187
Views
23
CrossRef citations to date
0
Altmetric
Research Article

Paid attendant carers hold important and unexpected roles which contribute to the lives of people with brain injury

Pages 943-957 | Published online: 03 Jul 2009

References

  • FROSCH, S., GRUBER, A., JONES, C. et al.: The long-term effects of traumatic brain injury on roles of caregivers. Brain Injury, 11: 891–906, 1997.
  • MARSH, N. V., KERSEL, D. A., HAVILL, J. H. et al.: Caregiver burden at 1 year following severe traumatic brain injury. Brain Injury, 12: 1045–1059, 1998.
  • REES, R. and HANNAFORD, M.: Effects on the primary caregiver when a family member experi-ences acquired brain injury. Australian Journal of Social Issues, 31: 392–399, 1996.
  • BEATTY, P. W., RICHMOND, G. W., TEPPER, S. et al.: Personal assistance for people with physical disabilities: consumer-direction and satisfaction with services. Archives of Physical Medicine and Rehabilitation, 79: 674–677, 1998.
  • PRINCE, J. M., MANLEY, S. and WHETENECK, G. G.: Self-managed versus agency-provided personal assistance care for individuals with high level tetraplegia. Archives of Physical Medicine and Rehabilitation, 7: 919–923, 1995.
  • ATKINS, B. J., MEYER, A. B. and SMITH, N. K.: Personal care attendants: attitudes and factors contributing to job satisfaction. Journal of Rehabilitation, 48: 20–24, 1982.
  • TELMACH, M., POSTMA, J., GOLDSTEIN, S. et al.: Selected factors influencing job satisfaction of attendants of physically disabled adults. Rehabilitation Literature, 42: 130–137, 1981.
  • HUTCHINS, R. K., THORNOCK, M., LINDGRE, B. et al.: Profile of in-home attendant care workers. American Rehabilitation, 4: 18–23, 1978.
  • MILLER, E. L. and ORIE, N. D.: Severely disabled adults and personal care attendants: a pilot study. Rehabilitation Nursing, 12: 185–187, 1987.
  • OPIE, N. D. and M ILT FR, E. L Personal care attendants and severely disabled adults: attributions for relationship outcomes. Archives of Psychiatric Nursing, 3: 205–210, 1989.
  • NOSEK, M. A.: Personal assistance: key to employability of persons with physical disabilities. Journal of Applied Rehabilitation Counselling, 21: 3–8, 1990.
  • NOSEK, M. A.: Relationships between personal assistance and productivity among Japanese adults with severe physical disabilities. Rehabilitation Counselling Bulletin, 35: 105–118, 1991.
  • GILSON, S. F. and CASEBOLT, G. J.: Personal assistance services and case management. Journal of Case Management, 6: 13–17, 1997.
  • SMITH, N. K. and MEYER, A. B.: Personal care attendants: key to living independently. Rehabilitation Literature, 42: 258–265, 1981.
  • FOCUS LEARNING SYSTEMS. Training needs of attendant carers (Sydney: The Motor Accidents Authority of NSW), 1998.
  • PARSONS, T.: The social system (New York: Free Press), 1951.
  • CICHON, E. J. and MASTERTON, J. T.: Physician-patient communication: mutual role expecta-tions. Communication Quarterly, 41: 477–489, 1993.
  • HARDY, M. E. and HARDY, W. L.: Role stress and role strain. In: M. E. Hardy and M. E. Conway (editors) Role Theory: Perspectives of health professionals (Norwalk, Connecticut: Appleton & Lange), pp. 159–239, 1988.
  • FISHER, C. B., REID, j. D. and MELENDEZ, M.: Conflict in families and friendships of later life. Family Relations, 38: 83–89, 1989.
  • STAMP, G. H.: The appropriation of the parental role through communication during the transi-tion to parenthood. Communication Monographs, 61: 89–112, 1994.
  • STAKE, R. E.: The art of case study research (Thousand Oaks: Sage Publications), 1995.
  • STRAUSS, A. and CORBIN, j.: Basics of qualitative research: Techniques and procedures for developing grounded theory (Thousand Oaks: Sage Publications), 1998.
  • RICHARDS, L. and RICHARDS, T.: The NUD*IST system (Non-numerical unstructured data * indexing, search, and theorizing). Qualitative Sociology, 14: 289–306, 1991.
  • LUTFIYYA, Z. M.: When 'staff' and 'clients' become friends. In: A. N. Amado (editor) Friendships and community connections between people with and without developmental disabilities (Baltimore: Paul H. Brookes), pp. 97–107, 1993.
  • ANDREW S. S.: Life in Mendocino: a young man with Down Syndrome in a small town in Northern California. In: S. J. Taylor, R. Bogdan and Z. M. Lutfiyya (editors) The variety of community experience: Qualitative studies of family and community life (Baltimore: Paul H. Brookes), pp. 101–116, 1995.
  • SHOULTZ, B.: 'But they need me!': the story of Anna London. In: S. J. Taylor, R. Bogdan and Z. M. Lutfiyya (editors) The variety of community experience: Qualitative studies offamily and community life (Baltimore: Paul H. Brookes), pp. 9–22, 1995.
  • WELLS, j.: Making it up as we go along: a story about friendships. In: A. N. Arnado (editor) Friendships and community connections between people with and without developmental disabilities (Baltimore: Paul H. Brookes), pp. 197–212, 1993.
  • BELL, R. R.: Worlds of Friendship (Beverly Hills: Sage), 1981.
  • MORSE, J. M.: Negotiating commitment and involvement in the nurse-patient relationship. Journal of Advanced Nursing, 16: 455–468, 1991.
  • MCCOLL, M. A., CARLSON, P., JOHNSTON, J. et al.: The definition of community integration: perspectives of people with brain injuries. Brain Injury, 12: 15–30, 1998.
  • ZENCIUS, A. H. and WESOLOWSKE, M. D.: Is the social network analysis necessary in the rehabili-tation of individuals with head injury? Brain Injury, 13: 723–727, 1999.
  • LAW, M. (editor): Client centred occupational therapy: A model for population-based service (Thorofare: Slack Inc), 1998.
  • CARR, j. H. and SHEPHERD, R. B.: Training motor control, increasing strength and fitness and promoting skill acquisition. In: J. H. Carr and R. B. Shepherd (editors) Neurological rehabilitation: Optimizing motor peOrmance (Oxford: Butterworth-Heinemann), pp. 23–46, 1998.
  • MAGILL, R. A.: Motor learning: Concepts and applications (Madison: WCB Brown & Benchmark), 1993.
  • WILT FR, B. and CORRIGAN, J. D.: Whatever-it-takes: a model for community-based services. Brain Injury, 8: 647–659, 1994.
  • THE ALLANR OEHER_INSTITUTE: Making friends: Developing relationships between people with disabilities and other members of the community (Downsview, Ontario: The Allan Roeher Institute), 1990.
  • AMADO, A. N., CONKLIN, F. and WELLS, j.: Friends: A manual for connecting persons with disabilities and community members (St Paul, Minnesota: Human Services Research and Development Center), 1990.
  • FERSKE, R.: Circles of friends: People with disabilities and their friends enrich the lives of one another (Nashville: Abdingdon Press), 1988.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.