Preliminary outcomes from a pilot study of personalised online supported conversation for participation intervention for people with Aphasia

References

• Antonucci, T., & Akiyama, H. (1987). Social networks in adult life and a preliminary examination of the convoy model. Journal of Gerontology, 42(5), 519–527. https://doi.org/10.1093/geronj/42.5.519
   PubMedGoogle Scholar
• Babbitt, E., Heinemann, A., Semik, P., & Cherney, L. (2011). Psychometrics properties of the Communication Confidence Rating Scale for Aphasia (CCRSA): Phase 2. Aphasiology, 25(6–7), 727–735. https://doi.org/10.1080/02687038.2010.537347
   Web of Science ®Google Scholar
• Brown, K., Worrall, L., Davidson, B., & Howe, T. (2010). Snapshots of success: An insider perspective on living successfully with aphasia. Aphasiology, 24(10), 1267–1295. https://doi.org/10.1080/02687031003755429
   Web of Science ®Google Scholar
• Brown, K., Worrall, L., Davidson, B., & Howe, T. (2011). Exploring speech-language pathologists’ perspectives about living successfully with aphasia. International Journal of Language and Communication Disorders, 46(3), 300–311. https://doi.org/10.3109/13682822.2010.496762
   PubMed Web of Science ®Google Scholar
• Caute, A., & Woolf, C. (2016). Using voice recognition software to improve communicative writing and social participation in and individual with severe acquired dysgraphia: An experimental single-case therapy study. Aphasiology, 30(2–3), 245–268. https://doi.org/10.1080/02687038.2015.1041095
   Web of Science ®Google Scholar
• Caute, A., Woolf, C., Wilson, S., Stokes, C., Monnelly, K., Cruice, M., Bacon, K., & Marshall, J. (2019). Technology-enhanced reading therapy for people with aphasia: Findings from a quasi-randomised waitlist controlled study. Journal of Speech Language and Hearing Research, 62(12), 4382–4416. https://doi.org/10.1044/2019_JSLHR-L-18-0484
   PubMed Web of Science ®Google Scholar
• Cherney, L., Babbitt, E., Semik, P., & Heinemann, A. (2011). Psychometric properties of the Communication Confidence Rating Scale for Aphasia (CCRSA): Phase 1. Topics in Stroke Rehabilitation, 18(4), 352–360. https://doi.org/10.1310/tsr1804-352
   PubMed Web of Science ®Google Scholar
• Cruice, M., Blom Johansson, M., Isaksen, J., & Horton, S. (2018). Reporting interventions in communication partner training: A critical review and narrative synthesis of the literature. Aphasiology, 32(10), 1135–1166. https://doi.org/10.1080/02687038.2018.1482406
   Web of Science ®Google Scholar
• Cruice, M., Worrall, L., & Hickson, L. (2006). Quantifying aphasic people’s social lives in the context of their non-aphasic peers. Aphasiology, 20(12), 1210–1225. https://doi.org/10.1080/02687030600790136
   Web of Science ®Google Scholar
• Cruice, M., Worrall, L., Hickson, L., & Murison, R. (2003). Finding a focus for quality of life with aphasia: Social and emotional health, and psychological well-being. Aphasiology, 17(4), 333–353. https://doi.org/10.1080/02687030244000707
   Web of Science ®Google Scholar
• Dalemans, R., de Witte, L., Wade, D., & van den Heuvel, W. (2010). Social participation through the eyes of people with aphasia. International Journal of Language and Communication Disorders, 45(5), 537–550. https://doi.org/10.3109/13682820903223633
   PubMed Web of Science ®Google Scholar
• Davidson, B., Howe, T., Worrall, L., Hickson, L., & Togher, L. (2008). Social participation for older people with aphasia: The impact of communication disability on friendships. Topics in Stroke Rehabilitation, 15(4), 325–340. https://doi.org/10.1310/tsr1504-325
   PubMed Web of Science ®Google Scholar
• Enderby, P., Pickstone, C., John, A., Fryer, K., Cantrell, A., & Papaioannou, D. (2009). Resource manual for commissioning and planning services for SLCN. Royal college of speech and language therapists. The Royal College of Speech and Language Therapists. Accessed from https://www.rcslt.org/speech_and_language_therapy/commissioning/aphasia_plus_intro on 03/August/2017.
   Google Scholar
• Estes, C., & Bloom, R. (2011). Using voice recognition software to treat dysgraphia in a patient with conduction aphasia. Aphasiology, 25(3), 366–385. https://doi.org/10.1080/02687038.2010.493294
   Web of Science ®Google Scholar
• Finch, E., Cameron, A., Fleming, J., Lethlean, J., Hudson, K., & McPhail, S. (2017). Does communication partner training improve the conversation skills of speech-language pathology students when interacting with people with aphasia? Journal of Communication Disorders, 68, 1–9. https://doi.org/10.1016/j.jcomdis.2017.05.004
   PubMed Web of Science ®Google Scholar
• Greenhalgh, T., Vijayraghavan, S., Wherton, J., Shaw, S., Byrne, E., Campbell-Richards, D., Bhattacharya, S., Hanson, P., Ramoutar, S., Gutteridge, C., Hodkinson, I., Collard, A., & Morris, J. (2016). Virtual online consultations: Advantages and limitations (VOCAL) study. BMJ Open, 6(1), e009388. https://doi.org/10.1136/bmjopen-2015-009388
   PubMed Web of Science ®Google Scholar
• Grohn, B., Worrall, L., Simmons-Mackie, N., & Brown, K. (2012). The first 3-months post-stroke: What facilitates successfully living with aphasia? International Journal of Speech-language Pathology, 14(4), 390–400. https://doi.org/10.3109/17549507.2012.692813
   PubMed Web of Science ®Google Scholar
• Hasson, N., & Joffe, V. (2007). The case for dynamic assessment in speech and language therapy. Child Language Teaching and Therapy, 23(1), 9–25. https://doi.org/10.1177/0265659007072142
   Google Scholar
• Helm-Estabrooks, N. H. (2001). Cognitive Linguistic Quick Test (CLQT). The Psychological Corporation.
   Google Scholar
• Herbert, D., Lindsay, M., McIntyre, A., Kirton, A., Rumney, P., Bagg, S., Bayley, M., Dowlatshahi, D., Dukelow, S., Garnhum, M., Glasser, E., Halabi, M.-L., Kang, E., MacKay-Lyons, M., Martino, R., Rochette, A., Rowe, S., Salbach, N., Semenko, B., Swinton, L., … Teasell, R. (2016). Canadian stroke best practice recommendations: Stroke rehabilitation practice guidelines, update 2015. International Journal of Stroke, 11(4), 459–484. https://doi.org/10.1177/1747493016643553
   PubMed Web of Science ®Google Scholar
• Hersh, D., Worrall, L., Howe, T., Sherratt, S., & Davidson, B. (2012). SMARTER goal setting in aphasia rehabilitation. Aphasiology, 26(2), 220–233. https://doi.org/10.1080/02687038.2011.640392
   Web of Science ®Google Scholar
• Hickey, E., Bourgeois, M., & Olswang, L. (2004). Effects of training volunteers to converse with nursing home residents with aphasia. Aphasiology, 18(5–7), 625–637. https://doi.org/10.1080/02687030444000093
   Web of Science ®Google Scholar
• Hilari, K., Needle, J., & Harrison, K. (2012). What are the important factors in health-related quality of life for people with aphasia? A systematic review. Archives of Physical Medicine and Rehabilitation, 93(1 SUPP), S86–S95. https://doi.org/10.1016/j.apmr.2011.05.028
   PubMed Web of Science ®Google Scholar
• Hilari, K., Wiggins, R., Roy, P., Byng, S., & Smith, S. (2003). Predictors of health-related quality of life (HRQL) in people with chronic aphasia. Aphasiology, 17(4), 365–381. https://doi.org/10.1080/02687030244000725
   Web of Science ®Google Scholar
• Hinckley, J., & Packard, M. (2001). Family education seminars and social functioning of adults with aphasia. Journal of Communication Disorders, 34(3), 241–254. https://doi.org/10.1016/S0021-9924(01)00049-1
   PubMed Web of Science ®Google Scholar
• Kagan, A. (1998). Supported conversation for adults with aphasia: Methods and resources for training conversation partners. Aphasiology, 12(9), 816–830. https://doi.org/10.1080/02687039808249575
   Web of Science ®Google Scholar
• Kearns, A., Kelly, H., & Pitt, I. (2019). Self-reported feedback in ICT-delivered aphasia rehabilitation: A literature review. Disability and Rehabilitation, 1–15. Epub ahead of print. https://doi.org/10.1080/09638288.2019.1655803
   Web of Science ®Google Scholar
• Kearns, A., Kelly, H., & Pitt, I. (2020). Rating experience of ICT-delivered aphasia rehabilitation: Co-design of a feedback questionnaire. Aphasiology, 34(3), 319–342. https://doi.org/10.1080/02687038.2019.1649913
   Web of Science ®Google Scholar
• Kontou, E., Thomas, S., & Lincoln, N. (2012). Psychometrics properties of a revised version of the visual analog mood scales. Clinical Rehabilitation, 26(12), 1133–1140. https://doi.org/10.1177/0269215512442670
   PubMed Web of Science ®Google Scholar
• Lyon, J., Cariski, Keisler, L., Rosenbek, J., Levine, R., Kumpula, J., Cariski, D., Ryff, C., Coyne, S., & Blanc, M. (1997). Communication partners: Enhancing participation in life and communication for adults with aphasia in natural settings. Aphasiology, 11(7), 693–708. https://doi.org/10.1080/02687039708249416
   Web of Science ®Google Scholar
• Marshall, J., Caute, A., Chadd, K., Cruice, M., Monnelly, K., Wilson, S., & Woolf, C. (2019). Technology enhanced writing therapy for people with aphasia: Results of a quasi-randomised waitlist controlled study. International Journal of Language and Communication Disorders, 54(2), 203–220. https://doi.org/10.1111/1460-6984.12391
   PubMed Web of Science ®Google Scholar
• McMenamin, R., Tierney, E., & MacFarlane, A. (2015). Addressing the long-term impacts of aphasia: How far does the conversation partner programme go? Aphasiology, 29(8), 889–913. https://doi.org/10.1080/02687038.2015.1004155
   Web of Science ®Google Scholar
• McVicker, S., Parr, S., Pound, C., & Duchan, J. (2009). The communication partner scheme: A project to develop long-term, low-cost access to conversation for people living with aphasia. Aphasiology, 23(1), 52–71. https://doi.org/10.1080/02687030701688783
   Web of Science ®Google Scholar
• Meltzer, J., Baird, A., Steele, R., & Harvey, S. (2018). Computer-based treatment of post-stroke language disorders: A non-inferiority study of telerehabilitation compared to in-person service delivery. Aphasiology, 32(3), 290–311. https://doi.org/10.1080/02687038.2017.1355440
   Web of Science ®Google Scholar
• Naetterlund, B. S. (2010). A new life with aphasia: Everyday activities and social support. Scandinavian Journal of Occupational Therapy, 17(2), 117–129. https://doi.org/10.3109/11038120902814416
   PubMed Web of Science ®Google Scholar
• Northcott, S., & Hilari, K. (2011). Why do people lose their friends after a stroke? International Journal of Language and Communication Disorders, 46(5), 524–534. https://doi.org/10.1111/j.1460-6984.2011.00079.x
   PubMed Web of Science ®Google Scholar
• Northcott, S., Moss, B., Harrison, K., & Hilari, K. (2016). A systematic review of the impact of stroke on social support and social networks: Associated factors and patterns of change. Clinical Rehabilitation, 30(8), 811–831. https://doi.org/10.1177/0269215515602136
   PubMed Web of Science ®Google Scholar
• Ora, H., Kirmess, M., Brady, M., Partee, I., Hognestad, R., Johannessen, B., Thommessen, B., & Becker, F. (2020). The effect of augmented speech-language therapy delivered by telerehabilitation on poststroke aphasia – A pilot randomised controlled trial. Clinical Rehabilitation, 34(3), 369–381. https://doi.org/10.1177/0269215519896616
   PubMed Web of Science ®Google Scholar
• Pitt, R., Hill, A., Theodoros, D., & Russell, T. (2018). “I definitely think it’s a feasible and worthwhile option”: Perspectives of speech-language pathologists providing online aphasia group therapy. Aphasiology, 32(9), 1031–1053. https://doi.org/10.1080/02687038.2018.1482403
   Web of Science ®Google Scholar
• Pitt, R., Theodoros, D., Hill, A., & Russell, T. (2019). The impact of the telerehabilitation group aphasia intervention and networking programme on communication, participation, and quality of life in people with aphasia. International Journal of Speech-language Pathology, 21(5), 513–523. https://doi.org/10.1080/17549507.2018.1488990
   PubMed Web of Science ®Google Scholar
• Power, E., Thomas, E., Worrall, L., Rose, M., Togher, L., Nickels, L., Hersh, D., Godecke, E., O’Halloran, R., Lamont, S., O’Connor, C., & Clarke, K. (2015). Development and validation of Australian aphasia rehabilitation best practice statements using the RAND/UCLA appropriateness method. BMJ Open, 5(7), e007641. https://doi.org/10.1136/bmjopen-2015-007641
   PubMed Web of Science ®Google Scholar
• Rayner, H., & Marshall, J. (2003). Training volunteers as conversation partners for people with aphasia. International Journal of Language and Communication Disorders, 38(2), 149–164. https://doi.org/10.1080/1368282021000060308
   PubMed Web of Science ®Google Scholar
• Roper, A., Marshall, J., & Wilson, S. (2014). Assessing technology use in aphasia. In Proceedings of the 16th International ACM SIGACCESS conference on Computers & accessibility (pp.239–240). Rochester, New York, USA: ACM.
   Google Scholar
• Royal College of Physicians Intercollegiate Stroke Working Party 2016 National Clinical Guideline for Stroke 5th. Royal College of Physicians. Accessed from https://www.strokeaudit.org/SupportFiles/Documents/Guidelines/2016-National-Clinical-Guideline-for-Stroke-5t-(1).aspx on 03/August/2017
   Google Scholar
• Ryan, B., Hudson, K., Worrall, L., Simmons-Mackie, N., Thomas, E., Finch, E., Clark, K., & Lethlean, J. (2017). The Aphasia action, success, and knowledge programme: results from an Australian phase I trial of a speech-pathology-led intervention for people with aphasia early post-stroke. Brain Impairment, 18(3), 284–298. https://doi.org/10.1017/BrImp.2017.5
   Web of Science ®Google Scholar
• Simmons-Mackie, N., Kagan, A., Victor, C., Carling-Rowland, C., Mok, A., Hoch, J., … Streiner, D. (2014). The assessment for living with aphasia: Reliability and construct validity. International Journal of Speech-language Pathology, 16(1), 82–94. https://doi.org/10.3109/17549507.2013.831484
   PubMed Web of Science ®Google Scholar
• Simmons-Mackie, N., Raymer, A., Armstrong, E., Holland, A., & Cherney, L. (2010). Communication partner training in aphasia: A systematic review. Archives of Physical Medicine and Rehabilitation, 91(12), 1814–1837. https://doi.org/10.1016/j.apmr.2010.08.026
   PubMed Web of Science ®Google Scholar
• Simmons-Mackie, N., Raymer, & Cherney, L. (2016). Communication partner training in aphasia: An updated systematic review. Archives of Physical Medicine and Rehabilitation, 97(12), 2202–2221. https://doi.org/10.1016/j.apmr.2016.03.023
   PubMed Web of Science ®Google Scholar
• Swinburn, K., Porter, G., & Howard, D. (2005). The Comprehensive Aphasia Test. Psychology Press.
   Google Scholar
• Thomas, S., Alker, M., MacNivcen, J., Haworth, H., & Lincoln, N. (2013). Communication and Low Mood (CALM): A randomized controlled trial of behavioural therapy for stroke patients with aphasia. Clinical Rehabilitation, 27(5), 398–408. https://doi.org/10.1177/0269215512462227
   PubMed Web of Science ®Google Scholar
• Wallace, S., Worrall, L., Rose, T., & Le Dorze, G. (2017b). Which treatment outcomes are most important to aphasia clinicians and managers? An international e-Delphi consensus study. Aphasiology, 31(6), 643–673. https://doi.org/10.1080/02687038.2016.1186265
   Web of Science ®Google Scholar
• Wallace, S., Worrall, L., Rose, T., Le Dorze, G., Cruice, M., Isaksen, J., Alary Gauvreau, C., Scarinci, N., Gauvreau, C. A., & Kong, A. P. H. (2017a). Which outcomes are most important to people with aphasia and their families? An international nominal group technique study framed within the ICF. Disability and Rehabilitation, 39(14), 1364–1379. https://doi.org/10.1080/09638288.2016.1194899
   PubMed Web of Science ®Google Scholar
• Woolf, C., Caute, A., Haigh, Z., Galliers, J., Wilson, S., Kessie, A., Hirani, S., Hegarty, B., & Marshall, J. (2016). A comparison of remote therapy, face to face therapy and an attention control intervention for people with aphasia: A quasi-randomised controlled feasibility study. Clinical Rehabilitation, 30(4), 359–373. https://doi.org/10.1177/0269215515582074
   PubMed Web of Science ®Google Scholar