The renegotiation of social roles in chronic aphasia: Finding a voice through AAC

REFERENCES

• American Speech-Language-Hearing Association. (2004). Admission/discharge criteria in speech-language pathology [guidelines]. www.asha.org/policy (http://www.asha.org/policy)
   Google Scholar
• American Speech-Language-Hearing Association. (2012). Aphasia. http://www.asha.org/public/speech/disorders/Aphasia/ (http://www.asha.org/public/speech/disorders/Aphasia/)
   Google Scholar
• Avent , J. R. and Wertz , T. R. 1996 . A comparison of aphasic patients ’ pragmatic performance in individual and group treatment . Aphasiology , 10 : 253 – 259 .
   Web of Science ®Google Scholar
• Blonder , L. X. , Langer , S. L. , Pettigrew , L. C. and Garrity , T. F. 2007 . The effects of stroke disability on spousal caregivers . NeuroRehabilitation , 22 : 85 – 92 .
   PubMed Web of Science ®Google Scholar
• Boyatzis , R. E. 1998 . Transforming qualitative information: Thematic analysis and code development , Thousand Oaks , CA : Sage .
   Google Scholar
• Cresswell , J. W. 2008 . Research design: Qualitative, quantitative, and mixed methods approaches , 3rd , Thousand Oaks , CA : Sage Publications, Inc .
   Google Scholar
• Cruice , M. , Worral , L. , Hickson , L. and Murison , R. 2005 . Measuring quality of life: Comparing family members’ and friends’ ratings with those of their aphasic partners . Aphasiology , 19 : 111 – 129 .
   Web of Science ®Google Scholar
• Draper , B. , Bowring , G. , Thompson , C. , Van Heyst , J. , Conroy , P. and Thompson , J. 2007 . Stress in caregivers of aphasic stroke patients: A randomized controlled trial . Clinical Rehabilitation , 21 : 122 – 130 .
   PubMed Web of Science ®Google Scholar
• Elman , R. J. 1999 . Group treatment of neurogenic communication disorders: The expert clinician's approach , Woburn , MA : Butterworth-Heinemann .
   Google Scholar
• Garrett , K. and Beukelman , D. R. 1995 . Changes in interaction patterns of an individual with severe aphasia given three types of partner support . Clinical Aphasiology , 23 : 237 – 251 .
   Google Scholar
• Garrett , K. and Ellis , G. November 1994 . Miniseminar: Group therapy for persons with long-term aphasia: Scaffolded language activities , November , ASHA : New Orleans .
   Google Scholar
• Garrett , K. and Lasker , J. 2005 . “ Adults with severe aphasia ” . In Augmentative and alternative communication , 3rd , Edited by: Beukelman , D. and Mirenda , P. 467 – 504 . Baltimore , MD : Paul H. Brooks .
   Google Scholar
• Hilari , K. , Byng , S. , Lamping , D. and Smith , S. 2003 . Stroke and Aphasia Quality of Life Scale – 39 (SAQOL–39): Evaluation of acceptability, reliability and validity . Stroke , 34 : 1944 – 1950 .
   PubMed Web of Science ®Google Scholar
• Hilari , K. and Northcott , S. 2006 . Social support in people with chronic aphasia . Aphasiology , 20 ( 1 ) : 17 – 36 .
   Web of Science ®Google Scholar
• Hilari , K. , Northcott , S. , Roy , P. , Marshall , J. , Wiggins , R. D. , Chataway , J. and Ames , D. 2010 . Psychological distress after stroke and aphasia: The first six months . Clinical Rehabilitation , 24 : 181 – 190 .
   PubMed Web of Science ®Google Scholar
• Hilari , K. , Owen , S. and Farrelly , S. J. 2007 . Proxy and self-report agreement on the Stroke and Aphasia Quality of Life Scale-39 . Journal of Neurology, Neurosurgery & Psychiatry , 78 : 1072 – 1075 .
   PubMed Web of Science ®Google Scholar
• Hersh , D. 1998 . Beyond the ‘plateau’: Discharge dilemmas in chronic aphasia . Aphasiology , 12 : 207 – 218 .
   Web of Science ®Google Scholar
• Howe , T. J. , Worrall , L. E. and Hickson , M. H. 2004 . Review: What is an aphasia-friendly environment? . Aphasiology , 18 : 1015 – 1037 .
   Web of Science ®Google Scholar
• Howe , T. J. , Worrall , L. E. and Hickson , L. M. 2008 . Observing people with aphasia: Environmental factors that influence their community participation . Aphasiology , 22 : 618 – 643 .
   Web of Science ®Google Scholar
• Kagan , A. , Black , S. E. , Duchan , J. F. , Simmons-Mackie , N. and Square , P. 2001 . Training volunteers as conversation partners using “Supported Conversation for Adults with Aphasia” (SCA): A controlled trial . American Journal of Speech-Language Pathology , 44 : 624 – 638 .
   Web of Science ®Google Scholar
• Kagan , A. , Simmons-Mackie , N. , Rowland , A. , Huijbregts , M. , Shumway , E. , McEwen , S. … and Sharp , S . 2008 . Counting what counts: A framework for capturing real-life outcomes for aphasia intervention . Aphasiology , 22 : 258 – 280 .
   Web of Science ®Google Scholar
• Kertesz , A. 2006 . The Western Aphasia Battery-Revised [WAB-R] , San Antonio , TX : Harcourt Assessment, Inc .
   Google Scholar
• Liechty , J. A. and Heizekehr , J. B. 2007 . Caring for those without words: A perspective on aphasia . Journal of Neuroscience Nursing , 39 : 316 – 318 .
   PubMedGoogle Scholar
• LPAA Project Group [Chapey, R., Duchan, J. F., Elman, R. J., Garcia, L. J., Kagan, A., & Simmons-Mackie, N.]. (2005). Life participation approach to aphasia: A statement of values for the future. In R. Chapey (Ed.), Language intervention strategies in aphasia and related neurogenic communication disorders (5th ed., pp. 279–289). Philadelphia: Lippincot, Williams & Wilkins.
   Google Scholar
• Lyon , J. G. 1992 . Communication use and participation in life for adults with aphasia in natural settings: The scope of the problem . American Journal of Speech Language Pathology , 1 : 7 – 14 .
   Google Scholar
• Morse , J. M. and Richards , L. 2002 . Read me first for a user's guide to qualitative methods , Thousand Oaks , CA : Sage Publications .
   Google Scholar
• Parr , S. 2011 . Living with severe aphasia: Tracking social exclusion . Aphasiology , 21 : 98 – 123 .
   Google Scholar
• Pickard , S. A. , Johnson , J. A. , Feeney , D. H. , Shuaib , A. , Carriere , K. C. and Nasser , A. M. 2004 . Agreement between patient and proxy assessments of health related quality of life after stroke using the EQ-5D and health utilities index . Stroke , 35 : 607 – 612 .
   PubMed Web of Science ®Google Scholar
• Rautakoski , P. , Korpijaakko-Huuhka , A. M. and Klippi , A. 2008 . People with severe and moderate aphasia and their partners as estimators of communicative skills: A client-centered evaluation . Aphasiology , 12 : 1260 – 1293 .
   Google Scholar
• Rose , T. A. , Worrall , L. E. and McKenna , K. T. 2003 . The effectiveness of aphasia-friendly principals for printed health education materials for people with aphasia following stroke . Aphasiology , 17 : 947 – 963 .
   Web of Science ®Google Scholar
• Shadden , B. 2005 . Aphasia as identity theft: Theory and practice . Aphasiology , 19 : 211 – 223 .
   Web of Science ®Google Scholar
• Shadden , B. , Hagstrom , F. and Koski , P. 2008 . Neurogenic communication disorders life stories and the narrative self , San Diego , CA : Plural Publishing INC .
   Google Scholar
• Simmons-Mackie , N. 1998 . Discharge dilemmas in aphasia . Aphasiology , 12 : 231 – 239 .
   Web of Science ®Google Scholar
• Simmons-Mackie , N. 2005 . “ Social approaches to aphasia intervention ” . In Language intervention strategies in aphasia and related neurogenic communication disorders , 5th , Edited by: Chapey , R. 290 – 318 . Philadelpia : PA: Lippincot Williams & Wilkins .
   Google Scholar
• Simmons-Mackie , N. and Damico , J. 2007 . Access and social inclusion in aphasia: Interactional principles and applications . Aphasiology , 21 : 81 – 97 .
   Web of Science ®Google Scholar
• Simmons-Mackie , N. , Kingston , D. and Schultz , M. 2004 . “Speaking for another”: The management of participant frames in aphasia . American Journal of Speech-Language Pathology , 13 : 114 – 127 .
   PubMed Web of Science ®Google Scholar
• Simmons-Mackie , N. , Threats , T. T. and Kagan , A. 2005 . Outcome assessment in aphasia: A survey . Journal of Communication Disorders , 38 : 1 – 27 .
   PubMed Web of Science ®Google Scholar
• Sneeuw , K. , Aaronson , N. , Sprangers , M. , Detmar , S. , Wever , L. and Schornagel , J. 1997 . Assessing quality of life after stroke: The value and limitation of proxy ratings . Stroke , 28 : 1541 – 1549 .
   PubMed Web of Science ®Google Scholar
• Thomas , D. 2006 . A general inductive approach . American Journal of Evaluation , 27 : 237 – 246 .
   Web of Science ®Google Scholar
• van der Gaag , A. , Smith , L. , Davis , S. , Moss , B. , Laing , S. and Mowles , C. 2005 . Therapy and support services for people with long-term stroke and aphasia and their relatives: A six-month follow-up study . Clinical Rehabilitation , 19 : 372 – 380 .
   PubMed Web of Science ®Google Scholar
• Vickers , C. P. 2010 . Social networks after the onset of aphasia: The impact of aphasia group attendance . Aphasiology , 24 : 902 – 913 .
   Web of Science ®Google Scholar
• Voydanoff , P. and Donnelly , B. W. 1999 . Multiple roles and psychological distress: The intersection of the paid worker, spouse, and parent roles with the role of the adult child . Journal of Marriage and Family , 61 : 725 – 738 .
   Web of Science ®Google Scholar
• Walker , A. J. , Pratt , C. C. and Eddy , L. 1995 . Informal caregiving to aging family members: A critical review . Family Relations , 44 : 402 – 411 .
   Web of Science ®Google Scholar
• Wallace , G. L. 2010 . Profile of life participation after stroke and aphasia . Topic in Stroke Rehabilitation , 17 : 432 – 450 .
   PubMed Web of Science ®Google Scholar
• Weissling , K. and Prentice , C. 2010 . The timing of remediation and compensation rehabilitation programs for individuals with acquired brain injuries: Opening the conversation . Perspectives in Augmentative and Alternative Communication , 19 : 87 – 96 .
   Google Scholar
• World Health Organisation . 2001 . International classification of functioning, disability, and health: ICF , Geneva : WHO .
   Google Scholar