1,587
Views
5
CrossRef citations to date
0
Altmetric
Articles

Caring for ‘underground’ kids: qualitative interviews with clinicians about key issues for young people growing up with perinatally acquired HIV in Australia

, &
Pages 1-15 | Received 18 Oct 2013, Accepted 12 Nov 2013, Published online: 27 Jan 2014

REFERENCES

  • Abramowitz, S., Koenig, L., Chandwani, S., Orban, L., Stein, R., LaGrange, R., & Barnes, W. (2009). Characterizing social support: Global and specific social support experiences of HIV-infected youth. AIDS Patient Care and STDs, 23, 323–330. 10.1089/apc.2008.0194.
  • Agwu, A., & Fairlie, L. (2013). Antiretroviral treatment, management challenges and outcomes in perinatally HIV-infected adolescents. Journal of the International AIDS Society, 16, 1–13. Retrieved from http://www.dx.doi.org/10.7448/IAS.16.1.18579.
  • Bauermeister, J., Elkington, K., Brackis-Cott, E., Dolezal, C., & Mellins, C. (2009). Sexual behavior and perceived peer norms: Comparing perinatally HIV-infected and HIV-affected youth. Journal of Youth and Adolescence, 38, 1110–1122. 10.1007/s10964-008-9315-6.
  • Benton, T., & Ifeagwu, J. (2008). HIV in adolescents: What we know and what we need to know. Current Psychiatry Reports, 10, 109–115. 10.1007/s11920-008-0020-7.
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in qualitative psychology. Qualitative Research in Psychology, 3, 77–101. 10.1191/1478088706qp063oa.
  • Brogly, S., Watts, H., Ylitalo, N., Franco, E., Seage, G., Oleske, J., …, Van Dyke, R. (2007). Reproductive health of adolescent girls perinatally infected with HIV. American Journal of Public Health, 97, 1047–1052. 10.2105/AJPH.2005.071910.
  • Chernoff, M., Nachman, S., Williams, P., Brouwers, P., Heston, J., Hodge, J., …, IMPAACT P1055 Study Team (2009). Mental health treatment patterns in perinatally HIV-infected youth and controls. Pediatrics, 124, 627–636. 10.1542/peds.2008-2441.
  • DeLaMora, P., Aledort, N., & Stavola, J. (2006). Caring for adolescents with HIV. Current HIV/AIDS Reports, 3, 74–78. 10.1007/s11904-006-0021-2.
  • Eastwood, E., & Birnbaum, J. (2007). Physical and sexual abuse and unstable housing among adolescents with HIV. AIDS Behavior, 11, S116–S127. 10.1007/s10461-007-9236-5.
  • Elkington, K., Bauermeister, J., Brackis-Cott, E., Dolezal, C., & Mellins, C. (2009). Substance use and sexual risk behaviors in perinatally human immunodeficiency virus-exposed youth: Role of caregivers, peers and HIV status. Journal of Adolescent Health, 45, 133–141. 10.1016/j.jadohealth.2009.01.004.
  • Elkington, K., Bauermeister, J., Robbins, R., Gromadzka, O., Abrams, E., Wiznia, A., …, Mellins, C. (2012). Individual and contextual factors of sexual risk behavior in youth perinatally infected with HIV. AIDS Patient Care and STDs, 26, 411–422. 10.1089/apc.2012.0005.
  • Ezeanolue, E., Wodi, A., Patel, R., Dieudonne, A., & Oleske, J. (2006). Sexual behaviors and procreational intentions of adolescents and young adults with perinatally acquired human immunodeficiency virus infection: Experience of an urban tertiary care center. Journal of Adolescent Health, 38, 719–725. 10.1016/j.jadohealth.2005.06.015.
  • Fair, C., & Albright, J. (2012). ‘Don't tell him you have HIV unless he's “The One”’: Romantic relationships among adolescents and young adults with perinatal HIV infection. AIDS Patient Care and STDs, 26, 746–754. 10.1089/apc.2012.0290.
  • Fair, C., Connor, L., Albright, J., Wise, E., & Jones, K. (2012). ‘I'm positive, I have something to say’: Assessing the impact o a creative writing group for adolescents living with HIV. The Arts in Psychotherapy, 39, 383–389. Retrieved from http://www.dx.doi.org/10.1016/j.aip.2012.06.010.
  • Fair, C., Sullivan, K., & Gatto, A. (2011). Indicators of transition success for youth living with HIV: Perspectives of pediatric and adult infectious disease care providers. AIDS Care, 23, 965–970. 10.1080/09540121.2010.542449.
  • Fair, C., & Walker, S. (2011). Pediatric HIV social workers: Perspectives on disclosure. Qualitative Social Work, 10, 415–433. 10.1177/1473325010373527.
  • Fernet, M., Proulx-Boucher, K., Richard, M-E., Levy, J., Otis, J., Samson, J., …, Trottier, G. (2007). Issues of sexuality and prevention among adolescents living with HIV/AIDS since birth. The Canadian Journal of Human Sexuality, 16, 101–111. Retrieved from http://www.sieccan.org/abstracts/vol16no34.html.
  • Fielden, S., Scheckter, L., Chapman, G., Alimenti, A., Forbes, J., Sheps, S., …, Frankish, J. (2006). Growing up: Perspectives of children, families and service providers regarding the needs of older children with perinatally acquired HIV. AIDS Care, 18, 1050–1053. 10.1080/09540120600581460.
  • Flicker, S., Skinner, H., Read, S., Veinot, T., McClelland, A., Saulnier, P., & Goldberg, E. (2005). Falling through the cracks of the big cities: Who is meeting the needs of HIV-positive youth?Canadian Journal of Public Health, 96, 308–312. Retrieved from http://www.journal.cpha.ca/index.php/cjph/article/view/624/624.
  • Foster, C., Waelbrouck, A., & Peltier, A. (2007). Adolescents and HIV infection. Current Opinions in HIV and AIDS, 2, 431–436. 10.1097/COH.0b013e3282ced150.
  • Guest, G. (2012). Applied thematic analysis. Thousand Oaks, CA: Sage.
  • Hazra, R., Siberry, G., & Mofenson, L. (2010). Growing up with HIV: Children, adolescents and young adults with perinatally acquired HIV infection. Annual Review of Medicine, 61, 169–185. 10.1146/annurev.med.050108.151127.
  • Kang, E., Mellins, C., Ng, W., Ronbison, L., & Abrams, E. (2008). Standing between two worlds in Harlem: A developmental psychopathology perspective of perinataly acquired human immunodeficiency virus and adolescence. Journal of Applied Developmental Psychology, 29, 27–37. 10.1016/j.appdev.2008.02.001.
  • Kapetanovic, S., Leister, E., Nichols, S., Miller, T., Tassiopoulos, K., Hazra, R., …, Williams, P. (2010). Relationship between markers of vascular dysfunction and neurodevelopmental outcomes in perinatally HIV-infected youth. AIDS, 24, 1481–1491. 10.1097/QAD.0b013e32833a241b.
  • Kapetanovic, S., Wiegand, R., Dominguez, K., Blumberg, D., Bohannon, B., John Wheeling, J., & Rutstein, R. (2011). Associations of medically documented psychiatric diagnoses and risky health behaviors in highly active antiretroviral therapy-experienced perinatally HIV-infected youth. AIDS Patient Care and STDs, 25, 493–501. 10.1089/apc.2011.0107.
  • Koenig, L., Pals, S., Chandwani, S., Hodge, K., Abramowitz, S., Barnes, W., & D'Angelo, L. (2010). Sexual transmission risk behaviors of adolescents with HIV acquired perinatally or through risky behaviors. JAIDS, 55, 380–390.
  • Lam, P., Naar-King, S., & Wright, K. (2007). Social support and disclosure as predictors of mental health in HIV-positive youth. AIDS Patient Care and STDs, 21, 20–29. 10.1089/apc.2006.005.
  • Malee, K., Williams, P., Montepiedra, G., Nichols, S., Sirois, P., Storm, D., …, PACTG 219C Team (2009). The role of cognitive functioning in medication adherence of children and adolescents with HIV infection. Journal of Pediatric Psychology, 34, 164–175. 10.1093/jpepsy/jsn068.
  • Mellins, C., & Malee, K. (2013). Understanding the mental health of youth living with perinatal HIV infection: Lessons learnt and current challenges. Journal of the International AIDS Society, 16, 1–13. Retrieved from http://www.dx.doi.org/10.7448/IAS.16.1.18593.
  • Mellins, C., Tassiopoulos, K., Malee, K., Moscicki, A-B., Patton, D., Smith, R., …, Seage, G. (2011). Behavioral health risks in perinatally HIV-exposed youth: Co-occurrence of sexual and drug use behavior, mental health problems, and nonadherence to antiretroviral treatment. AIDS Patient Care and STDs, 25, 413–422. 10.1089/apc.2011.0025.
  • Michaud, P-A., Suris, J-C., Phil, R., Kahlert, C., Rudin, C., & Cheseaux, J-J. (2009). To say or not to say: A qualitative study on the disclosure of their condition by HIV-positive adolescents. Journal of Adolescent Health, 44, 356–362.
  • Miller, A., Ziegler, J., & Palasanthiran, P. (2013). Paediatric HIV in Australia: 30 years of a changing landscape. HIV Australia, 11, 25–28.
  • Mofenson, L., & Cotton, M. (2013). The challenges of success: Adolescents with perinatal HIV infection. Journal of the International AIDS Society, 16, 1–13. Retrieved from http://www.dx.doi.org/10.7448/IAS.16.1.18650.
  • Newman, C., Persson, A., Miller, A., & Cama, E. (forthcoming). Bridging two worlds: Provider perspectives on transitioning young people with perinatally acquired HIV into adult care in a low prevalence setting.
  • Peele, Y., D'Angelo, L., Chandwani, S., Abramowitz, S., & Koenig, L. (2012, March 14–17). Determinants of HIV serostatus self-disclosure among adolescents participating in the adolescent impact study. Presented at Society of Adolescent Health and Medicine Annual Meeting, New Orleans, LA.
  • Persson, A., & Newman, C. (2012). When HIV-positive children grow up: A critical analysis of the transition literature in developed countries. Qualitative Health Research, 22, 656–667. doi:10.1177/1049732311431445..
  • Rydström, L-L., Ygge, B-M., Tingberg, B., Navèr, L., & Eriksson, L. (2013). Experiences of young adults growing up with innate or early acquired HIV infection: A qualitative study. Journal of Advanced Nursing, 69, 1357–1365. 10.1111/j.1365-2648.2012.06127.x.
  • Sohn, A., & Hazra, R. (2013). The changing epidemiology of the global paediatric HIV epidemic: Keeping track of perinatally HIV-infected adolescents. Journal of the International AIDS Society, 16, 1–13. Retrieved from http://www.dx.doi.org/10.7448/IAS.16.1.18555.
  • Steele, R., Nelson, T., & Cole, B. (2007). Psychosocial functioning of children with AIDS and HIV infection: Review of the literature from a socioecological framework. Journal of Developmental & Behavioral Pediatrics, 28, 58–69. 10.1097/DBP.0b013e31803084c6.
  • Tassiopoulos, K., Moscicki, A-B., Mellins, C., Kacanek, D., Malee, K., Allison, S., …, Seage, G. (2013). Sexual risk behavior among youth with perinatal HIV infection in the United States: Predictors and implications for intervention development. Clinical Infectious Diseases, 56, 283–290. 10.1093/cid/cis816.
  • UNICEF. (2012). Childinfo: Monitoring the situation of children and women – HIV/AIDS. Retrieved September 26, 2013, from http://www.childinfo.org/hiv_aids.html.
  • Wiener, L., Battles, H., & Wood, L. (2007). A longitudinal study of adolescents with perinatally or transfusion acquired HIV infection: Sexual knowledge, risk reduction self-efficacy and sexual behavior. AIDS Behavior, 11, 471–478. 10.1007/s10461-006-9162-y.
  • Wiener, L., Kohrt, B-A., Battles, H., & Pao, M. (2011). The HIV experience: Youth identified barriers to transitioning from pediatric to adult care. Journal of Pediatric Psychology, 36, 141–154. 10.1093/jpepsy/jsp129.
  • Wiener, L., & Lyon, M. (2006). HIV disclosure: Who knows? Who needs to know? Clinical and ethical considerations. In M.Lyon & L.D'Angelo (Eds.), Teenagers, HIV and AIDS (pp. 105–126). Westport, CT: Praeger.
  • Wood, S., Samir, S., Steenhoff, A., & Rutstein, R. (2009). The impact of AIDS diagnosis on long-term neurocognitive and psychiatric outcomes of surviving adolescents with perinatally acquired HIV. AIDS, 23, 1859–1865. 10.1097/QAD.0b013e32832d924f.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.