org/10.17645/si.v3i4.121
  • World Health Organization. (2002). Towards a common language for functioning, disability and health: ICF The international classification of functioning disability and health. Geneva. Retrieved from https://cdn.who.int/media/docs/default-source/classification/icf/icfbeginnersguide.pdf?sfvrsn=eead63d3_4&download=true
  • World Health Organization (2022). Social determinants of health. https://www.who.int/health-topics/social-determinants-of-health#tab=tab_1
  • Yousefi Nooraie, R., Sale, J. E. M., Marin, A., & Ross, L. (2020). Social network analysis: An example of fusion between quantitative and qualitative methods. Journal of Mixed Methods Research, 14(1), 110–124. https://doi.org/10.1177/1558689818804060

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.