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Bereavement Care Volume 37, 2018 - Issue 2
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Spotlight on practice

Supporting parents and children prior to parental death in an NHS setting

Catriona MacphersonChildren and Families Practitioner, Fife Specialist Palliative Care, Victoria Hospice, Victoria Hospital, Kirkcaldy, FifeCorrespondence[email protected]
ORCID Iconhttp://orcid.org/0000-0002-8256-7507
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Pages 67-73 | Published online: 26 Jul 2018

  • Asbury, N., Lalayiannis, L., & Walshe, E. (2014). How do I tell the children? Women’s experience of sharing information about breast cancer diagnosis and treatment. European Journal of Oncology Nursing, 18(6), 564-70.
  • Barnes, J., Kroll, L., Burke, O., Lee, J., Jones, A., & Stein, A. (2000). Qualitative interview study of communication between parents and children about maternal breast cancer. BMJ, 321, 479-482.
  • Bolmsjo, I. (2000). Existential issues in palliative care-interviews with cancer patients. Journal of Palliative Care, 16(2), 20-24.
  • Bowlby, J. (1980). Attachment and loss: (Volume 3) Loss: sadness and depression, London: Penguin.
  • Breen, L. J., Szylit, R., Gilbert, K. R., Macpherson, C., Murphy, I., Winchester Nadeau, J., Reis eSilva, D., Wiegand, D. L., & International Work Group on Death, Dying, and Bereavement (2018). Invitation to grief in the family context. Death Studies, DOI: 10.1080/07481187.2018.1442375
  • Burns, H. (2009). Annual Report of the Chief Medical Officer, Health in Scotland 2008: shedding light on hidden epidemics, Edinburgh: Scottish Government, pp. 6-16.
  • Buxbaum, L., & Brant, J. M. (2001) When a parent dies from cancer. Clinical Journal of Oncology Nursing, 5(4), 135–140.
  • Bylund Grenklo, T., Kreicbergs, U. C., Valdimarsdottir, U. A., Nyberg, T., Steineck, G., & Fürst, C. J. (2013). Communication and trust in the care provided to a dying parent: a nationwide study of cancer-bereaved youths. Journal of Clinical Oncology, 23(31), 2886-2895.
  • Cherny, N. I., Coyle, N. & Foley, K. M. (1994). Suffering in the advanced cancer patient: a definition and taxonomy. Journal of Palliative Care, 10, 57-70.
  • Childhood Bereavement Network (2001). Vision, Mission, Aims and Belief Statement. London: National Children’s Bureau.
  • Christ, G. H. (2000). Healing children’s grief: surviving a parent’s death from cancer. Oxford: Oxford University Press.
  • Comben, C. (2011). Swampy territory: the role of the palliative care social worker in safeguarding children of adults who are receiving specialist palliative care. Unpublished PhD thesis, University of Stirling.
  • Corr, C. (1992). A task-based approach to coping with dying. Omega, 24, 81–94.
  • Dehlin, L., & Mårtensson Reg, L. (2009). Adolescents’ experiences of a parent’s serious illness and death. Palliative and Supportive Care, 7(1), 13-25.
  • Elmberger, E., Bolund, C. & Lutzen, K. (2005). Experience of dealing with moral responsibility as a mother with cancer, Nursing Ethics, 12(3), 253- 262.
  • Ernst, J., Götze, H., Krauel, K., Romer, G., Bergelt, C., Flechtner, H. H., Herzog, W., Lehmkuhl, U., Keller, M., Brähler, E., & von Klitzing, K. (2013). Psychological distress in cancer patients with underage children: gender-specific differences. Psychooncology, 22(4), 823–828.
  • Fearnley, R. (2010). Death of a parent and the children’s experiences: don’t ignore the elephant in the room. Journal of Interprofessional Care, 24(4), 450-459.
  • General Medical Council (2009). Confidentiality. London: GMC.
  • Hailey, C. E., Yopp, J. M., Deal, A. M., Mayer, D. K., Hanson, L. C., Grunfeld, G., Rosenstein, D. L., and Park, E. M. (2018). Communication with children about a parent’s advanced cancer and measures of parental anxiety and depression: a cross-sectional mixed-methods study. Supportive Care in Cancer, 26(1), 287-295.
  • Haine, R.A., Wolchik, S.A., Sandler, I.N., Millsap, R.E. and Ayers, T.S. (2006). Positive parenting as a protective resource for parentally bereaved children. Death Studies, 30(1), pp.1-28.
  • Helseth, S. & Ulfsæt, N. (2003). Having a parent with cancer: coping and quality of life of children during a period of serious illness in the family. Cancer Nursing, 26(5), 355-362.
  • Hunt, M., & Meerabeau, L. (1993). Purging the emotions: the lack of emotional expression in sub-fertility and in care of the dying. International Journal of Nursing Studies, 30(2), 115-123.
  • Innes, S., & Payne, S. (2009). Advanced cancer patients’ prognostic preferences : a review. Palliative Medicine, 23(1), 29-39. DOI: 10.1177/0269216308098799
  • Inhestern, L., Haller, C., Wlodarczyk, O., & Bergelt, C. (2016). Psychosocial interventions for families with parental cancer and barriers and facilitators to implementation and use – a systematic review. PLoS ONE. doi: 10.1371/journal.pone.0156967
  • Karidar, H., Åkesson, H., & Glasdam, S. (2016). A gap between the intention of the Swedish law and interactions between nurses and children of patients in the field of palliative oncology - the perspective of nurses. European Journal of Oncology Nursing 22, 23-29. http://doi.org/10.1016/j.ejon.2016.01.005
  • Kennedy V. L., & Lloyd Williams M. (2009). How children cope when a parent has advanced cancer. Psycho-Oncology, 18, 886-892.
  • Lovell A., & Yates P. (2014). Advance care planning in palliative care: a systematic literature review of the contextual factors influencing its uptake. Palliative Medicine, 28(8), 1026–1035.
  • Macpherson, C. (2005). Telling children their ill parent is dying: a study of the factors influencing the well parent. Mortality, 10(2), 113–26.
  • Macpherson, C. (2009). Childhood abuse uncovered in a palliative care audit. Palliative and Supportive Care, 7, 481-486.
  • Macpherson, C. (2017). Difficulties for a practitioner preparing a family for the death of a parent: a narrative inquiry. Mortality, DOI: 10.1080/13576275.2017.1339677
  • Macpherson, C., & Clark, L. (2016). My Oncology/ Haematology Visiting Book. Fife Palliative Care Service.
  • Muriel, A. C., Moore, C. W., Baer, L., Park, E. R., Kornblith, A.B., Pirl, W., Prigerson, H., Ing, J., & Rauch P. K. (2012). Measuring psychosocial distress and parenting concerns among adults with cancer: the parenting concerns questionnaire. Cancer, 118, 5671–5678.
  • Nilsson, M. E., Maciejewski, P. K., Zhang, B., Wright, A. A., Trice, E. D., Muriel, A. C., Friedlander, R. J., Fasciano, K. M., Block, S. D., & Prigerson, H. G. (2009). Mental health, treatment preferences, advance care planning, location, and quality of death in advanced cancer patients with dependent children. Cancer, 115(2), 399-409.
  • Park, E. M., Deal, A. M., Check, D. K., Hanson, L. C., Reeder-Hayes, K. E., Mayer, D. K., Yopp, J. M., Song, M. K., Muriel, A. C., & Rosenstein, D. L. (2016). Parenting concerns, quality of life, and psychological distress in patients with advanced cancer. Psycho-Oncology, 25(8), 942–948.
  • Siegel, K., Karus, D., & Raevis, V. (1996). Adjustment of children facing the death of a parent due to cancer. Journal of American Academy Child Adolescent Psychiatry 35(4), 442–50.
  • Silverman, P. (2000). Never too young to know: death in children’s lives. Oxford: Oxford University Press.
  • Sutter, C., & Reid, T. (2012). How do we talk to the children? Child life consultation to support the children of seriously ill adult inpatients. Journal of Palliative Medicine, 15(12), 1362-1367.
  • The Scottish Government (2011). Shaping bereavement care. Edinburgh: Scottish Government.
  • The Scottish Government (2012). Getting it right for every child (GIRFEC). http://www.scotland.gov.uk/gettingitright
  • The Scottish Government. (2015). Strategic framework for action on palliative and end of life care 2016–2021. Edinburgh: Scottish Government.
  • The Scottish Government (2016). Carers (Scotland) Act. Edinburgh: Scottish Government.
  • Thastum, J. M., Munch-Hansen, A., Wiell, A., & Romer, G. (2006). Evaluation of a short-term preventive counselling project for families with a parent with cancer. Clin Child Psychol and Psychiatry, 11(4), 529-542.
  • Turner, J., Clavarino, A., Yates, P., Hargraves, M., Connors, V., & Hausmann, S. (2007). Development of a resource for parents with advanced cancer: what do parents want? Palliative and Supportive Care, 5(2), 135-145.
  • Turner, N., & Almack, K. (2017). Troubling meanings of family and competing moral imperatives in the family lives of young people with a parent who is at the end of life, Children’s Geographies, DOI: 10.1080/14733285.2017.1350633
  • Worden, W. (1996). Children and Grief. London: Guildford Press.
  • Yopp, J., Park, E., Edwards, T., Deal, A., & Rosenstein, D. (2015). Overlooked and underserved: Widowed fathers with dependent-age children. Palliative and Supportive Care, 13(5), 1325-1334. doi: 10.1017/S1478951514001321

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