References
- Baker, K. L., & Robertson, N. (2008). Coping with caring for someone with dementia: Reviewing the literature about men. Aging & Mental Health, 12(4), 413–422. doi:10.1080/13607860802224250
- Baxter, B., & Jack, S. (2008). Qualitative case study methodology: Study design and implementation for novice researchers. The Qualitative Report, 13, 544–559. Retrieved from http://www.nova.edu/sss/QR/QR13-4/baxter.pdf
- Boots, L. M. M., Wolfs, C. A. G., Verhey, F. R. J., Kempen, G. I. J. M., & de Vugt, M. E. (2015). Qualitative study on needs and wishes of early-stage dementia caregivers: The paradox between needing and accepting help. International Psychogeriatrics, 27, 927–936. doi:10.1017/S1041610214002804
- Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. doi:10.1191/1478088706qp063oa
- Charmaz, K. (2014). Constructing grounded theory (2nd ed.). London: SAGE.
- Clare, L., Nelis, S. M., Whitaker, C. J., Martyr, A., Markova, I. S., Roth, I., … Morris, R. G. (2012). Marital relationship quality in early-stage dementia: Perspectives from people with dementia and their spouses. Alzheimer Disease & Associated Disorders, 26, 148–158. doi:10.1097/WAD.0b013e318221ba23
- Coombs, U. E. (2007). Spousal caregiving for stroke survivors. Journal of Neurosciences Nursing, 39(2), 112–119. doi:10.1097/01376517-20070400-00008
- De Vugt, M. E., RiedijK, S. R., Aalten, P., Tibben, A., van Swieten, J. C., & Verhey, F. R. J. (2006). Impact of behavioural problems on spousal caregivers: A comparison between alzheimer’s disease and frontotemporal dementia. Dementia and Geriatric Cognitive Disorders, 22, 35–41. doi:10.1159/0000931002
- De Vugt, M. E., & Verhey, F. R. J. (2012). The impact of early dementia diagnosis and intervention on informal caregivers. Progress in Neurobiology, 110, 54–62. doi:10.106/j.pneurobio.2013.04.005
- Frith, H., & Gleeson, K. (2004). Clothing and embodiment: Men managing body image and appearance. Psychology of Men & Masculinity, 5, 40–48. doi:10.1037/1524-9220.5.1.40
- Garand, L., Dew, M. A., Urda, B., Hagerty Lingler, J., DeKosky, S. T., & Reynolds, C. F. (2007). Marital quality in the context of mild cognitive impairment. Western Journal of Nursing Research, 29, 976–992. doi:10.1177/0193945907303086
- Gilden, D. M., Kubisak, J. M., Kahle-Wrobleski, K., Ball, D. E., & Bowman, L. (2014). Using U.S. medicare records to evaluate the indirect health effects on spouses: A case study in Alzheimer’s disease patients. BioMed Central Health Services Research, 14, 291–301. doi:10.1186/1472-6963-14-291
- Gorno-Tempini, M. L., Hillis, A. E., Weintraub, S., Kertesz, A., Mendez, M., Cappa, S. F., & Grossman, M. (2011). Classification of primary progressive aphasia and its variants. Neurology, 76, 1006–1014. doi:10.1212/WNL.0b03e31821103e6
- Harciarek, M., Sitek, E., & Kertesz, A. (2014). The patterns of progression in primary progressive aphasia – Implications for assessment and management. Aphasiology, 28, 964–980. doi:10.1080/02687038.2014.904498
- Hodges, J. R., Mitchell, J., Dawson, K., Spillantini, M. G., Xuereb, J., McMonagle, P., … Patterson, K. (2010). Semantic dementia: Demography, familial factors and survival in a consecutive series of 100 cases. Brain, 133, 300–306. doi:10.1093/brain/awp248
- Hsieh, S., Irish, M., Daveson, N., Hodges, J. R., & Piguet, O. (2013). When one loses empathy: Its effects on carers of patients with dementia. Journal of Geriatric Psychiatry and Neurology, 26,3, 174–184. doi:10.1177/0891988713495448
- Kaiser, S., & Panegyres, P. K. (2007). The psychosocial impact of young onset dementia on spouses. American Journal of Alzheimer’s Diesase and Other Dementias, 21. doi:10.1177/1533317506293259
- Kindell, J., Sage, K., Wilkinson, R., & Keady, J. (2014). Living with semantic dementia: A case study of one family’s experience. Qualitative Health Research, 24, 401–411. doi:10.1177/1049732314521900
- Knopman, D., & Roberts, R. (2011). Estimating the number of people with frontotemporal lobar degeneration in the US population. Journal of Molecular Neurosciences, 45, 330–335. doi:10.1007/s12031-011-9537-y
- Mesulum, M. M., Wieneke, C., Thompson, C., Rogalski, E., & Weintraub, S. (2012). Quantitative classification of primary progressive aphasia at early and mild impairment stages. Brain, 135, 1537–1553. doi:10.1093/brain/aws080
- Morgan, D. G., Walls-Ingram, S., Cammer, A., O’Connell, M. E., Crossley, M., Dal Bello-Haas, V., … Stewart, N. (2014). Informal caregivers’ hopes and expectations of a referral to a memory clinic. Social Science and Medicine, 102, 111–118. doi:10.1016/j.socscimed.2013.11.023
- Pozzebon, M., Douglas, J., & Ames, D. (2016). Spouses’ experience of living with a partner diagnosed with a dementia: A synthesis of the qualitative research. International Psychogeriatrics, 28, 537–556. doi:10.1017/S1041610215002239
- QSR International Pty Ltd. (2015). NVivo qualitative data analysis software (Version 11). Retrieved from www.qsrinternational.com/product/nvivo11
- Riedl, L., Last, D., Danek, A., & Diehl-Schmid, J. (2014). Long-term follow-up in primary progressive aphasia: Clinical course and health care utilisation. Aphasiology, 28, 981–992. doi:10.1080/02687038.2014.904497
- Roller, M. R., & Lavrakas, P. J. (2015). Applied qualitative research design: A total quality framework approach. New York, NY: Guilford Press.
- Rutherford, S. (2014). Our journey with primary progressive aphasia. Aphasiology, 28, 900–908. doi:10.1080/02687038.2014.930812
- Sorin-Peters, R. (2004). Discussion – The case for qualitative case study methodology in aphasia: An introduction. Aphasiology, 18,10, 937–949. doi:10.1080/02687030444000444
- Speechly, C. M., Bridges-Web, C., & Passmore, E. (2008). The pathway to dementia diagnosis. The Medical Journal of Australia, 189, 487–489. https://www.mja.com.au/journal/2008/189/9/pathway-dementia-diagnosis
- Stake, R. (1994). Case Study. In N. Denzin & Y. Lincoln (Eds.), Handbook of qualitative research (pp. 236–247). Thousand Oaks, CA: Sage.
- Stake, R. E. (1995). The art of case study research. Thousand Oaks, CA: Sage.
- Stake, R. E. (2006). Multiple case study analysis. New York, NY: Guilford Press.
- Van Vliet, D., De Vugt, M. E., Bakker, C., Koopmans, R. T. C. M., Pijnenburg, Y. A. L., Vernooij-Dassen, M. J. F. J., & Verhey, F. R. J. (2011). Caregivers’ perspectives on the pre-diagnostic period in early onset dementia: A long and winding road. International Psychogeriatrics, 23. doi:10.1017/S1041610211001013
- Yin, R. K. (2014). Case study research: Design and methods (5th ed.). Thousand Oaks, CA: Sage.