54
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Aphasia and acute care: a qualitative study of family perspectives

, ORCID Icon, , ORCID Icon & ORCID Icon
Received 18 Jan 2024, Accepted 23 Jun 2024, Published online: 02 Jul 2024

References

  • Avent, J., Glista, S., Wallace, S., Jackson, J., Nishioka, J., & Yip, W. (2005). Family information needs about aphasia. Aphasiology, 19(3–5), 365–375. https://doi.org/10.1080/02687030444000813
  • Bartlett, G., Blais, R., Tamblyn, R., Clermont, R. J., & MacGibbon, B. (2008). Impact of patient communication problems on the risk of preventable adverse events in acute care settings. Canadian Medical Association Journal, 178(12), 1555–1562. https://doi.org/10.1503/cmaj.070690
  • The Beryl Institute. (2020). Human experience 2030: A vision for the future of healthcare 3. Retrieved April 20, 2022, from https://cdn.ymaws.com/www.theberylinstitute.org/resource/resmgr/hx2030/hx2030_report_2020.pdf
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. ISSN 1478-0887. https://doi.org/10.1191/1478088706qp063oa
  • Canadian Institutes of Health Research. (2015). Guide to knowledge translation planning at CIHR: Integrated and end-of-grant approache. Retrieved April 8, 2022, from https://cihr-irsc.gc.ca/e/45321.html
  • Cheng, B., Ryan, B., Copland, D., & Wallace, S. (2022). Prognostication in poststroke aphasia: Perspectives of significant others of people with aphasia on receiving information about recovery. American Journal of Speech-Language Pathology, 31(2), 896–911. https://doi.org/10.1044/2021_AJSLP-21-00170
  • Clarke, V., & Braun, V. (2017). Thematic analysis. The Journal of Positive Psychology, 12(3), 297–298. https://doi.org/10.1080/17439760.2016.1262613
  • Duffy, R., Fossett, T., Thomas, J., & Stierwalt, J. (2018). Care for people with aphasia and related neurogenic communication disorders in acute hospital settings. In L. L. LaPointe & J. Stierwalt (Eds.), Aphasia and related neurogenic communication disorders (5th ed., pp. 44–54). Thieme Medical Publishers, Inc.
  • Ellis-Hill, C., Robison, J., Wiles, R., McPherson, K., Hyndman, D., Ashburn, A., & Behalf of the Stroke Association. (2009). Going home to get on with life: Patients and carers experiences of being discharged from hospital following a stroke. Disability and Rehabilitation, 31(2), 61–72. https://doi.org/10.1080/09638280701775289
  • Ford, A., Douglas, J., & O’Halloran, R. (2022). The experience of close personal relationships after stroke: Scoping review and thematic analysis of qualitative literature. Brain Impairment, 23(3), 231–261. https://doi.org/10.1017/BrImp.2021.12
  • Foster, A., O’Halloran, R., Rose, M., & Worrall, L. (2016). “Communication is taking a back seat”: Speech pathologists’ perceptions of aphasia management in acute hospital settings. Aphasiology, 30(5), 585–608. https://doi.org/10.1080/02687038.2014.985185
  • Gagliardi, A., Berta, W., Kothari, A., Boyko, J., & Urquhart, R. (2016). Integrated knowledge translation (IKT) in health care: A scoping review. Implementation Science, 11(1), 1–12. https://doi.org/10.1186/s13012-016-0399-1
  • Graham, I. D., Logan, J., Harrison, M. B., Straus, S. E., Tetroe, J., Caswell, W., & Robinson, N. (2006). Lost in knowledge translation: Time for a map? Journal of Continuing Education in the Health Professions, 26(1), 13–24. https://doi.org/10.1002/chp.47
  • Hallé, M. C., & Le Dorze, G. (2014). Understanding significant others’ experience of aphasia and rehabilitation following stroke. Disability and Rehabilitation, 36(21), 1774–1782. https://doi.org/10.3109/09638288.2013.870608
  • Hallé, M. C., LeDorze, G., & Mingant, A. (2014). Speech–language therapists’ process of including significant others in aphasia rehabilitation. Disability and Rehabilitation, 49(6), 748–760. https://doi.org/10.1111/1460-6984.12108
  • Hebert, D., Lindsay, M., McIntyre, A., Kirton, A., Rumney, P. G., Bagg, S., Bayley, M., Dowlatshahi, D., Dukelow, S., Garnhum, M., Glasser, E., Halabi, M. L., Kang, E., MacKay-Lyons, M., Martino, R., Rochette, A., Rowe, S., Salbach, N. & Teasell, R. (2016). Canadian stroke best practice recommendations: Stroke rehabilitation practice guidelines. International Journal of Stroke, 11(4), 459–484. https://doi.org/10.1177/1747493016643553
  • Hemsley, B., Werninck, M., & Worrall, L. (2013). “That really shouldn’t have happened”: People with aphasia and their spouses narrate adverse events in hospital. Aphasiology, 27(6), 706–722. https://doi.org/10.1080/02687038.2012.748181
  • Hersh, D. (2009). How do people with aphasia view their discharge from therapy? Aphasiology, 23(3), 331–350. https://doi.org/10.1080/02687030701764220
  • Hersh, D. (2016). Therapy in transit: Managing aphasia in the early period post stroke. Aphasiology, 30(5), 509–516. https://doi.org/10.1080/02687038.2015.1137555
  • Hersh, D., & Armstrong, E. (2021). Information, communication, advocacy, and complaint: How the spouse of a man with aphasia managed his discharge from hospital. Aphasiology, 35(8), 1067–1083. https://doi.org/10.1080/02687038.2020.1765304
  • Hilton, R., Leenhouts, S., Webster, J., & Morris, J. (2014). Information, support and training needs of relatives of people with aphasia: Evidence from the literature. Aphasiology, 28(7), 797–822. https://doi.org/10.1080/02687038.2014.906562
  • Kagan, A. (2011). A-FROM in action at the aphasia institute. Seminars in Speech and Language, 32(3), 216–228. https://doi.org/10.1055/s-0031-1286176
  • Kagan, A., Black, S., Duchan, J., Simmons-Mackie, N., & Square, P. (2001). Training volunteers as conversation partners using “supported conversation for adults with aphasia” (SCA): A controlled trial. Journal of Speech, Language and Hearing Research, 44(3), 624–638. https://doi.org/10.1044/1092-4388(2001/051)
  • Kagan, A., Simmons-Mackie, N., Villar-Guerrero, E., Chan, M. T., Turczyn, I., Victor, J. C., Shumway, E., Chan, L., Cohen-Schneider, R., & Bayley, M. (2024). Improving communicative access and patient experience in acute stroke care: An implementation journey. Journal of Communication Disorders, 107, 106390. https://doi.org/10.1016/j.jcomdis.2023.106390
  • Kerr, J., Hilari, K., & Litosseliti, L. (2010). Information needs after stroke: What to include and how to structure it on a website. A qualitative study using focus groups and card sorting. Aphasiology, 24(10), 1170–1196. https://doi.org/10.1080/02687030903383738
  • Knight, K., Worrall, L., & Rose, T. (2006). The provision of health information to stroke patients within an acute hospital setting: What actually happens and how do patients feel about it? Topics in Stroke Rehabilitation, 13(1), 78–97. https://doi.org/10.1310/FC6M-P7L0-W3XD-4WAE
  • Le Dorze, G., & Signori, F. H. (2010). Needs, barriers and facilitators experienced by spouses of people with aphasia. Disability and Rehabilitation, 32(13), 1073–1087. https://doi.org/10.3109/09638280903374121
  • Michallet, B., Le Dorze, G., & Tétreault, S. (2001). The needs of spouses caring for severely aphasic persons. Aphasiology, 15(8), 731–747. https://doi.org/10.1080/02687040143000087
  • O’Halloran, R., Grohn, B., & Worrall, L. (2012). Environmental factors that influence communication for patients with a communication disability in acute hospital stroke units: A qualitative metasynthesis. Archives of Physical Medicine and Rehabilitation, 93(Suppl 1), S77–85. https://doi.org/10.1016/j.apmr.2011.06.039
  • Rose, T., Wallace, S., & Leow, S. (2019). Family members’ experiences and preferences for receiving aphasia information during early phases in the continuum of care. International Journal of Speech Language Pathology, 21(5), 470–482. https://doi.org/10.1080/17549507.2019.1651396
  • Rose, T., Worrall, L., McKenna, K., Hickson, L., & Hoffmann, T. (2009). Do people with aphasia receive written stroke and aphasia information? Aphasiology, 23(3), 364–392. https://doi.org/10.1080/02687030802568108
  • Shafer, J., Haley, K., & Jacks, A. (2023). Barriers to informational support for care partners of people with aphasia after stroke. American Journal of Speech-Language Pathology, 32(5), 2211–2231. https://doi.org/10.1044/2023_AJSLP-22-00391
  • Shafer, J., Shafer, P., & Haley, K. (2019). Caregivers navigating rehabilitative care for people with aphasia after stroke: A multi-lens perspective. International Journal of Language & Communication Disorders, 54(4), 634–644. https://doi.org/10.1111/1460-6984.12467
  • Shrubsole, K., Worrall, L., Power, E., & O’Connor, D. (2018). Priorities for closing the evidence-practice gaps in poststroke aphasia rehabilitation: A scoping review. Archives of Physical Medicine & Rehabilitation, 99(7), 1413–1423.e24. https://doi.org/10.1016/j.apmr.2017.08.474
  • Simmons-Mackie, N. (2018). The state of aphasia in North America. Aphasia Access. www.aphasiaaccess.org
  • Simmons-Mackie, N., Kagan, A., O’Neill Christie, C., Huijbregts, M., McEwen, S., & Willems, J. (2007). Communicative access and decision making for people with aphasia: Implementing sustainable healthcare systems change. Aphasiology, 21(1), 39–66. https://doi.org/10.1080/02687030600798287
  • Simmons-Mackie, N., Worrall, L., Murray, L., Enderby, P., Rose, M., Paek, E., & Klippi, A. (2016). ‘The top ten’: Best practice recommendations for aphasia. Aphasiology, 31(2), 131–151. https://doi.org/10.1080/02687038.2016.1180662
  • Stockert, A., Kümmerer, D., & Saur, D. (2016). Insights into early language recovery: From basic principles to practical applications. Aphasiology, 30(5), 517–541. https://doi.org/10.1080/02687038.2015.1119796
  • Threats, T. (2010). The ICF framework and third-party disability: Application to the spouses of persons with aphasia. Topics in Stroke Rehabilitation, 17(6), 451–457. https://doi.org/10.1310/tsr1706-451
  • Winstein, C., Stein, J., Arena, R., Bates, B., Cherney, L. R., Cramer, S. C., Deruyter, F., Eng, J. J., Fisher, B., Harvey, R. L., Lang, C. E., MacKay-Lyons, M., Ottenbacher, K. J., Pugh, S., Reeves, M. J., Richards, L. G., Stiers, W., & Zorowitz, R. D. (2016). Guidelines for adult stroke rehabilitation and recovery. Stroke, 47(6), e98–e169. https://doi.org/10.1161/STR.0000000000000098

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.