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Original Articles

From patients to teachers: the perspectives of trainers with aphasia in a UK Conversation Partner Scheme

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Pages 195-213 | Received 03 Jul 2014, Accepted 02 Sep 2014, Published online: 30 Sep 2014

References

  • Avent, J., & Austermann, S. (2003). Reciprocal scaffolding: A context for communication treatment in aphasia. Aphasiology, 17, 397–404. doi:10.1080/02687030244000743
  • Avent, J., Patterson, J., Lu, A., & Small, K. (2009). Reciprocal scaffolding treatment: A person with aphasia as clinical teacher. Aphasiology, 23, 110–119. doi:10.1080/02687030802240211
  • Barun, V., & Clarke, V. (2013). Successful qualitative research. A practical guide for beginners. London: Sage.
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. doi:10.1191/1478088706qp063oa
  • Bowen, A., Hesketh, A., Patchick, E., Young, A., Davies, L., Vail, A., … Tyrrell, P. (2012). Effectiveness of enhanced communication therapy in the first four months after stroke for aphasia and dysarthria: A randomised controlled trial. BMJ, 345, e4407. doi:10.1136/bmj.e4407
  • Boyatzis, R. (1998). Thematic analysis and code development: Transforming qualitative information. London: Sage.
  • Carlsson, E., Paterson, B., Scott-Findlay, S., Ehnfors, M., & Ehrenberg, A. (2007). Methodological issues in interviews involving people with communication impairments after acquired brain damage. Qualitative Health Research, 17, 1361–1371. doi:10.1177/1049732307306926
  • Clarke, P. (2003). Towards a greater understanding of the experience of stroke: Integrating quantitative and qualitative methods. Journal of Aging Studies, 17, 171–187. doi:10.1016/S0890-4065(03)00005-7
  • Cruice, M., Worrall, L., & Hickson, L. (2006). Quantifying aphasic people’s social lives in the context of non‐aphasic peers. Aphasiology, 2012, 1210–1225. doi:10.1080/02687030600790136
  • Dalemans, R., de Witte, L., Wade, D., & van den Heuvel, W. (2008). A description of social participation in working-age persons with aphasia: A review of the literature. Aphasiology, 22, 1071–1091. doi:10.1080/02687030701632179
  • Dalemans, R., de Witte, L., Wade, D., & van den Heuvel, W. (2010). Social participation through the eyes of people with aphasia. International Journal of Language & Communication Disorders, 45, 537–550. doi:10.3109/13682820903223633
  • Dalemans, R., Wade, D. T., van den Heuvel, W. J., & de Witte, L. P. (2009). Facilitating the participation of people with aphasia in research: A description of strategies. Clinical Rehabilitation, 23, 948–959. doi:10.1177/0269215509337197
  • Daniel, K., Wolfe, C., Busch, M., & McKevitt, C. (2009). What are the social consequences of stroke for working-aged adults? A systematic review. Stroke, 40, e431–e440. doi:10.1161/STROKEAHA.108.534487
  • Davidson, B., Howe, T., Worrall, L., Hickson, L., & Togher, L. (2008). Social participation for older people with aphasia: The impact of communication disability on friendships. Topics in Stroke Rehabilitation, 15, 325–340. doi:10.1310/tsr1504-325
  • Department of Health. (2007). National stroke strategy. London: Author.
  • Einolf, C., & Chambré, S. M. (2011). Who volunteers? Constructing a hybrid theory. International Journal of Nonprofit and Voluntary Sector Marketing, 16, 298–310. doi:10.1002/nvsm.429
  • Fallahpour, M., Jonsson, H., Joghataei, M. T., Nasrabadi, A. N., & Tham, K. (2013). “I am not living my life”: Lived experience of participation in everyday occupations after stroke in Tehran. Journal of Rehabilitation Medicine, 45. doi:10.2340/16501977-1143
  • Goodglass, H., & Kaplan, E. (1983). The Boston Diagnostic Aphasia Examination. Boston, MA: Lea & Febiger.
  • Guest, G., MacQueen, K., & Namey, E. (2011). Applied thematic analysis. Thousand Oaks, CA: Sage.
  • Hilari, K., Northcott, S., Roy, P., Marshall, J., Wiggins, R. D., Chataway, J., & Ames, D. (2010). Psychological distress after stroke and aphasia: The first six months. Clinical Rehabilitation, 24, 181–190. doi:10.1177/0269215509346090
  • Hinckley, J. L. (2006). Finding messages in bottles: Living successfully with stroke and aphasia. Topics in Stroke Rehabilitation, 13, 25–36. doi:10.1310/FLJ3-04DQ-MG8W-89EU
  • Horton, S., Lane, K., Macrae, I., Bell, C., & Watson, L. (2013, December 3–5). Barriers, enablers, practices and outputs of involvement: Stroke survivors with aphasia as collaborators in a clinical trial. Poster presented at the 8th UK Stroke Forum onference, Harrogate.
  • Horton, S., McVicker, S., & Guyon, A. (2007, September 10–12). Student learning about aphasia: The contribution of Conversation Partners placement experience. Paper presented at the British Aphasiology Society Biennial Conference, Edinburgh.
  • Horton, S., McVicker, S., & Stokes, J. (2010, June 27–29). UK Conversation Partners network – 6 years on. Paper presented at the 14th International Aphasia Rehabilitation Conference, Montreal ON.
  • Howe, T., Worrall, L., & Hickson, L. (2008). Interviews with people with aphasia: Environmental factors that influence their community participation. Aphasiology, 22, 1092–1120. doi:10.1080/02687030701640941
  • Intercollegiate Stroke Working Party. (2012). National clinical guideline for stroke (4th ed.). London: Royal College of Physicians.
  • Jagoe, C., & Roseingrave, R. (2011). “If this is what I’m ‘meant to be’ …”: The journeys of students participating in a Conversation Partner Scheme for people with aphasia. Journal of Academic Ethics, 9, 127–148. doi:10.1007/s10805-011-9140-5
  • Kouwenhoven, S. E., Kirkevold, M., Engedal, K., Biong, S., & Kim, H. S. (2011). The lived experience of stroke survivors with early depressive symptoms: A longitudinal perspective. International Journal of Qualitative Studies in Health & Wellbeing, 6, 8491. doi:10.3402/qhw.v6i4.8491
  • Kubina, L.-A., Dubouloz, C.-J., Davis, C. G., Kessler, D., & Egan, M. Y. (2013). The process of re-engagement in personally valued activities during the two years following stroke. Disability & Rehabilitation, 35, 236–243. doi:10.3109/09638288.2012.691936
  • Lloyd, V., Gatherer, A., & Kalsy, S. (2006). Difficulties conducting qualitative interview research with people with expressive language difficulties. Qualitative Health Research, 16, 1386–1404. doi:10.1177/1049732306293846
  • Luck, A., & Rose, M. (2007). Interviewing people with aphasia: Insights into method adjustments from a pilot study. Aphasiology, 21, 208–224. doi:10.1080/02687030601065470
  • McKevitt, C., Fudge, N., Redfern, J., Sheldenkar, A., Crichton, S., Rudd, A. R., … Wolfe, C. D. A. (2011). Self-reported long-term needs after stroke. Stroke, 42, 1398–1403. doi:10.1161/STROKEAHA.110.598839
  • McVicker, S. (2007). The conversation partner toolkit. London: Connect.
  • McVicker, S., Parr, S., Pound, C., & Duchan, J. (2009). The Communication Partner Scheme: A project to develop long-term, low-cost access to conversation for people living with aphasia. Aphasiology, 23, 52–71. doi:10.1080/02687030701688783
  • National Institute for Health & Care Excellence. (2013). Stroke rehabilitation. Long-term rehabilitation after stroke. NICE clinical guideline 162. Retrieved from http://guidance.nice.org.uk/cg162
  • Pound, C. (2011). Reciprocity, resources, and relationships: New discourses in healthcare, personal, and social relationships. International Journal of Speech-Language Pathology, 13, 197–206. doi:10.3109/17549507.2011.530692
  • Purves, B. A., Petersen, J., & Puurveen, G. (2013). An aphasia mentoring program: Perspectives of speech-language pathology students and of mentors with aphasia. American Journal of Speech Language Pathology, 22, S370–S379. doi:10.1044/1058-0360(2013/12-0071)
  • Ross, K., & Wertz, R. (2003). Quality of life with and without aphasia. Aphasiology, 17, 355–364. doi:10.1080/02687030244000716
  • Sarno, M. T. (1997). Quality of life in aphasia in the first post-stroke year. Aphasiology, 11, 665–679. doi:10.1080/02687039708249414
  • Shadden, B. (2005). Aphasia as identity theft: Theory and practice. Aphasiology, 19, 211–223. doi:10.1080/02687930444000697
  • Skilton, C. J. (2011). Involving experts by experience in assessing students’ readiness to practise: The value of experiential learning in student reflection and preparation for practice. Social Work Education: The International Journal, 30, 299–31. doi:10.1080/02615479.2010.482982
  • Stokes, J., Horton, S., & McVicker, S. (2009, March 18). Conversation partners in progress: Reports and reflections on the learning experience of students, practitioners and people with aphasia. Symposium presented at the Royal College of Speech & Language Therapists Biennial Scientific Conference, London.
  • Wood, J. P., Connelly, D. M., & Maly, M. R. (2010). ‘Getting back to real living’: A qualitative study of the process of community reintegration after stroke. Clinical Rehabilitation, 24, 1045–1056. doi:10.1177/0269215510375901
  • Yardley, L., & Joffe, H. (2004). Content and thematic analysis. In L. Yardley & D. Marks (Eds.), Research methods for clinical and health psychology (pp. 56–88). London: Sage.

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