A description of the personal and environmental determinants of participation several years post-stroke according to the views of people who have aphasia

REFERENCES

• Bouchard-Lamothe, D., Bourassa, S., Laflamme, B., Garcia, L. J., Gailey, G., & Stiell, K. (1999). Perceptions of three groups of interlocutors of the effects of aphasia on communication: An exploratory study. Aphasiology, 13(9–11), 839–855. doi:10.1080/026870399401911
   Web of Science ®Google Scholar
• Chapey, R., Duchan, J., Elman, R. J., Garcia, L. J., Kagan, A., Lyon, J. G., & Simmons-Mackie, N. (2008). Life-participation approach to aphasia: A statement of values for the future. In R. Chapey (Ed.), Language intervention strategies in aphasia and related neurogenic communication disorders (5th ed., pp. 279–289). Philadelphia, PA: Lippincott Williams & Wilkins.
   Google Scholar
• Code, C. (2003). The quantity of life for people with chronic aphasia. Neuropsychological Rehabilitation, 13(3), 379–390. doi:10.1080/09602010244000255
   PubMed Web of Science ®Google Scholar
• Cruice, M., Worrall, L., & Hickson, L. (2006). Quantifying aphasic people’s social lives in the context of non‐aphasic peers. Aphasiology, 20(12), 1210–1225. doi:10.1080/02687030600790136
   Web of Science ®Google Scholar
• Cruice, M., Worrall, L., & Hickson, L. (2011). Reporting on psychological well-being of older adults with chronic aphasia in the context of unaffected peers. Disability and Rehabilitation, 33(3), 219–228. doi:10.3109/09638288.2010.503835
   PubMed Web of Science ®Google Scholar
• Dalemans, R. J. P., De Witte, L., Wade, D., & Van Den Heuvel, W. (2010). Social participation through the eyes of people with aphasia. International Journal of Language & Communication Disorders, 45(5), 537–550. doi:10.3109/13682820903223633
   PubMed Web of Science ®Google Scholar
• Dalemans, R. J. P., De Witte, L. P., Beurskens, A. J. H. M., Van Den Heuvel, W. J. A., & Wade, D. T. (2010). An investigation into the social participation of stroke survivors with aphasia. Disability and Rehabilitation, 32(20), 1678–1685. doi:10.3109/09638281003649938
   PubMed Web of Science ®Google Scholar
• Dalemans, R. J. P., De Witte, L. P., Wade, D. T., & Van den Heuvel, W. J. A. (2008). A description of social participation in working‐age persons with aphasia: A review of the literature. Aphasiology, 22(10), 1071–1091. doi:10.1080/02687030701632179
   Web of Science ®Google Scholar
• Davidson, B., Howe, T., Worrall, L., Hickson, L., & Togher, L. (2008). Social participation for older people with aphasia: The impact of communication disability on friendships. Topics in Stroke Rehabilitation, 15(4), 325–340. doi:10.1310/tsr1504-325
   PubMed Web of Science ®Google Scholar
• Davidson, B., Worrall, L., & Hickson, L. (2003). Identifying the communication activities of older people with aphasia: Evidence from naturalistic observation. Aphasiology, 17(3), 243–264. doi:10.1080/729255457
   Web of Science ®Google Scholar
• Desrosiers, J., Noreau, L., Rochette, A., Bourbonnais, D., Bravo, G., & Bourget, A. (2006). Predictors of long-term participation after stroke. Disability and Rehabilitation, 28(4), 221–230. doi:10.1080/09638280500158372
   PubMed Web of Science ®Google Scholar
• Fougeyrollas, P. (2010). La funambule, le fil et la toile: Transformations réciproques du sens du handicap. Quebec: Presses Université Laval.
   Google Scholar
• Goodglass, H., Kaplan, E., Barresi, B., & Weintraub, S. (2001). The Boston diagnostic aphasia examination BDAE (3rd ed.). Philadelphia, PA: Lippincott Williams & Wilkins.
   Google Scholar
• Goodglass, H., Quadfasel, F. A., & Timberlake, W. H. (1964). Phrase length and the type and severity of aphasia. Cortex, 1(2), 133–153. doi:10.1016/S0010-9452(64)80018-6
   Google Scholar
• Hersh, D. (2009). How do people with aphasia view their discharge from therapy? Aphasiology, 23(3), 331–350. doi:10.1080/02687030701764220
   Web of Science ®Google Scholar
• Hilari, K. (2011). The impact of stroke: Are people with aphasia different to those without? Disability and Rehabilitation, 33(3), 211–218. doi:10.3109/09638288.2010.508829
   PubMed Web of Science ®Google Scholar
• Hilari, K., Northcott, S., Roy, P., Marshall, J., Wiggins, R. D., Chataway, J., & Ames, D. (2010). Psychological distress after stroke and aphasia: The first six months. Clinical Rehabilitation, 24(2), 181–190. doi:10.1177/0269215509346090
   PubMed Web of Science ®Google Scholar
• Hinckley, J. (2006). Finding messages in bottles: Living successfully with stroke and aphasia. Topics in Stroke Rehabilitation, 13(1), 25–36. doi:10.1310/FLJ3-04DQ-MG8W-89EU
   PubMed Web of Science ®Google Scholar
• Howe, T. J., Worrall, L. E., & Hickson, L. M. H. (2008a). Interviews with people with aphasia: Environmental factors that influence their community participation. Aphasiology, 22(10), 1092–1120. doi:10.1080/02687030701640941
   Web of Science ®Google Scholar
• Howe, T. J., Worrall, L. E., & Hickson, L. M. H. (2008b). Observing people with aphasia: Environmental factors that influence their community participation. Aphasiology, 22(6), 618–643. doi:10.1080/02687030701536024
   Web of Science ®Google Scholar
• International Network on the Disability Creation Process. (2013). HDM-DCP. Retrieved from http://www.indcp.qc.ca/hdm-dcp/hdm-dcp
   Google Scholar
• Kong, A. P.-H. (2011). Family members’ report on speech-language pathology and community services for persons with aphasia in Hong Kong. Disability and Rehabilitation, 33(25–26), 2633–2645. doi:10.3109/09638288.2011.579220
   PubMed Web of Science ®Google Scholar
• Le Dorze, G., & Brassard, C. (1995). A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases. Aphasiology, 9(3), 239–255. doi:10.1080/02687039508248198
   Web of Science ®Google Scholar
• Le Dorze, G., & Signori, F.-H. (2010). Needs, barriers and facilitators experienced by spouses of people with aphasia. Disability and Rehabilitation, 32(13), 1073–1087. doi:10.3109/09638280903374121
   PubMed Web of Science ®Google Scholar
• Levasseur, M., Desrosiers, J., & Tribble, D. S.-C. (2007). Comparing the disability creation process and international classification of functioning, disability and health models. The Canadian Journal of Occupational Therapy, 74, 233–242. doi:10.1177/00084174070740S303
   PubMedGoogle Scholar
• Lyon, J. G., Cariski, D., Keisler, L., Rosenbek, J., Levine, R., Kumpula, J., … Blanc, M. (1997). Communication partners: Enhancing participation in life and communication for adults with aphasia in natural settings. Aphasiology, 11(7), 693–708. doi:10.1080/02687039708249416
   Web of Science ®Google Scholar
• Mayring, P. (2000). Qualitative content analysis. Forum Qualitative Sozialforschung/Forum: Qualitative Social Research, 1(2). Advance online publication. Retrieved from http://www.qualitative-research.net/index.php/fqs/article/view/1089/2385
   Google Scholar
• McLaughlin, C. G., & Wyszewianski, L. (2002). Access to care: Remembering old lessons. Health Services Research, 37(6), 1441–1443. doi:10.1111/1475-6773.12171
   PubMed Web of Science ®Google Scholar
• Northcott, S., & Hilari, K. (2011). Why do people lose their friends after a stroke? International Journal of Language & Communication Disorders, 46(5), 524–534. doi:10.1111/j.1460-6984.2011.00079.x
   PubMed Web of Science ®Google Scholar
• Provalis Research. (2007). QDA miner (Version 3.2). Montreal, QC. Retrieved from http://www.provalisresearch.com/QDAMiner/QDAMiner32.html
   Google Scholar
• Ross, A., Winslow, I., Marchant, P., & Brumfitt, S. (2006). Evaluation of communication, life participation and psychological well‐being in chronic aphasia: The influence of group intervention. Aphasiology, 20(5), 427–448. doi:10.1080/02687030500532786
   Web of Science ®Google Scholar
• Rowland, A., & McDonald, L. (2009). Evaluation of social work communication skills to allow people with aphasia to be part of the decision making process in healthcare. Social Work Education, 28(2), 128–144. doi:10.1080/02615470802029965
   Google Scholar
• Shadden, B. (2005). Aphasia as identity theft: Theory and practice. Aphasiology, 19(3–5), 211–223. doi:10.1080/02687930444000697
   Web of Science ®Google Scholar
• Simmons-Mackie, N., Kagan, A., Christie, C. O. N., Huijbregts, M., McEwen, S., & Willems, J. (2007). Communicative access and decision making for people with aphasia: Implementing sustainable healthcare systems change. Aphasiology, 21(1), 39–66. doi:10.1080/02687030600798287
   Web of Science ®Google Scholar
• Simmons-Mackie, N., Raymer, A., Armstrong, E., Holland, A., & Cherney, L. R. (2010). Communication partner training in aphasia: A systematic review. Archives of Physical Medicine and Rehabilitation, 91(12), 1814–1837. doi:10.1016/j.apmr.2010.08.026
   PubMed Web of Science ®Google Scholar
• Sorin‐Peters, R. (2004). The evaluation of a learner‐centred training programme for spouses of adults with chronic aphasia using qualitative case study methodology. Aphasiology, 18(10), 951–975. doi:10.1080/02687030444000453
   Web of Science ®Google Scholar
• Wallace, G. (2010). Profile of life participation after stroke and aphasia. Topics in Stroke Rehabilitation, 17(6), 432–450. doi:10.1310/tsr1706-432
   PubMed Web of Science ®Google Scholar
• Worrall, L., Sherratt, S., Rogers, P., Howe, T., Hersh, D., Ferguson, A., & Davidson, B. (2010). What people with aphasia want: Their goals according to the ICF. Aphasiology, 25(3), 309–322. doi:10.1080/02687038.2010.508530
   Web of Science ®Google Scholar