Ethnic minority fathers’ experiences of the Neonatal Care Unit: barriers to accessing psychological support

References

• Arockiasamy, V., Holsti, L., & Albersheim, S. (2008). Fathers’ experiences in the neonatal intensive care unit: A search for control. Pediatrics, 121(2), e215–e222. https://doi.org/10.1542/peds.2007-1005
   PubMed Web of Science ®Google Scholar
• Baia, I., Amorim, M., Silva, S., Kelly-Irving, M., de Freitas, C., & Alves, E. (2016). Parenting very preterm infants and stress in neonatal intensive care units. Early Human Development, 101, 3–9. https://doi.org/10.1016/j.earlhumdev.2016.04.001
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
   Google Scholar
• Braun, V., & Clarke, V. (2021). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328–352. https://doi.org/10.1080/14780887.2020.1769238
   Web of Science ®Google Scholar
• Busse, M., Stromgren, K., Thorngate, L., & Thomas, K. A. (2013). Parents’ responses to stress in the neonatal intensive care unit. Critical Care Nurse, 33(4), 52–59. https://doi.org/10.4037/ccn2013715
   PubMed Web of Science ®Google Scholar
• Cajiao-Nieto, J., Torres-Giménez, A., Merelles-Tormo, A., & Botet-Mussons, F. (2021). Paternal symptoms of anxiety and depression in the first month after childbirth: A comparison between fathers of full term and preterm infants. Journal of Affective Disorders, 282, 517–526. https://doi.org/10.1016/j.jad.2020.12.175
   PubMed Web of Science ®Google Scholar
• Coppola, G., Cassibba, R., Bosco, A., & Papagna, S. (2013). In search of social support in the NICU: Features, benefits and antecedents of parents’ tendency to share with others the premature birth of their baby. The Journal of Maternal-Fetal & Neonatal Medicine, 26(17), 1737–1741. https://doi.org/10.3109/14767058.2013.798281
   PubMed Web of Science ®Google Scholar
• Cyr-Alves, H., Macken, L., & Hyrkas, K. (2018). Stress and symptoms of depression in fathers of infants admitted to the NICU. Journal of Obstetric, Gynecologic & Neonatal Nursing, 47(2), 146–157. https://doi.org/10.1016/j.jogn.2017.12.006
   PubMed Web of Science ®Google Scholar
• Ding, X., Zhu, L., Zhang, R., Wang, L., Wang, T.-T., & Latour, J. M. (2019). Effects of family-centred care interventions on preterm infants and parents in neonatal intensive care units: A systematic review and meta-analysis of randomised controlled trials. Australian Critical Care, 32(1), 63–75. https://doi.org/10.1016/j.aucc.2018.10.007
   PubMed Web of Science ®Google Scholar
• Flacking, R., Lehtonen, L., Thomson, G., Axelin, A., Ahlqvist, S., Moran, V. H., Ewald, U., Dykes, F., & Group, S. (2012). Closeness and separation in neonatal intensive care. Acta Paediatrica, 101(10), 1032–1037. https://doi.org/10.1111/j.1651-2227.2012.02787.x
   PubMed Web of Science ®Google Scholar
• Garten, L., Nazary, L., Metze, B., & Bührer, C. (2013). Pilot study of experiences and needs of 111 fathers of very low birth weight infants in a neonatal intensive care unit. Journal of Perinatology, 33(1), 65–69. https://doi.org/10.1038/jp.2012.32
   PubMed Web of Science ®Google Scholar
• Getting It Right First Time. (2022). Neonatology GIRFT Programme National Specialty Report.
   Google Scholar
• Govindaswamy, P., Laing, S. M., Waters, D., Walker, K., Spence, K., Badawi, N., & Nair, J. (2020). Fathers’ needs in a surgical neonatal intensive care unit: Assuring the other parent. PLoS One, 15(5), e0232190. https://doi.org/10.1371/journal.pone.0232190
   PubMed Web of Science ®Google Scholar
• Grosik, C., Snyder, D., Cleary, G. M., Breckenridge, D. M., & Tidwell, B. (2013). Identification of internal and external stressors in parents of newborns in intensive care. The Permanente Journal, 17(3), 36. https://doi.org/10.7812/TPP/12-105
   PubMedGoogle Scholar
• Gureje, O., Olley, B. O., Olusola, E.-O., & Kola, L. (2006). Do beliefs about causation influence attitudes to mental illness? World Psychiatry: Official Journal of the World Psychiatric Association (WPA), 5(2), 104.
   PubMed Web of Science ®Google Scholar
• Hagen, I. H., Iversen, V. C., & Svindseth, M. F. (2016). Differences and similarities between mothers and fathers of premature children: A qualitative study of parents’ coping experiences in a neonatal intensive care unit. BMC Pediatrics, 16(1), 1–9. https://doi.org/10.1186/s12887-016-0631-9
   PubMedGoogle Scholar
• Hugill, K., Letherby, G., Reid, T., & Lavender, T. (2013). Experiences of fathers shortly after the birth of their preterm infants. Journal of Obstetric, Gynecologic & Neonatal Nursing, 42(6), 655–663. https://doi.org/10.1111/1552-6909.12256
   PubMed Web of Science ®Google Scholar
• Kong, L.-P., Cui, Y., Qiu, Y.-F., Han, S.-P., Yu, Z.-B., & Guo, X.-R. (2013). Anxiety and depression in parents of sick neonates: A hospital‐based study. Journal of Clinical Nursing, 22(7–8), 1163–1172. https://doi.org/10.1111/jocn.12090
   PubMed Web of Science ®Google Scholar
• Loewenstein, K., Barroso, J., & Phillips, S. (2019). The experiences of parents in the neonatal intensive care unit: An integrative review of qualitative studies within the transactional model of stress and coping. The Journal of Perinatal & Neonatal Nursing, 33(4), 340–349. https://doi.org/10.1097/JPN.0000000000000436
   PubMed Web of Science ®Google Scholar
• Low, J., Bishop, A., & Pilkington, P. (2022). The longitudinal effects of paternal perinatal depression on internalizing symptoms and externalizing behavior of their children: A systematic review and meta-analysis. Mental Health and Prevention, 26, 200230. https://doi.org/10.1016/j.mhp.2022.200230
   Google Scholar
• Mäkelä, H., Axelin, A., Feeley, N., & Niela-Vilén, H. (2018). Clinging to closeness: The parental view on developing a close bond with their infants in a NICU. Midwifery, 62, 183–188. https://doi.org/10.1016/j.midw.2018.04.003
   PubMed Web of Science ®Google Scholar
• McKenzie, S. K., Oliffe, J. L., Black, A., & Collings, S. (2022). Men’s experiences of mental illness stigma across the lifespan: A scoping review. American Journal of Men’s Health, 16(1), 1–16. https://doi.org/10.1177/15579883221074789
   Web of Science ®Google Scholar
• Mclean, C., Campbell, C., & Cornish, F. (2003). African-Caribbean interactions with mental health services in the UK: Experiences and expectations of exclusion as (re) productive of health inequalities. Social Science & Medicine, 56(3), 657–669. https://doi.org/10.1016/S0277-9536(02)00063-1
   PubMed Web of Science ®Google Scholar
• Memon, A., Taylor, K., Mohebati, L. M., Sundin, J., Cooper, M., Scanlon, T., & de Visser, R. (2016). Perceived barriers to accessing mental health services among black and minority ethnic (BME) communities: A qualitative study in southeast england. British Medical Journal Open, 6(11), e012337. https://doi.org/10.1136/bmjopen-2016-012337
   PubMed Web of Science ®Google Scholar
• Merritt, L., Maxwell, J., Urbanosky, C., Dowling, D., Newberry, D. M., & Parker, L. (2022). The needs of NICU fathers in their own words: A qualitative descriptive study. Advances in Neonatal Care, 22(3), E94–E101. https://doi.org/10.1097/ANC.0000000000000934
   PubMed Web of Science ®Google Scholar
• Morrow, M., Bryson, S., Lal, R., Hoong, P., Jiang, C., Jordan, S., Patel, N. B., & Guruge, S. (2020). Intersectionality as an analytic framework for understanding the experiences of mental health stigma among racialized men. International Journal of Mental Health and Addiction, 18(5), 1304–1317. https://doi.org/10.1007/s11469-019-00140-y
   Web of Science ®Google Scholar
• NHS, (2019). NHS Long Term Plan. NHS Long Term Plan. Retrieved December 3, 2021, from https://www.longtermplan.nhs.uk
   Google Scholar
• NHS Improvement., NHS England. (2019). Implementing the Recommendations of the Neonatal Critical Care Transformation Review. https://www.england.nhs.uk/wp-content/uploads/2019/12/Implementing-the-Recommendations-of-the-Neonatal-Critical-Care-Transformation-Review-FINAL.pdf
   Google Scholar
• Noergaard, B., Johannessen, H., Fenger-Gron, J., Kofoed, P.-E., & Ammentorp, J. (2016). Participatory action research in the field of neonatal intensive care: Developing an intervention to meet the fathers’ needs. A case study. Journal of Public Health Research, 5(3), jphr.744. https://doi.org/10.4081/jphr.2016.744
   PubMedGoogle Scholar
• O’Brien, K., Robson, K., Bracht, M., Cruz, M., Lui, K., Alvaro, R. , … Munroe, M. (2018). Effectiveness of family integrated care in neonatal intensive care units on infant and parent outcomes: A multicentre, multinational, cluster-randomised controlled trial. The Lancet Child & Adolescent Health, 2(4), 245–254. https://doi.org/10.1016/S2352-4642(18)30039-7
   PubMedGoogle Scholar
• Paulson, J. F., & Bazemore, S. D. (2010). Prenatal and postpartum depression in fathers and its association with maternal depression: A meta-analysis. JAMA, 303(19), 1961–1969. https://doi.org/10.1001/jama.2010.605
   PubMed Web of Science ®Google Scholar
• Pohlman, S. (2005). The primacy of work and fathering preterm infants: Findings from an interpretive phenomenological study. Advances in Neonatal Care, 5(4), 204–216. https://doi.org/10.1016/j.adnc.2005.03.002
   PubMedGoogle Scholar
• Provenzi, L., & Santoro, E. (2015). The lived experience of fathers of preterm infants in the N eonatal I ntensive C are U nit: A systematic review of qualitative studies. Journal of Clinical Nursing, 24(13–14), 1784–1794. https://doi.org/10.1111/jocn.12828
   PubMed Web of Science ®Google Scholar
• Punthmatharith, B., Buddharat, U., & Kamlangdee, T. (2007). Comparisons of needs, need responses, and need response satisfaction of mothers of infants in neonatal intensive care units. Journal of Pediatric Nursing, 22(6), 498–506. https://doi.org/10.1016/j.pedn.2006.05.015
   PubMedGoogle Scholar
• Rabiee, F., & Smith, P. (2013). Being understood, being respected: An evaluation of mental health service provision from service providers and users’ perspectives in Birmingham, UK. International Journal of Mental Health Promotion, 15(3), 162–177. https://doi.org/10.1080/14623730.2013.824163
   Web of Science ®Google Scholar
• Roque, A. T. F., Lasiuk, G. C., Radünz, V., & Hegadoren, K. (2017). Scoping review of the mental health of parents of infants in the NICU. Journal of Obstetric, Gynecologic & Neonatal Nursing, 46(4), 576–587. https://doi.org/10.1016/j.jogn.2017.02.005
   PubMed Web of Science ®Google Scholar
• Sabnis, A., Fojo, S., Nayak, S. S., Lopez, E., Tarn, D. M., & Zeltzer, L. (2019). Reducing parental trauma and stress in neonatal intensive care: Systematic review and meta-analysis of hospital interventions. Journal of Perinatology, 39(3), 375–386. https://doi.org/10.1038/s41372-018-0310-9
   PubMed Web of Science ®Google Scholar
• Sloan, K., Rowe, J., & Jones, L. (2008). Stress and coping in fathers following the birth of a preterm infant. Journal of Neonatal Nursing, 14(4), 108–115. https://doi.org/10.1016/j.jnn.2007.12.009
   Google Scholar
• Thomson-Salo, F., Kuschel, C. A., Kamlin, O. F., & Cuzzilla, R. (2017). A fathers’ group in NICU: Recognising and responding to paternal stress, utilising peer support. Journal of Neonatal Nursing, 23(6), 294–298. https://doi.org/10.1016/j.jnn.2017.04.001
   Google Scholar