Which treatment outcomes are most important to aphasia clinicians and managers? An international e-Delphi consensus study

References

• Avent, J., Glista, S., Wallace, S., Jackson, J., Nishioka, J., & Yip, W. (2005). Family information needs about aphasia. Aphasiology, 19, 365–375. doi:10.1080/02687030444000813
   Web of Science ®Google Scholar
• Brady, M. C., Ali, M., Fyndanis, C., Kambanaros, M., Grohmann, K. K., Laska, A.-C., … Varlokosta, S. (2014). Time for a step change? Improving the efficiency, relevance, reliability, validity and transparency of aphasia rehabilitation research through core outcome measures, a common data set and improved reporting criteria. Aphasiology, 1–8. doi:10.1080/02687038.2014.930261
   Web of Science ®Google Scholar
• Brady, M. C., Kelly, H., Godwin, J., & Enderby, P. 2012. Speech and language therapy for aphasia following stroke. Cochrane Database of Systematic Reviews, 5. doi:10.1002/14651858.CD000425.pub3
   PubMed Web of Science ®Google Scholar
• Brown, K., Worrall, L., Davidson, B., & Howe, T. (2011). Exploring speech-language pathologists’ perspectives about living successfully with aphasia. International Journal of Language & Communication Disorders / Royal College of Speech & Language Therapists, 46, 300–311. doi:10.3109/13682822.2010.496762
   PubMed Web of Science ®Google Scholar
• Brumfitt, S., & Sheeran, P. (1999). Vases: Visual analogue self esteem scale. Bicester: Winslow Press.
   Google Scholar
• Carragher, M., Conroy, P., Sage, K., & Wilkinson, R. (2012). Can impairment-focused therapy change the everyday conversations of people with aphasia? A review of the literature and future directions. Aphasiology, 26, 895–916. doi:10.1080/02687038.2012.676164
   Web of Science ®Google Scholar
• Chalmers, I., Bracken, M. B., Djulbegovic, B., Garattini, S., Grant, J., Gülmezoglu, A. M., … Oliver, S. (2014). How to increase value and reduce waste when research priorities are set. The Lancet, 383, 156–165. doi:10.1016/S0140-6736(13)62229-1
   PubMed Web of Science ®Google Scholar
• Cherney, L. R., Patterson, J. P., Raymer, A., Frymark, T., & Schooling, T. (2008). Evidence-based systematic review: Effects of intensity of treatment and constraint-induced language therapy for individuals with stroke-induced aphasia. Journal of Speech, Language & Hearing Research, 51, 1282–1299. doi:10.1044/1092-4388(2008/07-0206)
   PubMed Web of Science ®Google Scholar
• Cieza, A., Brockow, T., Ewert, T., Amman, E., Kollerits, B., Chatterji, S., … Stucki, G. (2002). Linking health-status measurements to the international classification of functioning, disability and health. Journal of Rehabilitation Medicine, 34, 205–210. doi:10.1080/165019702760279189
   PubMed Web of Science ®Google Scholar
• Cieza, A., Geyh, S., Chatterji, S., Kostanjsek, N., Ustun, B., & Stucki, G. (2005). Icf linking rules: An update based on lessons learned. Journal of Rehabilitation Medicine, 37, 212–218. doi:10.1080/16501970510040263
   PubMed Web of Science ®Google Scholar
• Cohen, J. (1960). A coefficient of agreement for nominal scales. Educational and Psychological Measurement, 20, 37–46. doi:10.1177/001316446002000104
   Web of Science ®Google Scholar
• De Ryck, A., Brouns, R., Fransen, E., & Geurden, M. (2013). A prospective study on the prevalence and risk factors of poststroke depression. Cerebrovascular Diseases Extra, 3, 1–13. doi:10.1159/000345557
   PubMedGoogle Scholar
• de Wit, M., Abma, T., Koelewijn-van Loon, M., Collins, S., & Kirwan, J. (2013). Involving patient research partners has a significant impact on outcomes research: A responsive evaluation of the international OMERACT conferences. British Medical Journal Open, 3(5). doi:10.1136/bmjopen-2012-002241
   Google Scholar
• Delbecq, A. L., Van de Ven, A. H., & Gustafson, D. H. (1975). Group techniques for program planning: A guide to nominal group and delphi processes. Glenview, IL: Scott Foresman.
   Google Scholar
• Elsner, B., Kugler, J., Pohl, M., & Mehrholz, J. (2015). Transcranial direct current stimulation (tdcs) for improving aphasia in patients with aphasia after stroke. Cochrane Database of Systematic Reviews, 5. doi:10.1002/14651858.CD009760.pub3
   PubMed Web of Science ®Google Scholar
• Enderby, P., John, A., & Petheram, B. (2007). Therapy outcomes measures for rehabilitation professionals: Speech and language therapy, physiotherapy, occupational therapy (2nd ed.). Chichester, UK: Wiley.
   Google Scholar
• Faroqi-Shah, Y., Frymark, T., Mullen, R., & Wang, B. (2010). Effect of treatment for bilingual individuals with aphasia: A systematic review of the evidence. Journal of Neurolinguistics, 23, 319–341. doi:10.1016/j.jneuroling.2010.01.002
   Web of Science ®Google Scholar
• Folstein, M. F., & Luria, R. E. (1973). Reliability, validity and clinical application of the visual analogue mood scale. Psychological Medicine, 3, 479–486. doi:10.1017/S0033291700054283
   PubMed Web of Science ®Google Scholar
• Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105–112. doi:10.1016/j.nedt.2003.10.001
   PubMed Web of Science ®Google Scholar
• Guo, Y. E., Togher, L., & Power, E. (2014). Speech pathology services for people with aphasia: What is the current practice in singapore? Disability and Rehabilitation, 36, 691–704. doi:10.3109/09638288.2013.804597
   PubMed Web of Science ®Google Scholar
• Higgins, J., & Green, S. (2011). Cochrane handbook for systematic reviews of interventions (Version 5.1.0) [updated March 2011]. Retrieved from http://www.cochrane-handbook.org
   Google Scholar
• Hilari, K., Byng, S., Lamping, D., & Smith, S. (2003). Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39): Evaluation of acceptability, reliability, and validity. Stroke, 34, 1944–1950. doi:10.1161/01.STR.0000081987.46660.ED
   PubMed Web of Science ®Google Scholar
• Hilari, K., Northcott, S., Roy, P., Marshall, J., Wiggins, R. D., Chataway, J., & Ames, D. (2010). Psychological distress after stroke and aphasia: The first six months. Clinical Rehabilitation, 24, 181–190. doi:10.1177/0269215509346090
   PubMed Web of Science ®Google Scholar
• Hula, W. D., Fergadiotis, G., & Doyle, P. J. (2014). A core outcome set for aphasia treatment research: Obstacles, risks, and benefits. Aphasiology, 28, 1396–1399. doi:10.1080/02687038.2014.930264
   Web of Science ®Google Scholar
• Johansson, M. B., Carlsson, M., & Sonnander, K. (2011). Working with families of persons with aphasia: A survey of swedish speech and language pathologists. Disability and Rehabilitation, 33, 51–62. doi:10.3109/09638288.2010.486465
   PubMed Web of Science ®Google Scholar
• Kirkham, J., Boers, M., Tugwell, P., Clarke, M., & Williamson, P. (2013). Outcome measures in rheumatoid arthritis randomised trials over the last 50 years. Trials, 14, 324. doi:10.1186/1745-6215-14-324
   PubMed Web of Science ®Google Scholar
• Kirkham, J. J., Gargon, E., Clarke, M., & Williamson, P. R. (2013). Can a core outcome set improve the quality of systematic reviews?–a survey of the co-ordinating editors of cochrane review groups. Trials, 14, 21. doi:10.1186/1745-6215-14-21
   PubMed Web of Science ®Google Scholar
• Klippi, A., Sellman, J., Heikkinen, P., & Laine, M. (2012). Current clinical practices in aphasia therapy in finland: Challenges in moving towards national best practice. Folia Phoniatrica Et Logopaedica : Official Organ of the International Association of Logopedics and Phoniatrics (IALP), 64, 169–178. doi:10.1159/000341106
   PubMed Web of Science ®Google Scholar
• Koch, T. (2006). Establishing rigour in qualitative research: The decision trail. Journal of Advanced Nursing, 53, 91–100. doi:10.1111/j.1365-2648.2006.03681.x
   PubMed Web of Science ®Google Scholar
• Lanyon, L. E., Rose, M. L., & Worrall, L. (2013). The efficacy of outpatient and community-based aphasia group interventions: A systematic review. International Journal of Speech-Language Pathology, 15, 359–374. doi:10.3109/17549507.2012.752865
   PubMed Web of Science ®Google Scholar
• Le Dorze, G., & Signori, F. H. (2010). Needs, barriers and facilitators experienced by spouses of people with aphasia. Disability & Rehabilitation, 32, 1073–1087. doi:10.3109/09638280903374121
   PubMed Web of Science ®Google Scholar
• MacWhinney, B. (2014). Challenges facing cos development for aphasia. Aphasiology, 1–3. doi:10.1080/02687038.2014.930263
   Web of Science ®Google Scholar
• National Health and Medical Research Council. (2000). How to use the evidence: Assessment and application of scientific evidence. Canberra: Author.
   Google Scholar
• Perry, A., Morris, M., Unsworth, C., Duckett, S., Skeat, J., Dodd, K., … Reilly, K. (2004). Therapy outcome measures for allied health practitioners in Australia: The austoms. International Journal for Quality in Health Care, 16, 285–291. doi:10.1093/intqhc/mzh059
   PubMed Web of Science ®Google Scholar
• Rose, M., Ferguson, A., Power, E., Togher, L., & Worrall, L. (2014). Aphasia rehabilitation in Australia: Current practices, challenges and future directions. International Journal of Speech-Language Pathology, 16, 169–180. doi:10.3109/17549507.2013.794474
   PubMed Web of Science ®Google Scholar
• Sautenet, B., Caille, A., Halimi, J. M., Goupille, P., & Giraudeau, B. (2013). Better reporting and greater homogeneity in outcome measures are seen in randomized trial protocols when guidelines exist. Journal of Clinical Epidemiology, 66, 838–846. doi:10.1016/j.jclinepi.2013.03.015
   PubMed Web of Science ®Google Scholar
• Sekhon, J. K., Douglas, J., & Rose, M. L. (2015). Current australian speech-language pathology practice in addressing psychological well-being in people with aphasia after stroke. International Journal of Speech-Language Pathology, 17, 252–262. doi:10.3109/17549507.2015.1024170
   PubMed Web of Science ®Google Scholar
• Simmons-Mackie, N., Raymer, A., Armstrong, E., Holland, A., & Cherney, L. R. (2010). Communication partner training in aphasia: A systematic review. Archives of Physical Medicine and Rehabilitation, 91, 1814–1837. doi:10.1016/j.apmr.2010.08.026
   PubMed Web of Science ®Google Scholar
• Simmons-Mackie, N., Threats, T. T., & Kagan, A. (2005). Outcome assessment in aphasia: A survey. Journal of Communication Disorders, 38, 1–27. doi:10.1016/j.jcomdis.2004.03.007
   PubMed Web of Science ®Google Scholar
• Sinha, I. P., Smyth, R. L., & Williamson, P. R. (2011). Using the delphi technique to determine which outcomes to measure in clinical trials: Recommendations for the future based on a systematic review of existing studies. PLoS Medicine, 8, e1000393. doi:10.1371/journal.pmed.1000393
   PubMed Web of Science ®Google Scholar
• Swinburn, K., Porter, G., & Howard, D. (2005). Comprehensive aphasia test. New York, NY: The Psychology Press, Taylor and Francis.
   Google Scholar
• Verna, A., Davidson, B., & Rose, T. (2009). Speech-language pathology services for people with aphasia: A survey of current practice in Australia. International Journal of Speech-Language Pathology, 11, 191–205. doi:10.1080/17549500902726059
   Web of Science ®Google Scholar
• Wallace, S. J., Worrall, L., Rose, T., & Le Dorze, G. (2014a). A good outcome for aphasia. Aphasiology, 28, 1400–1404. doi:10.1080/02687038.2014.935119
   Web of Science ®Google Scholar
• Wallace, S. J., Worrall, L., Rose, T., & Le Dorze, G. (2014b). Measuring outcomes in aphasia research: A review of current practice and an agenda for standardisation. Aphasiology, 28, 1364–1384. doi:10.1080/02687038.2014.930262
   Web of Science ®Google Scholar
• Wallace, S. J., Worrall, L., Rose, T., & Le Dorze, G. (in press). Core outcomes in aphasia treatment research: An e-delphi consensus study of international aphasia researchers. American Journal of Speech-Language Pathology.
   Web of Science ®Google Scholar
• Wallace, S. J., Worrall, L., Rose, T., Le Dorze, G., Cruice, M., Isaksen, J., … Alary Gauvreau, C. (in press). Which outcomes are most important to people with aphasia and their families? An international nominal group technique study framed within the icf. Disability & Rehabilitation.
   Web of Science ®Google Scholar
• Williamson, P. R., Altman, D. G., Blazeby, J. M., Clarke, M., Devane, D., Gargon, E., & Tugwell, P. (2012). Developing core outcome sets for clinical trials: Issues to consider. Trials, 13, 132. doi:10.1186/1745-6215-13-132
   PubMed Web of Science ®Google Scholar
• World Health Organization. (2001). World Health Organization: International classification of functioning, disability and health (ICF). Geneva: Author.
   Google Scholar
• World Health Organization. (2014). Definition of region groupings. Retrieved from http://www.who.int/healthinfo/global_burden_disease/definition_regions/en/
   Google Scholar
• Worrall, L., Sherratt, S., Rogers, P., Howe, T., Hersh, D., Ferguson, A., & Davidson, B. (2011). What people with aphasia want: Their goals according to the icf. Aphasiology, 25, 309–322. doi:10.1080/02687038.2010.508530
   Web of Science ®Google Scholar
• Xiong, T., Bunning, K., Horton, S., & Hartley, S. (2011). Assessing and comparing the outcome measures for the rehabilitation of adults with communication disorders in randomised controlled trials: An international classification of functioning, disability and health approach. Disability and Rehabilitation, 33, 2272–2290. doi:doi:10.3109/09638288.2011.568666
   PubMed Web of Science ®Google Scholar