434
Views
2
CrossRef citations to date
0
Altmetric
Original Articles

Identity Politics: Participatory Research and Its Challenges Related to Social and Epistemic Control

ORCID Icon, , & ORCID Icon

References

  • Ashmore, R. D., K. Deaux, and T. McLaughlin-Volpe. 2004. “An Organizing Framework for Collective Identity: Articulation and Significance of Multidimensionality.” Psychological Bulletin 130 (1): 80–114. doi:10.1037/0033-2909.130.1.80.
  • Barbot, J. 2006. “How to Build an 'Active' Patient? The Work of AIDS Associations in France.” Social Science & Medicine 62: 538–551. doi:10.1016/j.socscimed.2005.06.025.
  • Bernstein, M. 2005. “Identity Politics.” Annual Review of Sociology 31: 47–74. doi:10.1146/annurev.soc.29.010202.100054.
  • Blume, S. 2010. The Artificial Ear: Cochlear Implants and the Culture of Deafness. New Brunswick, NJ: Rutgers University Press.
  • Bogner, A. 2010. “Let’s Disagree! Talking Ethics in Technology Controversies.” Science, Technology & Innovation Studies 6 (2): 183–201.
  • Böschen, S., and S. Pfersdorf. 2014. “Model of CSO Participation in Research Governance.” CONSIDER: Deliverable D3.3. Karlsruhe (Ms).
  • Braun, K., and S. Schultz. 2010. “A Certain Amount of Engineering Involved. Constructing the Public in Participatory Governance Arrangements.” Public Understanding of Science 19 (4): 403–419. doi:10.1177/0963662509347814.
  • Breakwell, G. M. 1986. Coping with Threatened Identity. London: Methuen.
  • Brown, P., S. Zavestoski, S. McCormick, B. Mayer, R. Morello-Frosch, and R. G. Atman. 2004. “Emobdied Health Movements: New Approaches to Social Movements in Heath.” Sociology of Health & Illness 26 (1): 50–80. doi:10.1111/j.1467-9566.2004.00378.x.
  • Brubaker, R., and R. Cooper. 2000. “Beyond ‘Identity’.” Theory and Society 29: 1–47. doi:10.1023/A:1007068714468.
  • Bucchi, M. 2015. “Changing Contexts for Science and Society Interaction: From Deficit to Dialogue, from Dialogue to Participation – And Beyond?” In The Public Shaping of Medical Research, edited by P. Wehling, W. Viehöver, and S. Koenen, 211–225. London: Routledge.
  • Callon, M., P. Lascoumes, and Y. Barthe. 2009. Acting in an Uncertain World. An Essay on Technical Democracy. Cambridge, MA: MIT-Press.
  • Callon, M., and V. Rabeharisoa. 2008. “The Growing Engagement of Emergent Concerned Groups in Political and Economic Life.” Science, Technology & Human Values 33 (2): 230–261. doi:10.1177/0162243907311264.
  • Chilvers, J., and M. Kearnes, eds. 2016. Remaking Participation: Science, Environment and Emergent Publics. London: Routledge.
  • Clarke, D., C. Murphy, and I. Lorenzoni. 2018. “Place Attachment, Disruption and Transformative Adaptation.” Journal of Environmental Psychology 55: 81–89. doi:10.1016/j.jenvp.2017.12.006.
  • Epstein, S. 1996. Impure Science: AIDS, Activism and the Politics of Knowledge. Berkeley: University of California Press.
  • Epstein, S. 1998. “Gay and Lesbian Movements in the United States: Dilemmas of Identity, Diversity, and Political Strategy.” In The Global Emergence of Gay and Lesbian Politics: National Imprints of a Worldwide Movement, edited by B. D. Adam, D. W. Duyvendak, and A. Krouwel, 30–90. Philadelphia, PA: Temple University Press.
  • Epstein, S. 2008. “Patient Groups and Health Movements.” In Handbook of Science and Technology Studies, edited by O. Hackett, M. Amsterdama, M. Lynch, and J. Wajcman, 499–540. Cambridge, MA: MIT Press.
  • European Commission. 2008. Commission Recommendation on 07/ 02/2008on a Code of Conduct for Responsible Nanosciences and Nanotechnology (No. C(2008) 424 Final). Brussels: European Commission.
  • Felt, U., J. Igelsböck, A. Schikowitz, and T. Völker. 2016. “Transdisciplinary Sustainability Research in Practice: Between Imaginaries of Collective Experimentation and Entrenched Academic Value Orders.” Science, Technology, & Human Values 41 (4): 732–761. doi:10.1177/0162243915626989.
  • Frickel, S., S. Gibbon, J. Howard, J. Kempner, G. Ottinger, and D. Hess. 2010. “Undone Science: Charting Social Movement and Civil Society Challenge to Research Agenda Setting.” Science, Technology & Human Values 35 (4): 444–473. doi:10.1177/0162243909345836.
  • Hall, S. 2000. “Who Needs Identity?” In Identity: A Reader, edited by P. du Gay, J. Evans and P. Redman, 15–30. London: Sage.
  • Hyysalo, S., T. E. Jensen, and N. Oudshoorn, eds. 2016. The New Production of Users. Changing. Innovation Collectives and Involvement Strategies. London: Routledge.
  • Irwin, A. 2002. Citizen Science: A Study of People, Expertise and Sustainable Development. London: Routledge.
  • Kemmis, S., and R. McTaggert. 2005. “Participatory Action Research: Communicative Action and the Public Sphere.” In Handbook of Qualitative Research (3rd Edition), edited by N. Denzin and Y. Lincoln, 559–603. Thousand Oaks: Sage.
  • Kimura, A., and A. Kinchy, eds. 2019. Science by the People. Participation, Power, and the Politics of Environmental Knowledge. New Brunswick, NJ: Rutgers University Press.
  • Klenk, N. L., and K. Meeham. 2017. “Transdisciplinary Sustainability Research beyond Engagement Models: Toward Adventures in Relevance.” Environmental Science and Policy 78: 27–35. doi:10.1016/j.envsci.2017.09.006.
  • Lawler, S. 2014. Identity. Sociological Perspectives. Cambridge: Polity Press.
  • Lewicka, M. 2011. “Place Attachment: How Far Have We Come in the Last 40 Years?.” Journal of Environmental Psychology 31: 207–230. doi:10.1016/j.jenvp.2010.10.001.
  • Lewin, K. 1952. “Group Decision and Social Change.” In Readings in Social Psychology, edited by T. M. Newcomb and E. E. Hartley, 459–473. New York: Holt.
  • Lezaun, J., N. Marres, and M. Tironi. 2017. “Experiments in Participation.” In The Handbook of Science and Technology Studies. 4th ed., edited by U. Felt, et al., 195–221. Cambridge, MA: MIT-Press.
  • Marcovich, A., and T. Shinn. 2011. “Where Is Disciplinarity Going? Meeting on the Borderland.” Social Science Information 50 (34): 582–606. doi:10.1177/0539018411411036.
  • Owen, R., J. Bessant, and M. Heintz, eds. 2013. Responsible Innovation. London: John Wiley.
  • Pohl, C., P. Krütli, and M. Stauffacher. 2017. “Ten Reflective Steps for Rendering Research Societally Relevant.” GAIA 26 (1): 43–51. doi:10.14512/gaia.26.1.10.
  • Pol, J. 2014. “Knowing Patients: Turning Patient Knowledge into Science.” Science, Technology, & Human Values 39 (1): 73–97. doi:10.1177/0162243913504306.
  • Polletta, F., and J. M. Jasper. 2001. “Collective Identity and Social Movements.” Annual Review of Sociology 27: 283–305. doi:10.1146/annurev.soc.27.1.283.
  • Rabeharisoa, V., T. Moreira, and M. Akrich. 2014. “Evidence-based Activism: Patients’ Organisations, Users’ and Activist’s Groups in Knowledge Societies.” BioSocieties 9 (2): 111–128. doi:10.1057/biosoc.2014.2.
  • Revel, M., E. Spruyt, and T. Soubiran. 2013. “FP7 Survey Report: Consider.” Deliverable 2.2. Lille (Ms).
  • Rogers-Hayden, T., and N. Pidgeon. 2007. “Moving Engagement 'Upstream'? Nanotechnologies and the Royal Society and Royal Academy of Engineering’s Inquiry.” Public Understanding of Science 16 (3): 345–364. doi:10.1177/0963662506076141.
  • Schäpke, N., M. Bergmann, F. Stelzer, and D. Lang. 2018. “Labs in the Real World: Advancing Transdisciplinary Research and Sustainability Transformation. Mapping the Field and Emerging Lines of Inquiry.” GAIA 27/S1: 8–11. doi:10.14512/gaia.27.S1.4.
  • Schomberg, R. 2013. “A Vision of Responsible Innovation.” In Responsible Innovation, edited by R. Owen, J. Bessant, and M. Heintz, 51–74. London: John Wiley.
  • Schwartz, S. J., K. Luyckx, and V. L. Vignoles, eds. 2011. Handbook of Identity Theory and Research. Vol. 1: Structures and Processes. Berlin: Springer.
  • Shirk, J., H. L. Ballard, C. C. Wilderman, T. Phillips, A. Wiggins, R. Jordan, E. McCallie et al. 2012. “Public Participation in Scientific Research: A Framework for Deliberative Design.” Ecology & Society 17 (2): 29. DOI:10.5751/ES-04705-170229.
  • Tajfel, H. 1978. “Social Categorization, Social Identity, and Social Comparison.” In Differentiation between Social Groups: Studies in the Social Psychology of Intergroup Relations, edited by H. Tajfel, 61–76. London: Academic Press.
  • Torka, M. 2006. “Die Projektförmigkeit der Forschung.” Die Hochschule: Journal für Wissenschaft und Bildung 15 (1): 63–83.
  • von Hippel, E. 2005. Democratizing Innovation. Cambridge, MA: MIT Press.
  • Wetherell, M. 2010. “The Field of Identity Studies.” In The Sage Handbook of Identities, edited by M. Wetherell and C. T. Mohanty, 4–26. London: Sage.
  • Wynne, B. 2008. “Public Participation in Science and Technology: Performing and Obscuring a Political-Conceptual Category Mistake.” East Asian International STS Journal 1 (1): 1–13.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.