290
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Implementing intensive comprehensive aphasia programs in Brazil: Challenges and solutions

ORCID Icon, &
Received 03 Oct 2023, Accepted 28 Jan 2024, Published online: 07 Mar 2024

References

  • Abreu, E. A. d., Balinha, D. M., Costa, M. L. G., & Brandão, L.(2021). Afasia e inclusão social: panorama brasileiro na Fonoaudiologia. Distúrbios da comunicação. São Paulo. 33, 2 (jun. 2021), p. 349–356.
  • Babbitt, E. M., Worrall, L., & Cherney, L. R. (2015). Structure, Processes, and Retrospective Outcomes From an Intensive Comprehensive Aphasia Program. American Journal of Speech-language Pathology?, 24(4), S854–863. doi:10.1044/2015_ajslp-14-0164
  • Baker, C., Worrall, L., Rose, M., Hudson, K., Ryan, B., & O’Byrne, L. (2018). A systematic review of rehabilitation interventions to prevent and treat depression in post-stroke aphasia. Disability and Rehabilitation?, 40(16), 1870–1892. doi:10.1080/09638288.2017.1315181
  • Blom Johansson, M., Carlsson, M., Östberg, P., & Sonnander, K. (2022). Self-reported changes in everyday life and health of significant others of people with aphasia: a quantitative approach. Aphasiology, 36(1), 76–94. doi:10.1080/02687038.2020.1852166
  • Cabral, N. L., Nagel, V., Conforto, A. B., Amaral, C. H., Venancio, V. G., Safanelli, J., and Zetola, V. H. F. (2018). Five-year survival, disability, and recurrence after first-ever stroke in a middle-income country: A population-based study in Joinvile, Brazil. International Journal of Stroke?, 13(7), 725–733. doi:10.1177/1747493018763906
  • Cacho, R. O., Moro, C. H. C., Bazan, R., Guarda, S. N. F. D., Pinto, E. B., Andrade, S. M. M. D. S., Valler, L. A., Ribeiro, K. J., Almeida, K. J., Ribeiro, T. S., de Moura Jucá, R. V. B., Minelli, C., Piemonte, M. A. P., Paschoa, E. H. A., Pedatella, M. T. A., Pontes-Neto, O. M., Fontana, A. P., & Pagnussat, A. S., Conforto, A. B., & Area Study Group,(2022). Access to rehabilitation after stroke in Brazil (AReA study): Multicenter study protocol?. Arquivos de neuro-psiquiatria, 80(10). doi:10.1055/s-0042-1758558.
  • Carleto, N. G., Godoy, M., & Caldana, M. (2016). Programa de orientação fonoaudiológica e psicológica para familiares de pacientes lesionados cerebrais. Distúrbios da Comunicação, 28(2).
  • Cruice, M., Worrall, L., & Hickson, L. (2010). Health-related quality of life in people with aphasia: implications for fluency disorders quality of life research. Journal of Fluency Disorders?, 35(3), 173–189. doi:https://doi.org/10.1016/j.jfludis.2010.05.008?.
  • da Silva Michelini, C. R., & de Lourdes Caldana, M. (2005). Grupo de orientação fonoaudiológica aos familiares de lesionados cerebrais adultos. Revista Cefac, 7(2), 137–148.
  • Dignam, J., Copland, D., McKinnon, E., Burfein, P., O’Brien, K., Farrell, A., & Rodriguez, A. D. (2015). Intensive versus distributed aphasia therapy: a nonrandomized, parallel-group, dosage-controlled study. Stroke, 46(8), 2206–2211.
  • Engelter, S. T., Gostynski, M., Papa, S., Frei, M., Born, C., Ajdacic-Gross, V., …Lyrer, P. A. (2006). Epidemiology of aphasia attributable to first ischemic stroke: incidence, severity, fluency, etiology, and thrombolysis. Stroke, 37(6), 1379–1384. doi:01.STR.0000221815.64093.8c [pii]
  • Godoy, M. R. B. (2020). Cuidando de quem cuida: elaboração de uma cartilha de orientações para os cuidadores familiares de pacientes pós-AVC. Universidade de SãoPaulo, Griffin-Musick,J. R., Off, C. A., Milman, L., Kincheloe, H., & Kozlowski, A.(2021). The impact of a university-based Intensive Comprehensive Aphasia Program (ICAP) on psychosocial well-being in stroke survivors with aphasia. Aphasiology, 35(10), 1363–1389.
  • Guedes, A., Retorno do Brasil ao Mapa da Fome da ONU preocupa senadores e estudiosos. Agência Senado, 14 out. 2022. Disponível em: https://www12.senado.leg.br/noticias/infomaterias/2022/10/retorno-do-brasil-ao-mapa-da-fome-da-onu-preocupa-senadores-e-estudiosos
  • Helm-Estabrooks, N., & Whiteside, J. (2012). Use of life interests and values (LIV) cards for self-determination of aphasia rehabilitation goals. Perspectives on Neurophysiology and Neurogenic Speech and Language Disorders, 22(1), 6–11.
  • Hilari, K., Byng, S., Lamping, D. L., & Smith, S. C. (2003). Stroke and aphasia quality of life scale-39 (SAQOL-39) evaluation of acceptability, reliability, and validity. Stroke, 34(8), 1944–1950.
  • Hilari, K., Needle, J. J., & Harrison, K. L. (2012). What are the important factors in health-related quality of life for people with aphasia? A systematic review. Archives of Physical Medicine and Rehabilitation?, 93(1 Suppl), S86–95 doi:https://doi.org/10.1016/j.apmr.2011.05.028?. Retrieved from
  • Hoover, E. L., & Carney, A. (2014). Integrating the iPad into an intensive, comprehensive aphasia program. Seminars in Speech and Language?, 35(1), 25–37. doi:10.1055/s-0033-1362990
  • Lima, R. R., Borges, R., Lima, H. D. N., Caldana, M. D. L., & Freitas, M. I. D. Á.(2024). A survey on the speech therapy rehabilitation landscape for aphasia in Brazil. Aphasiology. doi:10.1080/02687038.2024.2314325.
  • Lima, R. R., Rose, M., Lima, H. d. N., Cabral, N., Silveira, N. C., & Massi, G. A. (2020). Prevalence of aphasia after stroke in a hospital population in southern Brazil: a retrospective cohort study. Topics in Stroke Rehabilitation?, 27(3), 215–223. doi:10.1080/10749357.2019.1673593
  • Lipp, M. E. N., & de Hoyos Guevara, A. J. (1994). Validação empírica do Inventário de Sintomas de Stress (ISS). Estudos de psicologia, 11(1–3), 43–49.
  • Monteiro, E. A., Mazin, S. C., & Dantas, R. A. S. (2015). The informal caregiver burden assessment questionnaire: Validation for Brazil. Revista Brasileira de Enfermagem, 68, 421–428.
  • Morris, R., Eccles, A., Ryan, B., & Kneebone, I. I. (2017). Prevalence of anxiety in people with aphasia after stroke. Aphasiology, 31(12), 1410–1415. doi:10.1080/02687038.2017.1304633
  • Nascimento, D. (2015). Consciência sobre a Afasia: Inquérito realizado no município de Florianópolis.
  • Off, C. A., Leyhe, A. A., Baylor, C. R., Griffin-Musick, J., & Murray, K. (2022). Patient Perspectives of a University-Based Intensive Comprehensive Aphasia Program for Stroke Survivors with Aphasia. Aphasiology, 1–28.
  • Palma,T.A.l.B.S(2014). Conhecimento sobre afasia da população portuguesa adulta. Barcarena: Universidade Atlântica.
  • Ribeiro Lima, R., Rose, M. L., Lima, H. N., Guarinello, A. C., Santos, R. S., & Massi, G. A. (2021). Socio-demographic factors associated with quality of life after a multicomponent aphasia group therapy in people with sub-acute and chronic post-stroke aphasia. Aphasiology, 35(5), 642–657
  • Rose, M. L., Cherney, L. R., & Worrall, L. E. (2013). Intensive comprehensive aphasia programs: an international survey of practice. Topics in stroke rehabilitation?, 20(5), 379–387. doi:10.1310/tsr2005-379
  • Rose, M. L., Pierce, J. E., Scharp, V. L., Off, C. A., Babbitt, E. M., Griffin-Musick, J. R., & Cherney, L. R. (2022). Developments in the application of Intensive Comprehensive Aphasia Programs: an international survey of practice. Disability and Rehabilitation, 44(20), 5863–5877.
  • Savóia, M. G., Santana, P. R., & Mejias, N. P. (1996). Adaptação do inventário de Estratégias de Coping1 de Folkman e Lazarus para o português. Psicologia usp, 7(1–2), 183–201.
  • Simmons-Mackie, N., & Cherney, L. (2018). Aphasia in North America: Highlights of a White Paper. Archives of physical medicine and rehabilitation, 99, e117. doi:10.1016/j.apmr.2018.07.417
  • Tamietti, G., & Tamietti, G. (2024, January22). Déficit Habitacional no Brasil – NOVO | Fundação João Pinheiro - FJP| Portal Da Fundação João Pinheiro. https://fjp.mg.gov.br/deficit-habitacional-no-brasil/
  • Whiteside, J. D., & Pak Hin Kong, A. (2014). Design Principles and Outcomes of” Aphasia House” an University Intensive Comprehensive Aphasia Program (ICAP). aphasiology.pitt.edu. http://aphasiology.pitt.edu/2577/
  • Wiltsey Stirman, S., Baumann, A. A., & Miller, C. J. (2019). The FRAME: an expanded framework for reporting adaptations and modifications to evidence-based interventions. Implementation Science, 14, 1–10.
  • Yap, P. (2010). Validity and reliability of the Zarit Burden Interview in assessing caregiving burden. Ann Acad Med Singapore, 39 758–763.