3,300
Views
89
CrossRef citations to date
0
Altmetric
Papers

Snapshots of success: An insider perspective on living successfully with aphasia

, , &
Pages 1267-1295 | Received 08 Nov 2009, Accepted 05 Mar 2010, Published online: 07 Jun 2010

REFERENCES

  • Astrom , M. , Adolfsson , R. and Asplund , K. 1993 . Major depression in stroke patients: A 3-year longitudinal study . Stroke , 24 ( 7 ) : 976 – 982 .
  • Bakas , T. , Kroenke , K. , Plue , L. D. , Perkins , S. M. and Williams , L. S. 2006 . Outcomes among family caregivers of aphasic versus nonaphasic stroke survivors . Rehabilitation Nursing , 31 ( 1 ) : 33 – 42 .
  • Bloustien , G. and Baker , S. 2003 . On not talking to strangers: Researching the micro worlds of girls through visual auto-ethnographic practices . Social analysis , 47 ( 3 ) : 64 – 79 .
  • Boles , L. 2006 . Success stories in aphasia . Topics in Stroke Rehabilitation , 13 ( 1 ) : 37
  • Bowling , A. and Gabriel , Z. 2007 . Lay theories of quality of life in older age . Ageing & Society , 27 : 827 – 848 .
  • Brennan , A. D. , Worrall , L. E. and McKenna , K. T. 2005 . The relationship between specific features of aphasia-friendly written material and comprehension of written material for people with aphasia: An exploratory study . Aphasiology , 19 ( 8 ) : 693 – 711 .
  • Brumfitt , S. 1993 . Losing your sense of self: What aphasia can do . Aphasiology , 7 ( 6 ) : 569 – 575 .
  • Bury , M. 2001 . Illness narratives: Fact or fiction? . Sociology of Health and Illness , 23 ( 3 ) : 263 – 285 .
  • Byng , S. and Duchan , J. F. 2005 . Social model philosophies and principles: Their applications to therapies for aphasia . Aphasiology , 19 ( 10–11 ) : 906 – 922 .
  • Caporali , A. and Basso , A. 2003 . A survey of long-term outcome of aphasia and of chances of gainful employment . Aphasiology , 17 ( 9 ) : 815 – 834 .
  • Chapey , R. , Duchan , J. , Elman , R. , Garcia , L. , Kagan , A. Lyon , J. 2008 . “ Life-participation approach to aphasia: A statement of values for the future ” . In Language intervention strategies in aphasia and related neurogenic communication disorders , 5th , Edited by: Chapey , R. Philadelphia : Lippincott, Williams & Wilkins .
  • Christensen , J. M. and Anderson , J. D. 1989 . Spouse adjustment to stroke: Aphasic versus nonaphasic partners . Journal of Communication Disorders , 22 ( 4 ) : 225 – 231 .
  • Code , C. and Herrmann , M. 2003 . The relevance of emotional and psychosocial factors in aphasia to rehabilitation . Neuropsychological Rehabilitation , 13 ( 1–2 ) : 109 – 132 .
  • Coyne , I. T. 1997 . Sampling in qualitative research. Purposeful and theoretical sampling; merging or clear boundaries? . Journal of Advanced Nursing , 26 ( 3 ) : 623 – 630 .
  • Cruice , M. , Hill , R. , Worrall , L. and Hickson , L. 2010 . Conceptualising quality of life for older people with aphasia . Aphasiology , 24 ( 3 ) : 327 – 347 .
  • Cruice , M. , Worrall , L. and Hickson , L. 2006a . Perspectives of quality of life by people with aphasia and their family: Suggestions for successful living . Topics in Stroke Rehabilitation , 13 ( 1 ) : 14
  • Cruice , M. , Worrall , L. and Hickson , L. 2006b . Quantifying aphasic people's social lives in the context of non-aphasic peers . Aphasiology , 20 ( 12 ) : 1210 – 1225 .
  • Cruice , M. , Worrall , L. , Hickson , L. and Murison , R. 2003 . Finding a focus for quality of life with aphasia: Social and emotional health, and psychological well-being . Aphasiology , 17 ( 4 ) : 333 – 353 .
  • Davidson , B. , Howe , T. , Worrall , L. , Hickson , L. and Togher , L. 2008 . Social participation for older people with aphasia: The impact of communication disability on friendships . Topics in Stroke Rehabilitation , 15 ( 4 ) : 325 – 340 .
  • Depp , C. A. and Jeste , D. V. 2006 . Definitions and predictors of successful aging: A comprehensive review of larger quantitative studies . The American Journal of Geriatric Psychiatry , 14 ( 1 ) : 6 – 20 .
  • Diener , E. , ed. 2009 . The science of well-being: The collected works of Ed Diener , Vol. 1 , New York : Springer Science & Business Media .
  • Elman , R. and Bernstein-Ellis , E. 1999 . Psychosocial aspects of group communication treatment: Preliminary findings . Seminars in Speech and Language , 20 : 65 – 72 .
  • Frank , A. 1997 . Illness as moral occasion: Restoring agency to ill people . Health , 1 ( 2 ) : 131 – 148 .
  • Frohmann , L. 2005 . The Framing Safety Project: Photographs and narratives by battered women . Violence Against Women , 11 ( 11 ) : 1396 – 1419 .
  • Goodwin , D. L. 2001 . The meaning of help in PE: Perceptions of students with physical disabilities . Adapted Physical Activity Quarterly , 18 ( 3 ) : 289 – 303 .
  • Guse , L. W. and Masesar , M. A. 1999 . Quality of life and successful aging in long-term care: Perceptions of residents . Issues in mental health nursing , 20 ( 6 ) : 527 – 539 .
  • Hilari , K. and Byng , S. 2009 . Health-related quality of life in people with severe aphasia . International Journal of Language & Communication Disorders , 44 ( 2 ) : 193 – 205 .
  • Hilari , K. and Northcott , S. 2006 . Social support in people with chronic aphasia . Aphasiology , 20 ( 1 ) : 17 – 36 .
  • Hilari , K. , Wiggins , R. D. , Roy , P. , Byng , S. and Smith , S. C. 2003 . Predictors of health-related quality of life (HRQL) in people with chronic aphasia . Aphasiology , 17 ( 4 ) : 365 – 381 .
  • Hinckley , J. J. 2006 . Finding messages in bottles: Living successfully with stroke and aphasia . Topics in Stroke Rehabilitation , 13 ( 1 ) : 25
  • Holland , A. 2006a . Consumer comments, control, and communication [special edition] . Topics in stroke rehabilitation , 13 ( 1 )
  • Holland , A. 2006b . Living successfully with aphasia: Three variations on the theme . Topics in Stroke Rehabilitation , 13 ( 1 ) : 44
  • Holland , A. 2007a . Counseling/coaching in chronic aphasia: Getting on with life . Topics in Language Disorders , 27 ( 4 ) : 339 – 350 .
  • Holland , A. 2007b . Counseling in communication disorders: A wellness perspective , San Diego, CA : Plural Publishing .
  • Kagan , A. 2001 . Training volunteers as conversation partners using “Supported Conversation for Adults with Aphasia” (SCA): A controlled trial . Journal of Speech, Language & Hearing Research , 44 ( 3 ) : 624 – 638 .
  • Kagan , A. and Kimelman , M. 1995 . Informed consent in aphasia research: Myth or reality? . Clinical Aphasiology , 23 : 65 – 75 .
  • Kagan , A. , Simmons-Mackie , N. , Rowland , A. , Huijbregts , M. , Shumway , E. , McEwen , S. and al , et . 2008 . Counting what counts: A framework for capturing real-life outcomes of aphasia intervention . Aphasiology , 22 ( 3 ) : 258 – 280 .
  • Kaufman , S. R. 1994 . “ In-depth interviewing ” . In Qualitative methods in aging research , Edited by: Gubrium , J. F. and Sankar , A. P. 123 – 136 . Thousand Oaks, CA : Sage Publications .
  • Kertesz , A. 1982 . The Western Aphasia Battery , New York : The Psychological Corporation, Harcourt Brace Jovanovich Inc .
  • Knight , T. and Ricciardelli , L. A. 2003 . Successful aging: Perceptions of adults aged between 70 and 101 years . International Journal of Aging and Human Development , 56 ( 3 ) : 223 – 245 .
  • Koch , T. 2006 . Establishing rigour in qualitative research: The decision trail . Journal of Advanced Nursing , 53 ( 1 ) : 91 – 100 .
  • Laures-Gore , J. , Hamilton , A. and Matheny , K. 2007 . Coping resources, perceived stress, and recent life experiences in individuals with aphasia . Journal of Medical Speech-Language Pathology , 15 ( 4 ) : 423 – 431 .
  • Le Dorze , G. and Brassard , C. 1995 . A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases . Aphasiology , 9 ( 3 ) : 239 – 255 .
  • Levin , T. , Scott , B. , Borders , B. , Hart , K. , Lee , J. and Decanini , A. 2007 . Aphasia talks: Photography as a means of communication, self-expression, and empowerment in persons with aphasia . Topics in Stroke Rehabilitation , 14 ( 1 ) : 72 – 84 .
  • McLeod , S. 2008 . Contribution of the ICF to speech-language pathology [special issue] . International Journal of Speech-Language Pathology , 10 ( 1–2 ) : 1 – 1 .
  • Michallet , B. , Le Dorze , G. and Teatreault , S. 2001 . The needs of spouses caring for severely aphasic persons . Aphasiology , 15 ( 8 ) : 731 – 747 .
  • Miller , A. and Iris , M. 2002 . Health promotion attitudes and strategies in older adults . Health Education & Behavior , 29 ( 2 ) : 249 – 267 .
  • Minichiello , V. , Aroni , R. , Timewell , E. and Alexander , L. 1995 . In-depth interviewing , 2nd , Melbourne, , Australia : Longman .
  • Oliver , M. 2009 . Understanding disability: From theory to practice , 2nd , Basingstoke, , UK : Palgrave Macmillan .
  • Parr , S. 2007 . Living with severe aphasia: Tracking social exclusion . Aphasiology , 21 ( 1 ) : 98 – 123 .
  • Parr , S. , Byng , S. and Gilpin , S. 1997 . Talking about aphasia: Living with loss of language after stroke , Buckingham, , UK : Open University Press .
  • Patton , M. Q. 2002 . Qualitative research & evaluation methods , 3rd , London : Sage Publications .
  • Phelan , E. A. , Anderson , L. A. , LaCroix , A. Z. and Larson , E. B. 2004 . Older adults' views of “successful aging”: How do they compare with researchers' definitions? . Journal of the American Geriatrics Society , 52 ( 2 ) : 211 – 216 .
  • Phelan , E. A. and Larson , E. B. 2002 . “Successful aging:” Where next? . Journal of the American Geriatrics Society , 50 ( 7 ) : 1306 – 1308 .
  • Plexico , L. , Manning , W. H. and DiLollo , A. 2005 . A phenomenological understanding of successful stuttering management . Journal of Fluency Disorders , 30 ( 1 ) : 1 – 22 .
  • Ritchie , J. , Lewis , J. and Elam , G. 2003 . “ Designing and selecting samples ” . In Qualitative research practice: A guide for social science students and researchers , Edited by: Ritchie , J. and Lewis , J. London : Sage Publications .
  • Rose , T. A. , Worrall , L. E. and McKenna , K. T. 2003 . The effectiveness of aphasia-friendly principles for printed health education materials for people with aphasia following stroke . Aphasiology , 17 ( 10 ) : 947 – 963 .
  • Ross , K. B. and Wertz , R. T. 2002 . Relationships between language-based disability and quality of life in chronically aphasic adults . Aphasiology , 16 ( 8 ) : 791 – 800 .
  • Ross , K. B. and Wertz , R. T. 2003 . Quality of life with and without aphasia . Aphasiology , 17 ( 4 ) : 355 – 364 .
  • Rowe , J. W. and Kahn , R. L. 1987 . Human aging: Usual and successful . Science , 237 ( 4811 ) : 143 – 149 .
  • Rowe , J. W. and Kahn , R. L. 1997 . Successful aging . The Gerontologist , 37 ( 4 ) : 433 – 440 .
  • Ryff , C. and Singer , D. 1996 . Psychological well-being: Meaning, measurements and implications for psychotherapy research . Psychotherapy and Psychosomatics , 65 ( 1 ) : 14 – 23 .
  • Sarno , M. T. 1993 . Aphasia rehabilitation: Psychosocial and ethical considerations . Aphasiology , 7 ( 4 ) : 321 – 334 .
  • Seligman , M. 2002 . Authentic happiness: Using the new positive psychology to realize your potential for lasting fulfilment , Milsons Point, NSW : Random House Australia .
  • Shadden , B. B. 2005 . Aphasia as identity theft: Theory and practice . Aphasiology , 19 ( 3–5 ) : 211 – 223 .
  • Shadden , B. B. , Hagstrom , F. and Koski , P. R. 2008 . Neurogenic communication disorders: Life stories and the narrative self , San Diego, CA : Plural Publishing .
  • Sherbourne , C. D. and Stewart , A. L. 1991 . The MOS social support survey . Social Science & Medicine , 32 ( 6 ) : 705 – 714 .
  • Simmons-Mackie , N. 2008 . “ Social approaches to aphasia intervention ” . In Language intervention strategies in aphasia and related neurogenic communication disorders , 5th , Edited by: Chapey , R. Philadelphia : Lippincott, Williams & Wilkins .
  • Smith , J. A. and Osborn , M. 2003 . “ Interpretative phenomenological analysis ” . In Qualitative psychology: A practical guide to research methods , Edited by: Smith , J. A. 51 – 80 . London : Sage Publications .
  • Smith , J. A. and Osborn , M. 2004 . “ Interpretative phenomenological analysis ” . In Doing social psychology research , Edited by: Breakwell , G. 229 – 254 . Malden, , UK : BPA Blackwell .
  • Smith , J. A. , Jarman , M. and Osborn , M. 1999 . “ Doing interpretative phenomenological analysis ” . In Qualitative health psychology , Edited by: Murray , M. and Chamberlain , K. 218 – 240 . London : Sage Publications .
  • Strawbridge , W. J. , Cohen , R. D. , Shema , S. J. and Kaplan , G. A. 1996 . Successful aging: Predictors and associated activities . American Journal of Epidemiology , 144 ( 2 ) : 135 – 141 .
  • Swain , J. and French , S. 2000 . Towards an affirmation model of disability . Disability and Society , 15 ( 4 ) : 569 – 582 .
  • Tate , R. B. , Lah , L. and Cuddy , T. E. 2003 . Definition of successful aging by elderly Canadian males: The Manitoba follow-up study . The Gerontologist , 43 ( 5 ) : 735 – 744 .
  • Turner , D. S. and Cox , H. 2004 . Hope: Metaphorically speaking . Australian Journal of Holistic Nursing , 11 ( 1 ) : 16 – 24 .
  • Walker , R. 1993 . “ Finding a silent voice for the researcher: Using photographs in evaluation and research ” . In Qualitative voices in educational research , Edited by: Schratz , M. 72 – 92 . London : The Falmer Press .
  • Whalley Hammel , K. 2006 . Perspectives on disability & rehabilitation: Contesting assumptions, challenging practice , Edinburgh, , UK : Churchill Livingstone .
  • World Health Organization . 2001 . International classification of functioning, disability and health: ICF , Geneva : World Health Organization .
  • Zemva , N. 1999 . Aphasic patients and their families: Wishes and limits . Aphasiology , 13 : 219 – 224 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.