Domains of a TBI minimal data set: Community reintegration phase

References

• Davis DL, Schneider LK. Ramifications of traumatic brain injury for sexuality. Journal of Head Trauma Rehabilitation 1990; 5: 31–37
   Google Scholar
• Schmidt MF, Garvin LJ, Heinemann AW, Kelly JP. Gender- and age-related role changes following brain injury. Journal of Head Trauma Rehabilitation 1995; 10: 14–27
   Web of Science ®Google Scholar
• Willer B, Allen K, Durnan MC, Ferry A. Problems and coping strategies of mothers, siblings and young adult males with traumatic brain injury. Canadian Journal of Rehabilitation 1990; 3: 167–173
   Google Scholar
• Strupp HH, Hadley SW. A tripartite model of mental health and therapeutic outcomes. American Psychologist 1977; 32: 187–196
   PubMed Web of Science ®Google Scholar
• Corrigan JD. Community integration following traumatic brain injury. NeuroRehabilitation 1994; 4: 109–121
   PubMedGoogle Scholar
• Brown M, Gordon WA. Quality of life as a construct in health and disability research. Mount Sinai Medical Journal 1999; 66: 160–169
   PubMed Web of Science ®Google Scholar
• Brown M, Vandergoot D. Quality of life of individuals with traumatic brain injury: Comparison with others living in the community. Journal of Head Trauma Rehabilitation 1998; 13: 1–23
   PubMed Web of Science ®Google Scholar
• Dijkers M. Measuring quality of life: Methodological issues. American Journal of Physical Medicine and Rehabilitation 1999; 78: 286–300
   PubMed Web of Science ®Google Scholar
• Dijkers M. Individualization in quality of life measurement: Instruments and approaches. Archives of Physical Medicine and Rehabilitation 2003; 84: S3–S14
   PubMed Web of Science ®Google Scholar
• Dijkers M. Quality of life research and traumatic brain injury. Archives of Physical Medicine and Rehabilitation 2004; 85(Suppl 2)S21–S35
   PubMed Web of Science ®Google Scholar
• Johnston MV, Miklos CS. Activity-related quality of life in rehabilitation and traumatic brain injury. Archives of Physical Medicine and Rehabilitation 2002; 83(Suppl 2)S26–S38
   PubMed Web of Science ®Google Scholar
• Fuhrer MJ. Assessing medical rehabilitation practices: The promise of outcomes research. Paul M. Brookes, Baltimore 1997, Editor
   Google Scholar
• Hall KM, Johnston MV. Outcomes evaluation in TBI rehabilitation: Part II: Measurement tools for a nationwide data system. Archives of Physical Medicine and Rehabilitation 1994; 75: SC10–SC18
   PubMed Web of Science ®Google Scholar
• Olver JH. Brain injury: The need to assess outcome. Current Opinions in Neurology 1995; 8: 443–446
   PubMed Web of Science ®Google Scholar
• Tulsky DS, Rosenthal M. Quality of life measurement in rehabilitation medicine: Building an agenda for the future. Archives of Physical Medicine and Rehabilitation 2002; 83(Suppl 2)S1–S3
   PubMed Web of Science ®Google Scholar
• Whiteneck GG. Measuring what matters: Key rehabilitation outcomes. Archives of Physical Medicine and Rehabilitation 1994; 75: 1073–1076
   PubMed Web of Science ®Google Scholar
• Brown M, Gordon WA, Haddad L. Models for predicting subjective quality of life in individuals with traumatic brain injury. Brain Injury 2000; 14: 5–19
   PubMed Web of Science ®Google Scholar
• Brown M, Gordon WA. Empowerment in measurement: ‘Muscle’, ‘voice’ and subjective quality of life as a gold standard. Archives of Physical Medicine and Rehabilitation 2004; 85(4, Supplement 2)S13–S20
   PubMedGoogle Scholar
• Diener E, Emmons RA, Larsen RJ, Griffin S. The Satisfaction with Life scale. Journal of Personality Assessment 1985; 49: 71–75
   PubMed Web of Science ®Google Scholar
• Pavot W, Diener E, Colvin CR, Sandvik E. Further validation of the satisfaction with life scale: Evidence for the cross-method convergence of well-being measures. Journal of Personality Assessment 1991; 57: 149–161
   PubMed Web of Science ®Google Scholar
• Pavot W, Diener E. Review of the satisfaction with life scale. Psychological Assessment 1993; 5: 164–172
   Google Scholar
• Bryant RA, Marosszeky JE, Crooks J, Baguley IJ, Gurka JA. Posttraumatic stress disorder and psychosocial functioning after severe traumatic brain injury. Journal of Nervous and Mental Disorders 2001; 189: 109–113
   PubMed Web of Science ®Google Scholar
• Brzuzy S, Speciale BA. Persons with traumatic brain injuries and their families: Living arrangements and well-being post injury. Social Work and Health Care 1997; 26: 77–88
   PubMed Web of Science ®Google Scholar
• Corrigan JD, Smith-Knapp K, Granger CV. Outcomes in the first five years after traumatic brain injury. Archives of Physical Medicine and Rehabilitation 1998; 79: 298–305
   PubMed Web of Science ®Google Scholar
• Corrigan JD, Bogner JA, Mysiw WJ, Clinchot D, Fugate L. Life satisfaction after traumatic brain injury. Journal of Head Trauma Rehabilitation 2001; 16: 543–555
   PubMed Web of Science ®Google Scholar
• Hicken BL, Putzke JD, Novack T, Sherer M, Richards JS. Life satisfaction following spinal cord and traumatic brain injury: A comparative study. Journal of Rehabilitation Research and Development 2002; 39: 359–366
   PubMedGoogle Scholar
• Dijkers M, Layman D, Ashman T, Brown M. Self-report of quality of life by persons with traumatic brain injury: A reliability study. International Society for Quality of Life Research, Orlando, FL Sept./Oct. 2002
   Google Scholar
• Brandt EN, Jr, Pope AM. Enabling America: Assessing the role of rehabilitation science and engineering. National Academy, Washington, DC 1997, Editors
   Google Scholar
• US Department of Health and Human Services PHS. Healthy people: The Surgeon General's report on health promotion and disease prevention. No. DHHS Publication No. PHS 79-55071, US Government Printing Office, Washington, DC 1979
   Google Scholar
• Felmingham KL, Bauley IJ, Crooks J. A comparison of acute and postdischarge predictors of employment 2 years after traumatic brain injury. Archives of Physical Medicine and Rehabilitation 2001; 82: 435–439
   PubMed Web of Science ®Google Scholar
• Dijkers M, Whiteneck G, El-Jaroudi R. Measures of social outcomes in disability research. Archives of Physical Medicine & Rehabilitation 2000; 81(Suppl 2)S63–S80
   PubMed Web of Science ®Google Scholar
• http://www.tbindc.org/, TBI Model Systems National Database [Internet]
   Google Scholar
• http://www.health.state.nm.us/ltsd/tbi/who.html, Traumatic Brain Injury Services: Who helps advocate for people with TBI?, accessed 29 January 2003
   Google Scholar
• http://www.waiting.com/guardianship.html, Legal and financial issues: Guardianship, accessed 29 January 2003
   Google Scholar
• Whiteneck GG, Charlifue SW, Gerhart KA, Overholser JD, Richardson GN. Quantifying handicap: A new measure of long-term rehabilitation outcomes. Archives of Physical Medicine and Rehabilitation 1992; 73: 519–526
   PubMed Web of Science ®Google Scholar
• Whiteneck G, Brooks CA., Charlifue S, Gerhart K, Mellick D, Overholser D, Richardson G. Guide for the use of the CHART: Craig Handicap Assessment and Reporting Technique [Internet]. Craig Hospital , Craig (CO) December 12, 2005, Available online at: http://craighospital.org/Research?Disabilty/CHART%20Manual.pdf
   Google Scholar
• Langlois JA. Traumatic brain injury in the United States: Assessing outcomes in children. Centers for Disease Control and Prevention, Atlanta 2000, (ed.)
   Google Scholar
• United States Department of Commerce. National Health Interview Survey (NHIS). Child Disability Supplement. United States Department of Commerce, Washington, DC 1999
   Google Scholar
• Carney N, du Coudrey H, Davis-O’Reilly C, Zimmer-Gembeck M, Mann NC, Krages KP., Helfand M. Evidence report on rehabilitation of traumatic brain injury in children and adolescents. Agency for Health Care Policy and Research, Rockville, MD 1999
   Google Scholar
• DiScala C, Osberg JS, Savage RC. Children hospitalized for traumatic brain injury: Transition to postacute care. Journal of Head Trauma Rehabilitation 1997; 12(2)1–10
   Web of Science ®Google Scholar
• Rivara JB, Jaffe KM, Polissar NL, Fay GC, Martin KM, Shurtleff HA, Liao S. Family functioning and children. Archives of Physical Medicine and Rehabilitation 1994; 75: 369–379
   PubMed Web of Science ®Google Scholar
• Wade SL, Taylor HG, Drotar D, Stancin T, Yeates KO, Minich NM. A prospective study of long-term caregiver and family adaptation following brain injury in children. Journal of Head Trauma Rehabilitation 2002; 17: 96–111
   PubMed Web of Science ®Google Scholar
• Landgraf JM, Abetz L. The child health questionnaire (CHQ): A user's manual. Health Institute, New England Medical Center, Boston 1996
   Google Scholar
• Simeonsson RJ, McMillen JS, Huntington GS. Participation and environment inventory. Frank Porter Graham Child Development Institute, Chapel Hill, NC 2001
   Google Scholar
• World Health Organization. International classification of functioning, disability and health (ICF; Final Version). World Health Organization, Geneva 2002, Available online at: http://www3.who.int/icf/, accessed 21 January 2002
   Google Scholar
• Bedell GM, Dumas HM. Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury 2004; 18: 65–82
   PubMed Web of Science ®Google Scholar
• Craig Hospital Research Department. Craig Hospital inventory of environmental factors (CHIEF) manual, Version 3.0. Craig Hospital, Englewood, CO 2001
   Google Scholar
• World Health Organization. International classification of impairments, disabilities, and handicaps. World Health Organization, Geneva, Switzerland 1980
   Google Scholar
• Achenbach TM. Manual for the child behavior checklist/4–18 and 1991 profile. University of Vermont Department of Psychiatry, Burlington, Vermont 1991
   Google Scholar
• Jaffe KM, Fay GC, Polissar NL, Fay GC, Liao S. Recovery trends over three years following pediatric traumatic brain injury. Archives of Physical Medicine and Rehabilitation 1995; 76: 17–26
   PubMed Web of Science ®Google Scholar
• Taylor HG, Alden J. Age-related differences in outcomes following childhood brain insults: An introduction and overview. Journal of the International Neuropsychological Society 1997; 3: 555–567
   PubMedGoogle Scholar
• Yeates KO, Taylor HG, Barry CT, Drotar D, Wade SL. Neurobehavioral symptoms in childhood closed-head injuries: Changes in prevalence and correlates during the first year postinjury. Journal of Pediatric Psychology 2001; 26: 79–91
   PubMed Web of Science ®Google Scholar
• Brown M, Gordon WA, Spielman L. Participation in social and recreational activity in the community by individuals with traumatic brain injury. Rehabilitation Psychology 2003; 48: 266–274
   Web of Science ®Google Scholar
• Cifu DX, Kreutzer JS, Marwitz JH, Miller M, Hsu G, Seel RT, Englander J, High W, Zafonte R. Etiology and incidence of rehospitalizations after traumatic brain injury: A multi-center analysis. Archives of Physical Medicine and Rehabilitation 1999; 80: 85–90
   PubMed Web of Science ®Google Scholar
• Marwitz JH, Cifu DX, Englander JE, High WM. A multi-center analysis of rehospitalizations five years after brain injury. Journal of Head Trauma and Rehabilitation 2001; 16: 307–317
   PubMed Web of Science ®Google Scholar